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X-ORIGINAL-URL:https://www.als-mnd.org
X-WR-CALDESC:Events for International Alliance of ALS/MND Associations
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DTSTART:20260308T070000
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DTSTART:20261101T060000
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DTSTART;TZID=America/Toronto:20261015T090000
DTEND;TZID=America/Toronto:20261015T100000
DTSTAMP:20261015T203905
CREATED:20260807T114040Z
LAST-MODIFIED:20260904T170010Z
UID:19962-1792054800-1792058400@www.als-mnd.org
SUMMARY:Webinar: The Use of AI in ALS/MND
DESCRIPTION:This webinar will provide an overview of the rapidly evolving landscape of artificial intelligence. We will look at responsible and trustworthy AI\, and the importance of governance as it relates to the ALS/MND community. Join the conversation about how this growing technology can help enrich quality of life. \nRegister now 
URL:https://www.als-mnd.org/event/webinar-the-use-of-ai/
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261017T140000
DTEND;TZID=America/New_York:20261017T150000
DTSTAMP:20261015T203905
CREATED:20260904T165546Z
LAST-MODIFIED:20260904T165645Z
UID:20047-1792245600-1792249200@www.als-mnd.org
SUMMARY:ALS Association Webinar: So\, What's Next? Understanding the Decisions along an ALS Journey
DESCRIPTION:One of the biggest questions after an ALS diagnosis is\, “What happens next?” This webinar will walk through common changes and the care decisions they may bring\, helping you understand what to expect\, when to start planning\, and how to make informed choices that fit your priorities. \nRegister now
URL:https://www.als-mnd.org/event/decisions/
LOCATION:Online
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261021T070000
DTEND;TZID=America/New_York:20261021T083000
DTSTAMP:20261015T203905
CREATED:20260417T182222Z
LAST-MODIFIED:20260807T113704Z
UID:19429-1792566000-1792571400@www.als-mnd.org
SUMMARY:Member Roundtable: Defining Rights in the Genetics Era of ALS/MND
DESCRIPTION:As genetics becomes increasingly relevant in ALS/MND care and research\, important questions are emerging around access\, consent\, privacy\, equity\, and support. This member roundtable will examine what rights should guide policy and practice in the genetics era\, and how the global community can respond.\n \nGroup discussion (two options to accommodate time zones):\n\nGroup 1: 9:00–10:30 AM ET\nGroup 2: 6:00–7:30 PM ET\n\nRegistration Note: Members only. To register or request more information\, email alliance@als-mnd.org.
URL:https://www.als-mnd.org/event/member-roundtable-defining-rights-in-the-genetics-era-of-als-mnd/
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20261022T130000
DTEND;TZID=America/Chicago:20261022T140000
DTSTAMP:20261015T203905
CREATED:20261006T165842Z
LAST-MODIFIED:20261006T170018Z
UID:20240-1792674000-1792677600@www.als-mnd.org
SUMMARY:Les Turner ALS Foundation: The Access for ALL in ALS Consortium
DESCRIPTION:The Access for ALL in ALS (ALL ALS) Consortium is a nationwide\, NIH-funded clinical research initiative in the United States that collects and shares biological samples and clinical data to accelerate amyotrophic lateral sclerosis (ALS) research.  Aeryn Hopwood and Emma Schmidt of the Les Turner ALS Center at Northwestern Medicine will discuss the structure of the study including the study cohorts\, the inclusion/exclusion criteria\, which cohorts are still enrolling\, the different sites located across the United States\, the importance of identifying biomarkers in ALS\, what the goals of the studies are\, and what data the consortium is collecting actively that will help people living with ALS\, their family members\, and others in the future.  \nAbout the Speakers:  \n\nAeryn Hopwood is currently a Research Coordinator for the Neuromuscular Research team at Northwestern University. Aeryn has worked on clinical trials\, observational trials\, and expanded access protocols. She currently leads 5 different trials and has helped to increase the enrollment of all of her trials. She works directly with the Les Turner ALS Clinic at Northwestern Memorial to identify new potential research participants\, provide support to research participants\, and to notify people living with ALS of research opportunities. She works to create special and meaningful relationships with all of her participants so that they feel comfortable and confident when participating in research.\nEmma Schmidt is currently the Clinical Operations Manager for the Neuromuscular Research team at Northwestern University. She has worked on/overseen over 30 ALS studies. As a manager\, she has more than quadrupled the size of the neuromuscular research team at Northwestern. She has partnered with the Les Turner Foundation\, who supports the Les Turner ALS Clinic at Northwestern Memorial\, to create the My ALS Decision Tool for people living with ALS to learn about research and make an educated decision on participating. She hopes to continue educating both people living with ALS and their caregivers\, care teams\, and support systems about what research is and why it is so important.  \n\nRegister now
URL:https://www.als-mnd.org/event/access-for-all/
ORGANIZER;CN="Les Turner ALS Foundation":MAILTO:info@lesturnerals.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261027T140000
DTEND;TZID=America/New_York:20261027T150000
DTSTAMP:20261015T203905
CREATED:20260904T165657Z
LAST-MODIFIED:20260904T165752Z
UID:20049-1793109600-1793113200@www.als-mnd.org
SUMMARY:ALS Association Webinar: An Honest Look at Hospice and ALS
DESCRIPTION:Hospice is often surrounded by fear and misconceptions\, yet it can be one of the most valuable sources of support during the ALS journey. Join us for an honest discussion about what hospice care looks like in ALS\, what to expect from referral through end of life\, and how to make the most of the services and support available to you and your family. \nRegister now
URL:https://www.als-mnd.org/event/hospice/
LOCATION:Online
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