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X-ORIGINAL-URL:https://www.als-mnd.org
X-WR-CALDESC:Events for International Alliance of ALS/MND Associations
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TZID:America/Toronto
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TZNAME:EDT
DTSTART:20240310T070000
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DTSTART:20241103T060000
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DTSTART;TZID=America/Toronto:20240221T070000
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DTSTAMP:20261011T232744
CREATED:20240119T184159Z
LAST-MODIFIED:20240119T184159Z
UID:16860-1708498800-1708498800@www.als-mnd.org
SUMMARY:Webinar from the International Alliance of ALS/MND Association: Nutrition in ALS/MND
DESCRIPTION:February 21\, 2024 – 7AM ET\nThis webinar will provide an understanding of the importance of nutrition in ALS/MND. We will address nutritional changes upon diagnosis\, considerations for bulbar onset ALS/MND\, and the myths and benefits of feeding tubes. \nRegister Now
URL:https://www.als-mnd.org/event/webinar-from-the-international-alliance-of-als-mnd-association-nutrition-in-als-mnd/
LOCATION:Zoom Webinar
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DTSTART;TZID=America/Toronto:20240221T150000
DTEND;TZID=America/Toronto:20240221T180000
DTSTAMP:20261011T232744
CREATED:20240119T184916Z
LAST-MODIFIED:20240119T185029Z
UID:16862-1708527600-1708538400@www.als-mnd.org
SUMMARY:Virtual Conference from the Penn Frontotemporal Degeneration (FTD) Center: Uncovering the Genetics of FTD/ALS
DESCRIPTION:The Penn Frontotemporal Degeneration (FTD) Center is excited to open registration for our fourth annual familial conference\, Uncovering the Genetics of FTD/ALS\, on Wednesday\, February 21st\, 3:00PM to 6:00PM EST. Please register by visiting www.pennmedicine.org/FTDCFamilialConference2024. This event will take place virtually and the link will be provided once you’ve registered. \n  \nOur team understands ALS\, FTD\, and related disorders can impact an entire family even when just one person is diagnosed. However\, we also recognize the unique challenges and situations that arise from familial or genetic diseases. We have designed this exclusive event to recognize and address these topics for people living with or at risk for a familial and/or genetic form of FTD/ALS. You will have the chance to hear from genetic counselors\, neurologists\, and social workers on the genetics of FTD and ALS and have the chance to ask your questions in real-time. \n  \nTo view the conference agenda\, make a gift\, or learn about sponsorship opportunities\, please visit our website at https://www.pennftdcenter.org/familial-conference. If you have any questions\, please reach out to us at PennFTDC@pennmedicine.upenn.edu. \n  \nThank you for your interest\, and we look forward to seeing you virtually on February 21\, 2024.
URL:https://www.als-mnd.org/event/virtual-conference-from-the-penn-frontotemporal-degeneration-ftd-center-uncovering-the-genetics-of-ftd-als/
LOCATION:Online
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