BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//International Alliance of ALS/MND Associations - ECPv6.8.3//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:International Alliance of ALS/MND Associations
X-ORIGINAL-URL:https://www.als-mnd.org
X-WR-CALDESC:Events for International Alliance of ALS/MND Associations
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/Toronto
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20240310T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20241103T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20240403T150000
DTEND;TZID=America/Toronto:20240403T160000
DTSTAMP:20261013T100854
CREATED:20240312T171246Z
LAST-MODIFIED:20240312T171246Z
UID:17068-1712156400-1712160000@www.als-mnd.org
SUMMARY:ALS Town Hall from ALS TDI: Light the Way – A New Approach to Genetic Testing
DESCRIPTION:Wednesday\, April 3\, 2024 | 3:00 – 4:00pm EDT \nParticipate in our upcoming ALS Town Hall on April 3rd to hear how ALS scientists\, advocates\, innovators\, and gene carriers have collaborated to develop the “Light the Way” program.  \nWith the recent approval of a new gene therapy for people living with SOD1 ALS and the potential for IVF to prevent passing on genes to future generations\, it is now more important than ever to offer comprehensive genetic education\, counseling\, and rapid testing to the whole community. However research suggests there are inconsistent approaches and multiple barriers to getting people the information and support they need.  \nHear from researcher-turned-advocate Dr Paul Wicks how with the support of a grant from the UK government\, his team at Sano Genetics have built a new online platform that offers no-cost genetic education\, counseling\, testing\, peer support\, and connection to research. Ultimately\, the goal is to build a multi-language\, multi-national platform that could pave the way for clinical trials in gene carriers to prevent ALS from starting in the first place.  \nWhy should you attend? \n\nUnderstand the pros and cons of knowing your genetic status\nLearn more about the Light the Way genetics program\nEngage with the ALS community\n Ask questions straight from the source
URL:https://www.als-mnd.org/event/als-town-hall-from-als-tdi-light-the-way-a-new-approach-to-genetic-testing/
LOCATION:Online
END:VEVENT
END:VCALENDAR