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X-ORIGINAL-URL:https://www.als-mnd.org
X-WR-CALDESC:Events for International Alliance of ALS/MND Associations
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20251201
DTEND;VALUE=DATE:20251203
DTSTAMP:20261013T111754
CREATED:20250416T175856Z
LAST-MODIFIED:20250416T175856Z
UID:18437-1764547200-1764719999@www.als-mnd.org
SUMMARY:Allied Professionals Forum
DESCRIPTION:Are you ready to be part of something bigger? The Allied Professionals Forum (APF) brings together healthcare professionals from around the world\, including physiotherapists\, respiratory therapists\, nutritionists\, speech-language pathologists\, social workers and others working in the field of ALS/MND. With over 400 delegates attending from more than 40 countries\, this is your chance to engage in a truly global conversation on the challenges and advancements in ALS/MND care.  \nInfo and registration
URL:https://www.als-mnd.org/event/allied-professionals-forum-2/
CATEGORIES:Conference
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20251129
DTEND;VALUE=DATE:20251201
DTSTAMP:20261013T111754
CREATED:20250416T175652Z
LAST-MODIFIED:20250416T175652Z
UID:18435-1764374400-1764547199@www.als-mnd.org
SUMMARY:Alliance Meeting
DESCRIPTION:The Alliance Meeting is the place where member associations can meet and share experiences in growing\, running and building an ALS/MND association to support people living with ALS/MND. The meeting is attended by 200+ delegates from over 40 countries around the globe\, either in-person or virtually\, that represent the Alliance’s many member associations. (Open to Alliance members only) \nInfo and registration
URL:https://www.als-mnd.org/event/alliance-meeting-2/
CATEGORIES:Conference
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251017T100000
DTEND;TZID=America/Toronto:20251017T160000
DTSTAMP:20261013T111754
CREATED:20250604T133432Z
LAST-MODIFIED:20250604T133432Z
UID:18666-1760695200-1760716800@www.als-mnd.org
SUMMARY:ALS TDI Summit
DESCRIPTION:On Friday\, October 17\, 2025\, from 10:00 – 4:00 p.m. ET\, join the ALS community and ALS TDI for the ALS TDI Summit. The ALS TDI Summit is a free conference that aims to inform and empower the ALS community by educating attendees about ALS TDI’s latest work to discover and develop effective treatments for ALS. The Summit invites all members of the community to learn about ALS TDI’s cutting-edge approach to ending ALS. \nRegister to attend the 2025 ALS TDI Summit virtually or in person: https://fundraise.als.net/alssummit/
URL:https://www.als-mnd.org/event/als-tdi-summit/
LOCATION:Boston Sheraton Hotel\, 39 Dalton St\, Boston\, MA\, United States
CATEGORIES:Conference
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250907
DTEND;VALUE=DATE:20250910
DTSTAMP:20261013T111754
CREATED:20250225T140413Z
LAST-MODIFIED:20250225T140413Z
UID:18289-1757203200-1757462399@www.als-mnd.org
SUMMARY:PACTALS 2025 Conference
DESCRIPTION:On behalf of the organising committee\, it is with great pleasure that we invite you to join us at the PACTALS 2025 Conference\, taking place from 7th to 9th September 2025 in the vibrant city of Melbourne\, Australia. Under the theme “Towards Precision in ALS/MND Treatments\,” this conference promises to be a pivotal event in the field of ALS/MND research and treatment. \nPACTALS 2025 will bring together leading experts\, researchers\, clinicians\, and advocates from across the globe\, all driven by a shared commitment to advancing our understanding of ALS/MND and improving the lives of those affected by these conditions. The conference will feature the latest research\, innovative therapeutic approaches\, and inspiring discussions aimed at pushing the boundaries of precision medicine in ALS/MND treatment. \nMelbourne\, renowned as a dynamic multicultural society\, provides the perfect backdrop for this gathering. We are confident that the scientific program\, coupled with the unique networking opportunities and international collaborative spirit\, will make PACTALS 2025 an unforgettable and enriching experience. for all.  \nWe warmly encourage you to join us in Melbourne for this landmark event. Together\, we can advance the future of ALS/MND care and create meaningful progress in the journey towards precision treatments. Visit pactalscongress.com for registration and abstract submission. For more details\, you may drop us an email at secretariat@pactalscongress.com.
URL:https://www.als-mnd.org/event/pactals-2025-conference/
CATEGORIES:Conference
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BEGIN:VEVENT
DTSTART;TZID=Europe/Luxembourg:20250314T150000
DTEND;TZID=Europe/Luxembourg:20250314T200000
DTSTAMP:20261013T111754
CREATED:20250224T172402Z
LAST-MODIFIED:20250224T190954Z
UID:18278-1741964400-1741982400@www.als-mnd.org
SUMMARY:International Colloquium with WÄERTVOLLT LIEWEIN: Personal Assistance
DESCRIPTION:When you slide more or less quickly from independence to total physical and social dependence\, you really need to have confidence in your environment and in society in order not to lose the will to live. Where does your personal life begin to be ‘worth living’ or ‘no longer worth living’? What happens then to trust in politics? \nWäertvollt Liewen is committed to ensuring that people with serious illness and/or disability have the opportunity to decide how and where they want to live their lives. This is in line with Article 19 of the Convention on the Rights of Persons with Disabilities (CRPD) (Living independently and being included in the community) and Article 15 (6) of the Luxembourg Constitution (Every disabled person has the right to equal enjoyment of all rights). \nThe ‘Action Plan for the Implementation of the CRPD 2019-2024’ ended on 31 December 2024. What went well and what needs to be improved? In the new Action Plan\, self-determination\, personal assistance and personal budgets should be declared the main goal. Their Implementation will enable people to live together in dignity and inclusion\, including the most needy among the disabled. \nClick here to download the conference registration form in English. \nProgramme from March 13\, 2025\n14.00 – 14.30 Reception of the participants\n14.30 – 15.10 Welcome speech by Wäertvollt Liewen \nAddress by Max Hahn\, Minister for Family Affairs\, Solidarity\, Living Together and Reception of Refugees \nAddress by Martine Deprez\, Minister for Health and Social Security \nAdress by Corinne Cahen\, Alderwoman for Integration of people with special needs\, Luxembourg-City \n15.10 – 17.10 Presentations\n17.30 – 18.00 Break\n18.00 – 18.40 Presentations\n18.40 – 19.10 Interviews\n19.10 – 20.00 Round table discussion\, questions and conclusions \nAfter the round table discussion\, Wäertvollt Liewen invites the participants to a cosy and well-deserved ‘Walking Dinner’ with musical accompaniment by Guilhem ‘Pone’ Gallart. \nAttend in person or online. Simultaneous translation provided in English\, French and German. Register by February 28\, 2025. 
URL:https://www.als-mnd.org/event/international-colloquium-with-waertvollt-liewein-personal-assistance/
LOCATION:Neumünster Abbey\, Centre Culturel de Rencontre Abbaye de Neumünster\, 28 Rue Münster\, 2160 Grund Luxembourg\, Luxembourg
CATEGORIES:Conference
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20241108
DTEND;VALUE=DATE:20241110
DTSTAMP:20261013T111754
CREATED:20240927T105231Z
LAST-MODIFIED:20240927T105525Z
UID:18028-1731024000-1731196799@www.als-mnd.org
SUMMARY:Workshop from conSLAncio : Motor Neuron Diseases III Edition: Understanding the Pathogenetic Mechanisms to Develop Therapies
DESCRIPTION:The workshop will focus on motor neuron diseases\, in particular ALS and SMA. This hybrid meeting will elucidate biological mechanisms involved in muscular atrophy (at different ages and conditions) and describe therapeutic strategies for these disorders.\n \nFor whom may be interested\, a social dinner (40€) is planned on 8th November: it will be a great occasion to meet the speakers and do networking.\n \nVENUES\nPalace of the Anatomical Institutes\, C.so Massimo D’Azeglio 52\, 10124\, Torino\, Italy\n \nPRACTICAL ACTIVITY:\nWe will discover image analysis software\, to analyze the morphology and innervation of neuromuscular junctions. If necessary\, materials will be provided to practice on site on the own laptop.\n \nREGISTRATION FEES:\n– In person attendance (including lectures\, possibility to present a poster/oral presentation\, practical activities\, coffee breaks\, light lunch AND social dinner): 130 €\n– In person attendance (including lectures\, possibility to present a poster/oral presentation\, practical activities\, coffee breaks/light lunch\, NO social dinner): 90 €\n– Online attendance (including lectures): 60 €\n\n 
URL:https://www.als-mnd.org/event/workshop-from-conslancio-motor-neuron-diseases-iii-edition-understanding-the-pathogenetic-mechanisms-to-develop-therapies/
LOCATION:Palace of the Anatomical Institutes\, Italy
CATEGORIES:Conference
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20231121T180000
DTEND;TZID=Europe/London:20231121T200000
DTSTAMP:20261013T111754
CREATED:20230912T142904Z
LAST-MODIFIED:20230918T133325Z
UID:16577-1700589600-1700596800@www.als-mnd.org
SUMMARY:From the MND Association - 2023 Annual Stephen Hawking MND Lecture
DESCRIPTION:Effective advance care planning is the important theme of this prestigious event\, which is being organised by the MND Association and the Royal College of Speech and Language Therapists (RCSLT). \nThe lecture will be led by Professor Bee Wee CBE. Bee was National Clinical Director for Palliative and End of Life Care\, NHS England from 2013 – 2023. \nWith thanks to the Hawking Foundation for funding this event.
URL:https://www.als-mnd.org/event/2023-annual-stephen-hawking-mnd-lecture/
LOCATION:Online
CATEGORIES:Conference
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20231009T093000
DTEND;TZID=Europe/London:20231009T160000
DTSTAMP:20261013T111754
CREATED:20230912T143039Z
LAST-MODIFIED:20230918T133123Z
UID:16579-1696843800-1696867200@www.als-mnd.org
SUMMARY:CoP Networking Event from the MND Association - Supporting people living with MND through advance care planning: A role for the whole MDT
DESCRIPTION:From the MND Association – Following the tremendous success of the networking event last year\, we are pleased to advise booking is now open for this year’s event. \nWonderful to see a group of experienced HSCP coming together with a common purpose. Thanks\, a great day!\nAttendee at Networking Event 2022 \nThroughout the day you will follow Adam\, a person living with MND\, and his family’s journey with MND. In groups\, led by experts representing the MDT\, you will consider how to effectively approach the sometimes challenging process of advance care planning. \nWith national colleagues you will discuss and explore the significant things health and social care professionals\, Adam\, and his family might want to talk about at different stages in his disease progression. You will reflect on how you can best encourage and support the crucial thinking and decision making needed to ensure that best care takes place. \nThere will also be practical and discussion sessions during the day on: \n\nPEG and RIG insertion\nrespiratory equipment\northotics\nequipment solutions\nsafe exercise for people living with MND\ncommunication aids\nsyringe drivers.\n\nView brochure\nIf you are not yet a member of our Community of Practice\, please join us. \nThis event is now fully booked. Please email CoP@mndassociation.org to be added to the waiting list.
URL:https://www.als-mnd.org/event/supporting-people-living-with-mnd-through-advance-care-planning-a-role-for-the-whole-mdt/
LOCATION:National Conference Centre\, Birmingham\, United Kingdom
CATEGORIES:Conference
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