BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//International Alliance of ALS/MND Associations - ECPv6.8.3//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-ORIGINAL-URL:https://www.als-mnd.org
X-WR-CALDESC:Events for International Alliance of ALS/MND Associations
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/North_Dakota/Beulah
BEGIN:DAYLIGHT
TZOFFSETFROM:-0600
TZOFFSETTO:-0500
TZNAME:CDT
DTSTART:20230312T080000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0500
TZOFFSETTO:-0600
TZNAME:CST
DTSTART:20231105T070000
END:STANDARD
TZID:America/North_Dakota/New_Salem
BEGIN:DAYLIGHT
TZOFFSETFROM:-0600
TZOFFSETTO:-0500
TZNAME:CDT
DTSTART:20230312T080000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0500
TZOFFSETTO:-0600
TZNAME:CST
DTSTART:20231105T070000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/North_Dakota/Beulah:20231204T120000
DTEND;TZID=America/North_Dakota/Beulah:20231204T130000
DTSTAMP:20261015T233037
CREATED:20231108T173643Z
LAST-MODIFIED:20231108T173643Z
UID:16747-1701691200-1701694800@www.als-mnd.org
SUMMARY:Webinar from Les Turner ALS Foundation - Mental Health Needs & Supports for People Living with ALS and their Caregivers
DESCRIPTION:Join us for our December ALS Learning Series with Dr. Melinda S. Kavanaugh. Dr. Kavanaugh will discuss ways in which ALS affects mental health and the need for support – for both the person living with ALS and their caregivers\, including the children and youth. Dr. Kavanaugh will also review recent research findings informing supportive interventions and tools\, targeting support for the whole family. \nThe Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to the Gilbert & Jacqueline Fern Foundation\, Mitsubishi Tanabe Pharma America\, & Biogen for sponsoring this webinar. \n  \nAbout the Speaker: \nDr. Kavanaugh is a Professor of Social Work at the Helen Bader School of Social Welfare\, University of Wisconsin-Milwaukee\, and a Licensed Clinical Social Worker (LCSW) in Neurology. Dr. Kavanaugh’s clinical experience informed her focus on clinical care and caregiving research. Her U.S. and international research is funded by the National Institutes for Health (NIH)\, Administration on Community Living (ACL)\, Elizabeth Dole Foundation and the ALS Association. Dr. Kavanaugh’s research focuses on caregiver well-being\, mental health\, and support interventions\, including YCare\, a multidisciplinary youth caregiving skills and support protocol for young carers in ALS\, cancer\, Alzheimer’s disease and Autism. Dr. Kavanaugh is also the president of Global Neuro YCare\, an international non-profit\, focused on developing programs and supports for children\, youth and families in neurological disorders in underserved areas. \nRegistration link: https://attendee.gotowebinar.com/register/8171566454290953819
URL:https://www.als-mnd.org/event/webinar-from-les-turner-als-foundation-mental-health-needs-supports-for-people-living-with-als-and-their-caregivers/
LOCATION:Online
CATEGORIES:Webinar
ORGANIZER;CN="Les Turner ALS Foundation":MAILTO:info@lesturnerals.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/North_Dakota/New_Salem:20231215T120000
DTEND;TZID=America/North_Dakota/New_Salem:20231215T130000
DTSTAMP:20261015T233037
CREATED:20231215T105957Z
LAST-MODIFIED:20231215T105957Z
UID:16822-1702641600-1702645200@www.als-mnd.org
SUMMARY:Webinar from the Les Turner Foundation: A conversation with a genetic counselor: Could the ALS in my family be genetic?
DESCRIPTION:Title: A conversation with a genetic counselor: Could the ALS in my family be genetic? \nSpeaker: Laynie Dratch \nDate/Time: Wednesday\, January 31\, 2024 at 12:00pm CST \nLink to register: https://attendee.gotowebinar.com/register/233260727250953046 \nAbout the Program: About the Program: Navigating ALS care can be complicated and filled with many complex decisions\, including whether genetic testing is right for you. Join us for a discussion with genetic counselor Laynie Dratch\, ScM CGC\, as she describes the role of a genetic counselor and addresses common questions about the genetics of ALS-FTD spectrum disorders\, the genetic testing process\, and more. Laynie welcomes you to come with questions for discussion. \nAbout the Speaker: Laynie Dratch\, ScM CGC is a board-certified genetic counselor for the Penn Frontotemporal Degeneration (FTD) Center and Penn Amyotrophic Lateral Sclerosis (ALS) Center in the Department of Neurology at the University of Pennsylvania. She is the co-founder and chair of the ALS/FTD Working Group within the National Society of Genetic Counselor’s Neurogenetics group\, as well as the co-founder of the annual Penn Familial FTD/ALS Conference. Her research interests include the lived experiences of individuals at risk of developing ALS/FTD spectrum disorders\, and genetic counseling access and service delivery. Laynie completed her master’s in genetic counseling at the Johns Hopkins University / National Institutes of Health genetic counseling training program and completed her undergraduate studies at Colgate University where she graduated summa cum laude with a BA in neuroscience and a minor in psychology.
URL:https://www.als-mnd.org/event/webinar-from-the-les-turner-foundation-a-conversation-with-a-genetic-counselor-could-the-als-in-my-family-be-genetic/
LOCATION:Online
CATEGORIES:Webinar
ORGANIZER;CN="Les Turner ALS Foundation":MAILTO:info@lesturnerals.org
END:VEVENT
END:VCALENDAR