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X-WR-CALNAME:International Alliance of ALS/MND Associations
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DTSTART;TZID=America/Toronto:20240915T130000
DTEND;TZID=America/Toronto:20240915T140000
DTSTAMP:20261014T181730
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UID:17974-1726405200-1726408800@www.als-mnd.org
SUMMARY:Webinar from Les Turner ALS Foundation - Open Enrollment Matters: Health Insurance Considerations for People Diagnosed with ALS
DESCRIPTION:Title:  Open Enrollment Matters: Health Insurance Considerations for People Diagnosed with ALS \nRegistration Link: https://us02web.zoom.us/webinar/register/WN_6A8UOAtqR2eiOF9RJUYz9A#/registration \nAbout the Program  \nOpen Enrollment is the time each year when consumers can sign up or make changes to their health insurance coverage. This presentation will outline why you should care about Open Enrollment\, factors to consider when enrolling in a new plan\, and the importance of choosing your plan wisely\, especially for those diagnosed with ALS. We will touch on commercial health insurance as well as Medicare. Please join us! \nAbout the Speakers \nEmily works as the Patient Education Content & Project Manager for Patient Advocate Foundation. In this role\, she develops new educational materials including publications\, educational webinars\, and special projects that help prevent and address the healthcare barriers patients may face. \nPreviously\, Emily worked as a clinical case manager at PAF. She frequently worked on difficult cases helping patients with insurance appeals related to access to novel and experimental treatments. She has extensive experience with Medicare\, medical debt crisis\, and long-term care issues\, and possesses a breadth of knowledge of federal\, state\, and local assistance programs. \nBefore joining PAF\, Emily worked as the Social Services Coordinator at a skilled nursing facility and as a Social Worker in an adult daycare setting. She has a bachelor’s degree in social work from Christopher Newport University in Newport News\, Virginia. Emily enjoys traveling with her husband and being a mom to twin girls! \nThe Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to the Gilbert & Jacqueline Fern Foundation & Mitsubishi Tanabe Pharma America for sponsoring this webinar.
URL:https://www.als-mnd.org/event/webinar-from-les-turner-als-foundation-open-enrollment-matters-health-insurance-considerations-for-people-diagnosed-with-als/
LOCATION:Zoom Webinar
CATEGORIES:Webinar
ORGANIZER;CN="Les Turner ALS Foundation":MAILTO:info@lesturnerals.org
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DTSTART;TZID=America/Toronto:20240925T130000
DTEND;TZID=America/Toronto:20240925T140000
DTSTAMP:20261014T181730
CREATED:20240918T130817Z
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UID:18000-1727269200-1727272800@www.als-mnd.org
SUMMARY:Webinar from NEALS - Feeding Tubes for People Living with ALS: What You Need to Know Before Getting One
DESCRIPTION:Join us for the NEALS webinar\, “Feeding Tubes for People Living with ALS: What You Need to Know Before Getting One.” Presenter Molly Spitz\, RD\, an ALS-focused registered dietitian from Barnes Jewish Hospital in St. Louis\, MO\, will share essential information and insights about feeding tubes. Don’t miss this opportunity to learn and ask questions during this webinar\, moderated by Stephanie Dobak MS\, RD\, LDN\, CNSC and hosted by the NEALS Nutrition Committee.
URL:https://www.als-mnd.org/event/webinar-from-neals-feeding-tubes-for-people-living-with-als-what-you-need-to-know-before-getting-one/
LOCATION:Zoom Webinar
CATEGORIES:Webinar
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DTSTART;TZID=America/Toronto:20240930T160000
DTEND;TZID=America/Toronto:20240930T170000
DTSTAMP:20261014T181730
CREATED:20240918T131207Z
LAST-MODIFIED:20240918T131207Z
UID:18003-1727712000-1727715600@www.als-mnd.org
SUMMARY:Webinar from NEALS - At the Crossroads: Advanced Respiratory Care in ALS
DESCRIPTION:Join us for the final installment in the “Advanced Respiratory Care in ALS” series as we delve into the complexities of respiratory failure in ALS. This session will focus on crucial end-of-life and quality of life considerations\, aiming to facilitate timely advanced directives. Our expert presenters will discuss key aspects of respiratory care\, including the medical management of breathlessness and the decision-making process between non-invasive and tracheostomy-invasive ventilation. \nKey Topics: \n\nApproach to Goals of Care\nManagement of Breathlessness in ALS\nTracheostomy-Invasive Ventilation\n\nThis webinar is designed for healthcare professionals\, caregivers\, and people living with ALS seeking valuable insights into managing respiratory issues in ALS. Join us to enhance your understanding and improve patient care through informed decision-making. \nPresenters: \nPaula Brockenbrough\, CRT VCU Health \nAnne Shields\, LCSW VCU Health \nDavid J. Rothman\, PhD\, LCP VCU Health \nWon Lee\, MD UT Southwestern \nMolly Kilpatrick\, MD\, FAAHPM Mayo Clinic \nModerators: \nEufrosina Young\, MD Upstate Medical University \nBenajmin Rix Brooks\, MD Atrium Health
URL:https://www.als-mnd.org/event/webinar-from-neals-at-the-crossroads-advanced-respiratory-care-in-als/
LOCATION:Zoom Webinar
CATEGORIES:Webinar
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