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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20240530T190000
DTEND;TZID=America/Toronto:20240530T190000
DTSTAMP:20261010T044457
CREATED:20240426T115931Z
LAST-MODIFIED:20240426T120032Z
UID:17764-1717095600-1717095600@www.als-mnd.org
SUMMARY:Webinar from Les Turner ALS Foundation: Developing Tools to Help People Living with ALS Make Difficult Decisions
DESCRIPTION:About the program: \nPeople living with ALS must make many complex decisions regarding their future care needs\, which can be stressful and overwhelming. In our upcoming ALS Learning Series\, with Dr. Anne Hogden\, she’ll discuss how she and other researchers have collaborated with the ALS community\, their family members\, and their ALS care teams to develop tools that support people living with ALS to make informed choices for their care and quality of life. \nAbout the speaker: \nDr Anne Hogden PhD\, B SpPath\, BA (Hons) is a Senior Lecturer and researcher with the School of Population Health\, Faculty of Medicine and Health\, University of New South Wales\, Australia. She is a serving member of MND Research Australia\, MND Australia Research Committee\, The MND Collective Board and MND Collective Clinical Care working group. Her work focuses on patient decision support tool development for MND/ALS care. She has authored the first-ever MND/ALS patient decision support tool in Australia and assisted in similar tool development in the UK and USA. \nThe Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to the Gilbert & Jacqueline Fern Foundation\, Mitsubishi Tanabe Pharma America\, & Biogen for sponsoring this webinar.
URL:https://www.als-mnd.org/event/webinar-from-les-turner-als-foundation-developing-tools-to-help-people-living-with-als-make-difficult-decisions/
LOCATION:Zoom Webinar
CATEGORIES:Webinar
ORGANIZER;CN="Les Turner ALS Foundation":MAILTO:info@lesturnerals.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20240415T130000
DTEND;TZID=America/Toronto:20240415T140000
DTSTAMP:20261010T044457
CREATED:20240401T182558Z
LAST-MODIFIED:20240401T182800Z
UID:17634-1713186000-1713189600@www.als-mnd.org
SUMMARY:Webinar from  Les Turner ALS Foundation: Navigating Advanced Directives
DESCRIPTION:Title: Navigating Advanced Directives \nDate/Time:  Monday\, April 15th at noon CST \nRegistration link: https://attendee.gotowebinar.com/register/8687536477912516955 \nAbout the talk:  Advanced directives are legal documents that provide instructions for medical care. When living with ALS\, it is important to think ahead about what kind of care you may want in the future. Advanced directives are a way to ensure that you\, your family\, and your ALS care team are all on the same page when it comes to treatments you may or may not want. Join us for our next ALS Learning series where our speakers will further discuss advanced directives\, their benefits\, and what you need to know to make an informed decision. These discussions are not easy but taking the time to gather information and think about your values is a powerful gift for yourself and your family. \nAbout the presenters: Giulia LaBellarte is an adult-gerontology nurse practitioner who specializes in palliative care at Northwestern Memorial Hospital in Chicago. \nDr. John M. Coleman III\, is a pulmonary physician in the Lois Insolia ALS Clinic at the Les Turner ALS Center at Northwestern Medicine\, providing respiratory care and support for people living with ALS
URL:https://www.als-mnd.org/event/webinar-from-les-turner-als-foundation-navigating-advanced-directives/
LOCATION:Zoom Webinar
CATEGORIES:Webinar
ORGANIZER;CN="Les Turner ALS Foundation":MAILTO:info@lesturnerals.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20240318T163000
DTEND;TZID=America/Toronto:20240318T173000
DTSTAMP:20261010T044457
CREATED:20240214T112653Z
LAST-MODIFIED:20240214T112653Z
UID:16938-1710779400-1710783000@www.als-mnd.org
SUMMARY:Webinar from NEALS: The Science Behind ALS Treatments: Riluzole\, Radicava\, and Relyvrio
DESCRIPTION:Moderated by Dr. Senda Ajroud-Driss\, this webinar for both clinicians and people living with ALS will review the 3 drugs that are currently FDA-approved in the United States for the general ALS population. Panelists\, Dr. Lauren Elman\, Dr. John Novak\, and Dr. Xiaowei (Bill) Su will present information on Riluzole\, Radicava\, and Relyvrio\, including drug mechanism\, findings from clinical trials\, and potential benefits\, risks\, and costs.
URL:https://www.als-mnd.org/event/webinar-from-neals-the-science-behind-als-treatments-riluzole-radicava-and-relyvrio/
CATEGORIES:Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/North_Dakota/New_Salem:20231215T120000
DTEND;TZID=America/North_Dakota/New_Salem:20231215T130000
DTSTAMP:20261010T044457
CREATED:20231215T105957Z
LAST-MODIFIED:20231215T105957Z
UID:16822-1702641600-1702645200@www.als-mnd.org
SUMMARY:Webinar from the Les Turner Foundation: A conversation with a genetic counselor: Could the ALS in my family be genetic?
DESCRIPTION:Title: A conversation with a genetic counselor: Could the ALS in my family be genetic? \nSpeaker: Laynie Dratch \nDate/Time: Wednesday\, January 31\, 2024 at 12:00pm CST \nLink to register: https://attendee.gotowebinar.com/register/233260727250953046 \nAbout the Program: About the Program: Navigating ALS care can be complicated and filled with many complex decisions\, including whether genetic testing is right for you. Join us for a discussion with genetic counselor Laynie Dratch\, ScM CGC\, as she describes the role of a genetic counselor and addresses common questions about the genetics of ALS-FTD spectrum disorders\, the genetic testing process\, and more. Laynie welcomes you to come with questions for discussion. \nAbout the Speaker: Laynie Dratch\, ScM CGC is a board-certified genetic counselor for the Penn Frontotemporal Degeneration (FTD) Center and Penn Amyotrophic Lateral Sclerosis (ALS) Center in the Department of Neurology at the University of Pennsylvania. She is the co-founder and chair of the ALS/FTD Working Group within the National Society of Genetic Counselor’s Neurogenetics group\, as well as the co-founder of the annual Penn Familial FTD/ALS Conference. Her research interests include the lived experiences of individuals at risk of developing ALS/FTD spectrum disorders\, and genetic counseling access and service delivery. Laynie completed her master’s in genetic counseling at the Johns Hopkins University / National Institutes of Health genetic counseling training program and completed her undergraduate studies at Colgate University where she graduated summa cum laude with a BA in neuroscience and a minor in psychology.
URL:https://www.als-mnd.org/event/webinar-from-the-les-turner-foundation-a-conversation-with-a-genetic-counselor-could-the-als-in-my-family-be-genetic/
LOCATION:Online
CATEGORIES:Webinar
ORGANIZER;CN="Les Turner ALS Foundation":MAILTO:info@lesturnerals.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/North_Dakota/Beulah:20231204T120000
DTEND;TZID=America/North_Dakota/Beulah:20231204T130000
DTSTAMP:20261010T044457
CREATED:20231108T173643Z
LAST-MODIFIED:20231108T173643Z
UID:16747-1701691200-1701694800@www.als-mnd.org
SUMMARY:Webinar from Les Turner ALS Foundation - Mental Health Needs & Supports for People Living with ALS and their Caregivers
DESCRIPTION:Join us for our December ALS Learning Series with Dr. Melinda S. Kavanaugh. Dr. Kavanaugh will discuss ways in which ALS affects mental health and the need for support – for both the person living with ALS and their caregivers\, including the children and youth. Dr. Kavanaugh will also review recent research findings informing supportive interventions and tools\, targeting support for the whole family. \nThe Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to the Gilbert & Jacqueline Fern Foundation\, Mitsubishi Tanabe Pharma America\, & Biogen for sponsoring this webinar. \n  \nAbout the Speaker: \nDr. Kavanaugh is a Professor of Social Work at the Helen Bader School of Social Welfare\, University of Wisconsin-Milwaukee\, and a Licensed Clinical Social Worker (LCSW) in Neurology. Dr. Kavanaugh’s clinical experience informed her focus on clinical care and caregiving research. Her U.S. and international research is funded by the National Institutes for Health (NIH)\, Administration on Community Living (ACL)\, Elizabeth Dole Foundation and the ALS Association. Dr. Kavanaugh’s research focuses on caregiver well-being\, mental health\, and support interventions\, including YCare\, a multidisciplinary youth caregiving skills and support protocol for young carers in ALS\, cancer\, Alzheimer’s disease and Autism. Dr. Kavanaugh is also the president of Global Neuro YCare\, an international non-profit\, focused on developing programs and supports for children\, youth and families in neurological disorders in underserved areas. \nRegistration link: https://attendee.gotowebinar.com/register/8171566454290953819
URL:https://www.als-mnd.org/event/webinar-from-les-turner-als-foundation-mental-health-needs-supports-for-people-living-with-als-and-their-caregivers/
LOCATION:Online
CATEGORIES:Webinar
ORGANIZER;CN="Les Turner ALS Foundation":MAILTO:info@lesturnerals.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20231128T110000
DTEND;TZID=Europe/London:20231128T123000
DTSTAMP:20261010T044457
CREATED:20230913T135732Z
LAST-MODIFIED:20230913T135732Z
UID:16589-1701169200-1701174600@www.als-mnd.org
SUMMARY:Webinar from the MNDA - Pain Management for MND
DESCRIPTION:Time: 11.00am – 12.30pm \nAim: To increase understanding of how pain may be experienced in MND and potential methods to treat it. \nObjectives: \n\nto examine current practice for pain management in MND\nto evolve our understanding of pain in MND and how to alleviate it\nto explore current thinking and research about pain management and possible future developments.\n\nBy the end of the session participants will have: \n\na more confident understanding of where and why pain occurs in MND\nbeen introduced to options for effective pain management\nan appreciation of emerging research and developments pain management for MND.\n\nSpeaker: Dr Rhys Roberts\, Consultant Neurologist at Addenbrooke’s Hospital – Cambridge
URL:https://www.als-mnd.org/event/webinar-from-the-mnda-pain-management-for-mnd/
LOCATION:Online
CATEGORIES:Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20231122T123000
DTEND;TZID=Europe/London:20231122T130000
DTSTAMP:20261010T044457
CREATED:20230913T135758Z
LAST-MODIFIED:20230918T133408Z
UID:16603-1700656200-1700658000@www.als-mnd.org
SUMMARY:From the MND Association - Conversation with an MND Network Coordinator
DESCRIPTION:Time: 12:30pm – 1:00pm \nIn this session Caroline Bidder\, MND Network Coordinator\, Swansea Bay will answer questions about how an MND network operates\, what makes this dispersed model of care the appropriate one\, and the impact it has on people living with and affected by MND. \nNo need to book. Join using the link and passcode below: \nJoin Zoom Meeting: https://us06web.zoom.us/j/88570488079?pwd=OFUydHNnT0c4cEhaNmRTYncxbG9iQT09\nMeeting ID: 885 7048 8079\nPasscode: MNDCWCC \nIf you would like any specific question answered during the session\, please send these to education@mndassociation.org
URL:https://www.als-mnd.org/event/webinar-from-mnda-conversation-with-an-mnd-network-coordinator/
LOCATION:Online
CATEGORIES:Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/North_Dakota/Center:20231026T120000
DTEND;TZID=America/North_Dakota/Center:20231026T130000
DTSTAMP:20261010T044457
CREATED:20230929T140212Z
LAST-MODIFIED:20230929T140212Z
UID:16654-1698321600-1698325200@www.als-mnd.org
SUMMARY:Webinar from the Les Turner ALS Foundation - Ethical Principles & Informed Consent in Research
DESCRIPTION:About the Program: Informed consent is an essential component of research\, but have you ever wondered why? Join us for our October ALS Learning Series where Emma Schmidt\, Clinical Research Project Manager at the Les Turner ALS Center at Northwestern Medicine will discuss the history behind informed consent\, explain the process of informed consent\, your rights as a research participant and provide you with helpful tips and questions to ask if you’re interested in joining research. \nThe Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to the Gilbert & Jacqueline Fern Foundation\, Mitsubishi Tanabe Pharma America\, & Biogen for sponsoring this webinar. \nAbout the Speaker: Emma Schmidt is the Clinical Research Project Manager at the Les Turner ALS Center at Northwestern Medicine.
URL:https://www.als-mnd.org/event/webinar-from-the-les-turner-als-foundation-ethical-principles-informed-consent-in-research/
LOCATION:Online
CATEGORIES:Webinar
ORGANIZER;CN="Les Turner ALS Foundation":MAILTO:info@lesturnerals.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20231011T130000
DTEND;TZID=America/Detroit:20231011T150000
DTSTAMP:20261010T044457
CREATED:20231010T103756Z
LAST-MODIFIED:20231010T103756Z
UID:16692-1697029200-1697036400@www.als-mnd.org
SUMMARY:Webinar from ALS Canada: Navigating Mental Health & ALS
DESCRIPTION:An individual’s mental health and how they are supported is important when facing an ALS diagnosis. On October 11\, please join presenters from Sunnybrook ALS Clinic and Hospice Niagara\, who will provide in-depth information about the importance of emotional health\, conversations about anticipatory grief\, and how individuals\, family\, and friends can access mental health resources in their community.
URL:https://www.als-mnd.org/event/webinar-from-als-canada-navigating-mental-health-als/
CATEGORIES:Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20230926T133000
DTEND;TZID=America/Detroit:20230926T150000
DTSTAMP:20261010T044457
CREATED:20230929T165654Z
LAST-MODIFIED:20230929T165654Z
UID:16647-1695735000-1695740400@www.als-mnd.org
SUMMARY:Webinar from ALS Quebec- Professional Panel
DESCRIPTION:Have you ever wondered who all these healthcare professionals are and how they take care of you? So join us for this presentation of the professional panel. We have set up four panels\, three in French and one in English\, where health professionals from ALS clinics\, CLSCs and rehabilitation centers will explain their profession and their role in your care. \n\n\nThis webinar is in French. \n\n\n\nWhen: Tuesday September 26\, 2023\, from 1:30 p.m. to 3 p.m.\n\n\n\n\nWhere: The webinar takes place on Zoom\n\n\n\n\n\n\n\nREGISTER\n\n\n\n\n\n\nIf you are not familiar with the Zoom platform\, or with online communications\, do not hesitate to consult our Zoom user guides on  our website. \n\n\nFor more information\, contact Kate Busch at 514 725-2653\, ext. 109 | 1-877-725-7725 or by email at  kbusch@sla-quebec.ca
URL:https://www.als-mnd.org/event/webinar-from-als-quebec-professional-panel/
LOCATION:Online
CATEGORIES:Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20230926T103000
DTEND;TZID=America/Detroit:20230926T120000
DTSTAMP:20261010T044457
CREATED:20230929T165738Z
LAST-MODIFIED:20230929T165738Z
UID:16645-1695724200-1695729600@www.als-mnd.org
SUMMARY:Webinar from ALS Quebec- Professional Panel
DESCRIPTION:Have you ever wondered who all these healthcare professionals are and how they take care of you? So join us for this presentation of the professional panel. We have set up four panels\, three in French and one in English\, where health professionals from ALS clinics\, CLSCs and rehabilitation centers will explain their profession and their role in your care. \n\nThis webinar is in French. \n\n\n\nWhen: Tuesday September 26\, 2023\, from 10:30 a.m. to 12 p.m.\n\n\n\n\nWhere: The webinar takes place on Zoom\n\n\n\n\n\n\n\nREGISTER\n\n\n\n\n\n\nIf you are not familiar with the Zoom platform\, or with online communications\, do not hesitate to consult our Zoom user guides on  our website. \n\n\nFor more information\, contact Kate Busch at 514 725-2653\, ext. 109 | 1-877-725-7725 or by email at  kbusch@sla-quebec.ca
URL:https://www.als-mnd.org/event/webinar-from-als-quebec-professional-panel-2/
LOCATION:Online
CATEGORIES:Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230912T133000
DTEND;TZID=America/New_York:20230912T150000
DTSTAMP:20261010T044457
CREATED:20230911T151535Z
LAST-MODIFIED:20230913T140218Z
UID:16560-1694525400-1694530800@www.als-mnd.org
SUMMARY:Webinar from ALS Quebec - Professional Panel
DESCRIPTION:Have you ever wondered who all these health care professionals are and how they are caring for you? Then please join us for this Professional Panel presentation. We have four panels set up\, three in French and one in English\, where healthcare professionals from ALS clinics\, CLSC\, and rehabilitation centres will explain their profession and their role within your care. \n\n\nThis webinar session is in English.
URL:https://www.als-mnd.org/event/professional-panel/
LOCATION:Online
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://www.als-mnd.org/wp-content/uploads/2023/09/ALSQuebec.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230912T103000
DTEND;TZID=America/New_York:20230912T120000
DTSTAMP:20261010T044457
CREATED:20230911T151547Z
LAST-MODIFIED:20230913T140249Z
UID:16564-1694514600-1694520000@www.als-mnd.org
SUMMARY:Webinaire de la SLA Québec - Panel professionnel
DESCRIPTION:Vous êtes-vous déjà demandé qui sont tous ces professionnels de la santé et comment ils prennent soin de vous ? Alors rejoignez-nous pour cette présentation du panel professionnel. Nous avons mis en place quatre panels\, trois en français et un en anglais\, où des professionnels de la santé des cliniques de la SLA\, des CLSC et des centres de réadaptation vous expliqueront leur métier et leur rôle au sein de votre prise en charge. \n\n\nCe webinaire est en français.
URL:https://www.als-mnd.org/event/panel-professionnel/
LOCATION:Online
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://www.als-mnd.org/wp-content/uploads/2023/09/SLAQuebec.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20230817T200000
DTEND;TZID=Europe/London:20230817T210000
DTSTAMP:20261010T044457
CREATED:20230814T185111Z
LAST-MODIFIED:20230913T140314Z
UID:16536-1692302400-1692306000@www.als-mnd.org
SUMMARY:Webinar from the Les Turner ALS Foundation - Compassionate Communities for ALS/MND: Supporting those Caring\, Dying and Grieving
DESCRIPTION:In this Learning Series webinar\, Professor Samar Aoun will share key findings and advice on enabling social networks to support people living with ALS/MND\, making palliative care more widely accessible. A particular focus will be on bereavement support and family caregiver support. \n\nThe Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to the Gilbert & Jacqueline Fern Foundation and Mitsubishi Tanabe Pharma America for sponsoring this webinar. \n\nAbout the Speaker: Professor Aoun is a Perron Institute Research Chair in Palliative Care at The University of Western Australia\, in addition to\, the Chair of MND Australia\, and the MND Association in Western Australia. She is a global leader in the areas of public health palliative care and compassionate communities research and has influenced rapid system change and informed practice and policy at the national and international levels. Among numerous awards\, Professor Aoun received the Medal for Excellence from the European Society for Person Centered Healthcare in 2018\, the Centenary Medal in 2003 from Australia’s Prime Minister and more recently 2023 Western Australia’s Australian of the Year.
URL:https://www.als-mnd.org/event/compassionate-communities-for-als-mnd-supporting-those-caring-dying-and-grieving/
LOCATION:Online
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://www.als-mnd.org/wp-content/uploads/2023/08/Aug17.jpg
ORGANIZER;CN="Les Turner ALS Foundation":MAILTO:info@lesturnerals.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20230517T070000
DTEND;TZID=Europe/London:20230517T080000
DTSTAMP:20261010T044457
CREATED:20230525T054504Z
LAST-MODIFIED:20230523T052923Z
UID:15960-1684306800-1684310400@www.als-mnd.org
SUMMARY:WEBINAR: Maintaining my independence
DESCRIPTION:A panel with occupational therapists in ALS/MND providing recommendations for PALS at different stages of their journey. Tips\, considerations\, and what can be done at home.
URL:https://www.als-mnd.org/event/webinar-clinical-trials-in-genetics-for-sporadic-als-mnd/
LOCATION:Zoom Webinar
CATEGORIES:Webinar
END:VEVENT
END:VCALENDAR