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UID:18800-1753794000-1753797600@www.als-mnd.org
SUMMARY:End-of-Life Autonomy – A Conversation on ALS and Medical Aid in Dying
DESCRIPTION:Join us for a thoughtful and informative conversation with Dr. Robin Plumer and Jeremy Boal as we explore the topic of Medical Aid in Dying (MAID). Dr. Plumer will explain what MAID is\, how individuals make the decision to pursue it\, and the compassionate\, patient-centered environments in which it is provided. \nThis webinar will also address the broader context of end-of-life autonomy and the unique considerations for those living with ALS. \nThe session is free and open to all\, and we welcome anyone who may benefit from this conversation. \nZOOM Register Here: https://us06web.zoom.us/webinar/register/WN_cGw2JrVXSbC7bWLXSd0Ifg#/registration
URL:https://www.als-mnd.org/event/end-of-life-autonomy-a-conversation-on-als-and-medical-aid-in-dying/
LOCATION:Online
CATEGORIES:Webinar
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DTSTART;TZID=Europe/London:20251002T170000
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DTSTAMP:20260929T003954
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UID:18822-1759424400-1759428000@www.als-mnd.org
SUMMARY:Webinar from EUpALS: Supporting Your Community’s Mental Wellbeing
DESCRIPTION:Webinar 1: ‘Supporting your community’s mental wellbeing’\nDate: October 2\nTime: 5:00 PM CEST \nThis session will explore how to strengthen the mental and emotional support you offer to the ALS community\, with practical guidance on understanding the different types and levels of support\, making the most of what’s available\, dealing with difficult situations\, and sensitive sign-posting. \nThis is the first of 2 interactive webinars\, which will focus on the rewards\, challenges and emotional impact of patient leadership\, and how best to support others whilst still looking after your own mental wellbeing. They will provide you with some practical guidance to help you feel more confident in meeting the emotional needs of people affected by ALS. It will also explore ways you can look after your own emotional wellbeing and that of others who work in your organization. \nWe are delighted that Kym Winter\, a leading psychotherapist with extensive experience in rare diseases\, will lead the webinars. Kym is the Clinical Director and Founder of Rareminds\, a UK based charity providing specialist counselling services and mental wellbeing resources for rare disease communities. \nTo make the webinar series accessible to as many as possible across Europe\, simultaneous translation into French\, German\, Italian and Spanish will be available. \nWhile we recommend attending both sessions\, each is designed as a standalone webinar so you can choose the one most relevant to you or come to both!
URL:https://www.als-mnd.org/event/webinar-from-eupals-supporting-your-communitys-mental-wellbeing-2/
LOCATION:Zoom Webinar
CATEGORIES:Webinar
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DTSTART;TZID=Europe/London:20251009T170000
DTEND;TZID=Europe/London:20251009T180000
DTSTAMP:20260929T003954
CREATED:20250822T164429Z
LAST-MODIFIED:20250822T164429Z
UID:18826-1760029200-1760032800@www.als-mnd.org
SUMMARY:Webinar from EUpALS: Looking After Your Own Mental Wellbeing as an ALS Community Leader
DESCRIPTION:Webinar 2: ‘Looking after your own mental wellbeing as an ALS community leader’\nDate: October 9\nTime: 5:00 PM CEST \nThis session focuses inward – on you and your team – offering space to reflect on the emotional demands of leadership and strategies to protect wellbeing\, prevent your own burnout and compassion fatigue\, and how to create a mentally healthy work environment in your organization. \nThis is the second of 2 interactive webinars\, which will focus on the rewards\, challenges and emotional impact of patient leadership\, and how best to support others whilst still looking after your own mental wellbeing. They will provide you with some practical guidance to help you feel more confident in meeting the emotional needs of people affected by ALS. It will also explore ways you can look after your own emotional wellbeing and that of others who work in your organization. \nWe are delighted that Kym Winter\, a leading psychotherapist with extensive experience in rare diseases\, will lead the webinars. Kym is the Clinical Director and Founder of Rareminds\, a UK based charity providing specialist counselling services and mental wellbeing resources for rare disease communities. \nTo make the webinar series accessible to as many as possible across Europe\, simultaneous translation into French\, German\, Italian and Spanish will be available. \nWhile we recommend attending both sessions\, each is designed as a standalone webinar so you can choose the one most relevant to you or come to both!
URL:https://www.als-mnd.org/event/webinar-from-eupals-looking-after-your-own-mental-wellbeing-as-an-als-community-leader-2/
CATEGORIES:Webinar
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