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X-WR-CALDESC:Events for International Alliance of ALS/MND Associations
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DTSTART:20230312T070000
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DTSTART;TZID=America/New_York:20230912T103000
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DTSTAMP:20261010T055437
CREATED:20230911T151547Z
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UID:16564-1694514600-1694520000@www.als-mnd.org
SUMMARY:Webinaire de la SLA Québec - Panel professionnel
DESCRIPTION:Vous êtes-vous déjà demandé qui sont tous ces professionnels de la santé et comment ils prennent soin de vous ? Alors rejoignez-nous pour cette présentation du panel professionnel. Nous avons mis en place quatre panels\, trois en français et un en anglais\, où des professionnels de la santé des cliniques de la SLA\, des CLSC et des centres de réadaptation vous expliqueront leur métier et leur rôle au sein de votre prise en charge. \n\n\nCe webinaire est en français.
URL:https://www.als-mnd.org/event/panel-professionnel/
LOCATION:Online
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://www.als-mnd.org/wp-content/uploads/2023/09/SLAQuebec.png
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BEGIN:VEVENT
DTSTART;TZID=Europe/London:20230817T200000
DTEND;TZID=Europe/London:20230817T210000
DTSTAMP:20261010T055437
CREATED:20230814T185111Z
LAST-MODIFIED:20230913T140314Z
UID:16536-1692302400-1692306000@www.als-mnd.org
SUMMARY:Webinar from the Les Turner ALS Foundation - Compassionate Communities for ALS/MND: Supporting those Caring\, Dying and Grieving
DESCRIPTION:In this Learning Series webinar\, Professor Samar Aoun will share key findings and advice on enabling social networks to support people living with ALS/MND\, making palliative care more widely accessible. A particular focus will be on bereavement support and family caregiver support. \n\nThe Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to the Gilbert & Jacqueline Fern Foundation and Mitsubishi Tanabe Pharma America for sponsoring this webinar. \n\nAbout the Speaker: Professor Aoun is a Perron Institute Research Chair in Palliative Care at The University of Western Australia\, in addition to\, the Chair of MND Australia\, and the MND Association in Western Australia. She is a global leader in the areas of public health palliative care and compassionate communities research and has influenced rapid system change and informed practice and policy at the national and international levels. Among numerous awards\, Professor Aoun received the Medal for Excellence from the European Society for Person Centered Healthcare in 2018\, the Centenary Medal in 2003 from Australia’s Prime Minister and more recently 2023 Western Australia’s Australian of the Year.
URL:https://www.als-mnd.org/event/compassionate-communities-for-als-mnd-supporting-those-caring-dying-and-grieving/
LOCATION:Online
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://www.als-mnd.org/wp-content/uploads/2023/08/Aug17.jpg
ORGANIZER;CN="Les Turner ALS Foundation":MAILTO:info@lesturnerals.org
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BEGIN:VEVENT
DTSTART;TZID=Europe/London:20230517T070000
DTEND;TZID=Europe/London:20230517T080000
DTSTAMP:20261010T055437
CREATED:20230525T054504Z
LAST-MODIFIED:20230523T052923Z
UID:15960-1684306800-1684310400@www.als-mnd.org
SUMMARY:WEBINAR: Maintaining my independence
DESCRIPTION:A panel with occupational therapists in ALS/MND providing recommendations for PALS at different stages of their journey. Tips\, considerations\, and what can be done at home.
URL:https://www.als-mnd.org/event/webinar-clinical-trials-in-genetics-for-sporadic-als-mnd/
LOCATION:Zoom Webinar
CATEGORIES:Webinar
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