Alliance Webinar: Innovation & Technology in ALS/MND

Zoom Webinar

Hear updates of what is happening in Innovation and Technology from members of our Advisory Council. How can technology improve quality of life and give us insights into ALS/MND in a meaningful way. Register here.

Free

Alliance Webinar: Youth and ALS/MND

Zoom Webinar

A diagnosis of ALS/MND is devastating, not only to the individual receiving the diagnosis, but their family members as well. Discussing a parent’s new diagnosis of ALS/MND with their child can be both challenging and emotional. In addition, children whose parent has been affected by ALS/MND may have fears, concerns, and questions that differ greatly […]

Free

Alliance Webinar: Optimizing Clinical Trial Design

Zoom Webinar

The history of clinical trials in ALS/MND has been fraught with failures. It has not been uncommon for a potential therapy to show promise in Phase 2 trial results, then prove to be ineffective in the subsequent, larger-scale Phase 3 trial. Clinical trials take a considerable amount of time, resources, and funding, and as such […]

Free

Alliance Webinar: Mental Health Supports for People Living with ALS/MND and Caregivers

Zoom Webinar

A diagnosis of ALS/MND can generate a range of emotions, for both the patient and their caregivers. Patients can experience anxiety and depression, feel isolated, and often feel like a burden to their loved ones. Caregivers of a loved one with ALS/MND will experience their own set of challenges, including caregiver burnout. This webinar will […]

Free

Alliance Meeting – Day 1

Online

A chance for representatives of ALS/MND associations from around the world to discuss best practice in care, support, technology, science and organisational development.

Alliance Meeting – Day 2

Online

A chance for representatives of ALS/MND associations from around the world to discuss best practice in care, support, technology, science and organisational development.

Allied Professionals Forum – Day 1

Online

This international forum offers healthcare professionals from around the world an opportunity to share ideas on good practice in the daily management of people with ALS/MND.

Allied Professionals Forum – Day 2

Online

This international forum offers healthcare professionals from around the world an opportunity to share ideas on good practice in the daily management of people with ALS/MND.

ALS/MND Connect

Online

ALS/MND Connect is an open session which allows people living with ALS/MND and their caregivers to attend an afternoon of presentations by neurologists and researchers .

Webinar: CARE PART 3: END OF LIFE

Zoom Webinar

This is not an easy topic, but one that is important to discuss. In this webinar we will provide PALS and CALS with guidance on how to address this stage of their journey, and what to look for in support and planning resources.

Global Day for ALS/MND Awareness

Every year the International Alliance of ALS/MND Associations celebrates 21 June as the global day of recognition of ALS/MND – a disease that affects people in every country of the globe. ALS/MND  is a global problem. It does not discriminate on the basis of race, ethnicity, socioeconomic status or region. There are people living with ALS/MND all […]