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X-WR-CALNAME:International Alliance of ALS/MND Associations
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X-WR-CALDESC:Events for International Alliance of ALS/MND Associations
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BEGIN:VEVENT
DTSTART;TZID=Europe/London:20251009T170000
DTEND;TZID=Europe/London:20251009T180000
DTSTAMP:20260929T002632
CREATED:20250822T164429Z
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UID:18826-1760029200-1760032800@www.als-mnd.org
SUMMARY:Webinar from EUpALS: Looking After Your Own Mental Wellbeing as an ALS Community Leader
DESCRIPTION:Webinar 2: ‘Looking after your own mental wellbeing as an ALS community leader’\nDate: October 9\nTime: 5:00 PM CEST \nThis session focuses inward – on you and your team – offering space to reflect on the emotional demands of leadership and strategies to protect wellbeing\, prevent your own burnout and compassion fatigue\, and how to create a mentally healthy work environment in your organization. \nThis is the second of 2 interactive webinars\, which will focus on the rewards\, challenges and emotional impact of patient leadership\, and how best to support others whilst still looking after your own mental wellbeing. They will provide you with some practical guidance to help you feel more confident in meeting the emotional needs of people affected by ALS. It will also explore ways you can look after your own emotional wellbeing and that of others who work in your organization. \nWe are delighted that Kym Winter\, a leading psychotherapist with extensive experience in rare diseases\, will lead the webinars. Kym is the Clinical Director and Founder of Rareminds\, a UK based charity providing specialist counselling services and mental wellbeing resources for rare disease communities. \nTo make the webinar series accessible to as many as possible across Europe\, simultaneous translation into French\, German\, Italian and Spanish will be available. \nWhile we recommend attending both sessions\, each is designed as a standalone webinar so you can choose the one most relevant to you or come to both!
URL:https://www.als-mnd.org/event/webinar-from-eupals-looking-after-your-own-mental-wellbeing-as-an-als-community-leader-2/
CATEGORIES:Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251015T110000
DTEND;TZID=America/New_York:20251015T123000
DTSTAMP:20260929T002632
CREATED:20250830T013040Z
LAST-MODIFIED:20250830T013414Z
UID:18863-1760526000-1760531400@www.als-mnd.org
SUMMARY:Webinar: Bringing Voices for Life Across Borders
DESCRIPTION:This webinar will take participants through an end-to-end demonstration of creating and using AI voice tools\, highlighting the process from start to finish. The session will feature walkthroughs that illustrate how technology can be applied in different global contexts\, complemented by testimonials to ground the experience in real-world impact.\n \nWe will showcase examples from different regions demonstrating both the universality and regional adaptability of the process.\n \nCaptions in multiple languages available.\n 
URL:https://www.als-mnd.org/event/bringing-voices-for-life-across-borders/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251017T100000
DTEND;TZID=America/Toronto:20251017T160000
DTSTAMP:20260929T002632
CREATED:20250604T133432Z
LAST-MODIFIED:20250604T133432Z
UID:18666-1760695200-1760716800@www.als-mnd.org
SUMMARY:ALS TDI Summit
DESCRIPTION:On Friday\, October 17\, 2025\, from 10:00 – 4:00 p.m. ET\, join the ALS community and ALS TDI for the ALS TDI Summit. The ALS TDI Summit is a free conference that aims to inform and empower the ALS community by educating attendees about ALS TDI’s latest work to discover and develop effective treatments for ALS. The Summit invites all members of the community to learn about ALS TDI’s cutting-edge approach to ending ALS. \nRegister to attend the 2025 ALS TDI Summit virtually or in person: https://fundraise.als.net/alssummit/
URL:https://www.als-mnd.org/event/als-tdi-summit/
LOCATION:Boston Sheraton Hotel\, 39 Dalton St\, Boston\, MA\, United States
CATEGORIES:Conference
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20251030T120000
DTEND;TZID=America/Chicago:20251030T130000
DTSTAMP:20260929T002632
CREATED:20251006T024539Z
LAST-MODIFIED:20251124T200326Z
UID:18969-1761825600-1761829200@www.als-mnd.org
SUMMARY:Les Turner ALS Foundation Webinar: Functional Mobility Changes with ALS
DESCRIPTION:About the program: Changes in functional mobility are common with ALS. This often may present as difficulty with transfers\, need for a walking aide\, possible wheelchair evaluation\, and need for additional training with a caregiver. In this presentation\, we will cover common mobility changes along with a discussion on what to expect when partnering with an ALS provider and when you should consider scheduling with your ALS provider. The Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to the Gilbert & Jacqueline Fern Foundation and Mitsubishi Tanabe Pharma America for sponsoring this webinar.  \nAbout the speaker: Hannah Redd PT\, DPT\, NCS specializes in providing patient care in the area of neuromuscular disorders at the outpatient neurologic clinic at Shirley Ryan AbilityLab. Hannah is currently an adjunct faculty member with the Northwestern University Department of Physical Therapy and Human Movement Sciences and has previously been on faculty at Byrdine F. Lewis College of Nursing and Health Professions at Georgia State University and Emory University School of Medicine.   \nRegister Here
URL:https://www.als-mnd.org/event/functional-mobility-changes-with-als-what-to-expect-and-how-to-partner-with-your-healthcare-team/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251105T080000
DTEND;TZID=America/New_York:20251105T093000
DTSTAMP:20260929T002632
CREATED:20250830T013254Z
LAST-MODIFIED:20250830T013442Z
UID:18865-1762329600-1762335000@www.als-mnd.org
SUMMARY:Webinar: Annual Clinical Trials Update
DESCRIPTION:In this webinar\, we will share the latest information on ALS/MND treatments currently in Phase 3 clinical trials. We will look at trial timelines\, site locations\, additional programs available\, and key contacts for further information.\n \nModerators: Dr. Nadia Sethi & Dr. Martina de Majo\n \nCaptions in multiple languages available.
URL:https://www.als-mnd.org/event/annual-clinical-trials-update-2/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251113T130000
DTEND;TZID=America/Toronto:20251113T140000
DTSTAMP:20260929T002632
CREATED:20251107T034529Z
LAST-MODIFIED:20251124T200453Z
UID:19040-1763038800-1763042400@www.als-mnd.org
SUMMARY:Les Turner ALS Foundation Webinar: Mission Driven Care - How the VA is Transforming ALS Care
DESCRIPTION:Military Veterans are at increased risk of developing ALS. In 2008\, the VA extended benefits to all Veterans with ALS who served greater than 90 days of active duty. Dr. Howard will discuss the unique steps the VA has taken to care for Veterans with ALS\, and why the National Academies called the VA “A bright spot in the landscape of ALS care” in 2024. \nPresenter: Dr. Ileana Howard \nDate/time:   Thursday\, Nov 13th\, at 1 PM EST \nRegister here.
URL:https://www.als-mnd.org/event/mission-driven-care-how-the-va-is-transforming-als-care/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20251120T130000
DTEND;TZID=Europe/London:20251120T140000
DTSTAMP:20260929T002632
CREATED:20251107T034840Z
LAST-MODIFIED:20251124T200712Z
UID:19042-1763643600-1763647200@www.als-mnd.org
SUMMARY:Les Turner ALS Foundation Webinar: Managing the Burden of Constipation in People Living with ALS
DESCRIPTION:*This webinar was rescheduled from September. \nJoin us for an informative session focused on constipation management in people living with ALS. This webinar will explore the impact of constipation in this population\, examine the role of dietary fiber\, and discuss how hydration supports bowel health. The session will provide practical strategies to support digestive wellness in ALS care. \nPresenters: Brittany Hitson & Dominique Kosk \nDate/time:  Thursday\, Nov 20th\, at 1 PM EST \nRegister Here
URL:https://www.als-mnd.org/event/better-bowel-days-managing-the-burden-of-constipation-in-people-living-with-als-this-was-rescheduled-from-september/
LOCATION:Online
ORGANIZER;CN="Les Turner ALS Foundation":MAILTO:info@lesturnerals.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20251129
DTEND;VALUE=DATE:20251201
DTSTAMP:20260929T002632
CREATED:20250416T175652Z
LAST-MODIFIED:20250416T175652Z
UID:18435-1764374400-1764547199@www.als-mnd.org
SUMMARY:Alliance Meeting
DESCRIPTION:The Alliance Meeting is the place where member associations can meet and share experiences in growing\, running and building an ALS/MND association to support people living with ALS/MND. The meeting is attended by 200+ delegates from over 40 countries around the globe\, either in-person or virtually\, that represent the Alliance’s many member associations. (Open to Alliance members only) \nInfo and registration
URL:https://www.als-mnd.org/event/alliance-meeting-2/
CATEGORIES:Conference
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20251201
DTEND;VALUE=DATE:20251203
DTSTAMP:20260929T002632
CREATED:20250416T175856Z
LAST-MODIFIED:20250416T175856Z
UID:18437-1764547200-1764719999@www.als-mnd.org
SUMMARY:Allied Professionals Forum
DESCRIPTION:Are you ready to be part of something bigger? The Allied Professionals Forum (APF) brings together healthcare professionals from around the world\, including physiotherapists\, respiratory therapists\, nutritionists\, speech-language pathologists\, social workers and others working in the field of ALS/MND. With over 400 delegates attending from more than 40 countries\, this is your chance to engage in a truly global conversation on the challenges and advancements in ALS/MND care.  \nInfo and registration
URL:https://www.als-mnd.org/event/allied-professionals-forum-2/
CATEGORIES:Conference
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20251211T120000
DTEND;TZID=America/Chicago:20251211T130000
DTSTAMP:20260929T002632
CREATED:20251124T200652Z
LAST-MODIFIED:20251212T214003Z
UID:19069-1765454400-1765458000@www.als-mnd.org
SUMMARY:Les Turner ALS Foundation Webinar: The Cost of ALS - Where Research Stands and How it Compares to Other Diseases
DESCRIPTION:In this presentation\, Dr. Grouls will explore a concept people living with ALS know all too well: the financial burden of disease. She will trace the evolution of financial burden research in ALS\, drawing comparisons with the more established field of financial toxicity research in oncology. She’ll share what we’re learning from the latest research and what’s currently being studied—and just as importantly\, she’ll point out where we still need answers. \nAbout the Speaker: Astrid Grouls\, MD is a palliative care physician and clinical researcher at the Baylor College of Medicine in Houston\, TX. She obtained her medical degree and completed her internal medicine training at McGovern Medical School in Houston before completing a palliative care fellowship at MD Anderson. She began at Baylor College of Medicine in 2020\, and works on the inpatient palliative care service and in the ALS Multidisciplinary Clinic. Her clinical research focuses on improving quality of life for people living with ALS and spans advance care planning\, fatigue and financial burden. \nThe Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to the Gilbert & Jacqueline Fern Foundation & Mitsubishi Tanabe Pharma America for sponsoring this webinar. \nRegister Here
URL:https://www.als-mnd.org/event/cost-of-als/
LOCATION:Online
ORGANIZER;CN="Les Turner ALS Foundation":MAILTO:info@lesturnerals.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260128T160000
DTEND;TZID=America/Toronto:20260128T170000
DTSTAMP:20260929T002632
CREATED:20251219T183746Z
LAST-MODIFIED:20251219T183746Z
UID:19132-1769616000-1769619600@www.als-mnd.org
SUMMARY:Nothing About Us\, Without Us: Highlights from the 2025 Patient Fellows
DESCRIPTION:The 2025 Patient Fellows will share their key learnings and experiences from participating in the 36th International Symposium on ALS/MND. Guided by the theme “Nothing About Us\, Without Us\,” this webinar will explore how engaging in research discussions shaped their perspectives\, deepened their understanding of ALS/MND science\, and reinforced the importance of including the voices of those living with ALS/MND in research conversations worldwide. (Captions will be available in multiple languages.) \nREGISTER NOW
URL:https://www.als-mnd.org/event/nothing-about-us-without-us-highlights-from-the-2025-patient-fellows/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260131T120000
DTEND;TZID=America/Chicago:20260131T130000
DTSTAMP:20260929T002632
CREATED:20251212T213609Z
LAST-MODIFIED:20251212T213939Z
UID:19098-1769860800-1769864400@www.als-mnd.org
SUMMARY:Les Turner ALS Foundation Webinar: Living Fully\, Living Well - How Palliative Care Can Help
DESCRIPTION:Dr. Kara Bischoff will provide an introduction to palliative care and how it can be helpful to people with ALS and their loved ones. Aspects of advance care planning that are important for people with ALS will be discussed. Hospice will also be described and distinguished from palliative care. Finally\, information about how to find palliative care services will be provided. Questions will be solicited and answered. \nAbout the Speaker: Dr. Kara Bischoff is the Associate Division Chief for Outpatient Palliative Care and the Medical Director of the Outpatient Palliative Care Service at University of California\, San Francisco (UCSF). Dr. Bischoff has developed a particular expertise in palliative care for people with amyotrophic lateral sclerosis (ALS). She has published substantially about outpatient palliative for people will illnesses other than cancer and was recognized as an Emerging Leader in Palliative Medicine by the American Association of Hospice and Palliative Medicine. Dr. Bischoff received her medical degree from Harvard Medical School\, followed by a residency and chief residency at UCSF in Internal Medicine\, and a fellowship in Hospice and Palliative Medicine\, also at UCSF. She is a mother\, an outdoor enthusiast\, and a San Francisco Bay Area native. \nRegister Here
URL:https://www.als-mnd.org/event/palliative-care-can-help/
LOCATION:Online
ORGANIZER;CN="Les Turner ALS Foundation":MAILTO:info@lesturnerals.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260212T120000
DTEND;TZID=America/Chicago:20260212T130000
DTSTAMP:20260929T002632
CREATED:20260120T183922Z
LAST-MODIFIED:20260120T190825Z
UID:19154-1770897600-1770901200@www.als-mnd.org
SUMMARY:Les Turner ALS Foundation Webinar: Hospice Care and ALS
DESCRIPTION:Hospice Care and ALS: What It Is\, When to Consider It\, and How It Supports You \nJoin for our February ALS Learning series which will provide an overview of hospice care and how it supports individuals living with ALS and their caregivers. Participants will learn what hospice is\, when it may be appropriate\, and how it can improve comfort\, quality of life\, and emotional well-being. The session will also address common myths about hospice and offer guidance on starting these important conversations. Time will be reserved for questions and discussion.  \nThe Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to the Gilbert & Jacqueline Fern Foundation & Mitsubishi Tanabe Pharma America for sponsoring this webinar. \nAbout the Speaker: Katie Lord\, RN\, BSN is a seasoned hospice nurse and educator with a comprehensive background in end-of-life care. Over the course of her nursing career\, Katie has served in a wide range of hospice roles—including case management\, admissions\, on-call response\, inpatient care\, and leadership—gaining a deep\, practical understanding of the care journey from multiple perspectives. In her current role as Education Coordinator for the Illinois Hospice and Palliative Care Organization (ILHPCO)\, Katie develops and delivers educational programs aimed at strengthening the quality and accessibility of hospice care across the state. Known for her thoughtful approach and ability to connect clinical realities with compassionate best practices\, Katie helps healthcare professionals\, care providers\, and stakeholders navigate the complexities of end-of-life care with clarity and confidence. \nRegister Here
URL:https://www.als-mnd.org/event/hospice-care-and-als/
LOCATION:Online
ORGANIZER;CN="Les Turner ALS Foundation":MAILTO:info@lesturnerals.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260224T090000
DTEND;TZID=America/Toronto:20260224T100000
DTSTAMP:20260929T002632
CREATED:20251219T183802Z
LAST-MODIFIED:20251219T184022Z
UID:19134-1771923600-1771927200@www.als-mnd.org
SUMMARY:Approved Treatments in ALS/MND
DESCRIPTION:This webinar will feature an open conversation and testimonials about access to approved treatments for ALS/MND around the world. We will explore which therapies are approved in different countries and regions\, and discuss if and how people living with ALS/MND can access these treatments in practice.\n \nREGISTER NOW
URL:https://www.als-mnd.org/event/approved-treatments/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260310T090000
DTEND;TZID=America/Toronto:20260310T100000
DTSTAMP:20260929T002632
CREATED:20260227T151159Z
LAST-MODIFIED:20260227T151357Z
UID:19252-1773133200-1773136800@www.als-mnd.org
SUMMARY:Headline Results from the 2025 ALS/MND Fundamental Rights Survey
DESCRIPTION:Join us for a presentation of the headline findings from the third iteration of the ALS/MND Fundamental Rights Survey. This session will share key data and emerging trends on how fundamental rights are experienced by people living with ALS/MND around the world. We will explore areas of progress\, identify persistent gaps\, and consider what the findings mean for advocacy\, policy\, and system-level change. This webinar offers a snapshot of where we stand and where action is still needed. \nWe thank Biogen and Tanabe Pharma America for their generous support of this project. (Multilingual captions available.) \n\nREGISTER NOW
URL:https://www.als-mnd.org/event/headline-results-2025-survey/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260316T140000
DTEND;TZID=America/New_York:20260316T153000
DTSTAMP:20260929T002632
CREATED:20260227T150328Z
LAST-MODIFIED:20260227T150909Z
UID:19247-1773669600-1773675000@www.als-mnd.org
SUMMARY:ALS Association Webinar: Exploring ALS Clinical Trials
DESCRIPTION:Exploring ALS Clinical Trials: What They Are\, How to Find Them\, and What Happens Next \nFor many in the ALS community\, clinical trials represent both hope and uncertainty. This educational webinar offers a clear\, supportive overview of what clinical trials are\, how ALS clinical trials work\, how to search for opportunities\, and what happens after you contact a trial site. Featuring a conversation with Dr. Kuldip Dave\, this session will walk through screening\, timelines\, and common questions about enrollment. Designed for people living with ALS and their care partners\, this program aims to increase education\, reduce confusion\, build confidence\, and connect attendees with reliable pathways to learn more. \nSpeaker: Dr. Kuldip Dave\, Senior Vice President of Research\, ALS Association \nRegister Here
URL:https://www.als-mnd.org/event/exploring-als-clinical-trials/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260326T130000
DTEND;TZID=America/Toronto:20260326T140000
DTSTAMP:20260929T002632
CREATED:20260303T235851Z
LAST-MODIFIED:20260304T000222Z
UID:19262-1774530000-1774533600@www.als-mnd.org
SUMMARY:Les Turner ALS Foundation Webinar: Tissue Donation and the Future of ALS Research
DESCRIPTION:The Gift of Discovery: Tissue Donation and the Future of ALS Research \nTissue donation is one of the most powerful contributions a person living with ALS can make to future generations. Join Dr. Lyle Ostrow from Temple University who will discuss the tissue donation process\, address common questions and concerns\, explain what researchers can learn from donated tissue\, and share how those interested can make arrangements. The Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to the Gilbert & Jacqueline Fern Foundation & Tanabe Pharma America for sponsoring this webinar. \nAbout the Speaker: Lyle W. Ostrow\, MD\, PhD Associate Professor\, Neurology\, The MDA/ALS Center of Hope at Temple University Lewis Katz School of Medicine \nRegister
URL:https://www.als-mnd.org/event/tissue-donation/
LOCATION:Online
ORGANIZER;CN="Les Turner ALS Foundation":MAILTO:info@lesturnerals.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20260411T080000
DTEND;TZID=Europe/Rome:20260411T170000
DTSTAMP:20260929T002632
CREATED:20260321T134923Z
LAST-MODIFIED:20260327T180122Z
UID:19316-1775894400-1775926800@www.als-mnd.org
SUMMARY:conSLAncio Webinar: From Diagnosis to Treatment of Voice Disorders (In Italian)
DESCRIPTION:Event: Toward New Perspectives: From Diagnosis to Treatment of Voice Disorders (In Italian)\nDate: April 11\, 2026\nTime: 8:00 AM CEST\nRegister here. \nAlcune patologie neurologiche e otorinolaringoiatriche possono causare la perdita o la significativa alterazione della voce\, determinando un impatto importante e spesso invalidante nella vita della persona che ne è colpita. La voce rappresenta infatti una parte fondamentale dell’identità individuale: perderla significa perdere uno strumento essenziale di comunicazione e una componente rilevante della propria espressione personale. Il convegno si propone di approfondire le principali cause neurologiche e otorinolaringoiatriche che possono determinare la perdita o la modifica della voce. La seconda parte dell’evento\, aperta anche agli utenti (pazienti e familiari)\, ha l’obiettivo di offrire informazioni\, spunti riabilitativi e strumenti di conoscenza riguardo alle possibilità di recupero\, miglioramento o compensazione della funzione vocale. La tavola rotonda finale\, con la partecipazione delle associazioni del territorio\, permetterà inoltre di presentare una panoramica delle diverse realtà presenti e delle risorse disponibili per il supporto ai pazienti e ai loro caregiver. \nProgramma  \n8:15 | Registrazione partecipanti\n8:45 | Saluti istituzionali ed introduzione al corso (Grandis M. e Schenone A.) \nSessione I La voce e le malattie neurologiche \nModeratori: Grandis M.\, Schenone A. \n9:00 | Anatomia e fisiologia della produzione della voce (Cusimano A.)\n9:20 | La voce nelle malattie neuromuscolari (Gemelli C.)\n9:40 | La voce nella Sclerosi Multipla (Brichetto G.)\n10:00 | la voce nell’ictus (Mancuso E.)\n10:20 | La voce nei disordini del movimento (Colucci M.) Discussione\n11:00 | Coffee break \nSessione II La voce nelle patologie ORL \nModeratori: Giusti A.\, Barbieri M. \n11.20 | Trattamento ambulatoriale delle patologie benigne laringee (Filauro M.)\n11:40 | Trattamento delle paralisi laringee (Mora F.) Discussione\n12:30 | Analisi della voce nelle malattie neurodegenerative: stato dell’arte e prospettive future (Schenone C.)\n12:45| Lettura magistrale: “Quando il volto parla: intelligenza artificiale e movimenti orofacciali come biomarcatori nelle malattie neurodegenerative” (Bandini A.)\n13:10| Pausa pranzo con light lunch \nSESSIONE III La riabilitazione \nModeratori: Castellini P.\, Marogna M.\, Mori L. \n14:15 | Le indicazioni mediche al trattamento logopedico (Giusti A.)\n14:25 | Approccio logopedico alla voce “neurologica” (Crispiatico V.)\n14:45 | Approccio logopedico alla voce “otorinolaringoiatrica” (Lugano F.)\n15:05 | I bisogni comunicativi nelle persone con SLA (Vestito L.)\n15:15 | Voice for Purpose: la AI sicura che permette alle persone di comunicare con voci espressive (Minazzi F.)\n15:35 | Voce e Malattia di Parkinson: le arti terapie (Pelosin E.) Sessione IV La Voce tra scienza\, esperienza ed arte | Moderatore: Piturru R.\n15:55 | Tavola rotonda con le associazioni: conSLAncio (De Rossi N.)\, ALP (Trebino E.)\, ALICE Italia (Reale N.)\, AILAR (Torri D.)\n16:30 | La voce artistica introduce (Garzoglio E.)\n16:40 | La voce come strumento dell’attore: esperienza e pratica teatrale (Bandini A.)\n17:00 | Chiusura dei lavori
URL:https://www.als-mnd.org/event/toward-new-perspectives-from-diagnosis-to-treatment-of-voice-disorders-in-italian/
LOCATION:San Martino Hospital\, Largo Rosanna Benzi\, 10\, Genova\, Italy
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260414T140000
DTEND;TZID=America/Toronto:20260414T153000
DTSTAMP:20260929T002632
CREATED:20260401T140011Z
LAST-MODIFIED:20260401T191118Z
UID:19377-1776175200-1776180600@www.als-mnd.org
SUMMARY:ALS Association Webinar: Becoming an Active Partner in ALS Decision-Making
DESCRIPTION:Your Care\, Your Voice: Becoming an Active Partner in ALS Decision-Making \nLiving with ALS means facing important decisions about your care – and your voice matters in every conversation. We’ll explore ways to become an active partner in your healthcare journey\, learn tips on having conversations that can help you express what matters most\, and review practical tools designed specifically for the ALS community.\nRegister Here
URL:https://www.als-mnd.org/event/als-association-webinar-becoming-an-active-partner-in-als-decision-making/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260423T120000
DTEND;TZID=America/Chicago:20260423T130000
DTSTAMP:20260929T002632
CREATED:20260327T175731Z
LAST-MODIFIED:20260327T175731Z
UID:19344-1776945600-1776949200@www.als-mnd.org
SUMMARY:Les Turner ALS Foundation Webinar: Informed Decision-Making in ALS
DESCRIPTION:Informed Decision-Making in ALS: An Open Discussion on Tracheostomy and Invasive Mechanical Ventilation \nJoin us for an open and honest conversation about one of the more challenging decisions people living with ALS face: whether to pursue tracheostomy and invasive mechanical ventilation. Our panel discussion brings together diverse perspectives; through their stories and insights\, this webinar will help people with ALS\, their families\, and care partners understand the medical\, emotional\, and practical considerations involved in this decision. Whether you’re considering this option or supporting someone through their decision\, this discussion will provide valuable perspectives to inform your journey. \nAbout the Speakers\nDanielle Burks\, LCPC\nMatt & Lynn Creen\, LTALSF Support Services Committee\nMelisa Diaz-Viera\, LTALSF Support Services Committee \nRegister
URL:https://www.als-mnd.org/event/les-turner-als-foundation-webinar-informed-decision-making-in-als/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260428T140000
DTEND;TZID=America/New_York:20260428T153000
DTSTAMP:20260929T002632
CREATED:20260401T140016Z
LAST-MODIFIED:20260401T190832Z
UID:19250-1777384800-1777390200@www.als-mnd.org
SUMMARY:ALS Association Webinar: Understanding the FTD of an FTD/ALS Diagnosis
DESCRIPTION:Understanding the FTD of an FTD/ALS Diagnosis \nFrontotemporal degeneration (FTD) and ALS are specific neurodegenerative disorders with different symptoms and underlying biology. As challenging as each can be on their own\, some people are diagnosed with both. This presentation will focus on the FTD part of an FTD/ALS diagnosis and provide an overview of its symptoms\, highlight how genetics can play a role\, discuss approaches to FTD symptom treatment and management\, and review how AFTD supports people with FTD and their families. \nRegister Here
URL:https://www.als-mnd.org/event/understanding-brain-computer-interfaces/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260429T080000
DTEND;TZID=America/Toronto:20260429T100000
DTSTAMP:20260929T002632
CREATED:20260227T151410Z
LAST-MODIFIED:20260227T151521Z
UID:19254-1777449600-1777456800@www.als-mnd.org
SUMMARY:ALS/MND Platform Trials Update
DESCRIPTION:Platform trials are reshaping how new therapies are tested in ALS/MND. Join us for updates from leaders of EXPERTS-ALS\, HEALEY\,  and SMART\, who will share the latest on trial design\, recruitment progress\, eligibility criteria\, and emerging developments. \nThis session offers an opportunity to better understand how these innovative trial models are advancing research and what they mean for people living with ALS/MND. (Multilingual captions available.) \n\nREGISTER NOW
URL:https://www.als-mnd.org/event/platform-trials-update/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260430T070000
DTEND;TZID=America/New_York:20260430T080000
DTSTAMP:20260929T002632
CREATED:20260417T190003Z
LAST-MODIFIED:20260417T190003Z
UID:19431-1777532400-1777536000@www.als-mnd.org
SUMMARY:Member Forum: Fundraising
DESCRIPTION:A member forum exploring fundraising strategies\, opportunities\, and shared learning to strengthen organizational capacity.\n \nRegistration note: Members only. To register or request more information\, email alliance@als-mnd.org.
URL:https://www.als-mnd.org/event/member-forum-fundraising/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260430T170000
DTEND;TZID=America/New_York:20260430T180000
DTSTAMP:20260929T002632
CREATED:20260417T190100Z
LAST-MODIFIED:20260417T190100Z
UID:19434-1777568400-1777572000@www.als-mnd.org
SUMMARY:Member Forum: Fundraising
DESCRIPTION:A member forum exploring fundraising strategies\, opportunities\, and shared learning to strengthen organizational capacity.\n \nRegistration note: Members only. To register or request more information\, email alliance@als-mnd.org.
URL:https://www.als-mnd.org/event/member-forum-fundraising-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260512
DTEND;VALUE=DATE:20260515
DTSTAMP:20260929T002632
CREATED:20260401T191356Z
LAST-MODIFIED:20260401T191854Z
UID:19379-1778544000-1778803199@www.als-mnd.org
SUMMARY:ALS Association Webinar Series: Connected Through the ALS Journey
DESCRIPTION:Connected Through the ALS Journey: Support\, Resources\, and Community \nMay 12 @ 2:00 pm – 3:30 pm EDT\nMay 13 @ 2:00 pm – 3:30 pm EDT\nMay 14 @ 2:00 pm – 3:30 pm EDT \nLiving with ALS can feel overwhelming and isolating. Throughout the ALS journey\, connection matters. \nThis special ALS Awareness Month webinar series emphasizes that no one has to navigate ALS alone. Across three sessions\, we’ll explore how connection can reduce isolation and improve quality of life. Learn how to connect with experienced Care Services professionals\, access programs that support independence\, and build meaningful connections with others living this journey. \nWhether you are newly diagnosed or further along in your ALS journey\, this series will help you discover resources and relationships that can support you every step of the way. \nRegister Here \nYour Connection to Support: The ALS Care Navigation Program \nTuesday\, May 12\, 2026 @ 2:00 pm – 3:30 pm EDT \nOne of the most important connections in the ALS journey is your ALS Care Navigation team. Care Services professionals are here to support individuals living with ALS and their families from diagnosis through every stage of the journey. In this session\, you will learn how ALS Care Navigators can help you find resources\, answer questions\, solve problems\, and provide emotional support. Whether you need help finding equipment\, understanding services\, or simply someone to talk to who understands ALS\, your Care Navigation team is here for you. This session will help you understand how to make the most of this important connection and how Care Navigators can support you throughout your ALS journey. \nSpeakers: Tara Dhakal and Norriell Richards \nSupporting Independence: Programs and Equipment That Help You Live Well with ALS \nWednesday\, May 13\, 2026 @ 2:00 pm – 3:30 pm EDT \nALS brings changes\, but the right tools and support can help you maintain independence\, safety\, and quality of life. This session will introduce key ALS Association programs that support daily living\, including durable medical equipment resources\, virtual home assessments\, ramp programs\, and communication support through alternative and augmentative communication (AAC). In this session\, you will learn what resources are available\, how to access them\, and how these programs can help you adapt to changes throughout the ALS journey. \nSpeakers: Steve Morse\, Haley Holland\, and Matt Gonzalez \nFinding Community: Connecting with Others in the ALS Journey \nThursday\, May 14\, 2026 @ 2:00 pm – 3:30 pm EDT \nLiving with ALS can feel isolating\, but connection with others who understand can make a powerful difference. This session will explore the many ways individuals and families can connect with the ALS community\, including support groups\, events such as the Walk to Defeat ALS\, advocacy opportunities\, and special events like Lou Gehrig Day at Major League Baseball parks. You will learn how connecting with others can reduce isolation\, build strength\, and create meaningful relationships throughout the ALS journey. \nSpeakers: Jennifer Myhre\, Daniel Cramer\, Allison Lardner\, and Cary Justmann
URL:https://www.als-mnd.org/event/als-association-webinar-connected-through-the-als-journey/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260520T070000
DTEND;TZID=America/New_York:20260520T080000
DTSTAMP:20260929T002632
CREATED:20260417T190308Z
LAST-MODIFIED:20260417T190308Z
UID:19436-1779260400-1779264000@www.als-mnd.org
SUMMARY:Member Forum: Advocacy and Campaigns\, Government Engagement and Funding
DESCRIPTION:A member forum focused on advocacy strategies\, campaign development\, government engagement\, and approaches to securing funding.\n \nRegistration note: Members only. To register or request more information\, email alliance@als-mnd.org.
URL:https://www.als-mnd.org/event/member-forum-advocacy-and-campaigns-government-engagement-and-funding/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260520T170000
DTEND;TZID=America/New_York:20260520T180000
DTSTAMP:20260929T002632
CREATED:20260417T190335Z
LAST-MODIFIED:20260417T190357Z
UID:19438-1779296400-1779300000@www.als-mnd.org
SUMMARY:Member Forum: Advocacy and Campaigns\, Government Engagement and Funding
DESCRIPTION:A member forum focused on advocacy strategies\, campaign development\, government engagement\, and approaches to securing funding.\n \nRegistration note: Members only. To register or request more information\, email alliance@als-mnd.org.
URL:https://www.als-mnd.org/event/member-forum-advocacy-and-campaigns-government-engagement-and-funding-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260528T120000
DTEND;TZID=America/Chicago:20260528T130000
DTSTAMP:20260929T002632
CREATED:20260428T182607Z
LAST-MODIFIED:20260428T182842Z
UID:19512-1779969600-1779973200@www.als-mnd.org
SUMMARY:Les Turner ALS Foundation Webinar: Real Stories of Community After an ALS Diagnosis
DESCRIPTION:Finding Your People: Real Stories of Community After an ALS Diagnosis \nAn ALS diagnosis can change everything — but it doesn’t mean navigating the road ahead alone. In this panel discussion\, Rob Akins\, Tina Cascio\, Kelly McGinn\, and Juan Reyes\, people living with ALS\, will share their personal stories of finding community\, getting involved with organizations like Her ALS Story\, I AM ALS\, and the Les Turner ALS Foundation\, and discovering the strength that comes from connection. Hear firsthand how getting involved transformed their journey. A live Q&A will follow. \nSpeakers:  \n\nRob Akins\, person living with ALS\, Les Turner ALS Foundation\nTina Cascio\, person living with ALS\, Les Turner ALS Foundation\, & Her ALS Story\nKelly McGinn\, person living with ALS\, Her ALS Story\nJuan Reyes\, person living with ALS\, veteran\, & I AM ALS\n\nRegister: https://us02web.zoom.us/webinar/register/WN_vcnWzRU4RnqugE9TVIUfLw
URL:https://www.als-mnd.org/event/les-turner-als-foundation-webinar-real-stories/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260623T080000
DTEND;TZID=America/New_York:20260623T090000
DTSTAMP:20260929T002632
CREATED:20260417T190446Z
LAST-MODIFIED:20260417T190547Z
UID:19440-1782201600-1782205200@www.als-mnd.org
SUMMARY:Member Forum: Workforce Challenges
DESCRIPTION:A member forum examining workforce challenges affecting organizations and services across the ALS/MND community.\n \nRegistration note: Members only. To register or request more information\, email alliance@als-mnd.org.
URL:https://www.als-mnd.org/event/member-forum-workforce-challenges/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260623T180000
DTEND;TZID=America/New_York:20260623T190000
DTSTAMP:20260929T002632
CREATED:20260417T190523Z
LAST-MODIFIED:20260417T190624Z
UID:19442-1782237600-1782241200@www.als-mnd.org
SUMMARY:Member Forum: Workforce Challenges
DESCRIPTION:A member forum examining workforce challenges affecting organizations and services across the ALS/MND community.\n \nRegistration note: Members only. To register or request more information\, email alliance@als-mnd.org.
URL:https://www.als-mnd.org/event/member-forum-workforce-challenges-2/
END:VEVENT
END:VCALENDAR