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X-WR-CALNAME:International Alliance of ALS/MND Associations
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X-WR-CALDESC:Events for International Alliance of ALS/MND Associations
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DTSTART:20260308T070000
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260414T140000
DTEND;TZID=America/Toronto:20260414T153000
DTSTAMP:20260928T205156
CREATED:20260401T140011Z
LAST-MODIFIED:20260401T191118Z
UID:19377-1776175200-1776180600@www.als-mnd.org
SUMMARY:ALS Association Webinar: Becoming an Active Partner in ALS Decision-Making
DESCRIPTION:Your Care\, Your Voice: Becoming an Active Partner in ALS Decision-Making \nLiving with ALS means facing important decisions about your care – and your voice matters in every conversation. We’ll explore ways to become an active partner in your healthcare journey\, learn tips on having conversations that can help you express what matters most\, and review practical tools designed specifically for the ALS community.\nRegister Here
URL:https://www.als-mnd.org/event/als-association-webinar-becoming-an-active-partner-in-als-decision-making/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260423T120000
DTEND;TZID=America/Chicago:20260423T130000
DTSTAMP:20260928T205156
CREATED:20260327T175731Z
LAST-MODIFIED:20260327T175731Z
UID:19344-1776945600-1776949200@www.als-mnd.org
SUMMARY:Les Turner ALS Foundation Webinar: Informed Decision-Making in ALS
DESCRIPTION:Informed Decision-Making in ALS: An Open Discussion on Tracheostomy and Invasive Mechanical Ventilation \nJoin us for an open and honest conversation about one of the more challenging decisions people living with ALS face: whether to pursue tracheostomy and invasive mechanical ventilation. Our panel discussion brings together diverse perspectives; through their stories and insights\, this webinar will help people with ALS\, their families\, and care partners understand the medical\, emotional\, and practical considerations involved in this decision. Whether you’re considering this option or supporting someone through their decision\, this discussion will provide valuable perspectives to inform your journey. \nAbout the Speakers\nDanielle Burks\, LCPC\nMatt & Lynn Creen\, LTALSF Support Services Committee\nMelisa Diaz-Viera\, LTALSF Support Services Committee \nRegister
URL:https://www.als-mnd.org/event/les-turner-als-foundation-webinar-informed-decision-making-in-als/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260428T140000
DTEND;TZID=America/New_York:20260428T153000
DTSTAMP:20260928T205156
CREATED:20260401T140016Z
LAST-MODIFIED:20260401T190832Z
UID:19250-1777384800-1777390200@www.als-mnd.org
SUMMARY:ALS Association Webinar: Understanding the FTD of an FTD/ALS Diagnosis
DESCRIPTION:Understanding the FTD of an FTD/ALS Diagnosis \nFrontotemporal degeneration (FTD) and ALS are specific neurodegenerative disorders with different symptoms and underlying biology. As challenging as each can be on their own\, some people are diagnosed with both. This presentation will focus on the FTD part of an FTD/ALS diagnosis and provide an overview of its symptoms\, highlight how genetics can play a role\, discuss approaches to FTD symptom treatment and management\, and review how AFTD supports people with FTD and their families. \nRegister Here
URL:https://www.als-mnd.org/event/understanding-brain-computer-interfaces/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260429T080000
DTEND;TZID=America/Toronto:20260429T100000
DTSTAMP:20260928T205156
CREATED:20260227T151410Z
LAST-MODIFIED:20260227T151521Z
UID:19254-1777449600-1777456800@www.als-mnd.org
SUMMARY:ALS/MND Platform Trials Update
DESCRIPTION:Platform trials are reshaping how new therapies are tested in ALS/MND. Join us for updates from leaders of EXPERTS-ALS\, HEALEY\,  and SMART\, who will share the latest on trial design\, recruitment progress\, eligibility criteria\, and emerging developments. \nThis session offers an opportunity to better understand how these innovative trial models are advancing research and what they mean for people living with ALS/MND. (Multilingual captions available.) \n\nREGISTER NOW
URL:https://www.als-mnd.org/event/platform-trials-update/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260430T070000
DTEND;TZID=America/New_York:20260430T080000
DTSTAMP:20260928T205156
CREATED:20260417T190003Z
LAST-MODIFIED:20260417T190003Z
UID:19431-1777532400-1777536000@www.als-mnd.org
SUMMARY:Member Forum: Fundraising
DESCRIPTION:A member forum exploring fundraising strategies\, opportunities\, and shared learning to strengthen organizational capacity.\n \nRegistration note: Members only. To register or request more information\, email alliance@als-mnd.org.
URL:https://www.als-mnd.org/event/member-forum-fundraising/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260430T170000
DTEND;TZID=America/New_York:20260430T180000
DTSTAMP:20260928T205156
CREATED:20260417T190100Z
LAST-MODIFIED:20260417T190100Z
UID:19434-1777568400-1777572000@www.als-mnd.org
SUMMARY:Member Forum: Fundraising
DESCRIPTION:A member forum exploring fundraising strategies\, opportunities\, and shared learning to strengthen organizational capacity.\n \nRegistration note: Members only. To register or request more information\, email alliance@als-mnd.org.
URL:https://www.als-mnd.org/event/member-forum-fundraising-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260512
DTEND;VALUE=DATE:20260515
DTSTAMP:20260928T205156
CREATED:20260401T191356Z
LAST-MODIFIED:20260401T191854Z
UID:19379-1778544000-1778803199@www.als-mnd.org
SUMMARY:ALS Association Webinar Series: Connected Through the ALS Journey
DESCRIPTION:Connected Through the ALS Journey: Support\, Resources\, and Community \nMay 12 @ 2:00 pm – 3:30 pm EDT\nMay 13 @ 2:00 pm – 3:30 pm EDT\nMay 14 @ 2:00 pm – 3:30 pm EDT \nLiving with ALS can feel overwhelming and isolating. Throughout the ALS journey\, connection matters. \nThis special ALS Awareness Month webinar series emphasizes that no one has to navigate ALS alone. Across three sessions\, we’ll explore how connection can reduce isolation and improve quality of life. Learn how to connect with experienced Care Services professionals\, access programs that support independence\, and build meaningful connections with others living this journey. \nWhether you are newly diagnosed or further along in your ALS journey\, this series will help you discover resources and relationships that can support you every step of the way. \nRegister Here \nYour Connection to Support: The ALS Care Navigation Program \nTuesday\, May 12\, 2026 @ 2:00 pm – 3:30 pm EDT \nOne of the most important connections in the ALS journey is your ALS Care Navigation team. Care Services professionals are here to support individuals living with ALS and their families from diagnosis through every stage of the journey. In this session\, you will learn how ALS Care Navigators can help you find resources\, answer questions\, solve problems\, and provide emotional support. Whether you need help finding equipment\, understanding services\, or simply someone to talk to who understands ALS\, your Care Navigation team is here for you. This session will help you understand how to make the most of this important connection and how Care Navigators can support you throughout your ALS journey. \nSpeakers: Tara Dhakal and Norriell Richards \nSupporting Independence: Programs and Equipment That Help You Live Well with ALS \nWednesday\, May 13\, 2026 @ 2:00 pm – 3:30 pm EDT \nALS brings changes\, but the right tools and support can help you maintain independence\, safety\, and quality of life. This session will introduce key ALS Association programs that support daily living\, including durable medical equipment resources\, virtual home assessments\, ramp programs\, and communication support through alternative and augmentative communication (AAC). In this session\, you will learn what resources are available\, how to access them\, and how these programs can help you adapt to changes throughout the ALS journey. \nSpeakers: Steve Morse\, Haley Holland\, and Matt Gonzalez \nFinding Community: Connecting with Others in the ALS Journey \nThursday\, May 14\, 2026 @ 2:00 pm – 3:30 pm EDT \nLiving with ALS can feel isolating\, but connection with others who understand can make a powerful difference. This session will explore the many ways individuals and families can connect with the ALS community\, including support groups\, events such as the Walk to Defeat ALS\, advocacy opportunities\, and special events like Lou Gehrig Day at Major League Baseball parks. You will learn how connecting with others can reduce isolation\, build strength\, and create meaningful relationships throughout the ALS journey. \nSpeakers: Jennifer Myhre\, Daniel Cramer\, Allison Lardner\, and Cary Justmann
URL:https://www.als-mnd.org/event/als-association-webinar-connected-through-the-als-journey/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260520T070000
DTEND;TZID=America/New_York:20260520T080000
DTSTAMP:20260928T205156
CREATED:20260417T190308Z
LAST-MODIFIED:20260417T190308Z
UID:19436-1779260400-1779264000@www.als-mnd.org
SUMMARY:Member Forum: Advocacy and Campaigns\, Government Engagement and Funding
DESCRIPTION:A member forum focused on advocacy strategies\, campaign development\, government engagement\, and approaches to securing funding.\n \nRegistration note: Members only. To register or request more information\, email alliance@als-mnd.org.
URL:https://www.als-mnd.org/event/member-forum-advocacy-and-campaigns-government-engagement-and-funding/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260520T170000
DTEND;TZID=America/New_York:20260520T180000
DTSTAMP:20260928T205156
CREATED:20260417T190335Z
LAST-MODIFIED:20260417T190357Z
UID:19438-1779296400-1779300000@www.als-mnd.org
SUMMARY:Member Forum: Advocacy and Campaigns\, Government Engagement and Funding
DESCRIPTION:A member forum focused on advocacy strategies\, campaign development\, government engagement\, and approaches to securing funding.\n \nRegistration note: Members only. To register or request more information\, email alliance@als-mnd.org.
URL:https://www.als-mnd.org/event/member-forum-advocacy-and-campaigns-government-engagement-and-funding-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260528T120000
DTEND;TZID=America/Chicago:20260528T130000
DTSTAMP:20260928T205156
CREATED:20260428T182607Z
LAST-MODIFIED:20260428T182842Z
UID:19512-1779969600-1779973200@www.als-mnd.org
SUMMARY:Les Turner ALS Foundation Webinar: Real Stories of Community After an ALS Diagnosis
DESCRIPTION:Finding Your People: Real Stories of Community After an ALS Diagnosis \nAn ALS diagnosis can change everything — but it doesn’t mean navigating the road ahead alone. In this panel discussion\, Rob Akins\, Tina Cascio\, Kelly McGinn\, and Juan Reyes\, people living with ALS\, will share their personal stories of finding community\, getting involved with organizations like Her ALS Story\, I AM ALS\, and the Les Turner ALS Foundation\, and discovering the strength that comes from connection. Hear firsthand how getting involved transformed their journey. A live Q&A will follow. \nSpeakers:  \n\nRob Akins\, person living with ALS\, Les Turner ALS Foundation\nTina Cascio\, person living with ALS\, Les Turner ALS Foundation\, & Her ALS Story\nKelly McGinn\, person living with ALS\, Her ALS Story\nJuan Reyes\, person living with ALS\, veteran\, & I AM ALS\n\nRegister: https://us02web.zoom.us/webinar/register/WN_vcnWzRU4RnqugE9TVIUfLw
URL:https://www.als-mnd.org/event/les-turner-als-foundation-webinar-real-stories/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260623T080000
DTEND;TZID=America/New_York:20260623T090000
DTSTAMP:20260928T205156
CREATED:20260417T190446Z
LAST-MODIFIED:20260417T190547Z
UID:19440-1782201600-1782205200@www.als-mnd.org
SUMMARY:Member Forum: Workforce Challenges
DESCRIPTION:A member forum examining workforce challenges affecting organizations and services across the ALS/MND community.\n \nRegistration note: Members only. To register or request more information\, email alliance@als-mnd.org.
URL:https://www.als-mnd.org/event/member-forum-workforce-challenges/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260623T180000
DTEND;TZID=America/New_York:20260623T190000
DTSTAMP:20260928T205156
CREATED:20260417T190523Z
LAST-MODIFIED:20260417T190624Z
UID:19442-1782237600-1782241200@www.als-mnd.org
SUMMARY:Member Forum: Workforce Challenges
DESCRIPTION:A member forum examining workforce challenges affecting organizations and services across the ALS/MND community.\n \nRegistration note: Members only. To register or request more information\, email alliance@als-mnd.org.
URL:https://www.als-mnd.org/event/member-forum-workforce-challenges-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20260625T130000
DTEND;TZID=America/Halifax:20260625T140000
DTSTAMP:20260928T205156
CREATED:20260611T234323Z
LAST-MODIFIED:20260807T113139Z
UID:19642-1782392400-1782396000@www.als-mnd.org
SUMMARY:Les Turner ALS Foundation: The ALS Turbocharged Living Scale
DESCRIPTION:A New Way to Measure What Matters \nJoin us for an inspiring one-hour conversation with Peggy Plews-Ogan\, MD\, of the Hummingbird Fund\, as she shares the story behind the ALS Turbocharged Living Scale\, a powerful framework developed by her late husband. The scale offers a meaningful way for people living with ALS to measure and celebrate quality of life beyond physical function. Whether you are navigating ALS yourself or supporting someone who is\, this webinar will offer a fresh perspective and practical insight. \nAbout the Speaker: Peggy Plews-Ogan\, MD\, is Bernard B. and Annie E. Brodie Professor of Medicine at the University of Virginia School of Medicine and the Co-Director of the Wisdom and Wellbeing program—a health-system initiative to address stress\, burnout and professionalism at UVA\, which includes a coaching program for faculty and staff. Peggy’s husband Jim—who was diagnosed with ALS in 2021 and passed away in July 2024 from the disease—was a pediatrician and Emeritus Associate Professor at UVA. After Jim’s diagnosis\, Peggy and Jim devoted their lives to advocacy work toward ALS. She and Jim have two grown children\, Erin (assistant professor of medicine at the University of Wisconsin Madison) and William (a graduate of Columbia Law School who now practices in NYC)\, along with son-in-law Hal and daughter-in-law Monika\, who all advocate to eliminate ALS! \nLink to Register: https://us02web.zoom.us/webinar/register/WN_ABIvilnBQ1mfRC4fwZBIkQ
URL:https://www.als-mnd.org/event/the-als-turbocharged-living-scale-a-new-way-to-measure-what-matters/
ORGANIZER;CN="Les Turner ALS Foundation":MAILTO:info@lesturnerals.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260714T070000
DTEND;TZID=America/New_York:20260714T083000
DTSTAMP:20260928T205156
CREATED:20260417T182024Z
LAST-MODIFIED:20260417T182100Z
UID:19426-1784012400-1784017800@www.als-mnd.org
SUMMARY:Member Roundtable: From Principles to Practice – Building the Baseline Model for ALS/MND Clinics
DESCRIPTION:Multidisciplinary care extends life and improves quality of life\, yet clinic structures differ greatly across regions. This member roundtable will explore the key components of a baseline ALS/MND clinic model\, how it can be adapted regionally\, and how the Alliance can support implementation worldwide. \nGroup discussion (two options to accommodate time zones):\n\nGroup 1: 9:00–10:30 AM ET\nGroup 2: 6:00–7:30 PM ET\n\nRegistration Note: Members only. To register or request more information\, email alliance@als-mnd.org.
URL:https://www.als-mnd.org/event/member-roundtable-from-principles-to-practice-building-the-baseline-model-for-als-mnd-clinics/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260723T130000
DTEND;TZID=America/New_York:20260723T140000
DTSTAMP:20260928T205156
CREATED:20260630T150921Z
LAST-MODIFIED:20260807T113048Z
UID:19848-1784811600-1784815200@www.als-mnd.org
SUMMARY:Les Turner ALS Foundation: Traveling with ALS: What to Know Before You Go
DESCRIPTION:Les Turner ALS Foundation: ALS-FTD Clinicopathological OverlapTravel and exploration don’t need to stop with an ALS diagnosis. Join us for our July ALS Learning Series on travel. Kari Brouwer\, Craig and Emily Mandell\, and Monica Meder O’Callaghan will come together to share honest stories and hard-won advice about navigating travel with ALS. From practical planning strategies and adaptive equipment to the emotional side of getting out and seeing the world\, our panelists cover what it actually takes to get from point A to point B. Whether you’re planning a big trip or just trying to visit loved ones\, we’ll try and cover it all. \nRegistration Link: https://us02web.zoom.us/webinar/register/WN_y9diSKmvQry_VRr3fFUSEA \nAbout the Speakers \nKari Brouwer\, OTR/L: Kari has been working on the inpatient rehab team as an occupational therapist at Northwestern for 11 years and in the Neuromuscular outpatient clinic for 10 years. She enjoys getting to know each patient that comes into the clinic and works hard to help make their lives a little easier. \nCraig & Emily Mandell: Craig and Emily Mandell have been married since 2009 and have two kids ages 13 and 11. They live in the North Shore of Chicago\, where Craig is an attorney and Emily is in life sciences consulting. Since Craig was diagnosed with ALS in 2024\, they have travelled to Paris\, London\, Amsterdam\, Germany\, Denmark\, Mexico\, and several National Parks. \nMonica Meder O’Callaghan: Monica was diagnosed with bulbar onset ALS in June of 2022 but isn’t letting that slow her down! Always an avid traveler and adventure seeker\, Monica has continued to live life to the fullest! Since her diagnosis\, Monica and her family have traveled to 14 states and 7 countries\, while also enjoying all that Chicago has to offer. While travel looks different now\, the memories made are priceless and forever treasured.
URL:https://www.als-mnd.org/event/traveling-with-als-what-to-know-before-you-go/
ORGANIZER;CN="Les Turner ALS Foundation":MAILTO:info@lesturnerals.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260819T080000
DTEND;TZID=America/New_York:20260819T090000
DTSTAMP:20260928T205156
CREATED:20260417T190715Z
LAST-MODIFIED:20260807T113332Z
UID:19444-1787126400-1787130000@www.als-mnd.org
SUMMARY:Member Forum: Equitable Access to Care
DESCRIPTION:A member forum discussing barriers\, opportunities\, and practical approaches to improving equitable access to ALS/MND care.\n \nRegistration note: Members only. To register or request more information\, email alliance@als-mnd.org.
URL:https://www.als-mnd.org/event/member-forum-equitable-access-to-care/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260819T180000
DTEND;TZID=America/New_York:20260819T190000
DTSTAMP:20260928T205156
CREATED:20260417T190740Z
LAST-MODIFIED:20260807T113352Z
UID:19446-1787162400-1787166000@www.als-mnd.org
SUMMARY:Member Forum: Equitable Access to Care
DESCRIPTION:A member forum discussing barriers\, opportunities\, and practical approaches to improving equitable access to ALS/MND care.\n \nRegistration note: Members only. To register or request more information\, email alliance@als-mnd.org.
URL:https://www.als-mnd.org/event/member-forum-equitable-access-to-care-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260820T110000
DTEND;TZID=America/Toronto:20260820T120000
DTSTAMP:20260928T205156
CREATED:20260729T204217Z
LAST-MODIFIED:20260807T113621Z
UID:19946-1787223600-1787227200@www.als-mnd.org
SUMMARY:Les Turner ALS Foundation: ALS-FTD Clinicopathological Overlap
DESCRIPTION:Les Turner ALS Foundation: ALS-FTD Clinicopathological Overlap \nALS and frontotemporal dementia (FTD) are increasingly understood to share underlying biological connections\, and some people living with ALS may also experience changes in thinking\, behavior\, or personality. Join Dr. David Irwin from Penn Medicine\, as he explores the relationship between ALS and ALS-FTD\, explaining what current research tells us about how these conditions overlap. This session will help you understand what cognitive and behavioral changes to watch for\, how they may show up over the course of the disease\, and what this means for care and support planning. \nAbout the Speaker: Dr. David Irwin is the clinical director of the Penn Frontotemporal Degeneration Center and PI of the Penn Digital Neuropathology Lab at the University of Pennsylvania Perelman School of medicine. He has dual training in cognitive neurology and neuropathology and his lab focuses on integrating human brain histopathology and molecular techniques with antemortem clinical data\, with the overall goal of identifying therapeutic targets and markers of disease progression that can serve as endpoints in treatment trials for FTD\, ALS\, LBD\, AD and related neurodegenerative disorders. \nRegister now
URL:https://www.als-mnd.org/event/als-ftd-clinicopathological-overlap/
ORGANIZER;CN="Les Turner ALS Foundation":MAILTO:info@lesturnerals.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260908T080000
DTEND;TZID=America/New_York:20260908T090000
DTSTAMP:20260928T205156
CREATED:20260417T190900Z
LAST-MODIFIED:20260807T113300Z
UID:19450-1788854400-1788858000@www.als-mnd.org
SUMMARY:Member Forum: Health Literacy & Understanding ALS/MND
DESCRIPTION:A member forum focused on health literacy and improving understanding\, navigation\, and access to information for people affected by ALS/MND.\n \nRegistration note: Members only. To register or request more information\, email alliance@als-mnd.org.
URL:https://www.als-mnd.org/event/member-forum-health-literacy/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260908T140000
DTEND;TZID=America/New_York:20260908T150000
DTSTAMP:20260928T205156
CREATED:20260401T190719Z
LAST-MODIFIED:20260904T165352Z
UID:19375-1788876000-1788879600@www.als-mnd.org
SUMMARY:ALS Association Webinar: Your Roadmap to Eating\, Swallowing\, and Nutrition with ALS
DESCRIPTION:Changes with eating and swallowing are common in ALS\, and can feel overwhelming\, but having the right information can make planning ahead easier. Join us for a practical conversation about what to expect\, ways to adapt as your needs change\, and how to think through decisions about feeding tubes. You’ll gain helpful tips\, answers to common questions\, and information to help you make the choices that are right for you and your family. \nRegister now
URL:https://www.als-mnd.org/event/roadmap/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260908T180000
DTEND;TZID=America/New_York:20260908T190000
DTSTAMP:20260928T205156
CREATED:20260417T190937Z
LAST-MODIFIED:20260807T113442Z
UID:19452-1788890400-1788894000@www.als-mnd.org
SUMMARY:Member Forum: Health Literacy & Understanding ALS/MND
DESCRIPTION:A member forum focused on health literacy and improving understanding\, navigation\, and access to information for people affected by ALS/MND.\n \nRegistration note: Members only. To register or request more information\, email alliance@als-mnd.org.
URL:https://www.als-mnd.org/event/member-forum-health-literacy-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260922T140000
DTEND;TZID=America/New_York:20260922T150000
DTSTAMP:20260928T205156
CREATED:20260904T165428Z
LAST-MODIFIED:20260904T165525Z
UID:20045-1790085600-1790089200@www.als-mnd.org
SUMMARY:ALS Association Webinar: Affordable Tools for Everyday Independence
DESCRIPTION:Small tools can make a big difference in everyday life with ALS. Join us to learn about affordable products that can help with daily activities\, where to find them\, and which types of equipment are typically covered by insurance\, and which are not. From simple over-the-counter items to practical tips for getting what you need\, this webinar will help you discover cost-effective solutions to support greater comfort and independence at home. \nRegister now
URL:https://www.als-mnd.org/event/tools/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260923T130000
DTEND;TZID=America/New_York:20260923T140000
DTSTAMP:20260928T205156
CREATED:20260917T145435Z
LAST-MODIFIED:20260917T145658Z
UID:20101-1790168400-1790172000@www.als-mnd.org
SUMMARY:ALS Canada Webinar: Navigating Grief While Living with ALS
DESCRIPTION:Join us on Wednesday September 23\, at 1 pm ET for “Living and Loving with Loss: A Webinar on Navigating Grief While Living with ALS.” \n\n\nA diagnosis of ALS brings many layers of loss – both immediate and unfolding over time. \nJoin grief therapist Andrea Warnick and ALS Canada for this compassionate webinar exploring the unique experience of grief while living with ALS\, addressing common myths\, emotional challenges\, and practical ways to find connection and meaning along the way. \nRegister now
URL:https://www.als-mnd.org/event/hospice-copy/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260924T130000
DTEND;TZID=America/Toronto:20260924T140000
DTSTAMP:20260928T205156
CREATED:20260831T163843Z
LAST-MODIFIED:20260904T165829Z
UID:19981-1790254800-1790258400@www.als-mnd.org
SUMMARY:Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD
DESCRIPTION:In this webinar\, Marie Saxon\, MS\, CCC-SLP will review the most commonly observed cognitive and language symptoms in individuals with ALS and FTD\, as well as their functional implications. Symptoms include reduced executive functioning\, attention\, memory\, social cognition\, and communication that can impact decision making\, safety\, and interpersonal connection. Marie will review potential signs of cognitive and language impairments that would be reason to utilize supportive strategies or seek additional support. Lastly\, she will review practical strategies and tools that can be employed now to support increased independence and participation in meaningful activities. \nAbout the Speaker: Marie Saxon\, MS\, CCC-SLP is a Senior Speech-Language Pathologist at the Shirley Ryan AbilityLab in Chicago\, Illinois. She works with patients at both inpatient and outpatient levels of care\, specializing in cognitive-communication evaluation and treatment. Prior to becoming a speech-language pathologist\, Marie worked as a Research Coordinator at the Mesulam Center for Cognitive Neurology and Alzheimer’s Disease at Northwestern University’s Feinberg School of Medicine. She also holds a master’s degree in psychological and brain sciences from Villanova University. \nRegister now
URL:https://www.als-mnd.org/event/als-ftd-clinicopathological-overlap-copy/
ORGANIZER;CN="Les Turner ALS Foundation":MAILTO:info@lesturnerals.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261013T080000
DTEND;TZID=America/New_York:20261013T090000
DTSTAMP:20260928T205156
CREATED:20260417T191105Z
LAST-MODIFIED:20260807T113640Z
UID:19454-1791878400-1791882000@www.als-mnd.org
SUMMARY:Member Forum: Technology Solutions for PALS
DESCRIPTION:A member forum exploring technology solutions that can support people living with ALS/MND (PALS) in daily life\, communication\, and independence.\n \nRegistration note: Members only. To register or request more information\, email alliance@als-mnd.org.
URL:https://www.als-mnd.org/event/member-forum-technology-solutions-for-pals/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261013T180000
DTEND;TZID=America/New_York:20261013T190000
DTSTAMP:20260928T205156
CREATED:20260417T191131Z
LAST-MODIFIED:20260807T113651Z
UID:19456-1791914400-1791918000@www.als-mnd.org
SUMMARY:Member Forum: Technology Solutions for PALS
DESCRIPTION:A member forum exploring technology solutions that can support people living with ALS/MND (PALS) in daily life\, communication\, and independence.\n \nRegistration note: Members only. To register or request more information\, email alliance@als-mnd.org.
URL:https://www.als-mnd.org/event/member-forum-technology-solutions-for-pals-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261015T090000
DTEND;TZID=America/Toronto:20261015T100000
DTSTAMP:20260928T205156
CREATED:20260807T114040Z
LAST-MODIFIED:20260904T170010Z
UID:19962-1792054800-1792058400@www.als-mnd.org
SUMMARY:Webinar: The Use of AI in ALS/MND
DESCRIPTION:This webinar will provide an overview of the rapidly evolving landscape of artificial intelligence. We will look at responsible and trustworthy AI\, and the importance of governance as it relates to the ALS/MND community. Join the conversation about how this growing technology can help enrich quality of life. \nRegister now 
URL:https://www.als-mnd.org/event/webinar-the-use-of-ai/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261017T140000
DTEND;TZID=America/New_York:20261017T150000
DTSTAMP:20260928T205156
CREATED:20260904T165546Z
LAST-MODIFIED:20260904T165645Z
UID:20047-1792245600-1792249200@www.als-mnd.org
SUMMARY:ALS Association Webinar: So\, What's Next? Understanding the Decisions along an ALS Journey
DESCRIPTION:One of the biggest questions after an ALS diagnosis is\, “What happens next?” This webinar will walk through common changes and the care decisions they may bring\, helping you understand what to expect\, when to start planning\, and how to make informed choices that fit your priorities. \nRegister now
URL:https://www.als-mnd.org/event/decisions/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261021T070000
DTEND;TZID=America/New_York:20261021T083000
DTSTAMP:20260928T205156
CREATED:20260417T182222Z
LAST-MODIFIED:20260807T113704Z
UID:19429-1792566000-1792571400@www.als-mnd.org
SUMMARY:Member Roundtable: Defining Rights in the Genetics Era of ALS/MND
DESCRIPTION:As genetics becomes increasingly relevant in ALS/MND care and research\, important questions are emerging around access\, consent\, privacy\, equity\, and support. This member roundtable will examine what rights should guide policy and practice in the genetics era\, and how the global community can respond.\n \nGroup discussion (two options to accommodate time zones):\n\nGroup 1: 9:00–10:30 AM ET\nGroup 2: 6:00–7:30 PM ET\n\nRegistration Note: Members only. To register or request more information\, email alliance@als-mnd.org.
URL:https://www.als-mnd.org/event/member-roundtable-defining-rights-in-the-genetics-era-of-als-mnd/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261027T140000
DTEND;TZID=America/New_York:20261027T150000
DTSTAMP:20260928T205156
CREATED:20260904T165657Z
LAST-MODIFIED:20260904T165752Z
UID:20049-1793109600-1793113200@www.als-mnd.org
SUMMARY:ALS Association Webinar: An Honest Look at Hospice and ALS
DESCRIPTION:Hospice is often surrounded by fear and misconceptions\, yet it can be one of the most valuable sources of support during the ALS journey. Join us for an honest discussion about what hospice care looks like in ALS\, what to expect from referral through end of life\, and how to make the most of the services and support available to you and your family. \nRegister now
URL:https://www.als-mnd.org/event/hospice/
LOCATION:Online
END:VEVENT
END:VCALENDAR