BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//International Alliance of ALS/MND Associations - ECPv6.8.3//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:International Alliance of ALS/MND Associations
X-ORIGINAL-URL:https://www.als-mnd.org
X-WR-CALDESC:Events for International Alliance of ALS/MND Associations
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/Toronto
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20210314T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20211107T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20220313T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20221106T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20230312T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20231105T060000
END:STANDARD
TZID:America/Los_Angeles
BEGIN:DAYLIGHT
TZOFFSETFROM:-0800
TZOFFSETTO:-0700
TZNAME:PDT
DTSTART:20220313T100000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0700
TZOFFSETTO:-0800
TZNAME:PST
DTSTART:20221106T090000
END:STANDARD
TZID:Europe/London
BEGIN:DAYLIGHT
TZOFFSETFROM:+0000
TZOFFSETTO:+0100
TZNAME:BST
DTSTART:20210328T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0100
TZOFFSETTO:+0000
TZNAME:GMT
DTSTART:20211031T010000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:+0000
TZOFFSETTO:+0100
TZNAME:BST
DTSTART:20220327T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0100
TZOFFSETTO:+0000
TZNAME:GMT
DTSTART:20221030T010000
END:STANDARD
TZID:Asia/Taipei
BEGIN:STANDARD
TZOFFSETFROM:+0800
TZOFFSETTO:+0800
TZNAME:CST
DTSTART:20220101T000000
END:STANDARD
TZID:America/Bogota
BEGIN:STANDARD
TZOFFSETFROM:-0500
TZOFFSETTO:-0500
TZNAME:-05
DTSTART:20210101T000000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20230125T070000
DTEND;TZID=America/Toronto:20230125T080000
DTSTAMP:20260928T234015
CREATED:20230103T174936Z
LAST-MODIFIED:20230103T174936Z
UID:15952-1674630000-1674633600@www.als-mnd.org
SUMMARY:WEBINAR: What do I need to know about clinical trials?
DESCRIPTION:Learn about the importance of clinical trials\, how to find a suitable clinical trial\, and what to consider if you want to take part and next steps. Moderated by Rachael Marsden. Panelists include Allison Bulat\, Nadia Sethi & Paula Trefiak.
URL:https://www.als-mnd.org/event/webinar-what-do-i-need-to-know-about-clinical-trials/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20221130T120000
DTEND;TZID=America/Los_Angeles:20221202T120000
DTSTAMP:20260928T234015
CREATED:20220520T013725Z
LAST-MODIFIED:20220520T013817Z
UID:13090-1669809600-1669982400@www.als-mnd.org
SUMMARY:Allied Professionals Forum
DESCRIPTION:The 2022 Allied Professionals Forum will be held on November 30\, December 1 & December 2\, 2022 in a hybrid format – both virtually and in San Diego\, California\, USA! \nThe Allied Professionals Forum (APF) is an educational and training forum for allied health professionals\, such as physiotherapists\, respiratory therapists\, nutritionists\, speech-language pathologists\, social workers and more\, who specialize in ALS/MND. This international forum offers healthcare professionals from around the world an opportunity to share ideas on good practice in the daily management of people with ALS/MND. The meeting is attended by 400+ delegates from over 40 countries around the globe.
URL:https://www.als-mnd.org/event/alliance-meeting-members-only/
LOCATION:Kona Kai\, 1551 Shelter Island Drive\, San Diego\, CA\, 92106\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20221128T120000
DTEND;TZID=America/Los_Angeles:20221130T120000
DTSTAMP:20260928T234015
CREATED:20220520T013736Z
LAST-MODIFIED:20220520T013855Z
UID:13094-1669636800-1669809600@www.als-mnd.org
SUMMARY:Alliance Meeting (members-only)
DESCRIPTION:The 2022 Alliance Meeting will be held on November 28\, 29 & 30\, 2022 in a hybrid format – both virtually and in San Diego\, California\, USA! \nThe Alliance Meeting is an opportunity for member associations to meet and share advances in supporting people living with ALS/MND. It is a chance for representatives of ALS/MND associations from around the world to discuss best practice in care\, support\, technology\, science and organisational development. The meeting is attended by 200+ delegates from over 40 countries around the globe either in-person or virtually that represent the Alliance’s many member associations.
URL:https://www.als-mnd.org/event/alliance-meeting-members-only-copy/
LOCATION:Kona Kai\, 1551 Shelter Island Drive\, San Diego\, CA\, 92106\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20221025T070000
DTEND;TZID=America/Toronto:20221025T080000
DTSTAMP:20260928T234015
CREATED:20220520T012743Z
LAST-MODIFIED:20220520T013025Z
UID:13081-1666681200-1666684800@www.als-mnd.org
SUMMARY:Webinar: GENETICS – COUNSELLING & TESTING
DESCRIPTION:Join us in the second webinar of our Cure in ALS/MND series: Genetics – Counselling and Testing. This webinar will provide an update on the latest in ALS/MND Genetics and what is happening in the field.
URL:https://www.als-mnd.org/event/webinar-care-part-3-end-of-life-copy-copy-2/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20221012T070000
DTEND;TZID=America/Toronto:20221012T080000
DTSTAMP:20260928T234015
CREATED:20220520T012957Z
LAST-MODIFIED:20220520T012957Z
UID:13086-1665558000-1665561600@www.als-mnd.org
SUMMARY:Webinar: VOICE BANKING Copy
DESCRIPTION:In this webinar we will learn more about the assistive technology of voice banking\, how it works\, when in the ALS/MND journey should it be done\, and how to get access.
URL:https://www.als-mnd.org/event/webinar-care-part-3-end-of-life-copy-copy-2-copy-2/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20220921T070000
DTEND;TZID=America/Toronto:20220921T080000
DTSTAMP:20260928T234015
CREATED:20220520T012913Z
LAST-MODIFIED:20220520T012913Z
UID:13084-1663743600-1663747200@www.als-mnd.org
SUMMARY:Webinar: INNOVATION IN CLINICAL TRIAL DESIGN Copy
DESCRIPTION:Clinical trial design is evolving in the ALS/MND community. This webinar updates us on what the new models are\, how they are changing the landscape and what are the practical implications for our community.
URL:https://www.als-mnd.org/event/webinar-care-part-3-end-of-life-copy-copy-2-copy/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20220906T080000
DTEND;TZID=Europe/London:20220929T170000
DTSTAMP:20260928T234015
CREATED:20220927T192204Z
LAST-MODIFIED:20220927T192204Z
UID:15232-1662451200-1664470800@www.als-mnd.org
SUMMARY:A Day of Caring for Caregivers
DESCRIPTION:This is a special day designed for those providing care to People with ALS. This invitation is for primary caregivers\, family members\, friends and former caregivers.
URL:https://www.als-mnd.org/event/a-day-of-caring-for-caregivers/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Asia/Taipei:20220901T100000
DTEND;TZID=Asia/Taipei:20220913T180000
DTSTAMP:20260928T234015
CREATED:20220831T003442Z
LAST-MODIFIED:20220831T003442Z
UID:14910-1662026400-1663092000@www.als-mnd.org
SUMMARY:TMNDA 25th Anniversary Press Conference
DESCRIPTION:To celebrate the 25th Anniversary of Taiwan MND Association (TMNDA) endeavoring to empower people with ALS to live a better life\, we’ll launch a two-week Interactive Digital Art Exhibition\, FLY HIGH & SHINE\, from September 1st to 13th\, 2022. We’ll host a press conference from 1030-1130am on September 1st\, Thursday.
URL:https://www.als-mnd.org/event/tmnda-25th-anniversary-press-conference/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20220901T100000
DTEND;TZID=America/Toronto:20220901T110000
DTSTAMP:20260928T234015
CREATED:20220520T012430Z
LAST-MODIFIED:20220831T002200Z
UID:13075-1662026400-1662030000@www.als-mnd.org
SUMMARY:Webinar: WHAT DO I NEED TO KNOW ABOUT CLINICAL TRIALS
DESCRIPTION:Join us for the first webinar of our Cure in ALS/MND series: What do I need to know about clinical trials? In this webinar we will learn more about the importance of clinical trials\, how to find a suitable clinical trial\, what to consider if you want to take part and next steps.
URL:https://www.als-mnd.org/event/webinar-care-part-3-end-of-life-copy/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20220817T070000
DTEND;TZID=America/Toronto:20220817T080000
DTSTAMP:20260928T234015
CREATED:20220729T184603Z
LAST-MODIFIED:20220729T184657Z
UID:14391-1660719600-1660723200@www.als-mnd.org
SUMMARY:Webinar: App Demonstration
DESCRIPTION:Join us in this webinar where we will be demonstrating applications that can help people living with ALS/MND with their communication. \nPanel: Alper Kaya (Co-Chair of the Turkish ALS/MND Association & Person living with ALS/MND and Richard Cave (Speech and Language Therapist & Project Manager for MND Association).
URL:https://www.als-mnd.org/event/webinar-care-part-3-end-of-life-copy-copy-2-copy-3/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20220629T070000
DTEND;TZID=America/Toronto:20220629T080000
DTSTAMP:20260928T234015
CREATED:20220520T012521Z
LAST-MODIFIED:20220520T012645Z
UID:13077-1656486000-1656489600@www.als-mnd.org
SUMMARY:Webinar: SCIENTIFIC ADVISORY COUNCIL UPDATE
DESCRIPTION:Join us for the mid-year update from the Scientific Advisory Council. This interactive webinar will be informative but will also give you the opportunity to ask questions.
URL:https://www.als-mnd.org/event/webinar-care-part-3-end-of-life-copy-copy/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20220621
DTEND;VALUE=DATE:20220622
DTSTAMP:20260928T234015
CREATED:20220520T013159Z
LAST-MODIFIED:20220520T013159Z
UID:13088-1655769600-1655855999@www.als-mnd.org
SUMMARY:Global Day for ALS/MND Awareness
DESCRIPTION:Every year the International Alliance of ALS/MND Associations celebrates 21 June as the global day of recognition of ALS/MND – a disease that affects people in every country of the globe. \nALS/MND  is a global problem. It does not discriminate on the basis of race\, ethnicity\, socioeconomic status or region. There are people living with ALS/MND all over the world. For every person diagnosed\, the impact of the disease will be forever felt by their loved ones. \nJune 21 is a solstice – a turning point – and each year the ALS/MND community undertake a range of activities to express their hope that this day will be another turning point in the search for cause\, treatment and cure of ALS/MND.
URL:https://www.als-mnd.org/event/global-day-for-als-mnd-awareness/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20220525T070000
DTEND;TZID=America/Toronto:20220525T080000
DTSTAMP:20260928T234015
CREATED:20220520T012405Z
LAST-MODIFIED:20220520T012405Z
UID:13073-1653462000-1653465600@www.als-mnd.org
SUMMARY:Webinar: CARE PART 3: END OF LIFE
DESCRIPTION:This is not an easy topic\, but one that is important to discuss. In this webinar we will provide PALS and CALS with guidance on how to address this stage of their journey\, and what to look for in support and planning resources.
URL:https://www.als-mnd.org/event/webinar-care-part-3-end-of-life/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20211207
DTEND;VALUE=DATE:20211211
DTSTAMP:20260928T234015
CREATED:20210528T164642Z
LAST-MODIFIED:20210528T164807Z
UID:8219-1638835200-1639180799@www.als-mnd.org
SUMMARY:International Symposium of ALS/MND
DESCRIPTION:Registration is not open yet. Check back soon.
URL:https://www.als-mnd.org/event/international-symposium-of-als-mnd/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20211206T000000
DTEND;TZID=America/Toronto:20211206T000000
DTSTAMP:20260928T234015
CREATED:20210419T093624Z
LAST-MODIFIED:20210507T194017Z
UID:7638-1638748800-1638748800@www.als-mnd.org
SUMMARY:ALS/MND Connect
DESCRIPTION:ALS/MND Connect is an open session which allows people living with ALS/MND and their caregivers to attend an afternoon of presentations by neurologists and researchers . This session is live-streamed on Facebook\, so people with ALS/MND from around the world can attend and ask questions online. \nIf anyone wants to pre-submit a question you can do so by writing alliance@als-mnd.org
URL:https://www.als-mnd.org/event/als-mnd-connect-2021/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20211202T070000
DTEND;TZID=America/Toronto:20211202T233000
DTSTAMP:20260928T234015
CREATED:20210419T093513Z
LAST-MODIFIED:20210507T194205Z
UID:7636-1638428400-1638487800@www.als-mnd.org
SUMMARY:Allied Professionals Forum - Day 2
DESCRIPTION:The Allied Professionals Forum (APF) is an educational and training forum for allied health professionals\, such as physiotherapists\, respiratory therapists\, nutritionists\, speech-language pathologists\, social workers and more\, who specialise in ALS/MND. This international forum offers healthcare professionals from around the world an opportunity to share ideas on good practice in the daily management of people with ALS/MND. \nThe International Alliance of ALS/MND Associations will host an Allied Professionals Forum. The meeting will be attended by 300+ delegates from over 40 countries around the globe either in person or virtually. \n\nFollowing the success of last year’s first virtual Allied Professionals Forum and the ongoing challenges caused by the global pandemic\, this meeting will once again be held online in 2021. \nStay tuned for further details as we work towards our joint goal of a world without ALS/MND!
URL:https://www.als-mnd.org/event/allied-professionals-forum-2021/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20211201T070000
DTEND;TZID=America/Toronto:20211201T233000
DTSTAMP:20260928T234015
CREATED:20210507T194144Z
LAST-MODIFIED:20210507T194234Z
UID:7864-1638342000-1638401400@www.als-mnd.org
SUMMARY:Allied Professionals Forum - Day 1
DESCRIPTION:The Allied Professionals Forum (APF) is an educational and training forum for allied health professionals\, such as physiotherapists\, respiratory therapists\, nutritionists\, speech-language pathologists\, social workers and more\, who specialise in ALS/MND. This international forum offers healthcare professionals from around the world an opportunity to share ideas on good practice in the daily management of people with ALS/MND. \nThe International Alliance of ALS/MND Associations will host an Allied Professionals Forum. The meeting will be attended by 300+ delegates from over 40 countries around the globe either in person or virtually. \n\nFollowing the success of last year’s first virtual Allied Professionals Forum and the ongoing challenges caused by the global pandemic\, this meeting will once again be held online in 2021. \nStay tuned for further details as we work towards our joint goal of a world without ALS/MND!
URL:https://www.als-mnd.org/event/allied-professionals-forum-2021-copy/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20211123T070000
DTEND;TZID=America/Toronto:20211123T233000
DTSTAMP:20260928T234015
CREATED:20210507T194332Z
LAST-MODIFIED:20210507T194406Z
UID:7869-1637650800-1637710200@www.als-mnd.org
SUMMARY:Alliance Meeting - Day 2
DESCRIPTION:The Alliance Meeting is an opportunity for member associations to meet and share advances in supporting people living with ALS/MND. It is a chance for representatives of ALS/MND associations from around the world to discuss best practice in care\, support\, technology\, science and organisational development. \nThe meeting will be attended by 100+ delegates from over 40 countries around the globe either in person or virtually. These delegates represent the Alliance’s many member associations. \nFollowing the success of last year’s first virtual Alliance Meeting and the ongoing challenges caused by the global pandemic\, this meeting will once again be held online in 2021. \nStay tuned for further details as we work towards our joint goal of a world without ALS/MND!
URL:https://www.als-mnd.org/event/alliance-meeting-2021-copy-2/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20211122T070000
DTEND;TZID=America/Toronto:20211122T233000
DTSTAMP:20260928T234015
CREATED:20210419T093407Z
LAST-MODIFIED:20210507T194325Z
UID:7633-1637564400-1637623800@www.als-mnd.org
SUMMARY:Alliance Meeting - Day 1
DESCRIPTION:The Alliance Meeting is an opportunity for member associations to meet and share advances in supporting people living with ALS/MND. It is a chance for representatives of ALS/MND associations from around the world to discuss best practice in care\, support\, technology\, science and organisational development. \nThe meeting will be attended by 100+ delegates from over 40 countries around the globe either in person or virtually. These delegates represent the Alliance’s many member associations. \nFollowing the success of last year’s first virtual Alliance Meeting and the ongoing challenges caused by the global pandemic\, this meeting will once again be held online in 2021. \nStay tuned for further details as we work towards our joint goal of a world without ALS/MND!
URL:https://www.als-mnd.org/event/alliance-meeting-2021/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20211104T070000
DTEND;TZID=America/Toronto:20211104T080000
DTSTAMP:20260928T234015
CREATED:20210630T004847Z
LAST-MODIFIED:20210630T005543Z
UID:8412-1636009200-1636012800@www.als-mnd.org
SUMMARY:Alliance Webinar: Mental Health Supports for People Living with ALS/MND and Caregivers
DESCRIPTION:A diagnosis of ALS/MND can generate a range of emotions\, for both the patient and their caregivers. Patients can experience anxiety and depression\, feel isolated\, and often feel like a burden to their loved ones. Caregivers of a loved one with ALS/MND will experience their own set of challenges\, including caregiver burnout. This webinar will explore the mental health supports needed for people living with ALS/MND\, and their caregivers. \nRegister here.
URL:https://www.als-mnd.org/event/alliance-webinar-mental-health-supports-for-people-living-with-als-mnd-and-caregivers/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20211007T070000
DTEND;TZID=America/Toronto:20211007T080000
DTSTAMP:20260928T234015
CREATED:20210630T004731Z
LAST-MODIFIED:20210630T005601Z
UID:8410-1633590000-1633593600@www.als-mnd.org
SUMMARY:Alliance Webinar: Global Survey Results - Fundamental Rights
DESCRIPTION:The PALS & CALS Advisory Council of the International Alliance of ALS MND Associations would like to share the results of their CARE Survey done globally. \nRegister here.
URL:https://www.als-mnd.org/event/alliance-webinar-global-survey-results-fundamental-rights/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20210902T200000
DTEND;TZID=America/Toronto:20210902T210000
DTSTAMP:20260928T234015
CREATED:20210630T004630Z
LAST-MODIFIED:20210630T005621Z
UID:8408-1630612800-1630616400@www.als-mnd.org
SUMMARY:Alliance Webinar: Optimizing Clinical Trial Design
DESCRIPTION:The history of clinical trials in ALS/MND has been fraught with failures. It has not been uncommon for a potential therapy to show promise in Phase 2 trial results\, then prove to be ineffective in the subsequent\, larger-scale Phase 3 trial. Clinical trials take a considerable amount of time\, resources\, and funding\, and as such there have been numerous efforts in the field of ALS/MND to optimize clinical trials to improve their efficiency and effectiveness. From outcome measures to entry criteria\, this webinar will explore the lessons we have learned from the failed trials of the past\, and how those have been integrated in to our optimization of clinical trials of the future. \nRegister here.
URL:https://www.als-mnd.org/event/alliance-webinar-optimizing-clinical-trial-design/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20210812T100000
DTEND;TZID=America/Toronto:20210812T110000
DTSTAMP:20260928T234015
CREATED:20210630T004510Z
LAST-MODIFIED:20210630T005637Z
UID:8406-1628762400-1628766000@www.als-mnd.org
SUMMARY:Alliance Webinar: Youth and ALS/MND
DESCRIPTION:A diagnosis of ALS/MND is devastating\, not only to the individual receiving the diagnosis\, but their family members as well. Discussing a parent’s new diagnosis of ALS/MND with their child can be both challenging and emotional. In addition\, children whose parent has been affected by ALS/MND may have fears\, concerns\, and questions that differ greatly than those experienced by an adult. This webinar will discuss the experience of a child whose parent has ALS/MND\, and communication with a child to address their concerns and questions. \nRegister here.
URL:https://www.als-mnd.org/event/alliance-webinar-youth-and-als-mnd/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20210805T070000
DTEND;TZID=America/Toronto:20210805T080000
DTSTAMP:20260928T234015
CREATED:20210630T004405Z
LAST-MODIFIED:20210630T005654Z
UID:8404-1628146800-1628150400@www.als-mnd.org
SUMMARY:Alliance Webinar: Innovation & Technology in ALS/MND
DESCRIPTION:Hear updates of what is happening in Innovation and Technology from members of our Advisory Council. How can technology improve quality of life and give us insights into ALS/MND in a meaningful way. \nRegister here.
URL:https://www.als-mnd.org/event/alliance-webinar-innovation-technology-in-als-mnd/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20210708T070000
DTEND;TZID=America/Toronto:20210708T080000
DTSTAMP:20260928T234015
CREATED:20210507T194915Z
LAST-MODIFIED:20210630T005708Z
UID:7875-1625727600-1625731200@www.als-mnd.org
SUMMARY:Alliance Webinar: Biomarkers in ALS/MND
DESCRIPTION:A biomarker\, short for biological marker\, is an objective and quantifiable measure of biological processes or states. Biomarkers can be used to deepen our understanding of a disease\, or quantify its state and severity\, and are critical in clinical trials in determining\, at a biological level\, therapeutic effect. In ALS/MND\, we lack definitive\, quantifiable biomarkers such as those used in other neurological diseases: tumor size in patients suffering from brain tumors\, or number of lesions present on an MRI scan for those multiple sclerosis patients experiencing a relapse. Much research has been done\, and is ongoing\, on establishing biomarkers suitable for use in ALS/MND research and care. This webinar will provide an overview of those biomarkers emerging as the front runners for the field\, and how a combinatorial approach will likely be needed. \nRegister here.
URL:https://www.als-mnd.org/event/alliance-webinar-biomarkers-in-als-mnd/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20210610T120000
DTEND;TZID=America/Toronto:20210610T130000
DTSTAMP:20260928T234015
CREATED:20210507T192515Z
LAST-MODIFIED:20210507T193325Z
UID:7850-1623326400-1623330000@www.als-mnd.org
SUMMARY:Alliance Webinar: Telemedicine Best Practices in Care & Research
DESCRIPTION:While certain practices and fields of medicine have routinely used telemedicine in patient care\, the global COVID-19 pandemic has resulted in a widespread uptake in the use of telehealth\, across all areas of health care\, in order to continue delivering care during these challenging times. While telehealth has ensured continued\, and expanded access to\, care for patients living with ALS/MND\, there are inherently challenges associated with a disease that requires multidisciplinary care\, is dealt with constant and rapid changes\, and necessitates physical assessments in a clinical trial setting. This webinar will discuss best practices in telemedicine\, for both care and research\, for patients living with ALS/MND. \nRegister here.
URL:https://www.als-mnd.org/event/webinar-telemedicine-best-practices-in-care-research/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20210603T070000
DTEND;TZID=America/Toronto:20210603T080000
DTSTAMP:20260928T234015
CREATED:20210528T165001Z
LAST-MODIFIED:20210528T165307Z
UID:8224-1622703600-1622707200@www.als-mnd.org
SUMMARY:Alliance Webinar: Q&A with the Alliance's Scientific Advisory Council
DESCRIPTION:This is a mid-year update of The International Alliance of ALS/MND Associations’ Scientific Advisory Council in honour of Global ALS/MND Awareness Day. Join us to ask questions about topics related to ALS/MND research and clinical trials! \nRegister here.
URL:https://www.als-mnd.org/event/alliance-webinar-qa-with-the-alliances-scientific-advisory-council/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Bogota:20210524T180000
DTEND;TZID=America/Bogota:20210524T190000
DTSTAMP:20260928T234015
CREATED:20210507T194707Z
LAST-MODIFIED:20210507T194707Z
UID:7872-1621879200-1621882800@www.als-mnd.org
SUMMARY:Pregúntale al Experto- Avances de investigación en Diagnóstico y tratamiento de ELA
DESCRIPTION:Language: Spanish \nRegistration is by emailing name of participant to eventos@acelaweb.org and access details are sent back by that email. \nQuestions on the topic are also to be sent in advance to eventos@acelaweb.org. 
URL:https://www.als-mnd.org/event/preguntale-al-experto-avances-de-investigacion-en-diagnostico-y-tratamiento-de-ela/
LOCATION:Online
END:VEVENT
END:VCALENDAR