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PRODID:-//International Alliance of ALS/MND Associations - ECPv6.8.3//NONSGML v1.0//EN
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X-WR-CALNAME:International Alliance of ALS/MND Associations
X-ORIGINAL-URL:https://www.als-mnd.org
X-WR-CALDESC:Events for International Alliance of ALS/MND Associations
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BEGIN:VTIMEZONE
TZID:America/Toronto
BEGIN:DAYLIGHT
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TZNAME:EDT
DTSTART:20210314T070000
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DTSTART:20211107T060000
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DTSTART:20220313T070000
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DTSTART:20221106T060000
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DTSTART:20210328T010000
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DTSTART:20211031T010000
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BEGIN:STANDARD
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20220525T070000
DTEND;TZID=America/Toronto:20220525T080000
DTSTAMP:20260928T202422
CREATED:20220520T012405Z
LAST-MODIFIED:20220520T012405Z
UID:13073-1653462000-1653465600@www.als-mnd.org
SUMMARY:Webinar: CARE PART 3: END OF LIFE
DESCRIPTION:This is not an easy topic\, but one that is important to discuss. In this webinar we will provide PALS and CALS with guidance on how to address this stage of their journey\, and what to look for in support and planning resources.
URL:https://www.als-mnd.org/event/webinar-care-part-3-end-of-life/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20211207
DTEND;VALUE=DATE:20211211
DTSTAMP:20260928T202422
CREATED:20210528T164642Z
LAST-MODIFIED:20210528T164807Z
UID:8219-1638835200-1639180799@www.als-mnd.org
SUMMARY:International Symposium of ALS/MND
DESCRIPTION:Registration is not open yet. Check back soon.
URL:https://www.als-mnd.org/event/international-symposium-of-als-mnd/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20211206T000000
DTEND;TZID=America/Toronto:20211206T000000
DTSTAMP:20260928T202422
CREATED:20210419T093624Z
LAST-MODIFIED:20210507T194017Z
UID:7638-1638748800-1638748800@www.als-mnd.org
SUMMARY:ALS/MND Connect
DESCRIPTION:ALS/MND Connect is an open session which allows people living with ALS/MND and their caregivers to attend an afternoon of presentations by neurologists and researchers . This session is live-streamed on Facebook\, so people with ALS/MND from around the world can attend and ask questions online. \nIf anyone wants to pre-submit a question you can do so by writing alliance@als-mnd.org
URL:https://www.als-mnd.org/event/als-mnd-connect-2021/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20211202T070000
DTEND;TZID=America/Toronto:20211202T233000
DTSTAMP:20260928T202422
CREATED:20210419T093513Z
LAST-MODIFIED:20210507T194205Z
UID:7636-1638428400-1638487800@www.als-mnd.org
SUMMARY:Allied Professionals Forum - Day 2
DESCRIPTION:The Allied Professionals Forum (APF) is an educational and training forum for allied health professionals\, such as physiotherapists\, respiratory therapists\, nutritionists\, speech-language pathologists\, social workers and more\, who specialise in ALS/MND. This international forum offers healthcare professionals from around the world an opportunity to share ideas on good practice in the daily management of people with ALS/MND. \nThe International Alliance of ALS/MND Associations will host an Allied Professionals Forum. The meeting will be attended by 300+ delegates from over 40 countries around the globe either in person or virtually. \n\nFollowing the success of last year’s first virtual Allied Professionals Forum and the ongoing challenges caused by the global pandemic\, this meeting will once again be held online in 2021. \nStay tuned for further details as we work towards our joint goal of a world without ALS/MND!
URL:https://www.als-mnd.org/event/allied-professionals-forum-2021/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20211201T070000
DTEND;TZID=America/Toronto:20211201T233000
DTSTAMP:20260928T202422
CREATED:20210507T194144Z
LAST-MODIFIED:20210507T194234Z
UID:7864-1638342000-1638401400@www.als-mnd.org
SUMMARY:Allied Professionals Forum - Day 1
DESCRIPTION:The Allied Professionals Forum (APF) is an educational and training forum for allied health professionals\, such as physiotherapists\, respiratory therapists\, nutritionists\, speech-language pathologists\, social workers and more\, who specialise in ALS/MND. This international forum offers healthcare professionals from around the world an opportunity to share ideas on good practice in the daily management of people with ALS/MND. \nThe International Alliance of ALS/MND Associations will host an Allied Professionals Forum. The meeting will be attended by 300+ delegates from over 40 countries around the globe either in person or virtually. \n\nFollowing the success of last year’s first virtual Allied Professionals Forum and the ongoing challenges caused by the global pandemic\, this meeting will once again be held online in 2021. \nStay tuned for further details as we work towards our joint goal of a world without ALS/MND!
URL:https://www.als-mnd.org/event/allied-professionals-forum-2021-copy/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20211123T070000
DTEND;TZID=America/Toronto:20211123T233000
DTSTAMP:20260928T202422
CREATED:20210507T194332Z
LAST-MODIFIED:20210507T194406Z
UID:7869-1637650800-1637710200@www.als-mnd.org
SUMMARY:Alliance Meeting - Day 2
DESCRIPTION:The Alliance Meeting is an opportunity for member associations to meet and share advances in supporting people living with ALS/MND. It is a chance for representatives of ALS/MND associations from around the world to discuss best practice in care\, support\, technology\, science and organisational development. \nThe meeting will be attended by 100+ delegates from over 40 countries around the globe either in person or virtually. These delegates represent the Alliance’s many member associations. \nFollowing the success of last year’s first virtual Alliance Meeting and the ongoing challenges caused by the global pandemic\, this meeting will once again be held online in 2021. \nStay tuned for further details as we work towards our joint goal of a world without ALS/MND!
URL:https://www.als-mnd.org/event/alliance-meeting-2021-copy-2/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20211122T070000
DTEND;TZID=America/Toronto:20211122T233000
DTSTAMP:20260928T202422
CREATED:20210419T093407Z
LAST-MODIFIED:20210507T194325Z
UID:7633-1637564400-1637623800@www.als-mnd.org
SUMMARY:Alliance Meeting - Day 1
DESCRIPTION:The Alliance Meeting is an opportunity for member associations to meet and share advances in supporting people living with ALS/MND. It is a chance for representatives of ALS/MND associations from around the world to discuss best practice in care\, support\, technology\, science and organisational development. \nThe meeting will be attended by 100+ delegates from over 40 countries around the globe either in person or virtually. These delegates represent the Alliance’s many member associations. \nFollowing the success of last year’s first virtual Alliance Meeting and the ongoing challenges caused by the global pandemic\, this meeting will once again be held online in 2021. \nStay tuned for further details as we work towards our joint goal of a world without ALS/MND!
URL:https://www.als-mnd.org/event/alliance-meeting-2021/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20211104T070000
DTEND;TZID=America/Toronto:20211104T080000
DTSTAMP:20260928T202422
CREATED:20210630T004847Z
LAST-MODIFIED:20210630T005543Z
UID:8412-1636009200-1636012800@www.als-mnd.org
SUMMARY:Alliance Webinar: Mental Health Supports for People Living with ALS/MND and Caregivers
DESCRIPTION:A diagnosis of ALS/MND can generate a range of emotions\, for both the patient and their caregivers. Patients can experience anxiety and depression\, feel isolated\, and often feel like a burden to their loved ones. Caregivers of a loved one with ALS/MND will experience their own set of challenges\, including caregiver burnout. This webinar will explore the mental health supports needed for people living with ALS/MND\, and their caregivers. \nRegister here.
URL:https://www.als-mnd.org/event/alliance-webinar-mental-health-supports-for-people-living-with-als-mnd-and-caregivers/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20211007T070000
DTEND;TZID=America/Toronto:20211007T080000
DTSTAMP:20260928T202422
CREATED:20210630T004731Z
LAST-MODIFIED:20210630T005601Z
UID:8410-1633590000-1633593600@www.als-mnd.org
SUMMARY:Alliance Webinar: Global Survey Results - Fundamental Rights
DESCRIPTION:The PALS & CALS Advisory Council of the International Alliance of ALS MND Associations would like to share the results of their CARE Survey done globally. \nRegister here.
URL:https://www.als-mnd.org/event/alliance-webinar-global-survey-results-fundamental-rights/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20210902T200000
DTEND;TZID=America/Toronto:20210902T210000
DTSTAMP:20260928T202422
CREATED:20210630T004630Z
LAST-MODIFIED:20210630T005621Z
UID:8408-1630612800-1630616400@www.als-mnd.org
SUMMARY:Alliance Webinar: Optimizing Clinical Trial Design
DESCRIPTION:The history of clinical trials in ALS/MND has been fraught with failures. It has not been uncommon for a potential therapy to show promise in Phase 2 trial results\, then prove to be ineffective in the subsequent\, larger-scale Phase 3 trial. Clinical trials take a considerable amount of time\, resources\, and funding\, and as such there have been numerous efforts in the field of ALS/MND to optimize clinical trials to improve their efficiency and effectiveness. From outcome measures to entry criteria\, this webinar will explore the lessons we have learned from the failed trials of the past\, and how those have been integrated in to our optimization of clinical trials of the future. \nRegister here.
URL:https://www.als-mnd.org/event/alliance-webinar-optimizing-clinical-trial-design/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20210812T100000
DTEND;TZID=America/Toronto:20210812T110000
DTSTAMP:20260928T202422
CREATED:20210630T004510Z
LAST-MODIFIED:20210630T005637Z
UID:8406-1628762400-1628766000@www.als-mnd.org
SUMMARY:Alliance Webinar: Youth and ALS/MND
DESCRIPTION:A diagnosis of ALS/MND is devastating\, not only to the individual receiving the diagnosis\, but their family members as well. Discussing a parent’s new diagnosis of ALS/MND with their child can be both challenging and emotional. In addition\, children whose parent has been affected by ALS/MND may have fears\, concerns\, and questions that differ greatly than those experienced by an adult. This webinar will discuss the experience of a child whose parent has ALS/MND\, and communication with a child to address their concerns and questions. \nRegister here.
URL:https://www.als-mnd.org/event/alliance-webinar-youth-and-als-mnd/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20210805T070000
DTEND;TZID=America/Toronto:20210805T080000
DTSTAMP:20260928T202422
CREATED:20210630T004405Z
LAST-MODIFIED:20210630T005654Z
UID:8404-1628146800-1628150400@www.als-mnd.org
SUMMARY:Alliance Webinar: Innovation & Technology in ALS/MND
DESCRIPTION:Hear updates of what is happening in Innovation and Technology from members of our Advisory Council. How can technology improve quality of life and give us insights into ALS/MND in a meaningful way. \nRegister here.
URL:https://www.als-mnd.org/event/alliance-webinar-innovation-technology-in-als-mnd/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20210708T070000
DTEND;TZID=America/Toronto:20210708T080000
DTSTAMP:20260928T202422
CREATED:20210507T194915Z
LAST-MODIFIED:20210630T005708Z
UID:7875-1625727600-1625731200@www.als-mnd.org
SUMMARY:Alliance Webinar: Biomarkers in ALS/MND
DESCRIPTION:A biomarker\, short for biological marker\, is an objective and quantifiable measure of biological processes or states. Biomarkers can be used to deepen our understanding of a disease\, or quantify its state and severity\, and are critical in clinical trials in determining\, at a biological level\, therapeutic effect. In ALS/MND\, we lack definitive\, quantifiable biomarkers such as those used in other neurological diseases: tumor size in patients suffering from brain tumors\, or number of lesions present on an MRI scan for those multiple sclerosis patients experiencing a relapse. Much research has been done\, and is ongoing\, on establishing biomarkers suitable for use in ALS/MND research and care. This webinar will provide an overview of those biomarkers emerging as the front runners for the field\, and how a combinatorial approach will likely be needed. \nRegister here.
URL:https://www.als-mnd.org/event/alliance-webinar-biomarkers-in-als-mnd/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20210610T120000
DTEND;TZID=America/Toronto:20210610T130000
DTSTAMP:20260928T202422
CREATED:20210507T192515Z
LAST-MODIFIED:20210507T193325Z
UID:7850-1623326400-1623330000@www.als-mnd.org
SUMMARY:Alliance Webinar: Telemedicine Best Practices in Care & Research
DESCRIPTION:While certain practices and fields of medicine have routinely used telemedicine in patient care\, the global COVID-19 pandemic has resulted in a widespread uptake in the use of telehealth\, across all areas of health care\, in order to continue delivering care during these challenging times. While telehealth has ensured continued\, and expanded access to\, care for patients living with ALS/MND\, there are inherently challenges associated with a disease that requires multidisciplinary care\, is dealt with constant and rapid changes\, and necessitates physical assessments in a clinical trial setting. This webinar will discuss best practices in telemedicine\, for both care and research\, for patients living with ALS/MND. \nRegister here.
URL:https://www.als-mnd.org/event/webinar-telemedicine-best-practices-in-care-research/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20210603T070000
DTEND;TZID=America/Toronto:20210603T080000
DTSTAMP:20260928T202422
CREATED:20210528T165001Z
LAST-MODIFIED:20210528T165307Z
UID:8224-1622703600-1622707200@www.als-mnd.org
SUMMARY:Alliance Webinar: Q&A with the Alliance's Scientific Advisory Council
DESCRIPTION:This is a mid-year update of The International Alliance of ALS/MND Associations’ Scientific Advisory Council in honour of Global ALS/MND Awareness Day. Join us to ask questions about topics related to ALS/MND research and clinical trials! \nRegister here.
URL:https://www.als-mnd.org/event/alliance-webinar-qa-with-the-alliances-scientific-advisory-council/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Bogota:20210524T180000
DTEND;TZID=America/Bogota:20210524T190000
DTSTAMP:20260928T202422
CREATED:20210507T194707Z
LAST-MODIFIED:20210507T194707Z
UID:7872-1621879200-1621882800@www.als-mnd.org
SUMMARY:Pregúntale al Experto- Avances de investigación en Diagnóstico y tratamiento de ELA
DESCRIPTION:Language: Spanish \nRegistration is by emailing name of participant to eventos@acelaweb.org and access details are sent back by that email. \nQuestions on the topic are also to be sent in advance to eventos@acelaweb.org. 
URL:https://www.als-mnd.org/event/preguntale-al-experto-avances-de-investigacion-en-diagnostico-y-tratamiento-de-ela/
LOCATION:Online
END:VEVENT
END:VCALENDAR