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X-ORIGINAL-URL:https://www.als-mnd.org
X-WR-CALDESC:Events for International Alliance of ALS/MND Associations
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DTSTART:20260308T070000
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261013T180000
DTEND;TZID=America/New_York:20261013T190000
DTSTAMP:20260928T223807
CREATED:20260417T191131Z
LAST-MODIFIED:20260807T113651Z
UID:19456-1791914400-1791918000@www.als-mnd.org
SUMMARY:Member Forum: Technology Solutions for PALS
DESCRIPTION:A member forum exploring technology solutions that can support people living with ALS/MND (PALS) in daily life\, communication\, and independence.\n \nRegistration note: Members only. To register or request more information\, email alliance@als-mnd.org.
URL:https://www.als-mnd.org/event/member-forum-technology-solutions-for-pals-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261015T090000
DTEND;TZID=America/Toronto:20261015T100000
DTSTAMP:20260928T223807
CREATED:20260807T114040Z
LAST-MODIFIED:20260904T170010Z
UID:19962-1792054800-1792058400@www.als-mnd.org
SUMMARY:Webinar: The Use of AI in ALS/MND
DESCRIPTION:This webinar will provide an overview of the rapidly evolving landscape of artificial intelligence. We will look at responsible and trustworthy AI\, and the importance of governance as it relates to the ALS/MND community. Join the conversation about how this growing technology can help enrich quality of life. \nRegister now 
URL:https://www.als-mnd.org/event/webinar-the-use-of-ai/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261017T140000
DTEND;TZID=America/New_York:20261017T150000
DTSTAMP:20260928T223807
CREATED:20260904T165546Z
LAST-MODIFIED:20260904T165645Z
UID:20047-1792245600-1792249200@www.als-mnd.org
SUMMARY:ALS Association Webinar: So\, What's Next? Understanding the Decisions along an ALS Journey
DESCRIPTION:One of the biggest questions after an ALS diagnosis is\, “What happens next?” This webinar will walk through common changes and the care decisions they may bring\, helping you understand what to expect\, when to start planning\, and how to make informed choices that fit your priorities. \nRegister now
URL:https://www.als-mnd.org/event/decisions/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261021T070000
DTEND;TZID=America/New_York:20261021T083000
DTSTAMP:20260928T223807
CREATED:20260417T182222Z
LAST-MODIFIED:20260807T113704Z
UID:19429-1792566000-1792571400@www.als-mnd.org
SUMMARY:Member Roundtable: Defining Rights in the Genetics Era of ALS/MND
DESCRIPTION:As genetics becomes increasingly relevant in ALS/MND care and research\, important questions are emerging around access\, consent\, privacy\, equity\, and support. This member roundtable will examine what rights should guide policy and practice in the genetics era\, and how the global community can respond.\n \nGroup discussion (two options to accommodate time zones):\n\nGroup 1: 9:00–10:30 AM ET\nGroup 2: 6:00–7:30 PM ET\n\nRegistration Note: Members only. To register or request more information\, email alliance@als-mnd.org.
URL:https://www.als-mnd.org/event/member-roundtable-defining-rights-in-the-genetics-era-of-als-mnd/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261027T140000
DTEND;TZID=America/New_York:20261027T150000
DTSTAMP:20260928T223807
CREATED:20260904T165657Z
LAST-MODIFIED:20260904T165752Z
UID:20049-1793109600-1793113200@www.als-mnd.org
SUMMARY:ALS Association Webinar: An Honest Look at Hospice and ALS
DESCRIPTION:Hospice is often surrounded by fear and misconceptions\, yet it can be one of the most valuable sources of support during the ALS journey. Join us for an honest discussion about what hospice care looks like in ALS\, what to expect from referral through end of life\, and how to make the most of the services and support available to you and your family. \nRegister now
URL:https://www.als-mnd.org/event/hospice/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261104T080000
DTEND;TZID=America/Toronto:20261104T090000
DTSTAMP:20260928T223807
CREATED:20260807T114338Z
LAST-MODIFIED:20260807T114338Z
UID:19965-1793779200-1793782800@www.als-mnd.org
SUMMARY:Webinar: Annual Clinical Trials Update
DESCRIPTION:This webinar will provide an update on ALS/MND treatments currently in Phase 3 clinical trials. Participants will learn about trial timelines\, study locations\, available programs\, and key contacts for further information. The session will offer an overview of the current Phase 3 clinical trial landscape and the latest developments in treatment research. \nRegister now
URL:https://www.als-mnd.org/event/webinar-annual-clinical-trials-update/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20261106T123000
DTEND;TZID=Europe/Rome:20261107T180000
DTSTAMP:20260928T223807
CREATED:20260922T142910Z
LAST-MODIFIED:20260922T143511Z
UID:20116-1793968200-1794074400@www.als-mnd.org
SUMMARY:Neuroscience Institute Cavalieri Ottolenghi\, University of Turin: Motor Neuron Diseases 2026 – IV Edition
DESCRIPTION:The fourth edition of Motor Neuron Diseases brings together researchers and clinicians to share advances in understanding motor neuron diseases\, including disease mechanisms and emerging therapeutic approaches. \nThe event is organized by the Neuroscience Institute Cavalieri Ottolenghi (NICO) and the Department of Neuroscience – University of Turin in Italy. It is being offered virtually and in person in Turin. \nLearn more about Motor Neuron Diseases 2026. You must register by September 21.
URL:https://www.als-mnd.org/event/motor-neuron-diseases-2026/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20261107T113000
DTEND;TZID=Europe/Rome:20261107T120000
DTSTAMP:20260928T223807
CREATED:20260922T141744Z
LAST-MODIFIED:20260922T142559Z
UID:20112-1794051000-1794052800@www.als-mnd.org
SUMMARY:conSLAncio Session: Patients' Associations: Shaping Research Together
DESCRIPTION:The conSLAncio ETS Association\, founded by Andrea Zicchieri\, member of the International Alliance of ALS/MND Associations\, EUpALS (European Organization for Professionals and People with ALS)\, the EU ALS Coalition\, and the Italian ALS Coalition\, is proud to announce the Hybrid Conference “Motor Neuron Diseases IV Edition Workshop: Understanding the Pathogenetic Mechanisms to Develop Therapies”\, 6-7 November 2026\, at Palace of the Anatomical Institutes\, C.so Massimo D’Azeglio 52\, 10124\, Turin\, Italy. \nconSLAncio will speak in the section “Patients’ Associations: Shaping Research Together” (with SMA Europe\, conSLAncio ETS and Girotondo ODV Associations). This moment of the congress will be dedicated to the role of patient associations in actively contributing to the definition of priorities and the orientation of scientific research. \nFor more information and to register (registration must be completed by 21 September)\, visit the conference website.
URL:https://www.als-mnd.org/event/conslancio-session/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261110T080000
DTEND;TZID=America/New_York:20261110T090000
DTSTAMP:20260928T223807
CREATED:20260417T191215Z
LAST-MODIFIED:20260807T113718Z
UID:19458-1794297600-1794301200@www.als-mnd.org
SUMMARY:Member Forum: AI Impacts
DESCRIPTION:A member forum examining how artificial intelligence may impact people living with ALS/MND\, care delivery\, research\, and support services.\n \nRegistration note: Members only. To register or request more information\, email alliance@als-mnd.org.
URL:https://www.als-mnd.org/event/member-forum-ai-impacts/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261110T180000
DTEND;TZID=America/New_York:20261110T190000
DTSTAMP:20260928T223807
CREATED:20260417T191305Z
LAST-MODIFIED:20260807T113731Z
UID:19460-1794333600-1794337200@www.als-mnd.org
SUMMARY:Member Forum: AI Impacts
DESCRIPTION:A member forum examining how artificial intelligence may impact people living with ALS/MND\, care delivery\, research\, and support services.\n \nRegistration note: Members only. To register or request more information\, email alliance@als-mnd.org.
URL:https://www.als-mnd.org/event/member-forum-ai-impacts-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Vancouver:20261120T074500
DTEND;TZID=America/Vancouver:20261120T171500
DTSTAMP:20260928T223807
CREATED:20260928T200840Z
LAST-MODIFIED:20260928T202053Z
UID:20163-1795160700-1795194900@www.als-mnd.org
SUMMARY:Canadian Society of Palliative Medicine: Palliative Horizons - Clinical Approaches to ALS and Parkinson’s
DESCRIPTION:Palliative Horizons is a one-day education session from the Canadian Society of Palliative Medicine (CSPM) on palliative care for people living with ALS/MND and Parkinson’s disease. It is for palliative medicine physicians and other clinicians working in neuropalliative care. \nThe session takes place in Richmond\, British Columbia\, and online. Recordings are available to all registrants after the event. \nWhat the program covers\nThe program follows the course of illness\, with a focus on practical approaches clinicians can apply in patient care and interdisciplinary teams: \n\nDiagnosis and disease progression\nKey clinical decision points\nSymptom management and medication considerations\nImpact on caregivers\nInterdisciplinary and community supports\n\nFaculty have clinical experience in ALS\, Parkinson’s disease\, and neuropalliative care. \nRegistration\nEarly-bird rates end September 30. Everyone who registers by that date is entered in a draw for one free registration. \n\n\n\nRate\nUntil September 30\nFrom October 1\n\n\n\n\nIn person\n\n\nMember\nCA$475\nCA$525\n\n\nNon-member\nCA$525\nCA$575\n\n\nResident/student\nCA$325\nCA$325\n\n\nVirtual\n\n\nMember\nCA$425\nCA$475\n\n\nNon-member\nCA$475\nCA$525\n\n\nResident/student\nCA$325\nCA$325\n\n\n\nAll fees are in Canadian dollars\, plus GST. \nRegister for Palliative Horizons \nAccreditation\nThis event is an Accredited Group Learning Activity (Section 1) as defined by the Maintenance of Certification Program of the Royal College of Physicians and Surgeons of Canada and approved by the Canadian Society of Palliative Medicine. You may claim a maximum of 7.0 hours (credits are automatically calculated). \nQuestions\nEmail cspm@intertaskconferences.com.
URL:https://www.als-mnd.org/event/cspm-palliative-horizons/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261124T090000
DTEND;TZID=America/Toronto:20261124T103000
DTSTAMP:20260928T223807
CREATED:20260914T190302Z
LAST-MODIFIED:20260914T190302Z
UID:20078-1795510800-1795516200@www.als-mnd.org
SUMMARY:Annual General Meeting
DESCRIPTION:Our Annual Meeting will be taking place virtually. This meeting will provide an opportunity to reflect on achievements and discuss priorities for the coming year. Additional details will be shared closer to the date. \nPlease mark your calendars and plan to attend.
URL:https://www.als-mnd.org/event/annual-general-meeting/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20261205
DTEND;VALUE=DATE:20261207
DTSTAMP:20260928T223807
CREATED:20251219T183115Z
LAST-MODIFIED:20251222T145655Z
UID:19129-1796428800-1796601599@www.als-mnd.org
SUMMARY:Alliance Meeting
DESCRIPTION:The Alliance Meeting is the place where member associations can meet and share experiences in growing\, running and building an ALS/MND association to support people living with ALS/MND. The meeting is attended by 200+ delegates from over 40 countries around the globe\, either in-person or virtually\, that represent the Alliance’s many member associations. (Open to Alliance members only) \nInfo and registration – Check back often as we will be adding more information!
URL:https://www.als-mnd.org/event/alliance-meeting-2026/
LOCATION:Postillion Hotel & Convention Centre Amsterdam\, Paul van Vlissingenstraat 9-11\, Amsterdam\, 1096 BK\, Netherlands
CATEGORIES:Conference
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20261207
DTEND;VALUE=DATE:20261209
DTSTAMP:20260928T223807
CREATED:20251219T182457Z
LAST-MODIFIED:20251222T145637Z
UID:19126-1796601600-1796774399@www.als-mnd.org
SUMMARY:Allied Professionals Forum
DESCRIPTION:Are you ready to be part of something bigger? The Allied Professionals Forum (APF) brings together healthcare professionals from around the world\, including physiotherapists\, respiratory therapists\, nutritionists\, speech-language pathologists\, social workers and others working in the field of ALS/MND. With over 400 delegates attending from more than 40 countries\, this is your chance to engage in a truly global conversation on the challenges and advancements in ALS/MND care.  \nInfo and registration – Check back often as we will be adding more information!
URL:https://www.als-mnd.org/event/allied-professionals-forum-2026/
LOCATION:Postillion Hotel & Convention Centre Amsterdam\, Paul van Vlissingenstraat 9-11\, Amsterdam\, 1096 BK\, Netherlands
CATEGORIES:Conference
END:VEVENT
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