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X-WR-CALDESC:Events for International Alliance of ALS/MND Associations
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BEGIN:VEVENT
DTSTART;TZID=Europe/London:20220906T080000
DTEND;TZID=Europe/London:20220929T170000
DTSTAMP:20260928T233846
CREATED:20220927T192204Z
LAST-MODIFIED:20220927T192204Z
UID:15232-1662451200-1664470800@www.als-mnd.org
SUMMARY:A Day of Caring for Caregivers
DESCRIPTION:This is a special day designed for those providing care to People with ALS. This invitation is for primary caregivers\, family members\, friends and former caregivers.
URL:https://www.als-mnd.org/event/a-day-of-caring-for-caregivers/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20220921T070000
DTEND;TZID=America/Toronto:20220921T080000
DTSTAMP:20260928T233846
CREATED:20220520T012913Z
LAST-MODIFIED:20220520T012913Z
UID:13084-1663743600-1663747200@www.als-mnd.org
SUMMARY:Webinar: INNOVATION IN CLINICAL TRIAL DESIGN Copy
DESCRIPTION:Clinical trial design is evolving in the ALS/MND community. This webinar updates us on what the new models are\, how they are changing the landscape and what are the practical implications for our community.
URL:https://www.als-mnd.org/event/webinar-care-part-3-end-of-life-copy-copy-2-copy/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20221012T070000
DTEND;TZID=America/Toronto:20221012T080000
DTSTAMP:20260928T233846
CREATED:20220520T012957Z
LAST-MODIFIED:20220520T012957Z
UID:13086-1665558000-1665561600@www.als-mnd.org
SUMMARY:Webinar: VOICE BANKING Copy
DESCRIPTION:In this webinar we will learn more about the assistive technology of voice banking\, how it works\, when in the ALS/MND journey should it be done\, and how to get access.
URL:https://www.als-mnd.org/event/webinar-care-part-3-end-of-life-copy-copy-2-copy-2/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20221025T070000
DTEND;TZID=America/Toronto:20221025T080000
DTSTAMP:20260928T233846
CREATED:20220520T012743Z
LAST-MODIFIED:20220520T013025Z
UID:13081-1666681200-1666684800@www.als-mnd.org
SUMMARY:Webinar: GENETICS – COUNSELLING & TESTING
DESCRIPTION:Join us in the second webinar of our Cure in ALS/MND series: Genetics – Counselling and Testing. This webinar will provide an update on the latest in ALS/MND Genetics and what is happening in the field.
URL:https://www.als-mnd.org/event/webinar-care-part-3-end-of-life-copy-copy-2/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20221128T120000
DTEND;TZID=America/Los_Angeles:20221130T120000
DTSTAMP:20260928T233846
CREATED:20220520T013736Z
LAST-MODIFIED:20220520T013855Z
UID:13094-1669636800-1669809600@www.als-mnd.org
SUMMARY:Alliance Meeting (members-only)
DESCRIPTION:The 2022 Alliance Meeting will be held on November 28\, 29 & 30\, 2022 in a hybrid format – both virtually and in San Diego\, California\, USA! \nThe Alliance Meeting is an opportunity for member associations to meet and share advances in supporting people living with ALS/MND. It is a chance for representatives of ALS/MND associations from around the world to discuss best practice in care\, support\, technology\, science and organisational development. The meeting is attended by 200+ delegates from over 40 countries around the globe either in-person or virtually that represent the Alliance’s many member associations.
URL:https://www.als-mnd.org/event/alliance-meeting-members-only-copy/
LOCATION:Kona Kai\, 1551 Shelter Island Drive\, San Diego\, CA\, 92106\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20221130T120000
DTEND;TZID=America/Los_Angeles:20221202T120000
DTSTAMP:20260928T233846
CREATED:20220520T013725Z
LAST-MODIFIED:20220520T013817Z
UID:13090-1669809600-1669982400@www.als-mnd.org
SUMMARY:Allied Professionals Forum
DESCRIPTION:The 2022 Allied Professionals Forum will be held on November 30\, December 1 & December 2\, 2022 in a hybrid format – both virtually and in San Diego\, California\, USA! \nThe Allied Professionals Forum (APF) is an educational and training forum for allied health professionals\, such as physiotherapists\, respiratory therapists\, nutritionists\, speech-language pathologists\, social workers and more\, who specialize in ALS/MND. This international forum offers healthcare professionals from around the world an opportunity to share ideas on good practice in the daily management of people with ALS/MND. The meeting is attended by 400+ delegates from over 40 countries around the globe.
URL:https://www.als-mnd.org/event/alliance-meeting-members-only/
LOCATION:Kona Kai\, 1551 Shelter Island Drive\, San Diego\, CA\, 92106\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20230125T070000
DTEND;TZID=America/Toronto:20230125T080000
DTSTAMP:20260928T233846
CREATED:20230103T174936Z
LAST-MODIFIED:20230103T174936Z
UID:15952-1674630000-1674633600@www.als-mnd.org
SUMMARY:WEBINAR: What do I need to know about clinical trials?
DESCRIPTION:Learn about the importance of clinical trials\, how to find a suitable clinical trial\, and what to consider if you want to take part and next steps. Moderated by Rachael Marsden. Panelists include Allison Bulat\, Nadia Sethi & Paula Trefiak.
URL:https://www.als-mnd.org/event/webinar-what-do-i-need-to-know-about-clinical-trials/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20230222T070000
DTEND;TZID=America/Toronto:20230222T080000
DTSTAMP:20260928T233846
CREATED:20230103T175036Z
LAST-MODIFIED:20230103T175036Z
UID:15954-1677049200-1677052800@www.als-mnd.org
SUMMARY:WEBINAR: Sharing Success: A Fireside Chat with the 2022 Award Winners
DESCRIPTION:Join us in an informal conversation with the 2022 Award winners on their careers\, and their contributions to the field of ALS/MND. Panellists include Sally Light (Humanitarian Award recipient)\, Dr. Richard Bedlack (Forbes Norris Award recipient)\, Richard Cave (Allied Health Professional Award recipient).
URL:https://www.als-mnd.org/event/webinar-sharing-success-a-fireside-chat-with-the-2022-award-winners/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20230329T070000
DTEND;TZID=America/Toronto:20230329T080000
DTSTAMP:20260928T233846
CREATED:20230103T175131Z
LAST-MODIFIED:20230105T213953Z
UID:15956-1680073200-1680076800@www.als-mnd.org
SUMMARY:WEBINAR: Genetic Counselling and Testing
DESCRIPTION:Familial or sporadic ALS/MND\, the importance of genetic counselling and testing can´t be emphasized enough. Join us for this scenario-based discussion which will look at real situations ranging from an ALS/MND asymptomatic carrier to someone whose parent had ALS/MND\, but has not done genetic testing.
URL:https://www.als-mnd.org/event/webinar-genetics-in-sporadic-als-mnd/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20230425T070000
DTEND;TZID=Europe/London:20230425T080000
DTSTAMP:20260928T233846
CREATED:20230103T175222Z
LAST-MODIFIED:20230103T175222Z
UID:15958-1682406000-1682409600@www.als-mnd.org
SUMMARY:WEBINAR: Student Showcase
DESCRIPTION:Student projects in ALS/MND.
URL:https://www.als-mnd.org/event/webinar-student-showcase/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20230517T070000
DTEND;TZID=Europe/London:20230517T080000
DTSTAMP:20260928T233846
CREATED:20230525T054504Z
LAST-MODIFIED:20230523T052923Z
UID:15960-1684306800-1684310400@www.als-mnd.org
SUMMARY:WEBINAR: Maintaining my independence
DESCRIPTION:A panel with occupational therapists in ALS/MND providing recommendations for PALS at different stages of their journey. Tips\, considerations\, and what can be done at home.
URL:https://www.als-mnd.org/event/webinar-clinical-trials-in-genetics-for-sporadic-als-mnd/
LOCATION:Zoom Webinar
CATEGORIES:Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230621
DTEND;VALUE=DATE:20230622
DTSTAMP:20260928T233846
CREATED:20230523T053023Z
LAST-MODIFIED:20230523T053023Z
UID:16364-1687305600-1687391999@www.als-mnd.org
SUMMARY:ALS/MND Global Awareness Day
DESCRIPTION:
URL:https://www.als-mnd.org/event/als-mnd-global-awareness-day/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20230621T070000
DTEND;TZID=Europe/London:20230621T080000
DTSTAMP:20260928T233846
CREATED:20230103T175410Z
LAST-MODIFIED:20230103T175410Z
UID:15962-1687330800-1687334400@www.als-mnd.org
SUMMARY:WEBINAR: Scientific Advisory Council update & Q&A
DESCRIPTION:Join us for the mid-year update from the Scientific Advisory Council.
URL:https://www.als-mnd.org/event/webinar-scientific-advisory-council-update-qa/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20230817T200000
DTEND;TZID=Europe/London:20230817T210000
DTSTAMP:20260928T233846
CREATED:20230814T185111Z
LAST-MODIFIED:20230913T140314Z
UID:16536-1692302400-1692306000@www.als-mnd.org
SUMMARY:Webinar from the Les Turner ALS Foundation - Compassionate Communities for ALS/MND: Supporting those Caring\, Dying and Grieving
DESCRIPTION:In this Learning Series webinar\, Professor Samar Aoun will share key findings and advice on enabling social networks to support people living with ALS/MND\, making palliative care more widely accessible. A particular focus will be on bereavement support and family caregiver support. \n\nThe Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to the Gilbert & Jacqueline Fern Foundation and Mitsubishi Tanabe Pharma America for sponsoring this webinar. \n\nAbout the Speaker: Professor Aoun is a Perron Institute Research Chair in Palliative Care at The University of Western Australia\, in addition to\, the Chair of MND Australia\, and the MND Association in Western Australia. She is a global leader in the areas of public health palliative care and compassionate communities research and has influenced rapid system change and informed practice and policy at the national and international levels. Among numerous awards\, Professor Aoun received the Medal for Excellence from the European Society for Person Centered Healthcare in 2018\, the Centenary Medal in 2003 from Australia’s Prime Minister and more recently 2023 Western Australia’s Australian of the Year.
URL:https://www.als-mnd.org/event/compassionate-communities-for-als-mnd-supporting-those-caring-dying-and-grieving/
LOCATION:Online
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://www.als-mnd.org/wp-content/uploads/2023/08/Aug17.jpg
ORGANIZER;CN="Les Turner ALS Foundation":MAILTO:info@lesturnerals.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20230907T070000
DTEND;TZID=Europe/London:20230907T080000
DTSTAMP:20260928T233846
CREATED:20230103T175450Z
LAST-MODIFIED:20230103T175450Z
UID:15964-1694070000-1694073600@www.als-mnd.org
SUMMARY:WEBINAR: Global Fundamental Rights Survey Results
DESCRIPTION:The International Alliance of ALS/MND Associations surveyed the community about the Fundamental Rights of People living with ALS/MND and Caregivers. Learn more about the data\, strengths and weaknesses at a global level\, the questions raised and the topics that require further attention\, and how these compared to our 2021 survey.
URL:https://www.als-mnd.org/event/webinar-global-fundamental-rights-survey-results/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230912T103000
DTEND;TZID=America/New_York:20230912T120000
DTSTAMP:20260928T233846
CREATED:20230911T151547Z
LAST-MODIFIED:20230913T140249Z
UID:16564-1694514600-1694520000@www.als-mnd.org
SUMMARY:Webinaire de la SLA Québec - Panel professionnel
DESCRIPTION:Vous êtes-vous déjà demandé qui sont tous ces professionnels de la santé et comment ils prennent soin de vous ? Alors rejoignez-nous pour cette présentation du panel professionnel. Nous avons mis en place quatre panels\, trois en français et un en anglais\, où des professionnels de la santé des cliniques de la SLA\, des CLSC et des centres de réadaptation vous expliqueront leur métier et leur rôle au sein de votre prise en charge. \n\n\nCe webinaire est en français.
URL:https://www.als-mnd.org/event/panel-professionnel/
LOCATION:Online
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://www.als-mnd.org/wp-content/uploads/2023/09/SLAQuebec.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230912T133000
DTEND;TZID=America/New_York:20230912T150000
DTSTAMP:20260928T233846
CREATED:20230911T151535Z
LAST-MODIFIED:20230913T140218Z
UID:16560-1694525400-1694530800@www.als-mnd.org
SUMMARY:Webinar from ALS Quebec - Professional Panel
DESCRIPTION:Have you ever wondered who all these health care professionals are and how they are caring for you? Then please join us for this Professional Panel presentation. We have four panels set up\, three in French and one in English\, where healthcare professionals from ALS clinics\, CLSC\, and rehabilitation centres will explain their profession and their role within your care. \n\n\nThis webinar session is in English.
URL:https://www.als-mnd.org/event/professional-panel/
LOCATION:Online
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://www.als-mnd.org/wp-content/uploads/2023/09/ALSQuebec.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20230919T160000
DTEND;TZID=America/Detroit:20230919T170000
DTSTAMP:20260928T233846
CREATED:20230913T140333Z
LAST-MODIFIED:20230913T140333Z
UID:16605-1695139200-1695142800@www.als-mnd.org
SUMMARY:Virtual Discussion Series by ALS TDI - Community Conversations
DESCRIPTION:Join Dr. Nadia Sethi\, the Director of Community Outreach and Engagement at the ALS Therapy Development Institute (ALS TDI)\, for this virtual discussion series. These conversations will provide an overview of research at ALS TDI\, discuss current clinical trials\, and provide space to converse and ask questions about ALS science and research. Through this series\, Nadia hopes to engage the community around the following: \n\n\n\nIncreasing understanding of what ALS TDI does\nProviding information on currently recruiting clinical trials and EAPs\nCreating a space for discussion about the science of ALS
URL:https://www.als-mnd.org/event/virtual-discussion-series-by-als-tdi-community-conversations/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20230926T103000
DTEND;TZID=America/Detroit:20230926T120000
DTSTAMP:20260928T233846
CREATED:20230929T165738Z
LAST-MODIFIED:20230929T165738Z
UID:16645-1695724200-1695729600@www.als-mnd.org
SUMMARY:Webinar from ALS Quebec- Professional Panel
DESCRIPTION:Have you ever wondered who all these healthcare professionals are and how they take care of you? So join us for this presentation of the professional panel. We have set up four panels\, three in French and one in English\, where health professionals from ALS clinics\, CLSCs and rehabilitation centers will explain their profession and their role in your care. \n\nThis webinar is in French. \n\n\n\nWhen: Tuesday September 26\, 2023\, from 10:30 a.m. to 12 p.m.\n\n\n\n\nWhere: The webinar takes place on Zoom\n\n\n\n\n\n\n\nREGISTER\n\n\n\n\n\n\nIf you are not familiar with the Zoom platform\, or with online communications\, do not hesitate to consult our Zoom user guides on  our website. \n\n\nFor more information\, contact Kate Busch at 514 725-2653\, ext. 109 | 1-877-725-7725 or by email at  kbusch@sla-quebec.ca
URL:https://www.als-mnd.org/event/webinar-from-als-quebec-professional-panel-2/
LOCATION:Online
CATEGORIES:Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20230926T110000
DTEND;TZID=Europe/London:20230926T130000
DTSTAMP:20260928T233846
CREATED:20230913T140102Z
LAST-MODIFIED:20230918T125932Z
UID:16591-1695726000-1695733200@www.als-mnd.org
SUMMARY:MND Association Community of Practice: Information and Knowledge Exchange Event - Psychological Care for People Living with MND
DESCRIPTION:Time: 11.00 am – 1.00 pm\nOptional breakout rooms for further discussion will be available after the event until 1:30pm \nWe have some interesting presentations focussing on this important area of care: \n\nSub-optimal decisions and accepting these as a practitioner\nDr Rachel Woolrich\, Principal Clinical Psychologist\, the Oxford Psychological Medicine Centre.\nAs a practitioner\, patients in your care may take what you consider to be sub-optimal decisions for their care. In this session Dr Woolrich will explore how best as a practitioner to recommend a direction of treatment or whilst not unduly influencing patient decisions. And how you can square acceptance of such decisions with the knowledge and conviction that you have provided best care.\nUnderstanding the roots of psychological distress\nDr John Ashworth\, Counselling Psychologist\, South West Neuromuscular Operational Delivery Network\, Bristol\nGetting a diagnosis of MND is devastating and throughout its course the disease presents many more challenges – both physical and emotional. In this session Dr Ashworth examines some commonly experienced stressors and explores how as practitioners you can provide support\, including when your patient expresses thoughts of suicide.\n\nAs usual there will be lots of opportunity to discuss what you have heard and explore how it could be useful to your practice.
URL:https://www.als-mnd.org/event/information-and-knowledge-exchange-for-mnd-professionals-community-of-practice-psychological-care-for-people-living-with-mnd/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20230926T133000
DTEND;TZID=America/Detroit:20230926T150000
DTSTAMP:20260928T233846
CREATED:20230929T165654Z
LAST-MODIFIED:20230929T165654Z
UID:16647-1695735000-1695740400@www.als-mnd.org
SUMMARY:Webinar from ALS Quebec- Professional Panel
DESCRIPTION:Have you ever wondered who all these healthcare professionals are and how they take care of you? So join us for this presentation of the professional panel. We have set up four panels\, three in French and one in English\, where health professionals from ALS clinics\, CLSCs and rehabilitation centers will explain their profession and their role in your care. \n\n\nThis webinar is in French. \n\n\n\nWhen: Tuesday September 26\, 2023\, from 1:30 p.m. to 3 p.m.\n\n\n\n\nWhere: The webinar takes place on Zoom\n\n\n\n\n\n\n\nREGISTER\n\n\n\n\n\n\nIf you are not familiar with the Zoom platform\, or with online communications\, do not hesitate to consult our Zoom user guides on  our website. \n\n\nFor more information\, contact Kate Busch at 514 725-2653\, ext. 109 | 1-877-725-7725 or by email at  kbusch@sla-quebec.ca
URL:https://www.als-mnd.org/event/webinar-from-als-quebec-professional-panel/
LOCATION:Online
CATEGORIES:Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20230926T150000
DTEND;TZID=America/Detroit:20230926T160000
DTSTAMP:20260928T233846
CREATED:20230913T140050Z
LAST-MODIFIED:20230913T140050Z
UID:16608-1695740400-1695744000@www.als-mnd.org
SUMMARY:Virtual Series by ALS TDI in partnership with I AM ALS and the NEALS Patient Education and Advocacy Committee - Meet Your Orgs
DESCRIPTION:ALS TDI has partnered with I AM ALS and the NEALS Patient Education & Advocacy Committee to develop this new series – creating a platform for the ALS community to meet some of the key people in the different ALS organizations that form our community and learn about the work that they are doing. \nThe next event in the series will be held on September 26th at 3 p.m. ET and will feature presentations from the following ALS organizations: \n\n\n\nALS Therapy Development Institute (ALS TDI)\nHope Loves Company\nMac Angels Foundation\nRoon
URL:https://www.als-mnd.org/event/virtual-series-by-als-tdi-in-partnership-with-i-am-als-and-the-neals-patient-education-and-advocacy-committee-meet-your-orgs/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20230927T070000
DTEND;TZID=Europe/London:20230927T080000
DTSTAMP:20260928T233846
CREATED:20230103T175525Z
LAST-MODIFIED:20230103T175525Z
UID:15966-1695798000-1695801600@www.als-mnd.org
SUMMARY:WEBINAR: Mental health support for people living with ALS/MND and caregivers
DESCRIPTION:Join us in this conversation where we discuss warning signs\, how to safeguard\, get help \, and maintain mental health in people living with ALS/MND and caregivers.  
URL:https://www.als-mnd.org/event/webinar-mental-health-support-for-people-living-with-als-mnd-and-caregivers/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20230928T183000
DTEND;TZID=America/Detroit:20231102T200000
DTSTAMP:20260928T233846
CREATED:20230929T165519Z
LAST-MODIFIED:20230929T165519Z
UID:16635-1695925800-1698955200@www.als-mnd.org
SUMMARY:ALS Canada | Community Services - The Healing Power of Journaling for Caregivers
DESCRIPTION:Join us this fall to discover how creativity and mindfulness can impact your daily life and mindset as a caregiver. Beginning September 28\, explore the healing power of journaling. Over six weeks\, we’ll dive into practical and powerful tools to aid caregivers in their journaling practices. \nRegister for FREE today\, whether you’re an avid writer or just beginning \nyour journey. (Please register by September 21\, 2023) \nRegister now
URL:https://www.als-mnd.org/event/als-canada-community-services-the-healing-power-of-journaling-for-caregivers/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20231003T123000
DTEND;TZID=Europe/London:20231003T130000
DTSTAMP:20260928T233846
CREATED:20230913T140021Z
LAST-MODIFIED:20230918T131830Z
UID:16601-1696336200-1696338000@www.als-mnd.org
SUMMARY:MND Association Conversation with MND Association Financial and Equipment Support Services
DESCRIPTION:Time: 12:30pm – 1:00pm \nFind out what support the MND Association can provide. In this session Pauline Matheson-Marks\, Head of National Care at the Association will answer questions about the various grants and equipment services that the MND Association can provide for people living with and affected by MND. And how to apply for them. \nNo need to book. Join using the link and passcode below: \nJoin Zoom Meeting: https://us06web.zoom.us/j/89826251500?pwd=WExuSUJsTDNUd1c3Z2l3cVlsTDFndz09\nMeeting ID: 898 2625 1500\nPasscode: MNDAHoC \nIf you would like any specific question answered during the session\, please send these to education@mndassociation.org
URL:https://www.als-mnd.org/event/webinar-from-the-mnda-conversation-with-mnd-association-financial-and-equipment-support-services/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20231009T093000
DTEND;TZID=Europe/London:20231009T160000
DTSTAMP:20260928T233846
CREATED:20230912T143039Z
LAST-MODIFIED:20230918T133123Z
UID:16579-1696843800-1696867200@www.als-mnd.org
SUMMARY:CoP Networking Event from the MND Association - Supporting people living with MND through advance care planning: A role for the whole MDT
DESCRIPTION:From the MND Association – Following the tremendous success of the networking event last year\, we are pleased to advise booking is now open for this year’s event. \nWonderful to see a group of experienced HSCP coming together with a common purpose. Thanks\, a great day!\nAttendee at Networking Event 2022 \nThroughout the day you will follow Adam\, a person living with MND\, and his family’s journey with MND. In groups\, led by experts representing the MDT\, you will consider how to effectively approach the sometimes challenging process of advance care planning. \nWith national colleagues you will discuss and explore the significant things health and social care professionals\, Adam\, and his family might want to talk about at different stages in his disease progression. You will reflect on how you can best encourage and support the crucial thinking and decision making needed to ensure that best care takes place. \nThere will also be practical and discussion sessions during the day on: \n\nPEG and RIG insertion\nrespiratory equipment\northotics\nequipment solutions\nsafe exercise for people living with MND\ncommunication aids\nsyringe drivers.\n\nView brochure\nIf you are not yet a member of our Community of Practice\, please join us. \nThis event is now fully booked. Please email CoP@mndassociation.org to be added to the waiting list.
URL:https://www.als-mnd.org/event/supporting-people-living-with-mnd-through-advance-care-planning-a-role-for-the-whole-mdt/
LOCATION:National Conference Centre\, Birmingham\, United Kingdom
CATEGORIES:Conference
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20231011T130000
DTEND;TZID=America/Detroit:20231011T150000
DTSTAMP:20260928T233846
CREATED:20231010T103756Z
LAST-MODIFIED:20231010T103756Z
UID:16692-1697029200-1697036400@www.als-mnd.org
SUMMARY:Webinar from ALS Canada: Navigating Mental Health & ALS
DESCRIPTION:An individual’s mental health and how they are supported is important when facing an ALS diagnosis. On October 11\, please join presenters from Sunnybrook ALS Clinic and Hospice Niagara\, who will provide in-depth information about the importance of emotional health\, conversations about anticipatory grief\, and how individuals\, family\, and friends can access mental health resources in their community.
URL:https://www.als-mnd.org/event/webinar-from-als-canada-navigating-mental-health-als/
CATEGORIES:Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20231016T100000
DTEND;TZID=Europe/London:20231016T160000
DTSTAMP:20260928T233846
CREATED:20230913T135945Z
LAST-MODIFIED:20230918T133051Z
UID:16599-1697450400-1697472000@www.als-mnd.org
SUMMARY:Masterclass from the MDN Association - Let's Talk About End of Life in MND
DESCRIPTION:Time: 10am – 4pm\nCost: £40 View events cancellation policy\nDate: 16 October 2023\nLocation: Online delivery via Zoom \nAim: To help health and social care professionals gain confidence in discussing death\, dying and advance care planning with people with MND. \nBy the end of the one-day masterclass\, participants will: \n\nunderstand the benefits and challenges of offering opportunities to discuss dying\nunderstand what happens as MND progresses and how patients might die\nhave increased confidence in initiating conversations about end of life\nunderstand advance care planning and resources to support this.\n\nFacilitators: \n\nDr Idris Baker – Consultant in Palliative Care at Ty Olwen Hospice\, Morriston Hospital Swansea\nBecky Whittaker – Educator and Coach Palliative and End of Life Care\, Communication Skills Trainer
URL:https://www.als-mnd.org/event/masterclass-from-mdna-lets-talk-about-end-of-life-in-mnd/
LOCATION:Online
CATEGORIES:Masterclass/Program
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20231025T183000
DTEND;TZID=America/Detroit:20231115T200000
DTSTAMP:20260928T233846
CREATED:20230929T165255Z
LAST-MODIFIED:20230929T165255Z
UID:16639-1698258600-1700078400@www.als-mnd.org
SUMMARY:ALS Canada | Community Services - Creative Wellness For Caregivers
DESCRIPTION:Starting October 25\, learn about the importance of creating a self-care practice to help manage stress and maintain balance. In this four-week workshop\, we’ll discover various self-care practices through guided art and mindfulness exercises. \nRegister for FREE and learn about using art to improve mental health. (Please register by October 18\, 2023) \nRegister now
URL:https://www.als-mnd.org/event/als-canada-community-services-creative-wellness-for-caregivers/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20231025T183000
DTEND;TZID=America/Detroit:20231115T200000
DTSTAMP:20260928T233846
CREATED:20230929T165441Z
LAST-MODIFIED:20230929T165441Z
UID:16638-1698258600-1700078400@www.als-mnd.org
SUMMARY:ALS Canada | Community Services - Creative Wellness For Caregivers
DESCRIPTION:Starting October 25\, learn about the importance of creating a self-care practice to help manage stress and maintain balance. In this four-week workshop\, we’ll discover various self-care practices through guided art and mindfulness exercises. \nRegister for FREE and learn about using art to improve mental health. (Please register by October 18\, 2023) \nRegister now
URL:https://www.als-mnd.org/event/als-canada-community-services-creative-wellness-for-caregivers-2/
LOCATION:Online
END:VEVENT
END:VCALENDAR