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X-ORIGINAL-URL:https://www.als-mnd.org
X-WR-CALDESC:Events for International Alliance of ALS/MND Associations
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DTSTART:20260308T070000
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260923T130000
DTEND;TZID=America/New_York:20260923T140000
DTSTAMP:20260928T155328
CREATED:20260917T145435Z
LAST-MODIFIED:20260917T145658Z
UID:20101-1790168400-1790172000@www.als-mnd.org
SUMMARY:ALS Canada Webinar: Navigating Grief While Living with ALS
DESCRIPTION:Join us on Wednesday September 23\, at 1 pm ET for “Living and Loving with Loss: A Webinar on Navigating Grief While Living with ALS.” \n\n\nA diagnosis of ALS brings many layers of loss – both immediate and unfolding over time. \nJoin grief therapist Andrea Warnick and ALS Canada for this compassionate webinar exploring the unique experience of grief while living with ALS\, addressing common myths\, emotional challenges\, and practical ways to find connection and meaning along the way. \nRegister now
URL:https://www.als-mnd.org/event/hospice-copy/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260924T130000
DTEND;TZID=America/Toronto:20260924T140000
DTSTAMP:20260928T155328
CREATED:20260831T163843Z
LAST-MODIFIED:20260904T165829Z
UID:19981-1790254800-1790258400@www.als-mnd.org
SUMMARY:Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD
DESCRIPTION:In this webinar\, Marie Saxon\, MS\, CCC-SLP will review the most commonly observed cognitive and language symptoms in individuals with ALS and FTD\, as well as their functional implications. Symptoms include reduced executive functioning\, attention\, memory\, social cognition\, and communication that can impact decision making\, safety\, and interpersonal connection. Marie will review potential signs of cognitive and language impairments that would be reason to utilize supportive strategies or seek additional support. Lastly\, she will review practical strategies and tools that can be employed now to support increased independence and participation in meaningful activities. \nAbout the Speaker: Marie Saxon\, MS\, CCC-SLP is a Senior Speech-Language Pathologist at the Shirley Ryan AbilityLab in Chicago\, Illinois. She works with patients at both inpatient and outpatient levels of care\, specializing in cognitive-communication evaluation and treatment. Prior to becoming a speech-language pathologist\, Marie worked as a Research Coordinator at the Mesulam Center for Cognitive Neurology and Alzheimer’s Disease at Northwestern University’s Feinberg School of Medicine. She also holds a master’s degree in psychological and brain sciences from Villanova University. \nRegister now
URL:https://www.als-mnd.org/event/als-ftd-clinicopathological-overlap-copy/
ORGANIZER;CN="Les Turner ALS Foundation":MAILTO:info@lesturnerals.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261013T080000
DTEND;TZID=America/New_York:20261013T090000
DTSTAMP:20260928T155328
CREATED:20260417T191105Z
LAST-MODIFIED:20260807T113640Z
UID:19454-1791878400-1791882000@www.als-mnd.org
SUMMARY:Member Forum: Technology Solutions for PALS
DESCRIPTION:A member forum exploring technology solutions that can support people living with ALS/MND (PALS) in daily life\, communication\, and independence.\n \nRegistration note: Members only. To register or request more information\, email alliance@als-mnd.org.
URL:https://www.als-mnd.org/event/member-forum-technology-solutions-for-pals/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261013T180000
DTEND;TZID=America/New_York:20261013T190000
DTSTAMP:20260928T155328
CREATED:20260417T191131Z
LAST-MODIFIED:20260807T113651Z
UID:19456-1791914400-1791918000@www.als-mnd.org
SUMMARY:Member Forum: Technology Solutions for PALS
DESCRIPTION:A member forum exploring technology solutions that can support people living with ALS/MND (PALS) in daily life\, communication\, and independence.\n \nRegistration note: Members only. To register or request more information\, email alliance@als-mnd.org.
URL:https://www.als-mnd.org/event/member-forum-technology-solutions-for-pals-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261015T090000
DTEND;TZID=America/Toronto:20261015T100000
DTSTAMP:20260928T155328
CREATED:20260807T114040Z
LAST-MODIFIED:20260904T170010Z
UID:19962-1792054800-1792058400@www.als-mnd.org
SUMMARY:Webinar: The Use of AI in ALS/MND
DESCRIPTION:This webinar will provide an overview of the rapidly evolving landscape of artificial intelligence. We will look at responsible and trustworthy AI\, and the importance of governance as it relates to the ALS/MND community. Join the conversation about how this growing technology can help enrich quality of life. \nRegister now 
URL:https://www.als-mnd.org/event/webinar-the-use-of-ai/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261017T140000
DTEND;TZID=America/New_York:20261017T150000
DTSTAMP:20260928T155328
CREATED:20260904T165546Z
LAST-MODIFIED:20260904T165645Z
UID:20047-1792245600-1792249200@www.als-mnd.org
SUMMARY:ALS Association Webinar: So\, What's Next? Understanding the Decisions along an ALS Journey
DESCRIPTION:One of the biggest questions after an ALS diagnosis is\, “What happens next?” This webinar will walk through common changes and the care decisions they may bring\, helping you understand what to expect\, when to start planning\, and how to make informed choices that fit your priorities. \nRegister now
URL:https://www.als-mnd.org/event/decisions/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261021T070000
DTEND;TZID=America/New_York:20261021T083000
DTSTAMP:20260928T155328
CREATED:20260417T182222Z
LAST-MODIFIED:20260807T113704Z
UID:19429-1792566000-1792571400@www.als-mnd.org
SUMMARY:Member Roundtable: Defining Rights in the Genetics Era of ALS/MND
DESCRIPTION:As genetics becomes increasingly relevant in ALS/MND care and research\, important questions are emerging around access\, consent\, privacy\, equity\, and support. This member roundtable will examine what rights should guide policy and practice in the genetics era\, and how the global community can respond.\n \nGroup discussion (two options to accommodate time zones):\n\nGroup 1: 9:00–10:30 AM ET\nGroup 2: 6:00–7:30 PM ET\n\nRegistration Note: Members only. To register or request more information\, email alliance@als-mnd.org.
URL:https://www.als-mnd.org/event/member-roundtable-defining-rights-in-the-genetics-era-of-als-mnd/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261027T140000
DTEND;TZID=America/New_York:20261027T150000
DTSTAMP:20260928T155328
CREATED:20260904T165657Z
LAST-MODIFIED:20260904T165752Z
UID:20049-1793109600-1793113200@www.als-mnd.org
SUMMARY:ALS Association Webinar: An Honest Look at Hospice and ALS
DESCRIPTION:Hospice is often surrounded by fear and misconceptions\, yet it can be one of the most valuable sources of support during the ALS journey. Join us for an honest discussion about what hospice care looks like in ALS\, what to expect from referral through end of life\, and how to make the most of the services and support available to you and your family. \nRegister now
URL:https://www.als-mnd.org/event/hospice/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261104T080000
DTEND;TZID=America/Toronto:20261104T090000
DTSTAMP:20260928T155328
CREATED:20260807T114338Z
LAST-MODIFIED:20260807T114338Z
UID:19965-1793779200-1793782800@www.als-mnd.org
SUMMARY:Webinar: Annual Clinical Trials Update
DESCRIPTION:This webinar will provide an update on ALS/MND treatments currently in Phase 3 clinical trials. Participants will learn about trial timelines\, study locations\, available programs\, and key contacts for further information. The session will offer an overview of the current Phase 3 clinical trial landscape and the latest developments in treatment research. \nRegister now
URL:https://www.als-mnd.org/event/webinar-annual-clinical-trials-update/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20261106T123000
DTEND;TZID=Europe/Rome:20261107T180000
DTSTAMP:20260928T155328
CREATED:20260922T142910Z
LAST-MODIFIED:20260922T143511Z
UID:20116-1793968200-1794074400@www.als-mnd.org
SUMMARY:Neuroscience Institute Cavalieri Ottolenghi\, University of Turin: Motor Neuron Diseases 2026 – IV Edition
DESCRIPTION:The fourth edition of Motor Neuron Diseases brings together researchers and clinicians to share advances in understanding motor neuron diseases\, including disease mechanisms and emerging therapeutic approaches. \nThe event is organized by the Neuroscience Institute Cavalieri Ottolenghi (NICO) and the Department of Neuroscience – University of Turin in Italy. It is being offered virtually and in person in Turin. \nLearn more about Motor Neuron Diseases 2026. You must register by September 21.
URL:https://www.als-mnd.org/event/motor-neuron-diseases-2026/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Rome:20261107T113000
DTEND;TZID=Europe/Rome:20261107T120000
DTSTAMP:20260928T155328
CREATED:20260922T141744Z
LAST-MODIFIED:20260922T142559Z
UID:20112-1794051000-1794052800@www.als-mnd.org
SUMMARY:conSLAncio Session: Patients' Associations: Shaping Research Together
DESCRIPTION:The conSLAncio ETS Association\, founded by Andrea Zicchieri\, member of the International Alliance of ALS/MND Associations\, EUpALS (European Organization for Professionals and People with ALS)\, the EU ALS Coalition\, and the Italian ALS Coalition\, is proud to announce the Hybrid Conference “Motor Neuron Diseases IV Edition Workshop: Understanding the Pathogenetic Mechanisms to Develop Therapies”\, 6-7 November 2026\, at Palace of the Anatomical Institutes\, C.so Massimo D’Azeglio 52\, 10124\, Turin\, Italy. \nconSLAncio will speak in the section “Patients’ Associations: Shaping Research Together” (with SMA Europe\, conSLAncio ETS and Girotondo ODV Associations). This moment of the congress will be dedicated to the role of patient associations in actively contributing to the definition of priorities and the orientation of scientific research. \nFor more information and to register (registration must be completed by 21 September)\, visit the conference website.
URL:https://www.als-mnd.org/event/conslancio-session/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261110T080000
DTEND;TZID=America/New_York:20261110T090000
DTSTAMP:20260928T155328
CREATED:20260417T191215Z
LAST-MODIFIED:20260807T113718Z
UID:19458-1794297600-1794301200@www.als-mnd.org
SUMMARY:Member Forum: AI Impacts
DESCRIPTION:A member forum examining how artificial intelligence may impact people living with ALS/MND\, care delivery\, research\, and support services.\n \nRegistration note: Members only. To register or request more information\, email alliance@als-mnd.org.
URL:https://www.als-mnd.org/event/member-forum-ai-impacts/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261110T180000
DTEND;TZID=America/New_York:20261110T190000
DTSTAMP:20260928T155328
CREATED:20260417T191305Z
LAST-MODIFIED:20260807T113731Z
UID:19460-1794333600-1794337200@www.als-mnd.org
SUMMARY:Member Forum: AI Impacts
DESCRIPTION:A member forum examining how artificial intelligence may impact people living with ALS/MND\, care delivery\, research\, and support services.\n \nRegistration note: Members only. To register or request more information\, email alliance@als-mnd.org.
URL:https://www.als-mnd.org/event/member-forum-ai-impacts-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20261124T090000
DTEND;TZID=America/Toronto:20261124T103000
DTSTAMP:20260928T155328
CREATED:20260914T190302Z
LAST-MODIFIED:20260914T190302Z
UID:20078-1795510800-1795516200@www.als-mnd.org
SUMMARY:Annual General Meeting
DESCRIPTION:Our Annual Meeting will be taking place virtually. This meeting will provide an opportunity to reflect on achievements and discuss priorities for the coming year. Additional details will be shared closer to the date. \nPlease mark your calendars and plan to attend.
URL:https://www.als-mnd.org/event/annual-general-meeting/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20261205
DTEND;VALUE=DATE:20261207
DTSTAMP:20260928T155328
CREATED:20251219T183115Z
LAST-MODIFIED:20251222T145655Z
UID:19129-1796428800-1796601599@www.als-mnd.org
SUMMARY:Alliance Meeting
DESCRIPTION:The Alliance Meeting is the place where member associations can meet and share experiences in growing\, running and building an ALS/MND association to support people living with ALS/MND. The meeting is attended by 200+ delegates from over 40 countries around the globe\, either in-person or virtually\, that represent the Alliance’s many member associations. (Open to Alliance members only) \nInfo and registration – Check back often as we will be adding more information!
URL:https://www.als-mnd.org/event/alliance-meeting-2026/
LOCATION:Postillion Hotel & Convention Centre Amsterdam\, Paul van Vlissingenstraat 9-11\, Amsterdam\, 1096 BK\, Netherlands
CATEGORIES:Conference
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20261207
DTEND;VALUE=DATE:20261209
DTSTAMP:20260928T155328
CREATED:20251219T182457Z
LAST-MODIFIED:20251222T145637Z
UID:19126-1796601600-1796774399@www.als-mnd.org
SUMMARY:Allied Professionals Forum
DESCRIPTION:Are you ready to be part of something bigger? The Allied Professionals Forum (APF) brings together healthcare professionals from around the world\, including physiotherapists\, respiratory therapists\, nutritionists\, speech-language pathologists\, social workers and others working in the field of ALS/MND. With over 400 delegates attending from more than 40 countries\, this is your chance to engage in a truly global conversation on the challenges and advancements in ALS/MND care.  \nInfo and registration – Check back often as we will be adding more information!
URL:https://www.als-mnd.org/event/allied-professionals-forum-2026/
LOCATION:Postillion Hotel & Convention Centre Amsterdam\, Paul van Vlissingenstraat 9-11\, Amsterdam\, 1096 BK\, Netherlands
CATEGORIES:Conference
END:VEVENT
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