BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//International Alliance of ALS/MND Associations - ECPv6.8.3//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-ORIGINAL-URL:https://www.als-mnd.org
X-WR-CALDESC:Events for International Alliance of ALS/MND Associations
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/Toronto
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20230312T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20231105T060000
END:STANDARD
TZID:Europe/London
BEGIN:DAYLIGHT
TZOFFSETFROM:+0000
TZOFFSETTO:+0100
TZNAME:BST
DTSTART:20230326T010000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:+0100
TZOFFSETTO:+0000
TZNAME:GMT
DTSTART:20231029T010000
END:STANDARD
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20230312T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20231105T060000
END:STANDARD
TZID:America/Detroit
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20230312T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20231105T060000
END:STANDARD
TZID:America/North_Dakota/Center
BEGIN:DAYLIGHT
TZOFFSETFROM:-0600
TZOFFSETTO:-0500
TZNAME:CDT
DTSTART:20230312T080000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0500
TZOFFSETTO:-0600
TZNAME:CST
DTSTART:20231105T070000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20230222T070000
DTEND;TZID=America/Toronto:20230222T080000
DTSTAMP:20260928T214547
CREATED:20230103T175036Z
LAST-MODIFIED:20230103T175036Z
UID:15954-1677049200-1677052800@www.als-mnd.org
SUMMARY:WEBINAR: Sharing Success: A Fireside Chat with the 2022 Award Winners
DESCRIPTION:Join us in an informal conversation with the 2022 Award winners on their careers\, and their contributions to the field of ALS/MND. Panellists include Sally Light (Humanitarian Award recipient)\, Dr. Richard Bedlack (Forbes Norris Award recipient)\, Richard Cave (Allied Health Professional Award recipient).
URL:https://www.als-mnd.org/event/webinar-sharing-success-a-fireside-chat-with-the-2022-award-winners/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20230329T070000
DTEND;TZID=America/Toronto:20230329T080000
DTSTAMP:20260928T214547
CREATED:20230103T175131Z
LAST-MODIFIED:20230105T213953Z
UID:15956-1680073200-1680076800@www.als-mnd.org
SUMMARY:WEBINAR: Genetic Counselling and Testing
DESCRIPTION:Familial or sporadic ALS/MND\, the importance of genetic counselling and testing can´t be emphasized enough. Join us for this scenario-based discussion which will look at real situations ranging from an ALS/MND asymptomatic carrier to someone whose parent had ALS/MND\, but has not done genetic testing.
URL:https://www.als-mnd.org/event/webinar-genetics-in-sporadic-als-mnd/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20230425T070000
DTEND;TZID=Europe/London:20230425T080000
DTSTAMP:20260928T214547
CREATED:20230103T175222Z
LAST-MODIFIED:20230103T175222Z
UID:15958-1682406000-1682409600@www.als-mnd.org
SUMMARY:WEBINAR: Student Showcase
DESCRIPTION:Student projects in ALS/MND.
URL:https://www.als-mnd.org/event/webinar-student-showcase/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20230517T070000
DTEND;TZID=Europe/London:20230517T080000
DTSTAMP:20260928T214547
CREATED:20230525T054504Z
LAST-MODIFIED:20230523T052923Z
UID:15960-1684306800-1684310400@www.als-mnd.org
SUMMARY:WEBINAR: Maintaining my independence
DESCRIPTION:A panel with occupational therapists in ALS/MND providing recommendations for PALS at different stages of their journey. Tips\, considerations\, and what can be done at home.
URL:https://www.als-mnd.org/event/webinar-clinical-trials-in-genetics-for-sporadic-als-mnd/
LOCATION:Zoom Webinar
CATEGORIES:Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20230621
DTEND;VALUE=DATE:20230622
DTSTAMP:20260928T214547
CREATED:20230523T053023Z
LAST-MODIFIED:20230523T053023Z
UID:16364-1687305600-1687391999@www.als-mnd.org
SUMMARY:ALS/MND Global Awareness Day
DESCRIPTION:
URL:https://www.als-mnd.org/event/als-mnd-global-awareness-day/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20230621T070000
DTEND;TZID=Europe/London:20230621T080000
DTSTAMP:20260928T214547
CREATED:20230103T175410Z
LAST-MODIFIED:20230103T175410Z
UID:15962-1687330800-1687334400@www.als-mnd.org
SUMMARY:WEBINAR: Scientific Advisory Council update & Q&A
DESCRIPTION:Join us for the mid-year update from the Scientific Advisory Council.
URL:https://www.als-mnd.org/event/webinar-scientific-advisory-council-update-qa/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20230817T200000
DTEND;TZID=Europe/London:20230817T210000
DTSTAMP:20260928T214547
CREATED:20230814T185111Z
LAST-MODIFIED:20230913T140314Z
UID:16536-1692302400-1692306000@www.als-mnd.org
SUMMARY:Webinar from the Les Turner ALS Foundation - Compassionate Communities for ALS/MND: Supporting those Caring\, Dying and Grieving
DESCRIPTION:In this Learning Series webinar\, Professor Samar Aoun will share key findings and advice on enabling social networks to support people living with ALS/MND\, making palliative care more widely accessible. A particular focus will be on bereavement support and family caregiver support. \n\nThe Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to the Gilbert & Jacqueline Fern Foundation and Mitsubishi Tanabe Pharma America for sponsoring this webinar. \n\nAbout the Speaker: Professor Aoun is a Perron Institute Research Chair in Palliative Care at The University of Western Australia\, in addition to\, the Chair of MND Australia\, and the MND Association in Western Australia. She is a global leader in the areas of public health palliative care and compassionate communities research and has influenced rapid system change and informed practice and policy at the national and international levels. Among numerous awards\, Professor Aoun received the Medal for Excellence from the European Society for Person Centered Healthcare in 2018\, the Centenary Medal in 2003 from Australia’s Prime Minister and more recently 2023 Western Australia’s Australian of the Year.
URL:https://www.als-mnd.org/event/compassionate-communities-for-als-mnd-supporting-those-caring-dying-and-grieving/
LOCATION:Online
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://www.als-mnd.org/wp-content/uploads/2023/08/Aug17.jpg
ORGANIZER;CN="Les Turner ALS Foundation":MAILTO:info@lesturnerals.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20230907T070000
DTEND;TZID=Europe/London:20230907T080000
DTSTAMP:20260928T214547
CREATED:20230103T175450Z
LAST-MODIFIED:20230103T175450Z
UID:15964-1694070000-1694073600@www.als-mnd.org
SUMMARY:WEBINAR: Global Fundamental Rights Survey Results
DESCRIPTION:The International Alliance of ALS/MND Associations surveyed the community about the Fundamental Rights of People living with ALS/MND and Caregivers. Learn more about the data\, strengths and weaknesses at a global level\, the questions raised and the topics that require further attention\, and how these compared to our 2021 survey.
URL:https://www.als-mnd.org/event/webinar-global-fundamental-rights-survey-results/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230912T103000
DTEND;TZID=America/New_York:20230912T120000
DTSTAMP:20260928T214547
CREATED:20230911T151547Z
LAST-MODIFIED:20230913T140249Z
UID:16564-1694514600-1694520000@www.als-mnd.org
SUMMARY:Webinaire de la SLA Québec - Panel professionnel
DESCRIPTION:Vous êtes-vous déjà demandé qui sont tous ces professionnels de la santé et comment ils prennent soin de vous ? Alors rejoignez-nous pour cette présentation du panel professionnel. Nous avons mis en place quatre panels\, trois en français et un en anglais\, où des professionnels de la santé des cliniques de la SLA\, des CLSC et des centres de réadaptation vous expliqueront leur métier et leur rôle au sein de votre prise en charge. \n\n\nCe webinaire est en français.
URL:https://www.als-mnd.org/event/panel-professionnel/
LOCATION:Online
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://www.als-mnd.org/wp-content/uploads/2023/09/SLAQuebec.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230912T133000
DTEND;TZID=America/New_York:20230912T150000
DTSTAMP:20260928T214547
CREATED:20230911T151535Z
LAST-MODIFIED:20230913T140218Z
UID:16560-1694525400-1694530800@www.als-mnd.org
SUMMARY:Webinar from ALS Quebec - Professional Panel
DESCRIPTION:Have you ever wondered who all these health care professionals are and how they are caring for you? Then please join us for this Professional Panel presentation. We have four panels set up\, three in French and one in English\, where healthcare professionals from ALS clinics\, CLSC\, and rehabilitation centres will explain their profession and their role within your care. \n\n\nThis webinar session is in English.
URL:https://www.als-mnd.org/event/professional-panel/
LOCATION:Online
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://www.als-mnd.org/wp-content/uploads/2023/09/ALSQuebec.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20230919T160000
DTEND;TZID=America/Detroit:20230919T170000
DTSTAMP:20260928T214547
CREATED:20230913T140333Z
LAST-MODIFIED:20230913T140333Z
UID:16605-1695139200-1695142800@www.als-mnd.org
SUMMARY:Virtual Discussion Series by ALS TDI - Community Conversations
DESCRIPTION:Join Dr. Nadia Sethi\, the Director of Community Outreach and Engagement at the ALS Therapy Development Institute (ALS TDI)\, for this virtual discussion series. These conversations will provide an overview of research at ALS TDI\, discuss current clinical trials\, and provide space to converse and ask questions about ALS science and research. Through this series\, Nadia hopes to engage the community around the following: \n\n\n\nIncreasing understanding of what ALS TDI does\nProviding information on currently recruiting clinical trials and EAPs\nCreating a space for discussion about the science of ALS
URL:https://www.als-mnd.org/event/virtual-discussion-series-by-als-tdi-community-conversations/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20230926T103000
DTEND;TZID=America/Detroit:20230926T120000
DTSTAMP:20260928T214547
CREATED:20230929T165738Z
LAST-MODIFIED:20230929T165738Z
UID:16645-1695724200-1695729600@www.als-mnd.org
SUMMARY:Webinar from ALS Quebec- Professional Panel
DESCRIPTION:Have you ever wondered who all these healthcare professionals are and how they take care of you? So join us for this presentation of the professional panel. We have set up four panels\, three in French and one in English\, where health professionals from ALS clinics\, CLSCs and rehabilitation centers will explain their profession and their role in your care. \n\nThis webinar is in French. \n\n\n\nWhen: Tuesday September 26\, 2023\, from 10:30 a.m. to 12 p.m.\n\n\n\n\nWhere: The webinar takes place on Zoom\n\n\n\n\n\n\n\nREGISTER\n\n\n\n\n\n\nIf you are not familiar with the Zoom platform\, or with online communications\, do not hesitate to consult our Zoom user guides on  our website. \n\n\nFor more information\, contact Kate Busch at 514 725-2653\, ext. 109 | 1-877-725-7725 or by email at  kbusch@sla-quebec.ca
URL:https://www.als-mnd.org/event/webinar-from-als-quebec-professional-panel-2/
LOCATION:Online
CATEGORIES:Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20230926T110000
DTEND;TZID=Europe/London:20230926T130000
DTSTAMP:20260928T214547
CREATED:20230913T140102Z
LAST-MODIFIED:20230918T125932Z
UID:16591-1695726000-1695733200@www.als-mnd.org
SUMMARY:MND Association Community of Practice: Information and Knowledge Exchange Event - Psychological Care for People Living with MND
DESCRIPTION:Time: 11.00 am – 1.00 pm\nOptional breakout rooms for further discussion will be available after the event until 1:30pm \nWe have some interesting presentations focussing on this important area of care: \n\nSub-optimal decisions and accepting these as a practitioner\nDr Rachel Woolrich\, Principal Clinical Psychologist\, the Oxford Psychological Medicine Centre.\nAs a practitioner\, patients in your care may take what you consider to be sub-optimal decisions for their care. In this session Dr Woolrich will explore how best as a practitioner to recommend a direction of treatment or whilst not unduly influencing patient decisions. And how you can square acceptance of such decisions with the knowledge and conviction that you have provided best care.\nUnderstanding the roots of psychological distress\nDr John Ashworth\, Counselling Psychologist\, South West Neuromuscular Operational Delivery Network\, Bristol\nGetting a diagnosis of MND is devastating and throughout its course the disease presents many more challenges – both physical and emotional. In this session Dr Ashworth examines some commonly experienced stressors and explores how as practitioners you can provide support\, including when your patient expresses thoughts of suicide.\n\nAs usual there will be lots of opportunity to discuss what you have heard and explore how it could be useful to your practice.
URL:https://www.als-mnd.org/event/information-and-knowledge-exchange-for-mnd-professionals-community-of-practice-psychological-care-for-people-living-with-mnd/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20230926T133000
DTEND;TZID=America/Detroit:20230926T150000
DTSTAMP:20260928T214547
CREATED:20230929T165654Z
LAST-MODIFIED:20230929T165654Z
UID:16647-1695735000-1695740400@www.als-mnd.org
SUMMARY:Webinar from ALS Quebec- Professional Panel
DESCRIPTION:Have you ever wondered who all these healthcare professionals are and how they take care of you? So join us for this presentation of the professional panel. We have set up four panels\, three in French and one in English\, where health professionals from ALS clinics\, CLSCs and rehabilitation centers will explain their profession and their role in your care. \n\n\nThis webinar is in French. \n\n\n\nWhen: Tuesday September 26\, 2023\, from 1:30 p.m. to 3 p.m.\n\n\n\n\nWhere: The webinar takes place on Zoom\n\n\n\n\n\n\n\nREGISTER\n\n\n\n\n\n\nIf you are not familiar with the Zoom platform\, or with online communications\, do not hesitate to consult our Zoom user guides on  our website. \n\n\nFor more information\, contact Kate Busch at 514 725-2653\, ext. 109 | 1-877-725-7725 or by email at  kbusch@sla-quebec.ca
URL:https://www.als-mnd.org/event/webinar-from-als-quebec-professional-panel/
LOCATION:Online
CATEGORIES:Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20230926T150000
DTEND;TZID=America/Detroit:20230926T160000
DTSTAMP:20260928T214547
CREATED:20230913T140050Z
LAST-MODIFIED:20230913T140050Z
UID:16608-1695740400-1695744000@www.als-mnd.org
SUMMARY:Virtual Series by ALS TDI in partnership with I AM ALS and the NEALS Patient Education and Advocacy Committee - Meet Your Orgs
DESCRIPTION:ALS TDI has partnered with I AM ALS and the NEALS Patient Education & Advocacy Committee to develop this new series – creating a platform for the ALS community to meet some of the key people in the different ALS organizations that form our community and learn about the work that they are doing. \nThe next event in the series will be held on September 26th at 3 p.m. ET and will feature presentations from the following ALS organizations: \n\n\n\nALS Therapy Development Institute (ALS TDI)\nHope Loves Company\nMac Angels Foundation\nRoon
URL:https://www.als-mnd.org/event/virtual-series-by-als-tdi-in-partnership-with-i-am-als-and-the-neals-patient-education-and-advocacy-committee-meet-your-orgs/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20230927T070000
DTEND;TZID=Europe/London:20230927T080000
DTSTAMP:20260928T214547
CREATED:20230103T175525Z
LAST-MODIFIED:20230103T175525Z
UID:15966-1695798000-1695801600@www.als-mnd.org
SUMMARY:WEBINAR: Mental health support for people living with ALS/MND and caregivers
DESCRIPTION:Join us in this conversation where we discuss warning signs\, how to safeguard\, get help \, and maintain mental health in people living with ALS/MND and caregivers.  
URL:https://www.als-mnd.org/event/webinar-mental-health-support-for-people-living-with-als-mnd-and-caregivers/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20230928T183000
DTEND;TZID=America/Detroit:20231102T200000
DTSTAMP:20260928T214547
CREATED:20230929T165519Z
LAST-MODIFIED:20230929T165519Z
UID:16635-1695925800-1698955200@www.als-mnd.org
SUMMARY:ALS Canada | Community Services - The Healing Power of Journaling for Caregivers
DESCRIPTION:Join us this fall to discover how creativity and mindfulness can impact your daily life and mindset as a caregiver. Beginning September 28\, explore the healing power of journaling. Over six weeks\, we’ll dive into practical and powerful tools to aid caregivers in their journaling practices. \nRegister for FREE today\, whether you’re an avid writer or just beginning \nyour journey. (Please register by September 21\, 2023) \nRegister now
URL:https://www.als-mnd.org/event/als-canada-community-services-the-healing-power-of-journaling-for-caregivers/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20231003T123000
DTEND;TZID=Europe/London:20231003T130000
DTSTAMP:20260928T214547
CREATED:20230913T140021Z
LAST-MODIFIED:20230918T131830Z
UID:16601-1696336200-1696338000@www.als-mnd.org
SUMMARY:MND Association Conversation with MND Association Financial and Equipment Support Services
DESCRIPTION:Time: 12:30pm – 1:00pm \nFind out what support the MND Association can provide. In this session Pauline Matheson-Marks\, Head of National Care at the Association will answer questions about the various grants and equipment services that the MND Association can provide for people living with and affected by MND. And how to apply for them. \nNo need to book. Join using the link and passcode below: \nJoin Zoom Meeting: https://us06web.zoom.us/j/89826251500?pwd=WExuSUJsTDNUd1c3Z2l3cVlsTDFndz09\nMeeting ID: 898 2625 1500\nPasscode: MNDAHoC \nIf you would like any specific question answered during the session\, please send these to education@mndassociation.org
URL:https://www.als-mnd.org/event/webinar-from-the-mnda-conversation-with-mnd-association-financial-and-equipment-support-services/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20231009T093000
DTEND;TZID=Europe/London:20231009T160000
DTSTAMP:20260928T214547
CREATED:20230912T143039Z
LAST-MODIFIED:20230918T133123Z
UID:16579-1696843800-1696867200@www.als-mnd.org
SUMMARY:CoP Networking Event from the MND Association - Supporting people living with MND through advance care planning: A role for the whole MDT
DESCRIPTION:From the MND Association – Following the tremendous success of the networking event last year\, we are pleased to advise booking is now open for this year’s event. \nWonderful to see a group of experienced HSCP coming together with a common purpose. Thanks\, a great day!\nAttendee at Networking Event 2022 \nThroughout the day you will follow Adam\, a person living with MND\, and his family’s journey with MND. In groups\, led by experts representing the MDT\, you will consider how to effectively approach the sometimes challenging process of advance care planning. \nWith national colleagues you will discuss and explore the significant things health and social care professionals\, Adam\, and his family might want to talk about at different stages in his disease progression. You will reflect on how you can best encourage and support the crucial thinking and decision making needed to ensure that best care takes place. \nThere will also be practical and discussion sessions during the day on: \n\nPEG and RIG insertion\nrespiratory equipment\northotics\nequipment solutions\nsafe exercise for people living with MND\ncommunication aids\nsyringe drivers.\n\nView brochure\nIf you are not yet a member of our Community of Practice\, please join us. \nThis event is now fully booked. Please email CoP@mndassociation.org to be added to the waiting list.
URL:https://www.als-mnd.org/event/supporting-people-living-with-mnd-through-advance-care-planning-a-role-for-the-whole-mdt/
LOCATION:National Conference Centre\, Birmingham\, United Kingdom
CATEGORIES:Conference
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20231011T130000
DTEND;TZID=America/Detroit:20231011T150000
DTSTAMP:20260928T214547
CREATED:20231010T103756Z
LAST-MODIFIED:20231010T103756Z
UID:16692-1697029200-1697036400@www.als-mnd.org
SUMMARY:Webinar from ALS Canada: Navigating Mental Health & ALS
DESCRIPTION:An individual’s mental health and how they are supported is important when facing an ALS diagnosis. On October 11\, please join presenters from Sunnybrook ALS Clinic and Hospice Niagara\, who will provide in-depth information about the importance of emotional health\, conversations about anticipatory grief\, and how individuals\, family\, and friends can access mental health resources in their community.
URL:https://www.als-mnd.org/event/webinar-from-als-canada-navigating-mental-health-als/
CATEGORIES:Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20231016T100000
DTEND;TZID=Europe/London:20231016T160000
DTSTAMP:20260928T214547
CREATED:20230913T135945Z
LAST-MODIFIED:20230918T133051Z
UID:16599-1697450400-1697472000@www.als-mnd.org
SUMMARY:Masterclass from the MDN Association - Let's Talk About End of Life in MND
DESCRIPTION:Time: 10am – 4pm\nCost: £40 View events cancellation policy\nDate: 16 October 2023\nLocation: Online delivery via Zoom \nAim: To help health and social care professionals gain confidence in discussing death\, dying and advance care planning with people with MND. \nBy the end of the one-day masterclass\, participants will: \n\nunderstand the benefits and challenges of offering opportunities to discuss dying\nunderstand what happens as MND progresses and how patients might die\nhave increased confidence in initiating conversations about end of life\nunderstand advance care planning and resources to support this.\n\nFacilitators: \n\nDr Idris Baker – Consultant in Palliative Care at Ty Olwen Hospice\, Morriston Hospital Swansea\nBecky Whittaker – Educator and Coach Palliative and End of Life Care\, Communication Skills Trainer
URL:https://www.als-mnd.org/event/masterclass-from-mdna-lets-talk-about-end-of-life-in-mnd/
LOCATION:Online
CATEGORIES:Masterclass/Program
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20231025T183000
DTEND;TZID=America/Detroit:20231115T200000
DTSTAMP:20260928T214547
CREATED:20230929T165255Z
LAST-MODIFIED:20230929T165255Z
UID:16639-1698258600-1700078400@www.als-mnd.org
SUMMARY:ALS Canada | Community Services - Creative Wellness For Caregivers
DESCRIPTION:Starting October 25\, learn about the importance of creating a self-care practice to help manage stress and maintain balance. In this four-week workshop\, we’ll discover various self-care practices through guided art and mindfulness exercises. \nRegister for FREE and learn about using art to improve mental health. (Please register by October 18\, 2023) \nRegister now
URL:https://www.als-mnd.org/event/als-canada-community-services-creative-wellness-for-caregivers/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20231025T183000
DTEND;TZID=America/Detroit:20231115T200000
DTSTAMP:20260928T214547
CREATED:20230929T165441Z
LAST-MODIFIED:20230929T165441Z
UID:16638-1698258600-1700078400@www.als-mnd.org
SUMMARY:ALS Canada | Community Services - Creative Wellness For Caregivers
DESCRIPTION:Starting October 25\, learn about the importance of creating a self-care practice to help manage stress and maintain balance. In this four-week workshop\, we’ll discover various self-care practices through guided art and mindfulness exercises. \nRegister for FREE and learn about using art to improve mental health. (Please register by October 18\, 2023) \nRegister now
URL:https://www.als-mnd.org/event/als-canada-community-services-creative-wellness-for-caregivers-2/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/North_Dakota/Center:20231026T120000
DTEND;TZID=America/North_Dakota/Center:20231026T130000
DTSTAMP:20260928T214547
CREATED:20230929T140212Z
LAST-MODIFIED:20230929T140212Z
UID:16654-1698321600-1698325200@www.als-mnd.org
SUMMARY:Webinar from the Les Turner ALS Foundation - Ethical Principles & Informed Consent in Research
DESCRIPTION:About the Program: Informed consent is an essential component of research\, but have you ever wondered why? Join us for our October ALS Learning Series where Emma Schmidt\, Clinical Research Project Manager at the Les Turner ALS Center at Northwestern Medicine will discuss the history behind informed consent\, explain the process of informed consent\, your rights as a research participant and provide you with helpful tips and questions to ask if you’re interested in joining research. \nThe Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to the Gilbert & Jacqueline Fern Foundation\, Mitsubishi Tanabe Pharma America\, & Biogen for sponsoring this webinar. \nAbout the Speaker: Emma Schmidt is the Clinical Research Project Manager at the Les Turner ALS Center at Northwestern Medicine.
URL:https://www.als-mnd.org/event/webinar-from-the-les-turner-als-foundation-ethical-principles-informed-consent-in-research/
LOCATION:Online
CATEGORIES:Webinar
ORGANIZER;CN="Les Turner ALS Foundation":MAILTO:info@lesturnerals.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20231027T100000
DTEND;TZID=America/Detroit:20231027T160000
DTSTAMP:20260928T214547
CREATED:20230913T135934Z
LAST-MODIFIED:20230913T135934Z
UID:16610-1698400800-1698422400@www.als-mnd.org
SUMMARY:Conference by ALS TDI - The ALS TDI Summit
DESCRIPTION:The ALS TDI Summit is a free conference that aims to inform and empower the ALS community by educating attendees about ALS TDI’s latest work to discover and develop effective treatments for ALS. The Summit invites all members of the community to learn about ALS TDI’s cutting-edge approach to ending ALS.  This year along with the full in-person Summit\, the ALS TDI Summit will be filmed live and streamed over Zoom. Register to attend the 2023 ALS TDI Summit virtually or in person!
URL:https://www.als-mnd.org/event/conference-by-als-tdi-the-als-tdi-summit/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20231102T070000
DTEND;TZID=Europe/London:20231102T083000
DTSTAMP:20260928T214547
CREATED:20230103T175549Z
LAST-MODIFIED:20230105T215648Z
UID:15969-1698908400-1698913800@www.als-mnd.org
SUMMARY:WEBINAR: Annual Global Clinical Trials Update
DESCRIPTION:This webinar will provide information on ALS/MND treatments currently in Phase 3 Clinical Trials. We will hear directly about timelines\, where the sites are\, other programs offered\, and who to contact if more information is needed.
URL:https://www.als-mnd.org/event/webinar-annual-global-clinical-trials-update/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20231107T100000
DTEND;TZID=Europe/London:20231107T153000
DTSTAMP:20260928T214547
CREATED:20230913T135909Z
LAST-MODIFIED:20230913T135909Z
UID:16593-1699351200-1699371000@www.als-mnd.org
SUMMARY:Workshop from the MNDA - Respiratory Failure in MND: Secretion Management and Airway Clearance
DESCRIPTION:Date: 7 November 2023\nTime: 10am-3:30pm (registration and coffee from 9:30am)\nCost: £50 View Events Cancellation Policy\nLocation: Newcastle United Football Club\, St James Park\, Newcastle Upon Tyne\, NE1 4ST \nAim: to introduce non respiratory specialist members of the MDT to secretion management and airway clearance. \nObjectives: \nBy the end of the session you will: \n\nbe better able to identify the presenting problems may be when cough augmentation is indicated\nhave been introduced to manual methods of secretion clearance including the Lung Volume Recruitment technique\nbe able to explain secretion clearance and cough assistance techniques in order to support the people with MND in their care and prepare them for the procedures\nhave been introduced to some of the pharmacological options for secretion management\nhave had an opportunity to explore case studies and through knowledge application and discussion identify the presenting problem and the appropriate action to take.
URL:https://www.als-mnd.org/event/workshop-from-the-mnda-respiratory-failure-in-mnd-secretion-management-and-airway-clearance/
LOCATION:Newcastle United Football Club
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20231121T100000
DTEND;TZID=Europe/London:20231121T153000
DTSTAMP:20260928T214547
CREATED:20230913T135716Z
LAST-MODIFIED:20230918T133238Z
UID:16596-1700560800-1700580600@www.als-mnd.org
SUMMARY:MND Association Workshop - Respiratory Failure in MND: Secretion Management and Airway Clearance
DESCRIPTION:Date: 21 November 2023\nTime: 10am-3:30pm (registration and coffee from 9:30am)\nCost: £50 View Events Cancellation Policy\nLocation: National Council for Voluntary Organisations (NCVO)\, Society Building\, 8 All Saints Street\, London N1 9RL \nAim: to introduce non respiratory specialist members of the MDT to secretion management and airway clearance. \nObjectives: \nBy the end of the session you will: \n\nbe better able to identify the presenting problems may be when cough augmentation is indicated\nhave been introduced to manual methods of secretion clearance including the Lung Volume Recruitment technique\nbe able to explain secretion clearance and cough assistance techniques in order to support the people with MND in their care and prepare them for the procedures\nhave been introduced to some of the pharmacological options for secretion management\nhave had an opportunity to explore case studies and through knowledge application and discussion identify the presenting problem and the appropriate action to take.
URL:https://www.als-mnd.org/event/workshop-from-mnda-respiratory-failure-in-mnd-secretion-management-and-airway-clearance/
LOCATION:National Council for Voluntary Organisations (NCVO)\, Society Building
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20231121T180000
DTEND;TZID=Europe/London:20231121T200000
DTSTAMP:20260928T214547
CREATED:20230912T142904Z
LAST-MODIFIED:20230918T133325Z
UID:16577-1700589600-1700596800@www.als-mnd.org
SUMMARY:From the MND Association - 2023 Annual Stephen Hawking MND Lecture
DESCRIPTION:Effective advance care planning is the important theme of this prestigious event\, which is being organised by the MND Association and the Royal College of Speech and Language Therapists (RCSLT). \nThe lecture will be led by Professor Bee Wee CBE. Bee was National Clinical Director for Palliative and End of Life Care\, NHS England from 2013 – 2023. \nWith thanks to the Hawking Foundation for funding this event.
URL:https://www.als-mnd.org/event/2023-annual-stephen-hawking-mnd-lecture/
LOCATION:Online
CATEGORIES:Conference
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20231122T123000
DTEND;TZID=Europe/London:20231122T130000
DTSTAMP:20260928T214547
CREATED:20230913T135758Z
LAST-MODIFIED:20230918T133408Z
UID:16603-1700656200-1700658000@www.als-mnd.org
SUMMARY:From the MND Association - Conversation with an MND Network Coordinator
DESCRIPTION:Time: 12:30pm – 1:00pm \nIn this session Caroline Bidder\, MND Network Coordinator\, Swansea Bay will answer questions about how an MND network operates\, what makes this dispersed model of care the appropriate one\, and the impact it has on people living with and affected by MND. \nNo need to book. Join using the link and passcode below: \nJoin Zoom Meeting: https://us06web.zoom.us/j/88570488079?pwd=OFUydHNnT0c4cEhaNmRTYncxbG9iQT09\nMeeting ID: 885 7048 8079\nPasscode: MNDCWCC \nIf you would like any specific question answered during the session\, please send these to education@mndassociation.org
URL:https://www.als-mnd.org/event/webinar-from-mnda-conversation-with-an-mnd-network-coordinator/
LOCATION:Online
CATEGORIES:Webinar
END:VEVENT
END:VCALENDAR