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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20241114T110000
DTEND;TZID=America/Toronto:20241114T120000
DTSTAMP:20260929T004009
CREATED:20241107T131814Z
LAST-MODIFIED:20241107T131814Z
UID:18125-1731582000-1731585600@www.als-mnd.org
SUMMARY:Webinar from Les Turner ALS Foundation - Stitching Strength: What I have learned about hope in ALS and how I am trying to weave that into my practice
DESCRIPTION:About the Program \nJoin us for our November ALS Learning Series about hope with Dr. Richard Bedlack. In this talk\, Dr. Bedlack will review what he has learned about hope in health and diseases\, including ALS. He’ll talk about why it matters\, where it comes from\, what clinicians do to boost and to suppress it\, and how he is trying to optimize it in his own clinic. \nThe Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to the Gilbert & Jacqueline Fern Foundation & Mitsubishi Tanabe Pharma America for sponsoring this webinar. \nAbout the Speaker \nDr. Richard Bedlack grew up in a small town in central Connecticut. He went to college at William and Mary in Virginia\, then back to Connecticut for an MD and Ph.D. in Neuroscience at UConn. Finally\, he came to Duke where he completed his Medicine Internship\, Neurology Residency\, Neuromuscular Fellowship\, and Masters in Clinical Research Science. He is currently the Stewart\, Hughes\, and Wendt Distinguished Professor of ALS at Duke and Director of the Duke ALS Clinic. He has won awards for teaching and patient care\, received ALS research grants\, participated in ALS clinical trials\, and published more than 160 ALS articles. He is the leader of the international ALSUntangled program which utilizes social networking to investigate alternative and off-label treatment options for patients with ALS\, and leader of the ALS Reversals program which attempts to understand why some people with ALS recover from it\, and to make this happen more often. He lives in Durham\, North Carolina with his wife Shelly\, two mischievous cats\, and a closet full of eye-catching blazers.
URL:https://www.als-mnd.org/event/webinar-from-les-turner-als-foundation-stitching-strength-what-i-have-learned-about-hope-in-als-and-how-i-am-trying-to-weave-that-into-my-practice/
LOCATION:Online
CATEGORIES:Webinar
ORGANIZER;CN="Les Turner ALS Foundation":MAILTO:info@lesturnerals.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20241202
DTEND;VALUE=DATE:20241204
DTSTAMP:20260929T004009
CREATED:20240125T201020Z
LAST-MODIFIED:20240125T201020Z
UID:16880-1733097600-1733270399@www.als-mnd.org
SUMMARY:2024 Alliance Meeting
DESCRIPTION:The 2024 Alliance Meeting will be attended by 100+ delegates in-person and 100+ delegates virtually from over 40 countries around the globe that represent the Alliance’s many member associations. The meeting provides an opportunity for member associations to meet and share advances in supporting people living with ALS/MND. It is an excellent opportunity for representatives of ALS/MND associations to discuss organizational development and planning\, regulation\, advocacy\, patient care\, research and funding. 
URL:https://www.als-mnd.org/event/2024-alliance-meeting/
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END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20241204
DTEND;VALUE=DATE:20241206
DTSTAMP:20260929T004009
CREATED:20240125T201038Z
LAST-MODIFIED:20240125T201038Z
UID:16883-1733270400-1733443199@www.als-mnd.org
SUMMARY:2024 Allied Professionals Forum
DESCRIPTION:The Allied Professionals Forum (APF) includes clinical care presentations for ALS/MND health and social care professionals. During the APF\, practitioners from around the globe come together to share their practical knowledge and experiences\, with a mission to improve the quality of care for people living with ALS/MND worldwide. On average\, we expect 200 professionals to attend this forum in person and another 200+ virtually.
URL:https://www.als-mnd.org/event/2024-allied-professionals-forum/
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END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20241206
DTEND;VALUE=DATE:20241209
DTSTAMP:20260929T004009
CREATED:20240125T201056Z
LAST-MODIFIED:20240125T201056Z
UID:16888-1733443200-1733702399@www.als-mnd.org
SUMMARY:35th International Symposium on ALS/MND
DESCRIPTION:The International Symposium is the biggest annual conference dedicated to ALS and MND research. Each year we bring together researchers from around the world to share new understanding of amyotrophic lateral sclerosis and motor neurone disease. \nThis year’s event will take place in Montreal\, Canada on 6-8 December 2024.
URL:https://www.als-mnd.org/event/35th-international-symposium-on-als-mnd/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250115T130000
DTEND;TZID=America/Toronto:20250115T140000
DTSTAMP:20260929T004009
CREATED:20250114T212413Z
LAST-MODIFIED:20250114T212413Z
UID:18208-1736946000-1736949600@www.als-mnd.org
SUMMARY:Webinar from NEALS: Expanded Access Programs in ALS: What Have We Learned\, Where Do We Go from Here?
DESCRIPTION:In this webinar\, Drs. Andrews\, Babu and Bedlack will explain what Expanded Access Programs (EAPs) are and how they differ from other pathways by which people living with ALS can access experimental products. They will review what we have learned from recent EAPs\, what is happening with the current ones\, and where they hope to see EAPs go in the future. They will highlight reliable places to find more information on EAPs. \nYou can register directly through this link and receive a webinar reminder: Webinar Registration
URL:https://www.als-mnd.org/event/webinar-from-neals-expanded-access-programs-in-als-what-have-we-learned-where-do-we-go-from-here/
LOCATION:Online
CATEGORIES:Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250206T130000
DTEND;TZID=America/Toronto:20250206T140000
DTSTAMP:20260929T004009
CREATED:20250120T131118Z
LAST-MODIFIED:20250120T131155Z
UID:18249-1738846800-1738850400@www.als-mnd.org
SUMMARY:Webinar from Les Turner ALS Foundation: Family Caregivers: Angels in Agony
DESCRIPTION:About the Program \nEvery caregiver — and every caregiving journey — is unique\, but there are some commonalities among caregivers of family members living with ALS. Most say caregiving is at the same time challenging\, exhausting\, rewarding\, and full of unexpected emotions. Linda Levine is a caregiver for her husband David Buseck\, a person with ALS. Together they share how they try daily to strike a balance between stepping up for the needs of the other while maintaining their own identities and wellness. Join us as they share tools illustrated by real life\, relatable\, examples that will help caregivers feel better\, rather than bitter\, at the end of the day. \nThe Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to the Gilbert & Jacqueline Fern Foundation\, Mitsubishi Tanabe Pharma America\, & Biogen for sponsoring this webinar. \nAbout the Speaker  \nLinda Levine\, M.Ed\, trained as a Recreational Therapist and educator. She has applied those skills to help people find fulfilling lives using wheelchairs\, communication devices\, and adaptive equipment. She taught for 30 years at San Jose State University\, including courses on diverse topics such as creating a meaningful life\, creativity\, identity\, play\, grief and loss. As a life coach\, Linda specializes in helping people move through change\, whether that is the loss of a loved one\, retirement\, career challenges\, or just about anything else. In her role as a motivational speaker\, she speaks about Caregiving\, Team-building\, Grief and even Clumsy Sex and ALS. Linda has a gift for taking on tough topics with sensitivity and refreshing humor. \nDavid Buseck\, MS\, is a retired engineer who worked with radiation oncology equipment. He was diagnosed with ALS in 2019. He is a board member with the ALS Network and is active in various forms of ALS advocacy. He enjoys playing flute\, reading\, traveling\, and writing. In 2024\, he published Paris: City of Cultures.
URL:https://www.als-mnd.org/event/webinar-from-les-turner-als-foundation-family-caregivers-angels-in-agony/
LOCATION:Online
CATEGORIES:Webinar
ORGANIZER;CN="Les Turner ALS Foundation":MAILTO:info@lesturnerals.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250210T153000
DTEND;TZID=America/Toronto:20250210T163000
DTSTAMP:20260929T004009
CREATED:20250203T194937Z
LAST-MODIFIED:20250203T194937Z
UID:18265-1739201400-1739205000@www.als-mnd.org
SUMMARY:Webinar from NEALS: Understanding the Customer Experience Journey in ALS Clinical Trials Across North America
DESCRIPTION:In 2016\, a “secret shopper” initiative was launched to assess the responsiveness of ALS clinical trial sites to patient inquiries. The findings revealed significant challenges in both the quality and quantity of responses\, highlighting areas needing improvement. \nThis webinar revisits the study in 2024 to evaluate current site responsiveness compared to the 2016 baseline. We will explore whether fundamental customer service principles can enhance patient engagement and participation in ALS clinical trials. \nRegister now.
URL:https://www.als-mnd.org/event/webinar-from-neals-understanding-the-customer-experience-journey-in-als-clinical-trials-across-north-america/
LOCATION:Online
CATEGORIES:Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Luxembourg:20250314T150000
DTEND;TZID=Europe/Luxembourg:20250314T200000
DTSTAMP:20260929T004009
CREATED:20250224T172402Z
LAST-MODIFIED:20250224T190954Z
UID:18278-1741964400-1741982400@www.als-mnd.org
SUMMARY:International Colloquium with WÄERTVOLLT LIEWEIN: Personal Assistance
DESCRIPTION:When you slide more or less quickly from independence to total physical and social dependence\, you really need to have confidence in your environment and in society in order not to lose the will to live. Where does your personal life begin to be ‘worth living’ or ‘no longer worth living’? What happens then to trust in politics? \nWäertvollt Liewen is committed to ensuring that people with serious illness and/or disability have the opportunity to decide how and where they want to live their lives. This is in line with Article 19 of the Convention on the Rights of Persons with Disabilities (CRPD) (Living independently and being included in the community) and Article 15 (6) of the Luxembourg Constitution (Every disabled person has the right to equal enjoyment of all rights). \nThe ‘Action Plan for the Implementation of the CRPD 2019-2024’ ended on 31 December 2024. What went well and what needs to be improved? In the new Action Plan\, self-determination\, personal assistance and personal budgets should be declared the main goal. Their Implementation will enable people to live together in dignity and inclusion\, including the most needy among the disabled. \nClick here to download the conference registration form in English. \nProgramme from March 13\, 2025\n14.00 – 14.30 Reception of the participants\n14.30 – 15.10 Welcome speech by Wäertvollt Liewen \nAddress by Max Hahn\, Minister for Family Affairs\, Solidarity\, Living Together and Reception of Refugees \nAddress by Martine Deprez\, Minister for Health and Social Security \nAdress by Corinne Cahen\, Alderwoman for Integration of people with special needs\, Luxembourg-City \n15.10 – 17.10 Presentations\n17.30 – 18.00 Break\n18.00 – 18.40 Presentations\n18.40 – 19.10 Interviews\n19.10 – 20.00 Round table discussion\, questions and conclusions \nAfter the round table discussion\, Wäertvollt Liewen invites the participants to a cosy and well-deserved ‘Walking Dinner’ with musical accompaniment by Guilhem ‘Pone’ Gallart. \nAttend in person or online. Simultaneous translation provided in English\, French and German. Register by February 28\, 2025. 
URL:https://www.als-mnd.org/event/international-colloquium-with-waertvollt-liewein-personal-assistance/
LOCATION:Neumünster Abbey\, Centre Culturel de Rencontre Abbaye de Neumünster\, 28 Rue Münster\, 2160 Grund Luxembourg\, Luxembourg
CATEGORIES:Conference
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250319T080000
DTEND;TZID=America/Toronto:20250319T090000
DTSTAMP:20260929T004009
CREATED:20250220T162114Z
LAST-MODIFIED:20250220T162114Z
UID:18273-1742371200-1742374800@www.als-mnd.org
SUMMARY:Webinar from the International Alliance: ALS/MND Platform Trials Update
DESCRIPTION:ALS/MND PLATFORM TRIALS UPDATE\n \n19 March 8 am ET\nRegistration: https://us02web.zoom.us/webinar/register/WN_GEOgomftSVOcV0woGWug4g#/registration\nWe will have captions available\n \nThis webinar will provide information on ALS/MND platform trials. We will hear from HEALEY\, EXPERTS ALS and SMART. They will update us on their approach\, recruitment\, trial eligibility and their latest news.
URL:https://www.als-mnd.org/event/webinar-from-the-international-alliance-als-mnd-platform-trials-update/
LOCATION:Online
CATEGORIES:Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250331T130000
DTEND;TZID=America/Toronto:20250331T140000
DTSTAMP:20260929T004009
CREATED:20250303T131846Z
LAST-MODIFIED:20250303T131846Z
UID:18299-1743426000-1743429600@www.als-mnd.org
SUMMARY:Webinar from Les Turner ALS Foundation: Observational Studies Help in the Quest for Effective ALS Therapies
DESCRIPTION:About the Program \nIn this talk Dr. Berry will discuss the aims\, design considerations\, and implementation of observational studies\, highlighting the many ways observational studies hastened drug development and can create resources that aid the ALS community in the present and for years to come. \nAbout the Speaker \nDr. Berry leads the Massachusetts General Hospital Division of ALS and Motor Neuron Diseases. He is an active clinician and ALS clinical researcher\, with a focus on biomarker development and ALS clinical trial methodology. He oversees a large biorepository\, collecting\, storing and sharing blood\, DNA\, and spinal fluid and accompanying patient information\, which allows researchers around the globe to conduct critical research identifying biomarkers of ALS and developing novel therapeutics. He also leads projects developing digital endpoints for ALS trials that will help increase the objective data for trials while decreasing the burden on trial participants. Finally\, he is deeply committed to developing novel therapeutics by translating discoveries in the lab into clinical trials and leading clinical trials that will transform our approach to care in ALS. \nDr. Berry also oversees and leads out the clinic at the Healey Center for ALS\, caring for patients and helping to build and lead the multidisciplinary care team. He helped found the Telemedicine for People with ALS (TelePALS) program\, the ALS House Call Program and the Parenting at a Challenging Time (PACT) programs within the clinic. \nThe Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to the Gilbert & Jacqueline Fern Foundation\, Mitsubishi Tanabe Pharma America\, & Biogen for sponsoring this webinar. \nLink to register
URL:https://www.als-mnd.org/event/webinar-from-les-turner-als-foundation-observational-studies-help-in-the-quest-for-effective-als-therapies/
LOCATION:Online
CATEGORIES:Webinar
ORGANIZER;CN="Les Turner ALS Foundation":MAILTO:info@lesturnerals.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250424T130000
DTEND;TZID=America/Toronto:20250424T140000
DTSTAMP:20260929T004009
CREATED:20250404T142616Z
LAST-MODIFIED:20250404T142643Z
UID:18355-1745499600-1745503200@www.als-mnd.org
SUMMARY:Webinar from Les Turner ALS Foundation: The ALS Exposome: How Environmental Exposures Inform Disease Risk and Prevention
DESCRIPTION:About the Program\nJoin us for our April ALS Learning Series with Dr. Goutman\, neurologist\, from University of Michigan. Dr. Goutman will discuss research related to how environmental exposures influence ALS. A Q&A will follow. \nThe Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to the Gilbert & Jacqueline Fern Foundation\, Mitsubishi Tanabe Pharma America\, & Biogen for sponsoring this webinar. \nAbout the Speaker\nStephen Goutman\, MD\, MS\, FAAN is the Harriet Hiller Research Professor\, an Associate Professor in the Department of Neurology\, Director of the Pranger Amyotrophic Lateral Sclerosis Clinic\, and Associate Director of the ALS Center of Excellence at Michigan Medicine. After obtaining a degree in neuroscience at the Johns Hopkins University\, Dr. Goutman completed his medical degree at the University of Chicago Pritzker School of Medicine and his neurology residency and neuromuscular fellowship at Cleveland Clinic. He received a Master’s in Clinical Research Design and Statistical Analysis at the University of Michigan. \nInspired by his patients\, Dr. Goutman’s research focuses on identifying new mechanisms and therapies for ALS. Specifically\, he has been seeking to understand the genetic and environmental interactions that alter susceptibility to ALS\, especially in the State of Michigan\, which has some of the highest rates of ALS in the country. With funding from the National Institutes of Health\, the Centers for Disease Control and Prevention\, and the ALS Association\, he is discovering environmental risk factors associated with the onset and progression of ALS by collecting epidemiologic exposure surveys and biofluids from individuals with and without ALS. He shares an ultimate goal to one day make ALS a preventable disease. \nRegister Now
URL:https://www.als-mnd.org/event/webinar-from-les-turner-als-foundation-the-als-exposome-how-environmental-exposures-inform-disease-risk-and-prevention/
LOCATION:Online
CATEGORIES:Webinar
ORGANIZER;CN="Les Turner ALS Foundation":MAILTO:info@lesturnerals.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250516T130000
DTEND;TZID=America/Toronto:20250516T140000
DTSTAMP:20260929T004009
CREATED:20250505T133224Z
LAST-MODIFIED:20250505T133245Z
UID:18477-1747400400-1747404000@www.als-mnd.org
SUMMARY:Webinar from Les Turner ALS Foundation: Breaking Barriers: Building a Health Equity Approach to Make ALS Livable for All
DESCRIPTION:About the Program \nUnderstanding our gaps in knowledge about the social and structural determinants of health inequities in ALS is integral to making sure ALS becomes a livable disease. In this session\, Dr. Chelsey R. Carter highlights several determinants and offers approaches to improve ALS epidemiology\, patient outcomes\, and disparities. By building a health equity approach for ALS\, she describes various research initiatives and inclusive care models to improve ALS care and research for individuals\, caregivers\, and families. \nThe Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to the Gilbert & Jacqueline Fern Foundation & Mitsubishi Tanabe Pharma America for sponsoring this webinar. \nAbout the Speaker \nChelsey R. Carter is an Assistant Professor of Public Health in the Department of Social and Behavioral Sciences at Yale University\, with a secondary affiliation in the Department of Anthropology. Her research program examines how scientific knowledge production\, clinical care\, and systemic marginalization impact historically underrepresented communities affected by rare and neurodegenerative diseases like ALS. Dr. Carter is also undertaking a book project tentatively titled\, Finding the Forgotten: Race\, Bias\, and Care in the World of ALS\, which includes an ethnographic study of the diverse experiences of living with ALS\, and draws on over 15 years of experience with Black communities affected by ALS. She is Founder & Director of The LEITH (Lived Experiences Igniting Transformations in Health) Lab.
URL:https://www.als-mnd.org/event/webinar-from-les-turner-als-foundation-breaking-barriers-building-a-health-equity-approach-to-make-als-livable-for-all/
LOCATION:Newcastle United Football Club
ORGANIZER;CN="Les Turner ALS Foundation":MAILTO:info@lesturnerals.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250522T130000
DTEND;TZID=America/Toronto:20250522T170000
DTSTAMP:20260929T004009
CREATED:20250505T133432Z
LAST-MODIFIED:20250505T133432Z
UID:18480-1747918800-1747933200@www.als-mnd.org
SUMMARY:Webinar from Les Turner ALS Foundation: Tackling the Delay to ALS Diagnosis: How Can We Do Better?
DESCRIPTION:About the Program  \nJoin us for our May ALS Learning Series with Dr. Kelly Gwathmey from Virginia Commonwealth University. She will explore the causes and consequences of ALS diagnostic delay\, along with potential solutions to address this problem. A Q&A will follow. \nThe Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to the Gilbert & Jacqueline Fern Foundation & Mitsubishi Tanabe Pharma America for sponsoring this webinar. \nAbout the Speaker  \nKelly Gwathmey is an Associate Professor of Neurology at Virginia Commonwealth University in Richmond\, Virginia. She studied Neuroscience and Behavioral Biology at Emory University in Atlanta\, Georgia. She then attended Eastern Virginia Medical School in Norfolk\, Virginia. Her Neurology and Clinical Neurophysiology training was completed at the University of Virginia. Following this\, she completed a Neuromuscular Medicine fellowship at both Brigham and Women’s Hospital and Massachusetts General Hospital in Boston. At the University of Virginia\, she started the multidisciplinary MDA clinic\, was co-director of the ALS clinic\, and was the fellowship director for both the Neuromuscular and Clinical Neurophysiology fellowships. She joined VCU in January 2019 and currently serves in the capacity of Neuromuscular Division Chair\, Neuromuscular Medicine Program Director and EMG Laboratory Director. Dr. Gwathmey sees a wide spectrum of neuromuscular patients and performs electrodiagnostic studies (nerve conduction studies and electromyography). Her research interests include environmental risk factors in ALS\, diagnostic delay in ALS\, and racial disparities in healthcare.
URL:https://www.als-mnd.org/event/webinar-from-les-turner-als-foundation-tackling-the-delay-to-als-diagnosis-how-can-we-do-better/
LOCATION:Online
CATEGORIES:Webinar
ORGANIZER;CN="Les Turner ALS Foundation":MAILTO:info@lesturnerals.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250603
DTEND;VALUE=DATE:20250607
DTSTAMP:20260929T004009
CREATED:20250225T135838Z
LAST-MODIFIED:20250225T135838Z
UID:18287-1748908800-1749254399@www.als-mnd.org
SUMMARY:ENCALS Meeting 2025
DESCRIPTION:The upcoming ENCALS meeting will be hosted in Turin\, Italy\, from June 3-6\, 2025. Satellite meetings will take place on Tuesday morning (June 3) and Friday (June 6). The program for the satellite meeting depends on the supply by companies. \nRegistration fees\nNormal registration (incl. VAT):\nUntil April 20\, 2025. \n\n(Postgraduate) students: €180\,-\nEstablished researchers (incl. Postdoc): €300\,-\nIndustry: €1200\,-\nINARC member – €75\,- *\n\nLate registration (incl. VAT):\nStarts on April 21\, 2025. Registration closes a few weeks before the event or earlier if we reach capacity. \n\n(Postgraduate) students: €280\,-\nEstablished researchers (incl. Postdoc): €400\,-\nIndustry: €1400\,-\nINARC member – €100\,-*\n\n* Please note that the discounted INARC registration fee is contingent on attending the INARC workshop on June 3rd. Registrants who do not attend the workshop may be required to pay the full ENCALS registration fee.  \nRegistration includes: \n\nParticipation at all ENCALS lectures and poster sessions\nLunches and coffee breaks\nENCALS gala dinner on Thursday June 5\, 2025. This dinner is sponsored by ENCALS.\n\nCancellation\nWritten cancellation received within February 28\, 2025: 50% of the fee will be reimbursed. Cancellations received from March 1\, 2025\, and on: no reimbursements are given. \nClick here to register.
URL:https://www.als-mnd.org/event/encals-meeting-2025/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250610T150000
DTEND;TZID=America/Toronto:20250610T150000
DTSTAMP:20260929T004009
CREATED:20250604T133152Z
LAST-MODIFIED:20250604T133207Z
UID:18663-1749567600-1749567600@www.als-mnd.org
SUMMARY:ALS Town Hall from  ALS TDI and Her ALS Story: What are Lesser-Known ALS Symptoms?
DESCRIPTION:Join ALS TDI and Her ALS Story (HAS) for the second of a 3-part collaborative Town Hall series\, “Your Story. Our Science.” \nOur journey continues with What Are Lesser-Known ALS Symptoms?\, where we’ll delve into the often-overlooked and less-discussed aspects of living with ALS. Connect with the powerful personal stories of HAS members as they share their experiences with ALS symptoms and the insights they’ve gained within the community. \nALS TDI researchers will discuss how the ARC Study currently tracks symptoms and emphasize the critical need for community feedback to identify symptoms that may not yet be fully understood or recorded. Discover how lived experiences shared by the community are helping to shape ALS research. \nRegister now.
URL:https://www.als-mnd.org/event/als-town-hall-from-als-tdi-and-her-als-story-what-are-lesser-known-als-symptoms-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250612T170000
DTEND;TZID=America/Chicago:20250612T170000
DTSTAMP:20260929T004009
CREATED:20250521T162310Z
LAST-MODIFIED:20250521T162310Z
UID:18603-1749747600-1749747600@www.als-mnd.org
SUMMARY:Webinar from EUpALS: ‘Supporting your community’s mental wellbeing’
DESCRIPTION:June 12 at 5:00 PM CEST \nRegistration \nThis session will explore how to strengthen the mental and emotional support you offer to the ALS community\, with practical guidance on understanding the different types and levels of support\, making the most of what’s available\, dealing with difficult situations\, and sensitive sign-posting. \nThis is the first part of a 2-part webinars series brought to you by EUpALS and supported by Zambon Biotech. They are designed by ALS patient organization leaders for patient organization leaders. Part 2: ‘Looking after your own mental wellbeing as an ALS community leader’ on July 1.  \nThese interactive webinars will focus on the rewards\, challenges\, and emotional impact of patient leadership\, and how best to support others whilst still looking after your own mental wellbeing. They will provide you with some practical guidance to help you feel more confident in meeting the emotional needs of people affected by ALS. It will also explore ways you can look after your own emotional wellbeing and that of others who work in your organization. \nWe are delighted that Kym Winter\, a leading psychotherapist with extensive experience in rare diseases\, will lead the webinars. Kym is the Clinical Director and Founder of Rareminds (www.rareminds.org)\, a UK based charity providing specialist counselling services and mental wellbeing resources for rare disease communities. \nTo make the webinar series accessible to as many as possible across Europe\, simultaneous translation into French\, German\, Italian and Spanish will be available. \nWhile we recommend attending both sessions\, each is designed as a standalone webinar so you can choose the one most relevant to you or come to both!
URL:https://www.als-mnd.org/event/webinar-from-eupals-supporting-your-communitys-mental-wellbeing/
LOCATION:Online
CATEGORIES:Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250626T160000
DTEND;TZID=America/Toronto:20250626T170000
DTSTAMP:20260929T004009
CREATED:20250523T190621Z
LAST-MODIFIED:20250523T190621Z
UID:18607-1750953600-1750957200@www.als-mnd.org
SUMMARY:Webinar Series from Les Turner ALS Foundation: Healey Center Community Webinars
DESCRIPTION:Date: June 26\, 2025 at 4pm ET (3 CT) \nTitle:  Healey Platform Trial Updates & The Les Turner ALS Foundation \nRegistration link: https://partners.zoom.us/webinar/register/WN_JW9rQBhTRFW5uoUIDtJguw#/registration \nAbout the Program: Join us for our June ALS Learning Series webinar — a collaboration with the Healey Center Community Webinars. Catherine Small\, Patient Navigator for Healey ALS Platform Trial\, will provide updates on current research and the Acceleration Centers of Enrollment (ACE) initiative\, while Anne Marie Doyle\, from the Les Turner ALS Foundation\, will discuss resources available through the Foundation.   \nAbout the Speakers: \nCatherine Small serves as the Patient Navigator for the HEALEY ALS Platform Trial\, working centrally at the Sean M. Healey & AMG Center for ALS at Mass General Hospital while supporting recruitment and enrollment across more than seventy research centers nationwide. In her role as Patient Navigator\, Catherine leads communication efforts to disseminate information about the Platform Trial and acts as an intermediary between people living with ALS\, caregivers\, clinicians\, and study staff to address questions related to trial participation. Catherine leverages her bachelor’s degree in Neuroscience Psychology and previous clinical experience as a psychometrist to bridge conversations between scientists and the ALS community and build patient-centric partnerships in ALS research.  \nAnne Marie Doyle earned a Bachelor’s degree in Communication Sciences & Disorders from Saint Xavier University followed by a Master’s Degree in Speech & Hearing Sciences from the University of Illinois Urbana-Champaign. \nFor 13 years\, she worked as a speech-language pathologist at Shirley Ryan AbilityLab serving both the inpatient and outpatient populations with a specialty in adult neurological conditions\, including working with people living with ALS. She maintains a membership with the American Speech-Language & Hearing Association and participates in their Special Interest Group for Augmentative and Alternative Communication. She has lectured at the state\, national\, and international level\, as well as participated in clinical research.
URL:https://www.als-mnd.org/event/webinar-series-from-les-turner-als-foundation-healey-center-community-webinars/
LOCATION:Online
CATEGORIES:Webinar
ORGANIZER;CN="Les Turner ALS Foundation":MAILTO:info@lesturnerals.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250701T170000
DTEND;TZID=America/Chicago:20250701T170000
DTSTAMP:20260929T004009
CREATED:20250521T162618Z
LAST-MODIFIED:20250521T162618Z
UID:18605-1751389200-1751389200@www.als-mnd.org
SUMMARY:Webinar from EUpALS: ‘Looking after your own mental wellbeing as an ALS community leader’
DESCRIPTION:July 1st at 5:00 PM CEST \nRegistration \nThis session focuses inward – on you and your team – offering space to reflect on the emotional demands of leadership and strategies to protect wellbeing\, prevent your own burnout and compassion fatigue\, and how to create a mentally healthy work environment in your organization. \nThis is the second part of a 2-part webinars series brought to you by EUpALS and supported by Zambon Biotech. They are designed by ALS patient organization leaders for patient organization leaders. Part 1: ‘Supporting your community’s mental wellbeing’ on June 12. \nThese interactive webinars will focus on the rewards\, challenges\, and emotional impact of patient leadership\, and how best to support others whilst still looking after your own mental wellbeing. They will provide you with some practical guidance to help you feel more confident in meeting the emotional needs of people affected by ALS. It will also explore ways you can look after your own emotional wellbeing and that of others who work in your organization. \nWe are delighted that Kym Winter\, a leading psychotherapist with extensive experience in rare diseases\, will lead the webinars. Kym is the Clinical Director and Founder of Rareminds (www.rareminds.org)\, a UK based charity providing specialist counselling services and mental wellbeing resources for rare disease communities. \nTo make the webinar series accessible to as many as possible across Europe\, simultaneous translation into French\, German\, Italian and Spanish will be available. \nWhile we recommend attending both sessions\, each is designed as a standalone webinar so you can choose the one most relevant to you or come to both!
URL:https://www.als-mnd.org/event/webinar-from-eupals-looking-after-your-own-mental-wellbeing-as-an-als-community-leader/
LOCATION:Online
CATEGORIES:Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250710T150000
DTEND;TZID=America/Toronto:20250710T160000
DTSTAMP:20260929T004009
CREATED:20250604T132656Z
LAST-MODIFIED:20250604T132823Z
UID:18660-1752159600-1752163200@www.als-mnd.org
SUMMARY:ALS Town Hall from ALS TDI and Her ALS Story: How Can We Improve ALS Diagnosis?
DESCRIPTION:Join ALS TDI and Her ALS Story (HAS) for the third and final installment of our 3-part collaborative Town Hall series\, “Your Story. Our Science.” \nOur series concludes with How Can We Improve the Diagnosis Process?\, where we will discuss the personal challenges of receiving an ALS diagnosis and the ongoing efforts to make the process faster and more efficient. Hear directly from HAS members as they share their personal diagnosis stories\, including their initial symptoms\, the journey of seeking a diagnosis\, and the timeline they experienced until receiving confirmation. \nFollowing these stories\, we will run throughthe current ALS diagnosis process and highlight its existing challenges. Researchers from ALS TDI will describe ongoing initiatives and research efforts aimed at improving and accelerating the ALS diagnosis process\, ultimately striving for earlier and more accurate diagnoses for individuals and families affected by ALS. \nRegister now.
URL:https://www.als-mnd.org/event/als-town-hall-from-als-tdi-and-her-als-story-how-can-we-improve-als-diagnosis/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250724T130000
DTEND;TZID=America/Toronto:20250724T140000
DTSTAMP:20260929T004009
CREATED:20250630T185116Z
LAST-MODIFIED:20250630T185116Z
UID:18783-1753362000-1753365600@www.als-mnd.org
SUMMARY:Webinar from Les Turner ALS Foundation: Voice Preservation Beyond Recording: Creating and Using My Preserved Voice
DESCRIPTION:About the Program  \nJoin us for a comprehensive review of current best practices and tools in Message Banking\, Voice Banking\, and Voice Cloning\, including the role of Artificial Intelligence (AI) in voice preservation. After a diagnosis of a progressive condition that impacts speech\, an urgent priority is preserving one’s voice. However\, recording your voice is only the first step. Part of the feature matching process is to determine compatibility and integration of one’s preserved voice into communication apps and software. We will cover the full process from recording through integration\, updates on current technologies\, including AI’s role in voice preservation\, and treatment recommendations for using one’s preserved voice most effectively and efficiently for functional communication. \nAbout the Speaker \nLane Rials is a Speech-Language Pathologist with a passion for Augmentative and Alternative Communication (AAC) and helping others. I’ve been privileged to work closely with many people living with ALS and their caregivers/families as a speech pathologist\, regional AAC consultant\, and now as an AAC Specialist with the team at Bridging Voice. The Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to the Gilbert & Jacqueline Fern Foundation & Mitsubishi Tanabe Pharma America for sponsoring this webinar.
URL:https://www.als-mnd.org/event/webinar-from-les-turner-als-foundation-voice-preservation-beyond-recording-creating-and-using-my-preserved-voice/
LOCATION:Zoom Webinar
CATEGORIES:Webinar
ORGANIZER;CN="Les Turner ALS Foundation":MAILTO:info@lesturnerals.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250729T130000
DTEND;TZID=America/Toronto:20250729T140000
DTSTAMP:20260929T004009
CREATED:20250723T183046Z
LAST-MODIFIED:20250724T160756Z
UID:18800-1753794000-1753797600@www.als-mnd.org
SUMMARY:End-of-Life Autonomy – A Conversation on ALS and Medical Aid in Dying
DESCRIPTION:Join us for a thoughtful and informative conversation with Dr. Robin Plumer and Jeremy Boal as we explore the topic of Medical Aid in Dying (MAID). Dr. Plumer will explain what MAID is\, how individuals make the decision to pursue it\, and the compassionate\, patient-centered environments in which it is provided. \nThis webinar will also address the broader context of end-of-life autonomy and the unique considerations for those living with ALS. \nThe session is free and open to all\, and we welcome anyone who may benefit from this conversation. \nZOOM Register Here: https://us06web.zoom.us/webinar/register/WN_cGw2JrVXSbC7bWLXSd0Ifg#/registration
URL:https://www.als-mnd.org/event/end-of-life-autonomy-a-conversation-on-als-and-medical-aid-in-dying/
LOCATION:Online
CATEGORIES:Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20250821T130000
DTEND;TZID=America/Halifax:20250821T140000
DTSTAMP:20260929T004009
CREATED:20250807T130851Z
LAST-MODIFIED:20250807T130851Z
UID:18809-1755781200-1755784800@www.als-mnd.org
SUMMARY:Webinar from Les Turner ALS Foundation: Occupational Therapy Solutions for People Living with ALS
DESCRIPTION:About the Program: Join us for an informative session about how occupational therapy can support your daily activities and quality of life while living with ALS. Becca Schroeder\, MOT\, OTR/L\, will explore practical strategies\, adaptive equipment\, and energy conservation techniques that can help you maintain independence in your home and community utilizing her skills as an occupational therapist paired with the expertise of people living with ALS. This webinar will provide you with actionable tools and resources to navigate daily challenges with confidence. The Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to the Gilbert & Jacqueline Fern Foundation & Mitsubishi Tanabe Pharma America for sponsoring this webinar.   \nAbout the Speaker: Becca has been an Occupational Therapist at Northwestern Memorial Hospital since 2018 where she works with a wide variety of patients with different backgrounds and diagnosis. In 2019\, she began working at the Lois Insolia Clinic at the Les Turner ALS Center at Northwestern Medicine. Here she provides consultative services for those living with ALS and Muscular Dystrophy. Becca enjoys problem solving with her clients to discover ways to make completing everyday living activities more manageable.
URL:https://www.als-mnd.org/event/webinar-from-les-turner-als-foundation-occupational-therapy-solutions-for-people-living-with-als/
LOCATION:Online
ORGANIZER;CN="Les Turner ALS Foundation":MAILTO:info@lesturnerals.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250907
DTEND;VALUE=DATE:20250910
DTSTAMP:20260929T004009
CREATED:20250225T140413Z
LAST-MODIFIED:20250225T140413Z
UID:18289-1757203200-1757462399@www.als-mnd.org
SUMMARY:PACTALS 2025 Conference
DESCRIPTION:On behalf of the organising committee\, it is with great pleasure that we invite you to join us at the PACTALS 2025 Conference\, taking place from 7th to 9th September 2025 in the vibrant city of Melbourne\, Australia. Under the theme “Towards Precision in ALS/MND Treatments\,” this conference promises to be a pivotal event in the field of ALS/MND research and treatment. \nPACTALS 2025 will bring together leading experts\, researchers\, clinicians\, and advocates from across the globe\, all driven by a shared commitment to advancing our understanding of ALS/MND and improving the lives of those affected by these conditions. The conference will feature the latest research\, innovative therapeutic approaches\, and inspiring discussions aimed at pushing the boundaries of precision medicine in ALS/MND treatment. \nMelbourne\, renowned as a dynamic multicultural society\, provides the perfect backdrop for this gathering. We are confident that the scientific program\, coupled with the unique networking opportunities and international collaborative spirit\, will make PACTALS 2025 an unforgettable and enriching experience. for all.  \nWe warmly encourage you to join us in Melbourne for this landmark event. Together\, we can advance the future of ALS/MND care and create meaningful progress in the journey towards precision treatments. Visit pactalscongress.com for registration and abstract submission. For more details\, you may drop us an email at secretariat@pactalscongress.com.
URL:https://www.als-mnd.org/event/pactals-2025-conference/
CATEGORIES:Conference
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250908T120000
DTEND;TZID=America/Los_Angeles:20250908T120000
DTSTAMP:20260929T004009
CREATED:20250830T012337Z
LAST-MODIFIED:20250830T012337Z
UID:18857-1757332800-1757332800@www.als-mnd.org
SUMMARY:Webinar from Les Turner ALS Foundation: Participation in the National ALS Registry
DESCRIPTION:About the Program\nALS research depends on people living with ALS to join the National ALS Registry. Every individual’s story can contribute to our understanding of the disease\, its causes\, and how to fight it. Join us for our ALS Learning series with Reshma Punjani and Janie Gobeli to learn how the National ALS Registry helps advance research. Reshma will discuss how to join the National ALS Registry\, what information they collect and why\, and the type of research the registry is conducting\, while Janie will discuss her personal experience with the registry. A Q&A session will follow the discussion. The Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to the Gilbert & Jacqueline Fern Foundation & Mitsubishi Tanabe Pharma America for sponsoring this webinar.  \nAbout the Speakers\nJanie Gobeli serves as an advisory committee member for the HEALEY ALS Platform Trial and the QurAlis/CISCRP Global Patient Advisory Board\, an ALS Research Ambassador for the Northeast ALS Consortium (NEALS)\, and a member of the Les Turner ALS Foundation’s Support Services Committee. She was diagnosed with ALS in 2021. As a former elementary education teacher and licensed cosmetologist\, she is proud to work as an ALS educator\, advisor\, and speaker because it allows her to be a voice for all ALS warriors and follow her lifelong passion for learning and educating others.   \nReshma Punjani\, MPH is a Health Scientist Epidemiologist with the CDC/ATSDR’s National ALS Registry. She graduated with her Master of Public Health Degree in Epidemiology in 2016 and has been with the National ALS Registry for the past eight years. Reshma has contributed to multiple ALS research publications including prevalence\, incidence\, and ALS cohort analyses\, and geospatial ALS studies. 
URL:https://www.als-mnd.org/event/webinar-from-les-turner-als-foundation-participation-in-the-national-als-registry/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Australia/Melbourne:20250908T163000
DTEND;TZID=Australia/Melbourne:20250908T180000
DTSTAMP:20260929T004009
CREATED:20250825T115045Z
LAST-MODIFIED:20250825T120004Z
UID:18844-1757349000-1757354400@www.als-mnd.org
SUMMARY:INARC Roundtable Discussion During PACTALS
DESCRIPTION:2025 PACTALS INARC Session \nDate: Sept. 8 2025\nTime: 4:30 PM – 6:00 PM\nLocation: Melbourne\, Australia\nFormat: Roundtable Discussion \nFor whom? \nINARC is a network dedicated to ALS clinical trial and care staff (who are not MDs): nurses\, research nurses\, trial coordinators\, social workers\, nutritionists\, speech and language pathologists\, occupational therapists\, physiotherapists\, psychologists\, spiritual care workers. \nThis event allows you to meet and network with new colleagues from other ALS centres or countries. \nSession Theme: \nWhat keeps you up at night? An open conversation about everyday challenges we face and the moments that keep us going in ALS/MND care and research. \nAgenda Overview \n4:30 – 4:45 Welcome and Opening Framing\n4:45 – 5:00 Brief introduction\n5:00 – 5:40 Group Discussion\n5:40 – 6:00 Wrap up \nWant to attend our Roundtable Discussion? \nEmail: inarc@tricals.org or visit the website at tricals.org/inarc-pactals-25.
URL:https://www.als-mnd.org/event/inarc-roundtable-discussion-during-pactals/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250925T120000
DTEND;TZID=America/Los_Angeles:20250925T120000
DTSTAMP:20260929T004009
CREATED:20250830T012402Z
LAST-MODIFIED:20250830T012402Z
UID:18859-1758801600-1758801600@www.als-mnd.org
SUMMARY:Webinar from Les Turner ALS Foundation: Better Bowel Days - Managing the Burden of Constipation in People living with ALS
DESCRIPTION:About the Program\nJoin us for an informative session focused on constipation management in people living with ALS. This webinar will explore the impact of constipation in this population\, examine the role of dietary fiber\, and discuss how hydration supports bowel health. The session will provide practical strategies to support digestive wellness in ALS care.  \nThe Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to the Gilbert & Jacqueline Fern Foundation & Mitsubishi Tanabe Pharma America for sponsoring this webinar \nAbout the Speakers\nBrittany M. Hitson\, MS\, RD\, CSG\, LDN: Brittany is an Alabama native who moved to Chicago in 2018. She received her Bachelor of Science in Nutrition-Dietetics with a minor in Business in 2016 from Auburn University. She went on to obtain her Master of Science in Clinical Nutrition from the University of Alabama at Birmingham in 2017\, where she also completed her dietetic internship. In 2023\, Brittany obtained a Board Certification as a Specialist in Gerontological Nutrition from the Commission on Dietetic Registration (CDR).  She is currently practicing as an Advanced Dietitian at Northwestern Memorial Hospital in downtown Chicago and splits her time between providing support to medical-surgical services and motor neuron disease as well as the Lois Insolia Clinic at the Les Turner ALS Center at Northwestern Medicine. She has been a part of the ALS Clinic Team since 2020 and assists in coordinating inpatient ALS G-tube admissions.  \nDominique Kosk\, MPH\, RD\, LDN\, CNSC: Dominique was born and raised in the northwest suburbs of Chicago. She earned a Bachelor of Science in Nutrition and Dietetics from Dominican University and completed her dietetic internship at the University of Michigan Hospitals and Health Centers. She received a Master of Public Health with a concentration in Epidemiology at Loyola University Chicago. Dominique is currently practicing as an Advanced Dietitian in the medical intensive care unit at Northwestern Memorial Hospital and continues to maintain her certification in nutrition support. Dominique is also a dedicated member of the multidisciplinary team in the Lois Insolia ALS Clinic at the Les Turner ALS Center at Northwestern Medicine providing nutrition care and managing enteral nutrition regimens for people living with ALS since 2016. 
URL:https://www.als-mnd.org/event/webinar-from-les-turner-als-foundation-better-bowel-days-managing-the-burden-of-constipation-in-people-living-with-als/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20251002T170000
DTEND;TZID=Europe/London:20251002T180000
DTSTAMP:20260929T004009
CREATED:20250822T164253Z
LAST-MODIFIED:20250822T164417Z
UID:18822-1759424400-1759428000@www.als-mnd.org
SUMMARY:Webinar from EUpALS: Supporting Your Community’s Mental Wellbeing
DESCRIPTION:Webinar 1: ‘Supporting your community’s mental wellbeing’\nDate: October 2\nTime: 5:00 PM CEST \nThis session will explore how to strengthen the mental and emotional support you offer to the ALS community\, with practical guidance on understanding the different types and levels of support\, making the most of what’s available\, dealing with difficult situations\, and sensitive sign-posting. \nThis is the first of 2 interactive webinars\, which will focus on the rewards\, challenges and emotional impact of patient leadership\, and how best to support others whilst still looking after your own mental wellbeing. They will provide you with some practical guidance to help you feel more confident in meeting the emotional needs of people affected by ALS. It will also explore ways you can look after your own emotional wellbeing and that of others who work in your organization. \nWe are delighted that Kym Winter\, a leading psychotherapist with extensive experience in rare diseases\, will lead the webinars. Kym is the Clinical Director and Founder of Rareminds\, a UK based charity providing specialist counselling services and mental wellbeing resources for rare disease communities. \nTo make the webinar series accessible to as many as possible across Europe\, simultaneous translation into French\, German\, Italian and Spanish will be available. \nWhile we recommend attending both sessions\, each is designed as a standalone webinar so you can choose the one most relevant to you or come to both!
URL:https://www.als-mnd.org/event/webinar-from-eupals-supporting-your-communitys-mental-wellbeing-2/
LOCATION:Zoom Webinar
CATEGORIES:Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20251009T170000
DTEND;TZID=Europe/London:20251009T180000
DTSTAMP:20260929T004009
CREATED:20250822T164429Z
LAST-MODIFIED:20250822T164429Z
UID:18826-1760029200-1760032800@www.als-mnd.org
SUMMARY:Webinar from EUpALS: Looking After Your Own Mental Wellbeing as an ALS Community Leader
DESCRIPTION:Webinar 2: ‘Looking after your own mental wellbeing as an ALS community leader’\nDate: October 9\nTime: 5:00 PM CEST \nThis session focuses inward – on you and your team – offering space to reflect on the emotional demands of leadership and strategies to protect wellbeing\, prevent your own burnout and compassion fatigue\, and how to create a mentally healthy work environment in your organization. \nThis is the second of 2 interactive webinars\, which will focus on the rewards\, challenges and emotional impact of patient leadership\, and how best to support others whilst still looking after your own mental wellbeing. They will provide you with some practical guidance to help you feel more confident in meeting the emotional needs of people affected by ALS. It will also explore ways you can look after your own emotional wellbeing and that of others who work in your organization. \nWe are delighted that Kym Winter\, a leading psychotherapist with extensive experience in rare diseases\, will lead the webinars. Kym is the Clinical Director and Founder of Rareminds\, a UK based charity providing specialist counselling services and mental wellbeing resources for rare disease communities. \nTo make the webinar series accessible to as many as possible across Europe\, simultaneous translation into French\, German\, Italian and Spanish will be available. \nWhile we recommend attending both sessions\, each is designed as a standalone webinar so you can choose the one most relevant to you or come to both!
URL:https://www.als-mnd.org/event/webinar-from-eupals-looking-after-your-own-mental-wellbeing-as-an-als-community-leader-2/
CATEGORIES:Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251015T110000
DTEND;TZID=America/New_York:20251015T123000
DTSTAMP:20260929T004009
CREATED:20250830T013040Z
LAST-MODIFIED:20250830T013414Z
UID:18863-1760526000-1760531400@www.als-mnd.org
SUMMARY:Webinar: Bringing Voices for Life Across Borders
DESCRIPTION:This webinar will take participants through an end-to-end demonstration of creating and using AI voice tools\, highlighting the process from start to finish. The session will feature walkthroughs that illustrate how technology can be applied in different global contexts\, complemented by testimonials to ground the experience in real-world impact.\n \nWe will showcase examples from different regions demonstrating both the universality and regional adaptability of the process.\n \nCaptions in multiple languages available.\n 
URL:https://www.als-mnd.org/event/bringing-voices-for-life-across-borders/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251017T100000
DTEND;TZID=America/Toronto:20251017T160000
DTSTAMP:20260929T004009
CREATED:20250604T133432Z
LAST-MODIFIED:20250604T133432Z
UID:18666-1760695200-1760716800@www.als-mnd.org
SUMMARY:ALS TDI Summit
DESCRIPTION:On Friday\, October 17\, 2025\, from 10:00 – 4:00 p.m. ET\, join the ALS community and ALS TDI for the ALS TDI Summit. The ALS TDI Summit is a free conference that aims to inform and empower the ALS community by educating attendees about ALS TDI’s latest work to discover and develop effective treatments for ALS. The Summit invites all members of the community to learn about ALS TDI’s cutting-edge approach to ending ALS. \nRegister to attend the 2025 ALS TDI Summit virtually or in person: https://fundraise.als.net/alssummit/
URL:https://www.als-mnd.org/event/als-tdi-summit/
LOCATION:Boston Sheraton Hotel\, 39 Dalton St\, Boston\, MA\, United States
CATEGORIES:Conference
END:VEVENT
END:VCALENDAR