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X-ORIGINAL-URL:https://www.als-mnd.org
X-WR-CALDESC:Events for International Alliance of ALS/MND Associations
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BEGIN:VEVENT
DTSTART;TZID=Europe/London:20230907T070000
DTEND;TZID=Europe/London:20230907T080000
DTSTAMP:20261010T005038
CREATED:20230103T175450Z
LAST-MODIFIED:20230103T175450Z
UID:15964-1694070000-1694073600@www.als-mnd.org
SUMMARY:WEBINAR: Global Fundamental Rights Survey Results
DESCRIPTION:The International Alliance of ALS/MND Associations surveyed the community about the Fundamental Rights of People living with ALS/MND and Caregivers. Learn more about the data\, strengths and weaknesses at a global level\, the questions raised and the topics that require further attention\, and how these compared to our 2021 survey.
URL:https://www.als-mnd.org/event/webinar-global-fundamental-rights-survey-results/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230912T103000
DTEND;TZID=America/New_York:20230912T120000
DTSTAMP:20261010T005038
CREATED:20230911T151547Z
LAST-MODIFIED:20230913T140249Z
UID:16564-1694514600-1694520000@www.als-mnd.org
SUMMARY:Webinaire de la SLA Québec - Panel professionnel
DESCRIPTION:Vous êtes-vous déjà demandé qui sont tous ces professionnels de la santé et comment ils prennent soin de vous ? Alors rejoignez-nous pour cette présentation du panel professionnel. Nous avons mis en place quatre panels\, trois en français et un en anglais\, où des professionnels de la santé des cliniques de la SLA\, des CLSC et des centres de réadaptation vous expliqueront leur métier et leur rôle au sein de votre prise en charge. \n\n\nCe webinaire est en français.
URL:https://www.als-mnd.org/event/panel-professionnel/
LOCATION:Online
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://www.als-mnd.org/wp-content/uploads/2023/09/SLAQuebec.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20230912T133000
DTEND;TZID=America/New_York:20230912T150000
DTSTAMP:20261010T005038
CREATED:20230911T151535Z
LAST-MODIFIED:20230913T140218Z
UID:16560-1694525400-1694530800@www.als-mnd.org
SUMMARY:Webinar from ALS Quebec - Professional Panel
DESCRIPTION:Have you ever wondered who all these health care professionals are and how they are caring for you? Then please join us for this Professional Panel presentation. We have four panels set up\, three in French and one in English\, where healthcare professionals from ALS clinics\, CLSC\, and rehabilitation centres will explain their profession and their role within your care. \n\n\nThis webinar session is in English.
URL:https://www.als-mnd.org/event/professional-panel/
LOCATION:Online
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://www.als-mnd.org/wp-content/uploads/2023/09/ALSQuebec.png
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BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20230919T160000
DTEND;TZID=America/Detroit:20230919T170000
DTSTAMP:20261010T005038
CREATED:20230913T140333Z
LAST-MODIFIED:20230913T140333Z
UID:16605-1695139200-1695142800@www.als-mnd.org
SUMMARY:Virtual Discussion Series by ALS TDI - Community Conversations
DESCRIPTION:Join Dr. Nadia Sethi\, the Director of Community Outreach and Engagement at the ALS Therapy Development Institute (ALS TDI)\, for this virtual discussion series. These conversations will provide an overview of research at ALS TDI\, discuss current clinical trials\, and provide space to converse and ask questions about ALS science and research. Through this series\, Nadia hopes to engage the community around the following: \n\n\n\nIncreasing understanding of what ALS TDI does\nProviding information on currently recruiting clinical trials and EAPs\nCreating a space for discussion about the science of ALS
URL:https://www.als-mnd.org/event/virtual-discussion-series-by-als-tdi-community-conversations/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20230926T103000
DTEND;TZID=America/Detroit:20230926T120000
DTSTAMP:20261010T005038
CREATED:20230929T165738Z
LAST-MODIFIED:20230929T165738Z
UID:16645-1695724200-1695729600@www.als-mnd.org
SUMMARY:Webinar from ALS Quebec- Professional Panel
DESCRIPTION:Have you ever wondered who all these healthcare professionals are and how they take care of you? So join us for this presentation of the professional panel. We have set up four panels\, three in French and one in English\, where health professionals from ALS clinics\, CLSCs and rehabilitation centers will explain their profession and their role in your care. \n\nThis webinar is in French. \n\n\n\nWhen: Tuesday September 26\, 2023\, from 10:30 a.m. to 12 p.m.\n\n\n\n\nWhere: The webinar takes place on Zoom\n\n\n\n\n\n\n\nREGISTER\n\n\n\n\n\n\nIf you are not familiar with the Zoom platform\, or with online communications\, do not hesitate to consult our Zoom user guides on  our website. \n\n\nFor more information\, contact Kate Busch at 514 725-2653\, ext. 109 | 1-877-725-7725 or by email at  kbusch@sla-quebec.ca
URL:https://www.als-mnd.org/event/webinar-from-als-quebec-professional-panel-2/
LOCATION:Online
CATEGORIES:Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20230926T110000
DTEND;TZID=Europe/London:20230926T130000
DTSTAMP:20261010T005038
CREATED:20230913T140102Z
LAST-MODIFIED:20230918T125932Z
UID:16591-1695726000-1695733200@www.als-mnd.org
SUMMARY:MND Association Community of Practice: Information and Knowledge Exchange Event - Psychological Care for People Living with MND
DESCRIPTION:Time: 11.00 am – 1.00 pm\nOptional breakout rooms for further discussion will be available after the event until 1:30pm \nWe have some interesting presentations focussing on this important area of care: \n\nSub-optimal decisions and accepting these as a practitioner\nDr Rachel Woolrich\, Principal Clinical Psychologist\, the Oxford Psychological Medicine Centre.\nAs a practitioner\, patients in your care may take what you consider to be sub-optimal decisions for their care. In this session Dr Woolrich will explore how best as a practitioner to recommend a direction of treatment or whilst not unduly influencing patient decisions. And how you can square acceptance of such decisions with the knowledge and conviction that you have provided best care.\nUnderstanding the roots of psychological distress\nDr John Ashworth\, Counselling Psychologist\, South West Neuromuscular Operational Delivery Network\, Bristol\nGetting a diagnosis of MND is devastating and throughout its course the disease presents many more challenges – both physical and emotional. In this session Dr Ashworth examines some commonly experienced stressors and explores how as practitioners you can provide support\, including when your patient expresses thoughts of suicide.\n\nAs usual there will be lots of opportunity to discuss what you have heard and explore how it could be useful to your practice.
URL:https://www.als-mnd.org/event/information-and-knowledge-exchange-for-mnd-professionals-community-of-practice-psychological-care-for-people-living-with-mnd/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20230926T133000
DTEND;TZID=America/Detroit:20230926T150000
DTSTAMP:20261010T005038
CREATED:20230929T165654Z
LAST-MODIFIED:20230929T165654Z
UID:16647-1695735000-1695740400@www.als-mnd.org
SUMMARY:Webinar from ALS Quebec- Professional Panel
DESCRIPTION:Have you ever wondered who all these healthcare professionals are and how they take care of you? So join us for this presentation of the professional panel. We have set up four panels\, three in French and one in English\, where health professionals from ALS clinics\, CLSCs and rehabilitation centers will explain their profession and their role in your care. \n\n\nThis webinar is in French. \n\n\n\nWhen: Tuesday September 26\, 2023\, from 1:30 p.m. to 3 p.m.\n\n\n\n\nWhere: The webinar takes place on Zoom\n\n\n\n\n\n\n\nREGISTER\n\n\n\n\n\n\nIf you are not familiar with the Zoom platform\, or with online communications\, do not hesitate to consult our Zoom user guides on  our website. \n\n\nFor more information\, contact Kate Busch at 514 725-2653\, ext. 109 | 1-877-725-7725 or by email at  kbusch@sla-quebec.ca
URL:https://www.als-mnd.org/event/webinar-from-als-quebec-professional-panel/
LOCATION:Online
CATEGORIES:Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20230926T150000
DTEND;TZID=America/Detroit:20230926T160000
DTSTAMP:20261010T005038
CREATED:20230913T140050Z
LAST-MODIFIED:20230913T140050Z
UID:16608-1695740400-1695744000@www.als-mnd.org
SUMMARY:Virtual Series by ALS TDI in partnership with I AM ALS and the NEALS Patient Education and Advocacy Committee - Meet Your Orgs
DESCRIPTION:ALS TDI has partnered with I AM ALS and the NEALS Patient Education & Advocacy Committee to develop this new series – creating a platform for the ALS community to meet some of the key people in the different ALS organizations that form our community and learn about the work that they are doing. \nThe next event in the series will be held on September 26th at 3 p.m. ET and will feature presentations from the following ALS organizations: \n\n\n\nALS Therapy Development Institute (ALS TDI)\nHope Loves Company\nMac Angels Foundation\nRoon
URL:https://www.als-mnd.org/event/virtual-series-by-als-tdi-in-partnership-with-i-am-als-and-the-neals-patient-education-and-advocacy-committee-meet-your-orgs/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20230927T070000
DTEND;TZID=Europe/London:20230927T080000
DTSTAMP:20261010T005038
CREATED:20230103T175525Z
LAST-MODIFIED:20230103T175525Z
UID:15966-1695798000-1695801600@www.als-mnd.org
SUMMARY:WEBINAR: Mental health support for people living with ALS/MND and caregivers
DESCRIPTION:Join us in this conversation where we discuss warning signs\, how to safeguard\, get help \, and maintain mental health in people living with ALS/MND and caregivers.  
URL:https://www.als-mnd.org/event/webinar-mental-health-support-for-people-living-with-als-mnd-and-caregivers/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20230928T183000
DTEND;TZID=America/Detroit:20231102T200000
DTSTAMP:20261010T005038
CREATED:20230929T165519Z
LAST-MODIFIED:20230929T165519Z
UID:16635-1695925800-1698955200@www.als-mnd.org
SUMMARY:ALS Canada | Community Services - The Healing Power of Journaling for Caregivers
DESCRIPTION:Join us this fall to discover how creativity and mindfulness can impact your daily life and mindset as a caregiver. Beginning September 28\, explore the healing power of journaling. Over six weeks\, we’ll dive into practical and powerful tools to aid caregivers in their journaling practices. \nRegister for FREE today\, whether you’re an avid writer or just beginning \nyour journey. (Please register by September 21\, 2023) \nRegister now
URL:https://www.als-mnd.org/event/als-canada-community-services-the-healing-power-of-journaling-for-caregivers/
LOCATION:Online
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