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X-WR-CALNAME:International Alliance of ALS/MND Associations
X-ORIGINAL-URL:https://www.als-mnd.org
X-WR-CALDESC:Events for International Alliance of ALS/MND Associations
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TZID:America/Detroit
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DTSTART:20230312T070000
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BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20230928T183000
DTEND;TZID=America/Detroit:20231102T200000
DTSTAMP:20261027T193601
CREATED:20230929T165519Z
LAST-MODIFIED:20230929T165519Z
UID:16635-1695925800-1698955200@www.als-mnd.org
SUMMARY:ALS Canada | Community Services - The Healing Power of Journaling for Caregivers
DESCRIPTION:Join us this fall to discover how creativity and mindfulness can impact your daily life and mindset as a caregiver. Beginning September 28\, explore the healing power of journaling. Over six weeks\, we’ll dive into practical and powerful tools to aid caregivers in their journaling practices. \nRegister for FREE today\, whether you’re an avid writer or just beginning \nyour journey. (Please register by September 21\, 2023) \nRegister now
URL:https://www.als-mnd.org/event/als-canada-community-services-the-healing-power-of-journaling-for-caregivers/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20231003T123000
DTEND;TZID=Europe/London:20231003T130000
DTSTAMP:20261027T193601
CREATED:20230913T140021Z
LAST-MODIFIED:20230918T131830Z
UID:16601-1696336200-1696338000@www.als-mnd.org
SUMMARY:MND Association Conversation with MND Association Financial and Equipment Support Services
DESCRIPTION:Time: 12:30pm – 1:00pm \nFind out what support the MND Association can provide. In this session Pauline Matheson-Marks\, Head of National Care at the Association will answer questions about the various grants and equipment services that the MND Association can provide for people living with and affected by MND. And how to apply for them. \nNo need to book. Join using the link and passcode below: \nJoin Zoom Meeting: https://us06web.zoom.us/j/89826251500?pwd=WExuSUJsTDNUd1c3Z2l3cVlsTDFndz09\nMeeting ID: 898 2625 1500\nPasscode: MNDAHoC \nIf you would like any specific question answered during the session\, please send these to education@mndassociation.org
URL:https://www.als-mnd.org/event/webinar-from-the-mnda-conversation-with-mnd-association-financial-and-equipment-support-services/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20231009T093000
DTEND;TZID=Europe/London:20231009T160000
DTSTAMP:20261027T193601
CREATED:20230912T143039Z
LAST-MODIFIED:20230918T133123Z
UID:16579-1696843800-1696867200@www.als-mnd.org
SUMMARY:CoP Networking Event from the MND Association - Supporting people living with MND through advance care planning: A role for the whole MDT
DESCRIPTION:From the MND Association – Following the tremendous success of the networking event last year\, we are pleased to advise booking is now open for this year’s event. \nWonderful to see a group of experienced HSCP coming together with a common purpose. Thanks\, a great day!\nAttendee at Networking Event 2022 \nThroughout the day you will follow Adam\, a person living with MND\, and his family’s journey with MND. In groups\, led by experts representing the MDT\, you will consider how to effectively approach the sometimes challenging process of advance care planning. \nWith national colleagues you will discuss and explore the significant things health and social care professionals\, Adam\, and his family might want to talk about at different stages in his disease progression. You will reflect on how you can best encourage and support the crucial thinking and decision making needed to ensure that best care takes place. \nThere will also be practical and discussion sessions during the day on: \n\nPEG and RIG insertion\nrespiratory equipment\northotics\nequipment solutions\nsafe exercise for people living with MND\ncommunication aids\nsyringe drivers.\n\nView brochure\nIf you are not yet a member of our Community of Practice\, please join us. \nThis event is now fully booked. Please email CoP@mndassociation.org to be added to the waiting list.
URL:https://www.als-mnd.org/event/supporting-people-living-with-mnd-through-advance-care-planning-a-role-for-the-whole-mdt/
LOCATION:National Conference Centre\, Birmingham\, United Kingdom
CATEGORIES:Conference
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20231011T130000
DTEND;TZID=America/Detroit:20231011T150000
DTSTAMP:20261027T193601
CREATED:20231010T103756Z
LAST-MODIFIED:20231010T103756Z
UID:16692-1697029200-1697036400@www.als-mnd.org
SUMMARY:Webinar from ALS Canada: Navigating Mental Health & ALS
DESCRIPTION:An individual’s mental health and how they are supported is important when facing an ALS diagnosis. On October 11\, please join presenters from Sunnybrook ALS Clinic and Hospice Niagara\, who will provide in-depth information about the importance of emotional health\, conversations about anticipatory grief\, and how individuals\, family\, and friends can access mental health resources in their community.
URL:https://www.als-mnd.org/event/webinar-from-als-canada-navigating-mental-health-als/
CATEGORIES:Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20231016T100000
DTEND;TZID=Europe/London:20231016T160000
DTSTAMP:20261027T193601
CREATED:20230913T135945Z
LAST-MODIFIED:20230918T133051Z
UID:16599-1697450400-1697472000@www.als-mnd.org
SUMMARY:Masterclass from the MDN Association - Let's Talk About End of Life in MND
DESCRIPTION:Time: 10am – 4pm\nCost: £40 View events cancellation policy\nDate: 16 October 2023\nLocation: Online delivery via Zoom \nAim: To help health and social care professionals gain confidence in discussing death\, dying and advance care planning with people with MND. \nBy the end of the one-day masterclass\, participants will: \n\nunderstand the benefits and challenges of offering opportunities to discuss dying\nunderstand what happens as MND progresses and how patients might die\nhave increased confidence in initiating conversations about end of life\nunderstand advance care planning and resources to support this.\n\nFacilitators: \n\nDr Idris Baker – Consultant in Palliative Care at Ty Olwen Hospice\, Morriston Hospital Swansea\nBecky Whittaker – Educator and Coach Palliative and End of Life Care\, Communication Skills Trainer
URL:https://www.als-mnd.org/event/masterclass-from-mdna-lets-talk-about-end-of-life-in-mnd/
LOCATION:Online
CATEGORIES:Masterclass/Program
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20231025T183000
DTEND;TZID=America/Detroit:20231115T200000
DTSTAMP:20261027T193601
CREATED:20230929T165255Z
LAST-MODIFIED:20230929T165255Z
UID:16639-1698258600-1700078400@www.als-mnd.org
SUMMARY:ALS Canada | Community Services - Creative Wellness For Caregivers
DESCRIPTION:Starting October 25\, learn about the importance of creating a self-care practice to help manage stress and maintain balance. In this four-week workshop\, we’ll discover various self-care practices through guided art and mindfulness exercises. \nRegister for FREE and learn about using art to improve mental health. (Please register by October 18\, 2023) \nRegister now
URL:https://www.als-mnd.org/event/als-canada-community-services-creative-wellness-for-caregivers/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20231025T183000
DTEND;TZID=America/Detroit:20231115T200000
DTSTAMP:20261027T193601
CREATED:20230929T165441Z
LAST-MODIFIED:20230929T165441Z
UID:16638-1698258600-1700078400@www.als-mnd.org
SUMMARY:ALS Canada | Community Services - Creative Wellness For Caregivers
DESCRIPTION:Starting October 25\, learn about the importance of creating a self-care practice to help manage stress and maintain balance. In this four-week workshop\, we’ll discover various self-care practices through guided art and mindfulness exercises. \nRegister for FREE and learn about using art to improve mental health. (Please register by October 18\, 2023) \nRegister now
URL:https://www.als-mnd.org/event/als-canada-community-services-creative-wellness-for-caregivers-2/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/North_Dakota/Center:20231026T120000
DTEND;TZID=America/North_Dakota/Center:20231026T130000
DTSTAMP:20261027T193601
CREATED:20230929T140212Z
LAST-MODIFIED:20230929T140212Z
UID:16654-1698321600-1698325200@www.als-mnd.org
SUMMARY:Webinar from the Les Turner ALS Foundation - Ethical Principles & Informed Consent in Research
DESCRIPTION:About the Program: Informed consent is an essential component of research\, but have you ever wondered why? Join us for our October ALS Learning Series where Emma Schmidt\, Clinical Research Project Manager at the Les Turner ALS Center at Northwestern Medicine will discuss the history behind informed consent\, explain the process of informed consent\, your rights as a research participant and provide you with helpful tips and questions to ask if you’re interested in joining research. \nThe Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to the Gilbert & Jacqueline Fern Foundation\, Mitsubishi Tanabe Pharma America\, & Biogen for sponsoring this webinar. \nAbout the Speaker: Emma Schmidt is the Clinical Research Project Manager at the Les Turner ALS Center at Northwestern Medicine.
URL:https://www.als-mnd.org/event/webinar-from-the-les-turner-als-foundation-ethical-principles-informed-consent-in-research/
LOCATION:Online
CATEGORIES:Webinar
ORGANIZER;CN="Les Turner ALS Foundation":MAILTO:info@lesturnerals.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20231027T100000
DTEND;TZID=America/Detroit:20231027T160000
DTSTAMP:20261027T193601
CREATED:20230913T135934Z
LAST-MODIFIED:20230913T135934Z
UID:16610-1698400800-1698422400@www.als-mnd.org
SUMMARY:Conference by ALS TDI - The ALS TDI Summit
DESCRIPTION:The ALS TDI Summit is a free conference that aims to inform and empower the ALS community by educating attendees about ALS TDI’s latest work to discover and develop effective treatments for ALS. The Summit invites all members of the community to learn about ALS TDI’s cutting-edge approach to ending ALS.  This year along with the full in-person Summit\, the ALS TDI Summit will be filmed live and streamed over Zoom. Register to attend the 2023 ALS TDI Summit virtually or in person!
URL:https://www.als-mnd.org/event/conference-by-als-tdi-the-als-tdi-summit/
LOCATION:Online
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