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PRODID:-//International Alliance of ALS/MND Associations - ECPv6.8.3//NONSGML v1.0//EN
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X-ORIGINAL-URL:https://www.als-mnd.org
X-WR-CALDESC:Events for International Alliance of ALS/MND Associations
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BEGIN:VTIMEZONE
TZID:America/Detroit
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20230312T070000
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TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20231105T060000
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TZID:Europe/London
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DTSTART:20230326T010000
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DTSTART:20231029T010000
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BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20230928T183000
DTEND;TZID=America/Detroit:20231102T200000
DTSTAMP:20261023T023610
CREATED:20230929T165519Z
LAST-MODIFIED:20230929T165519Z
UID:16635-1695925800-1698955200@www.als-mnd.org
SUMMARY:ALS Canada | Community Services - The Healing Power of Journaling for Caregivers
DESCRIPTION:Join us this fall to discover how creativity and mindfulness can impact your daily life and mindset as a caregiver. Beginning September 28\, explore the healing power of journaling. Over six weeks\, we’ll dive into practical and powerful tools to aid caregivers in their journaling practices. \nRegister for FREE today\, whether you’re an avid writer or just beginning \nyour journey. (Please register by September 21\, 2023) \nRegister now
URL:https://www.als-mnd.org/event/als-canada-community-services-the-healing-power-of-journaling-for-caregivers/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20231025T183000
DTEND;TZID=America/Detroit:20231115T200000
DTSTAMP:20261023T023610
CREATED:20230929T165255Z
LAST-MODIFIED:20230929T165255Z
UID:16639-1698258600-1700078400@www.als-mnd.org
SUMMARY:ALS Canada | Community Services - Creative Wellness For Caregivers
DESCRIPTION:Starting October 25\, learn about the importance of creating a self-care practice to help manage stress and maintain balance. In this four-week workshop\, we’ll discover various self-care practices through guided art and mindfulness exercises. \nRegister for FREE and learn about using art to improve mental health. (Please register by October 18\, 2023) \nRegister now
URL:https://www.als-mnd.org/event/als-canada-community-services-creative-wellness-for-caregivers/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Detroit:20231025T183000
DTEND;TZID=America/Detroit:20231115T200000
DTSTAMP:20261023T023610
CREATED:20230929T165441Z
LAST-MODIFIED:20230929T165441Z
UID:16638-1698258600-1700078400@www.als-mnd.org
SUMMARY:ALS Canada | Community Services - Creative Wellness For Caregivers
DESCRIPTION:Starting October 25\, learn about the importance of creating a self-care practice to help manage stress and maintain balance. In this four-week workshop\, we’ll discover various self-care practices through guided art and mindfulness exercises. \nRegister for FREE and learn about using art to improve mental health. (Please register by October 18\, 2023) \nRegister now
URL:https://www.als-mnd.org/event/als-canada-community-services-creative-wellness-for-caregivers-2/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20231102T070000
DTEND;TZID=Europe/London:20231102T083000
DTSTAMP:20261023T023610
CREATED:20230103T175549Z
LAST-MODIFIED:20230105T215648Z
UID:15969-1698908400-1698913800@www.als-mnd.org
SUMMARY:WEBINAR: Annual Global Clinical Trials Update
DESCRIPTION:This webinar will provide information on ALS/MND treatments currently in Phase 3 Clinical Trials. We will hear directly about timelines\, where the sites are\, other programs offered\, and who to contact if more information is needed.
URL:https://www.als-mnd.org/event/webinar-annual-global-clinical-trials-update/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20231107T100000
DTEND;TZID=Europe/London:20231107T153000
DTSTAMP:20261023T023610
CREATED:20230913T135909Z
LAST-MODIFIED:20230913T135909Z
UID:16593-1699351200-1699371000@www.als-mnd.org
SUMMARY:Workshop from the MNDA - Respiratory Failure in MND: Secretion Management and Airway Clearance
DESCRIPTION:Date: 7 November 2023\nTime: 10am-3:30pm (registration and coffee from 9:30am)\nCost: £50 View Events Cancellation Policy\nLocation: Newcastle United Football Club\, St James Park\, Newcastle Upon Tyne\, NE1 4ST \nAim: to introduce non respiratory specialist members of the MDT to secretion management and airway clearance. \nObjectives: \nBy the end of the session you will: \n\nbe better able to identify the presenting problems may be when cough augmentation is indicated\nhave been introduced to manual methods of secretion clearance including the Lung Volume Recruitment technique\nbe able to explain secretion clearance and cough assistance techniques in order to support the people with MND in their care and prepare them for the procedures\nhave been introduced to some of the pharmacological options for secretion management\nhave had an opportunity to explore case studies and through knowledge application and discussion identify the presenting problem and the appropriate action to take.
URL:https://www.als-mnd.org/event/workshop-from-the-mnda-respiratory-failure-in-mnd-secretion-management-and-airway-clearance/
LOCATION:Newcastle United Football Club
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20231121T100000
DTEND;TZID=Europe/London:20231121T153000
DTSTAMP:20261023T023610
CREATED:20230913T135716Z
LAST-MODIFIED:20230918T133238Z
UID:16596-1700560800-1700580600@www.als-mnd.org
SUMMARY:MND Association Workshop - Respiratory Failure in MND: Secretion Management and Airway Clearance
DESCRIPTION:Date: 21 November 2023\nTime: 10am-3:30pm (registration and coffee from 9:30am)\nCost: £50 View Events Cancellation Policy\nLocation: National Council for Voluntary Organisations (NCVO)\, Society Building\, 8 All Saints Street\, London N1 9RL \nAim: to introduce non respiratory specialist members of the MDT to secretion management and airway clearance. \nObjectives: \nBy the end of the session you will: \n\nbe better able to identify the presenting problems may be when cough augmentation is indicated\nhave been introduced to manual methods of secretion clearance including the Lung Volume Recruitment technique\nbe able to explain secretion clearance and cough assistance techniques in order to support the people with MND in their care and prepare them for the procedures\nhave been introduced to some of the pharmacological options for secretion management\nhave had an opportunity to explore case studies and through knowledge application and discussion identify the presenting problem and the appropriate action to take.
URL:https://www.als-mnd.org/event/workshop-from-mnda-respiratory-failure-in-mnd-secretion-management-and-airway-clearance/
LOCATION:National Council for Voluntary Organisations (NCVO)\, Society Building
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20231121T180000
DTEND;TZID=Europe/London:20231121T200000
DTSTAMP:20261023T023610
CREATED:20230912T142904Z
LAST-MODIFIED:20230918T133325Z
UID:16577-1700589600-1700596800@www.als-mnd.org
SUMMARY:From the MND Association - 2023 Annual Stephen Hawking MND Lecture
DESCRIPTION:Effective advance care planning is the important theme of this prestigious event\, which is being organised by the MND Association and the Royal College of Speech and Language Therapists (RCSLT). \nThe lecture will be led by Professor Bee Wee CBE. Bee was National Clinical Director for Palliative and End of Life Care\, NHS England from 2013 – 2023. \nWith thanks to the Hawking Foundation for funding this event.
URL:https://www.als-mnd.org/event/2023-annual-stephen-hawking-mnd-lecture/
LOCATION:Online
CATEGORIES:Conference
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20231122T123000
DTEND;TZID=Europe/London:20231122T130000
DTSTAMP:20261023T023610
CREATED:20230913T135758Z
LAST-MODIFIED:20230918T133408Z
UID:16603-1700656200-1700658000@www.als-mnd.org
SUMMARY:From the MND Association - Conversation with an MND Network Coordinator
DESCRIPTION:Time: 12:30pm – 1:00pm \nIn this session Caroline Bidder\, MND Network Coordinator\, Swansea Bay will answer questions about how an MND network operates\, what makes this dispersed model of care the appropriate one\, and the impact it has on people living with and affected by MND. \nNo need to book. Join using the link and passcode below: \nJoin Zoom Meeting: https://us06web.zoom.us/j/88570488079?pwd=OFUydHNnT0c4cEhaNmRTYncxbG9iQT09\nMeeting ID: 885 7048 8079\nPasscode: MNDCWCC \nIf you would like any specific question answered during the session\, please send these to education@mndassociation.org
URL:https://www.als-mnd.org/event/webinar-from-mnda-conversation-with-an-mnd-network-coordinator/
LOCATION:Online
CATEGORIES:Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20231128T110000
DTEND;TZID=Europe/London:20231128T123000
DTSTAMP:20261023T023610
CREATED:20230913T135732Z
LAST-MODIFIED:20230913T135732Z
UID:16589-1701169200-1701174600@www.als-mnd.org
SUMMARY:Webinar from the MNDA - Pain Management for MND
DESCRIPTION:Time: 11.00am – 12.30pm \nAim: To increase understanding of how pain may be experienced in MND and potential methods to treat it. \nObjectives: \n\nto examine current practice for pain management in MND\nto evolve our understanding of pain in MND and how to alleviate it\nto explore current thinking and research about pain management and possible future developments.\n\nBy the end of the session participants will have: \n\na more confident understanding of where and why pain occurs in MND\nbeen introduced to options for effective pain management\nan appreciation of emerging research and developments pain management for MND.\n\nSpeaker: Dr Rhys Roberts\, Consultant Neurologist at Addenbrooke’s Hospital – Cambridge
URL:https://www.als-mnd.org/event/webinar-from-the-mnda-pain-management-for-mnd/
LOCATION:Online
CATEGORIES:Webinar
END:VEVENT
END:VCALENDAR