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X-WR-CALNAME:International Alliance of ALS/MND Associations
X-ORIGINAL-URL:https://www.als-mnd.org
X-WR-CALDESC:Events for International Alliance of ALS/MND Associations
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TZID:America/Toronto
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DTSTART:20240310T070000
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DTSTART;TZID=America/Toronto:20240301T120000
DTEND;TZID=America/Toronto:20240301T130000
DTSTAMP:20261011T075236
CREATED:20240214T112511Z
LAST-MODIFIED:20240214T112511Z
UID:16936-1709294400-1709298000@www.als-mnd.org
SUMMARY:Webinar from NEALS: The Benefits of Macronutrients in People Living with ALS: What Should We Eat?
DESCRIPTION:Dr. Ikjae Lee\, from the Eleanor and Lou Gehrig ALS Center at Columbia University\, will present a summary of literature on the intake of various macronutrients and their impact on the progression of ALS. Building on this foundation\, Dr. Lee will introduce recent findings that suggest a diet with a high glycemic index may be associated with slower disease progression in ALS.
URL:https://www.als-mnd.org/event/webinar-from-neals-the-benefits-of-macronutrients-in-people-living-with-als-what-should-we-eat/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20240307T040000
DTEND;TZID=America/Toronto:20240307T050000
DTSTAMP:20261011T075236
CREATED:20240307T124537Z
LAST-MODIFIED:20240307T124537Z
UID:17051-1709784000-1709787600@www.als-mnd.org
SUMMARY:Webinar from Alliance: State of Play: How tech research can help living with MND
DESCRIPTION:We are kicking off State of Play for 2024 with a look at how tech research can help people living with MND. MND Australia’s Dr Ben O’Mara will talk about the ‘Game on with MND’ project looking at how we can make gaming more accessible for people with MND and Dr Taylor Dick from the University of Queensland will talk about exoskeletons as mobility aids.
URL:https://www.als-mnd.org/event/webinar-from-alliance-state-of-play-how-tech-research-can-help-living-with-mnd/
LOCATION:Zoom Webinar
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20240314T070000
DTEND;TZID=America/Toronto:20240314T080000
DTSTAMP:20261011T075236
CREATED:20240314T155747Z
LAST-MODIFIED:20240314T155812Z
UID:17079-1710399600-1710403200@www.als-mnd.org
SUMMARY:Webinar from Alliance: Respiratory Support in ALS/MND
DESCRIPTION: \nThis webinar will cover the essentials to understand respiratory support in ALS/MND. We will cover how breathing is affected\, what care and support can be followed\, non-invasive equipment available\, and what is a traqueostomy\, how it works\, and considerations.\n \nPresenter: Susan Brumby
URL:https://www.als-mnd.org/event/webinar-from-alliance-respiratory-support-in-als-mnd/
LOCATION:Zoom Webinar
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20240318T163000
DTEND;TZID=America/Toronto:20240318T173000
DTSTAMP:20261011T075236
CREATED:20240214T112653Z
LAST-MODIFIED:20240214T112653Z
UID:16938-1710779400-1710783000@www.als-mnd.org
SUMMARY:Webinar from NEALS: The Science Behind ALS Treatments: Riluzole\, Radicava\, and Relyvrio
DESCRIPTION:Moderated by Dr. Senda Ajroud-Driss\, this webinar for both clinicians and people living with ALS will review the 3 drugs that are currently FDA-approved in the United States for the general ALS population. Panelists\, Dr. Lauren Elman\, Dr. John Novak\, and Dr. Xiaowei (Bill) Su will present information on Riluzole\, Radicava\, and Relyvrio\, including drug mechanism\, findings from clinical trials\, and potential benefits\, risks\, and costs.
URL:https://www.als-mnd.org/event/webinar-from-neals-the-science-behind-als-treatments-riluzole-radicava-and-relyvrio/
CATEGORIES:Webinar
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20240327T080000
DTEND;TZID=America/Toronto:20240327T090000
DTSTAMP:20261011T075236
CREATED:20240320T210230Z
LAST-MODIFIED:20240320T210230Z
UID:17133-1711526400-1711530000@www.als-mnd.org
SUMMARY:Webinar from Alliance: ALS/MND Platform Trials Update
DESCRIPTION:This webinar will provide information on ALS/MND platform trials. We will hear from HEALEY\, MAGNET and SMART. \nThey will update us on their approach\, recruitment\, trial eligibility and their latest news. \nModerator:  \nDr. Nicholas Cole – Chair of Scientific Advisory \nCouncil Panel:  \nDr. Sabrina Paganoni – HEALEY Trial \nDr. Ruben van Eijk – MAGNET Trial \nDr. Suvankar Pal – SMART Trial
URL:https://www.als-mnd.org/event/webinar-from-alliance-als-mnd-platform-trials-update/
LOCATION:Zoom Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20240328T120000
DTEND;TZID=America/Chicago:20240328T130000
DTSTAMP:20261011T075236
CREATED:20240228T175221Z
LAST-MODIFIED:20240228T175221Z
UID:17028-1711627200-1711630800@www.als-mnd.org
SUMMARY:Webinar from Les Turner ALS Foundation: The role of multidisciplinary care in ALS
DESCRIPTION:Title: The role of multidisciplinary care in ALS \nDate/Time: Thursday\, March 28\, 2024 at noon CST \nLink to register: https://attendee.gotowebinar.com/register/7883989190684308310 \nAbout the Program: \nJoin us for our March ALS Learning Series\, where team members and people living with ALS will explore the crucial role of collaboration in delivering holistic care. Discover how multidisciplinary clinics can help people living with ALS to live longer and with a higher quality of life. From exploring treatment options to providing emotional support\, our panel will illustrate how this approach significantly enhances the well-being of people living with ALS\, their families\, and caregivers. \nThis webinar will also discuss the ALS Better Care Act (HR 5663/S.3258)\, which will enhance Medicare reimbursement for multidisciplinary clinics nationwide\, improving care for people living with ALS. You’ll learn how you can get involved in supporting this legislation. \nAbout the Speakers: \nChaunelle Caver-Perkins\, Support Services Committee Member\, Les Turner ALS Foundation \nJanie Gobeli\, advisory committee member for the HEALEY ALS Platform Trial and the QurAlis/CISCRP Global Patient Advisory Board\, ALS Research Ambassador for the Northeast ALS Consortium (NEALS)\, and a reviewer for the Les Turner ALS Foundation’s educational materials and programs. \nFrank Granata\, member of the Foundation’s Board of Directors and Support Services Committee Member\, Les Turner ALS Foundation \nApril Szymanksi\, RN\, MSN\, APN-BC\, Lois Insolia ALS Clinic at the Les Turner ALS Center at Northwestern Medicine \nLauren Webb\, LCSW\, Chief Advocacy & Outreach Officer\, Les Turner ALS Foundation
URL:https://www.als-mnd.org/event/webinar-from-les-turner-als-foundation-the-role-of-multidisciplinary-care-in-als/
LOCATION:Zoom Webinar
ORGANIZER;CN="Les Turner ALS Foundation":MAILTO:info@lesturnerals.org
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