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X-ORIGINAL-URL:https://www.als-mnd.org
X-WR-CALDESC:Events for International Alliance of ALS/MND Associations
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DTSTART:20240310T070000
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DTSTART;TZID=America/Toronto:20240529T070000
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DTSTAMP:20261013T225626
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UID:17137-1716966000-1716969600@www.als-mnd.org
SUMMARY:Webinar from Alliance: Respiratory Support in ALS/MND
DESCRIPTION:This webinar will cover the essentials to understand respiratory support in ALS/MND. We will cover how breathing is affected\, what care and support can be followed\, non-invasive equipment available\, and what is a traqueostomy\, how it works\, and considerations. \nPresenter: Susan Brumby
URL:https://www.als-mnd.org/event/webinar-from-alliance-respiratory-support-in-als-mnd-2/
LOCATION:Zoom Webinar
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DTSTART;TZID=America/Toronto:20240530T190000
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DTSTAMP:20261013T225626
CREATED:20240426T115931Z
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UID:17764-1717095600-1717095600@www.als-mnd.org
SUMMARY:Webinar from Les Turner ALS Foundation: Developing Tools to Help People Living with ALS Make Difficult Decisions
DESCRIPTION:About the program: \nPeople living with ALS must make many complex decisions regarding their future care needs\, which can be stressful and overwhelming. In our upcoming ALS Learning Series\, with Dr. Anne Hogden\, she’ll discuss how she and other researchers have collaborated with the ALS community\, their family members\, and their ALS care teams to develop tools that support people living with ALS to make informed choices for their care and quality of life. \nAbout the speaker: \nDr Anne Hogden PhD\, B SpPath\, BA (Hons) is a Senior Lecturer and researcher with the School of Population Health\, Faculty of Medicine and Health\, University of New South Wales\, Australia. She is a serving member of MND Research Australia\, MND Australia Research Committee\, The MND Collective Board and MND Collective Clinical Care working group. Her work focuses on patient decision support tool development for MND/ALS care. She has authored the first-ever MND/ALS patient decision support tool in Australia and assisted in similar tool development in the UK and USA. \nThe Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to the Gilbert & Jacqueline Fern Foundation\, Mitsubishi Tanabe Pharma America\, & Biogen for sponsoring this webinar.
URL:https://www.als-mnd.org/event/webinar-from-les-turner-als-foundation-developing-tools-to-help-people-living-with-als-make-difficult-decisions/
LOCATION:Zoom Webinar
CATEGORIES:Webinar
ORGANIZER;CN="Les Turner ALS Foundation":MAILTO:info@lesturnerals.org
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