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X-WR-CALNAME:International Alliance of ALS/MND Associations
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X-WR-CALDESC:Events for International Alliance of ALS/MND Associations
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DTSTART;TZID=America/Toronto:20240725T130000
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SUMMARY:Webinar from Les Turner ALS Foundation: The RISE Initiative:  Clinical Research\, Inclusion\, Support\, and Education
DESCRIPTION:Title: The RISE Initiative: Clinical Research\, Inclusion\, Support\, and Education \nLink to register: https://us02web.zoom.us/webinar/register/WN_boRKwZHESzCc9X_KjWrY0A#/registration \nJoin us for our July ALS Learning Series where Allison Bulat will discuss the Research Inclusion Support and Education (RISE) Initiative of The Northeast ALS Consortium (NEALS). This important initiative includes programs like the Clinical Research Learning Institute (CRLI) Research Ambassador Program\, opportunities for people to engage with researchers\, and personalized support for navigating the ALS clinical research landscape\, and so much more. Allison will discuss all the programs under the initiative and answer any questions you may have. \nThe Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to the Gilbert & Jacqueline Fern Foundation and Mitsubishi Tanabe Pharma America for sponsoring this webinar. \nAbout the Speaker  \nAllison graduated from Ottawa University with a BA degree in Human Resource Management/Organizational Development. In addition\, she completed her graduate-level certification in Clinical Research Management from UC Berkeley in December of 2019\, and is currently in the process of obtaining a certification in “Partnering with Patients and the Public in Co-Production of Research” from Stanford University. \nAllison lost her husband to ALS in 2016 and has since committed her time and energy to helping others with ALS. She is currently a certified NEALS ALS Research Ambassador\, the Co-Chair of the NEALS Patient Education and Advocacy Committee\, the co-chair of the NEALS Information & Education Workgroup\, the Community Engagement Lead for both NEALS\, and the Sean M. Healey and AMG Center for ALS at MGH\,  a member of the Patient Advisory Committee\, Retention and Recruitment Committee\, and Regimen A Steering Committee for the HEALEY ALS Platform Trial\, the Chair of the Patient Advisory Board for the ALS Natural History Consortium\, a member of multiple strategic planning groups for the NIH/NINDS\, and works with the International Alliance of ALS/MND Associations.
URL:https://www.als-mnd.org/event/webinar-from-les-turner-als-foundation-the-rise-initiative-clinical-research-inclusion-support-and-education/
LOCATION:Zoom Webinar
ORGANIZER;CN="Les Turner ALS Foundation":MAILTO:info@lesturnerals.org
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