BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//International Alliance of ALS/MND Associations - ECPv6.8.3//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-ORIGINAL-URL:https://www.als-mnd.org
X-WR-CALDESC:Events for International Alliance of ALS/MND Associations
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/Toronto
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20250309T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20251102T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250206T130000
DTEND;TZID=America/Toronto:20250206T140000
DTSTAMP:20261008T152836
CREATED:20250120T131118Z
LAST-MODIFIED:20250120T131155Z
UID:18249-1738846800-1738850400@www.als-mnd.org
SUMMARY:Webinar from Les Turner ALS Foundation: Family Caregivers: Angels in Agony
DESCRIPTION:About the Program \nEvery caregiver — and every caregiving journey — is unique\, but there are some commonalities among caregivers of family members living with ALS. Most say caregiving is at the same time challenging\, exhausting\, rewarding\, and full of unexpected emotions. Linda Levine is a caregiver for her husband David Buseck\, a person with ALS. Together they share how they try daily to strike a balance between stepping up for the needs of the other while maintaining their own identities and wellness. Join us as they share tools illustrated by real life\, relatable\, examples that will help caregivers feel better\, rather than bitter\, at the end of the day. \nThe Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to the Gilbert & Jacqueline Fern Foundation\, Mitsubishi Tanabe Pharma America\, & Biogen for sponsoring this webinar. \nAbout the Speaker  \nLinda Levine\, M.Ed\, trained as a Recreational Therapist and educator. She has applied those skills to help people find fulfilling lives using wheelchairs\, communication devices\, and adaptive equipment. She taught for 30 years at San Jose State University\, including courses on diverse topics such as creating a meaningful life\, creativity\, identity\, play\, grief and loss. As a life coach\, Linda specializes in helping people move through change\, whether that is the loss of a loved one\, retirement\, career challenges\, or just about anything else. In her role as a motivational speaker\, she speaks about Caregiving\, Team-building\, Grief and even Clumsy Sex and ALS. Linda has a gift for taking on tough topics with sensitivity and refreshing humor. \nDavid Buseck\, MS\, is a retired engineer who worked with radiation oncology equipment. He was diagnosed with ALS in 2019. He is a board member with the ALS Network and is active in various forms of ALS advocacy. He enjoys playing flute\, reading\, traveling\, and writing. In 2024\, he published Paris: City of Cultures.
URL:https://www.als-mnd.org/event/webinar-from-les-turner-als-foundation-family-caregivers-angels-in-agony/
LOCATION:Online
CATEGORIES:Webinar
ORGANIZER;CN="Les Turner ALS Foundation":MAILTO:info@lesturnerals.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20250210T153000
DTEND;TZID=America/Toronto:20250210T163000
DTSTAMP:20261008T152836
CREATED:20250203T194937Z
LAST-MODIFIED:20250203T194937Z
UID:18265-1739201400-1739205000@www.als-mnd.org
SUMMARY:Webinar from NEALS: Understanding the Customer Experience Journey in ALS Clinical Trials Across North America
DESCRIPTION:In 2016\, a “secret shopper” initiative was launched to assess the responsiveness of ALS clinical trial sites to patient inquiries. The findings revealed significant challenges in both the quality and quantity of responses\, highlighting areas needing improvement. \nThis webinar revisits the study in 2024 to evaluate current site responsiveness compared to the 2016 baseline. We will explore whether fundamental customer service principles can enhance patient engagement and participation in ALS clinical trials. \nRegister now.
URL:https://www.als-mnd.org/event/webinar-from-neals-understanding-the-customer-experience-journey-in-als-clinical-trials-across-north-america/
LOCATION:Online
CATEGORIES:Webinar
END:VEVENT
END:VCALENDAR