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X-WR-CALDESC:Events for International Alliance of ALS/MND Associations
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DTSTART;VALUE=DATE:20250907
DTEND;VALUE=DATE:20250910
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SUMMARY:PACTALS 2025 Conference
DESCRIPTION:On behalf of the organising committee\, it is with great pleasure that we invite you to join us at the PACTALS 2025 Conference\, taking place from 7th to 9th September 2025 in the vibrant city of Melbourne\, Australia. Under the theme “Towards Precision in ALS/MND Treatments\,” this conference promises to be a pivotal event in the field of ALS/MND research and treatment. \nPACTALS 2025 will bring together leading experts\, researchers\, clinicians\, and advocates from across the globe\, all driven by a shared commitment to advancing our understanding of ALS/MND and improving the lives of those affected by these conditions. The conference will feature the latest research\, innovative therapeutic approaches\, and inspiring discussions aimed at pushing the boundaries of precision medicine in ALS/MND treatment. \nMelbourne\, renowned as a dynamic multicultural society\, provides the perfect backdrop for this gathering. We are confident that the scientific program\, coupled with the unique networking opportunities and international collaborative spirit\, will make PACTALS 2025 an unforgettable and enriching experience. for all.  \nWe warmly encourage you to join us in Melbourne for this landmark event. Together\, we can advance the future of ALS/MND care and create meaningful progress in the journey towards precision treatments. Visit pactalscongress.com for registration and abstract submission. For more details\, you may drop us an email at secretariat@pactalscongress.com.
URL:https://www.als-mnd.org/event/pactals-2025-conference/
CATEGORIES:Conference
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DTSTART;TZID=America/Los_Angeles:20250908T120000
DTEND;TZID=America/Los_Angeles:20250908T120000
DTSTAMP:20261022T023338
CREATED:20250830T012337Z
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SUMMARY:Webinar from Les Turner ALS Foundation: Participation in the National ALS Registry
DESCRIPTION:About the Program\nALS research depends on people living with ALS to join the National ALS Registry. Every individual’s story can contribute to our understanding of the disease\, its causes\, and how to fight it. Join us for our ALS Learning series with Reshma Punjani and Janie Gobeli to learn how the National ALS Registry helps advance research. Reshma will discuss how to join the National ALS Registry\, what information they collect and why\, and the type of research the registry is conducting\, while Janie will discuss her personal experience with the registry. A Q&A session will follow the discussion. The Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to the Gilbert & Jacqueline Fern Foundation & Mitsubishi Tanabe Pharma America for sponsoring this webinar.  \nAbout the Speakers\nJanie Gobeli serves as an advisory committee member for the HEALEY ALS Platform Trial and the QurAlis/CISCRP Global Patient Advisory Board\, an ALS Research Ambassador for the Northeast ALS Consortium (NEALS)\, and a member of the Les Turner ALS Foundation’s Support Services Committee. She was diagnosed with ALS in 2021. As a former elementary education teacher and licensed cosmetologist\, she is proud to work as an ALS educator\, advisor\, and speaker because it allows her to be a voice for all ALS warriors and follow her lifelong passion for learning and educating others.   \nReshma Punjani\, MPH is a Health Scientist Epidemiologist with the CDC/ATSDR’s National ALS Registry. She graduated with her Master of Public Health Degree in Epidemiology in 2016 and has been with the National ALS Registry for the past eight years. Reshma has contributed to multiple ALS research publications including prevalence\, incidence\, and ALS cohort analyses\, and geospatial ALS studies. 
URL:https://www.als-mnd.org/event/webinar-from-les-turner-als-foundation-participation-in-the-national-als-registry/
LOCATION:Zoom Webinar
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DTSTART;TZID=Australia/Melbourne:20250908T163000
DTEND;TZID=Australia/Melbourne:20250908T180000
DTSTAMP:20261022T023338
CREATED:20250825T115045Z
LAST-MODIFIED:20250825T120004Z
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SUMMARY:INARC Roundtable Discussion During PACTALS
DESCRIPTION:2025 PACTALS INARC Session \nDate: Sept. 8 2025\nTime: 4:30 PM – 6:00 PM\nLocation: Melbourne\, Australia\nFormat: Roundtable Discussion \nFor whom? \nINARC is a network dedicated to ALS clinical trial and care staff (who are not MDs): nurses\, research nurses\, trial coordinators\, social workers\, nutritionists\, speech and language pathologists\, occupational therapists\, physiotherapists\, psychologists\, spiritual care workers. \nThis event allows you to meet and network with new colleagues from other ALS centres or countries. \nSession Theme: \nWhat keeps you up at night? An open conversation about everyday challenges we face and the moments that keep us going in ALS/MND care and research. \nAgenda Overview \n4:30 – 4:45 Welcome and Opening Framing\n4:45 – 5:00 Brief introduction\n5:00 – 5:40 Group Discussion\n5:40 – 6:00 Wrap up \nWant to attend our Roundtable Discussion? \nEmail: inarc@tricals.org or visit the website at tricals.org/inarc-pactals-25.
URL:https://www.als-mnd.org/event/inarc-roundtable-discussion-during-pactals/
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BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20250925T120000
DTEND;TZID=America/Los_Angeles:20250925T120000
DTSTAMP:20261022T023338
CREATED:20250830T012402Z
LAST-MODIFIED:20250830T012402Z
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SUMMARY:Webinar from Les Turner ALS Foundation: Better Bowel Days - Managing the Burden of Constipation in People living with ALS
DESCRIPTION:About the Program\nJoin us for an informative session focused on constipation management in people living with ALS. This webinar will explore the impact of constipation in this population\, examine the role of dietary fiber\, and discuss how hydration supports bowel health. The session will provide practical strategies to support digestive wellness in ALS care.  \nThe Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to the Gilbert & Jacqueline Fern Foundation & Mitsubishi Tanabe Pharma America for sponsoring this webinar \nAbout the Speakers\nBrittany M. Hitson\, MS\, RD\, CSG\, LDN: Brittany is an Alabama native who moved to Chicago in 2018. She received her Bachelor of Science in Nutrition-Dietetics with a minor in Business in 2016 from Auburn University. She went on to obtain her Master of Science in Clinical Nutrition from the University of Alabama at Birmingham in 2017\, where she also completed her dietetic internship. In 2023\, Brittany obtained a Board Certification as a Specialist in Gerontological Nutrition from the Commission on Dietetic Registration (CDR).  She is currently practicing as an Advanced Dietitian at Northwestern Memorial Hospital in downtown Chicago and splits her time between providing support to medical-surgical services and motor neuron disease as well as the Lois Insolia Clinic at the Les Turner ALS Center at Northwestern Medicine. She has been a part of the ALS Clinic Team since 2020 and assists in coordinating inpatient ALS G-tube admissions.  \nDominique Kosk\, MPH\, RD\, LDN\, CNSC: Dominique was born and raised in the northwest suburbs of Chicago. She earned a Bachelor of Science in Nutrition and Dietetics from Dominican University and completed her dietetic internship at the University of Michigan Hospitals and Health Centers. She received a Master of Public Health with a concentration in Epidemiology at Loyola University Chicago. Dominique is currently practicing as an Advanced Dietitian in the medical intensive care unit at Northwestern Memorial Hospital and continues to maintain her certification in nutrition support. Dominique is also a dedicated member of the multidisciplinary team in the Lois Insolia ALS Clinic at the Les Turner ALS Center at Northwestern Medicine providing nutrition care and managing enteral nutrition regimens for people living with ALS since 2016. 
URL:https://www.als-mnd.org/event/webinar-from-les-turner-als-foundation-better-bowel-days-managing-the-burden-of-constipation-in-people-living-with-als/
LOCATION:Zoom Webinar
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