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X-WR-CALDESC:Events for International Alliance of ALS/MND Associations
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UID:18822-1759424400-1759428000@www.als-mnd.org
SUMMARY:Webinar from EUpALS: Supporting Your Community’s Mental Wellbeing
DESCRIPTION:Webinar 1: ‘Supporting your community’s mental wellbeing’\nDate: October 2\nTime: 5:00 PM CEST \nThis session will explore how to strengthen the mental and emotional support you offer to the ALS community\, with practical guidance on understanding the different types and levels of support\, making the most of what’s available\, dealing with difficult situations\, and sensitive sign-posting. \nThis is the first of 2 interactive webinars\, which will focus on the rewards\, challenges and emotional impact of patient leadership\, and how best to support others whilst still looking after your own mental wellbeing. They will provide you with some practical guidance to help you feel more confident in meeting the emotional needs of people affected by ALS. It will also explore ways you can look after your own emotional wellbeing and that of others who work in your organization. \nWe are delighted that Kym Winter\, a leading psychotherapist with extensive experience in rare diseases\, will lead the webinars. Kym is the Clinical Director and Founder of Rareminds\, a UK based charity providing specialist counselling services and mental wellbeing resources for rare disease communities. \nTo make the webinar series accessible to as many as possible across Europe\, simultaneous translation into French\, German\, Italian and Spanish will be available. \nWhile we recommend attending both sessions\, each is designed as a standalone webinar so you can choose the one most relevant to you or come to both!
URL:https://www.als-mnd.org/event/webinar-from-eupals-supporting-your-communitys-mental-wellbeing-2/
LOCATION:Zoom Webinar
CATEGORIES:Webinar
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DTSTART;TZID=Europe/London:20251009T170000
DTEND;TZID=Europe/London:20251009T180000
DTSTAMP:20261018T170643
CREATED:20250822T164429Z
LAST-MODIFIED:20250822T164429Z
UID:18826-1760029200-1760032800@www.als-mnd.org
SUMMARY:Webinar from EUpALS: Looking After Your Own Mental Wellbeing as an ALS Community Leader
DESCRIPTION:Webinar 2: ‘Looking after your own mental wellbeing as an ALS community leader’\nDate: October 9\nTime: 5:00 PM CEST \nThis session focuses inward – on you and your team – offering space to reflect on the emotional demands of leadership and strategies to protect wellbeing\, prevent your own burnout and compassion fatigue\, and how to create a mentally healthy work environment in your organization. \nThis is the second of 2 interactive webinars\, which will focus on the rewards\, challenges and emotional impact of patient leadership\, and how best to support others whilst still looking after your own mental wellbeing. They will provide you with some practical guidance to help you feel more confident in meeting the emotional needs of people affected by ALS. It will also explore ways you can look after your own emotional wellbeing and that of others who work in your organization. \nWe are delighted that Kym Winter\, a leading psychotherapist with extensive experience in rare diseases\, will lead the webinars. Kym is the Clinical Director and Founder of Rareminds\, a UK based charity providing specialist counselling services and mental wellbeing resources for rare disease communities. \nTo make the webinar series accessible to as many as possible across Europe\, simultaneous translation into French\, German\, Italian and Spanish will be available. \nWhile we recommend attending both sessions\, each is designed as a standalone webinar so you can choose the one most relevant to you or come to both!
URL:https://www.als-mnd.org/event/webinar-from-eupals-looking-after-your-own-mental-wellbeing-as-an-als-community-leader-2/
CATEGORIES:Webinar
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251015T110000
DTEND;TZID=America/New_York:20251015T123000
DTSTAMP:20261018T170643
CREATED:20250830T013040Z
LAST-MODIFIED:20250830T013414Z
UID:18863-1760526000-1760531400@www.als-mnd.org
SUMMARY:Webinar: Bringing Voices for Life Across Borders
DESCRIPTION:This webinar will take participants through an end-to-end demonstration of creating and using AI voice tools\, highlighting the process from start to finish. The session will feature walkthroughs that illustrate how technology can be applied in different global contexts\, complemented by testimonials to ground the experience in real-world impact.\n \nWe will showcase examples from different regions demonstrating both the universality and regional adaptability of the process.\n \nCaptions in multiple languages available.\n 
URL:https://www.als-mnd.org/event/bringing-voices-for-life-across-borders/
LOCATION:Zoom Webinar
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BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20251017T100000
DTEND;TZID=America/Toronto:20251017T160000
DTSTAMP:20261018T170643
CREATED:20250604T133432Z
LAST-MODIFIED:20250604T133432Z
UID:18666-1760695200-1760716800@www.als-mnd.org
SUMMARY:ALS TDI Summit
DESCRIPTION:On Friday\, October 17\, 2025\, from 10:00 – 4:00 p.m. ET\, join the ALS community and ALS TDI for the ALS TDI Summit. The ALS TDI Summit is a free conference that aims to inform and empower the ALS community by educating attendees about ALS TDI’s latest work to discover and develop effective treatments for ALS. The Summit invites all members of the community to learn about ALS TDI’s cutting-edge approach to ending ALS. \nRegister to attend the 2025 ALS TDI Summit virtually or in person: https://fundraise.als.net/alssummit/
URL:https://www.als-mnd.org/event/als-tdi-summit/
LOCATION:Boston Sheraton Hotel\, 39 Dalton St\, Boston\, MA\, United States
CATEGORIES:Conference
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DTSTART;TZID=America/Chicago:20251030T120000
DTEND;TZID=America/Chicago:20251030T130000
DTSTAMP:20261018T170643
CREATED:20251006T024539Z
LAST-MODIFIED:20251124T200326Z
UID:18969-1761825600-1761829200@www.als-mnd.org
SUMMARY:Les Turner ALS Foundation Webinar: Functional Mobility Changes with ALS
DESCRIPTION:About the program: Changes in functional mobility are common with ALS. This often may present as difficulty with transfers\, need for a walking aide\, possible wheelchair evaluation\, and need for additional training with a caregiver. In this presentation\, we will cover common mobility changes along with a discussion on what to expect when partnering with an ALS provider and when you should consider scheduling with your ALS provider. The Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to the Gilbert & Jacqueline Fern Foundation and Mitsubishi Tanabe Pharma America for sponsoring this webinar.  \nAbout the speaker: Hannah Redd PT\, DPT\, NCS specializes in providing patient care in the area of neuromuscular disorders at the outpatient neurologic clinic at Shirley Ryan AbilityLab. Hannah is currently an adjunct faculty member with the Northwestern University Department of Physical Therapy and Human Movement Sciences and has previously been on faculty at Byrdine F. Lewis College of Nursing and Health Professions at Georgia State University and Emory University School of Medicine.   \nRegister Here
URL:https://www.als-mnd.org/event/functional-mobility-changes-with-als-what-to-expect-and-how-to-partner-with-your-healthcare-team/
LOCATION:Online
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