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X-WR-CALNAME:International Alliance of ALS/MND Associations
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X-WR-CALDESC:Events for International Alliance of ALS/MND Associations
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DTSTART;VALUE=DATE:20251201
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SUMMARY:Allied Professionals Forum
DESCRIPTION:Are you ready to be part of something bigger? The Allied Professionals Forum (APF) brings together healthcare professionals from around the world\, including physiotherapists\, respiratory therapists\, nutritionists\, speech-language pathologists\, social workers and others working in the field of ALS/MND. With over 400 delegates attending from more than 40 countries\, this is your chance to engage in a truly global conversation on the challenges and advancements in ALS/MND care.  \nInfo and registration
URL:https://www.als-mnd.org/event/allied-professionals-forum-2/
CATEGORIES:Conference
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DTSTART;TZID=America/Chicago:20251211T120000
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UID:19069-1765454400-1765458000@www.als-mnd.org
SUMMARY:Les Turner ALS Foundation Webinar: The Cost of ALS - Where Research Stands and How it Compares to Other Diseases
DESCRIPTION:In this presentation\, Dr. Grouls will explore a concept people living with ALS know all too well: the financial burden of disease. She will trace the evolution of financial burden research in ALS\, drawing comparisons with the more established field of financial toxicity research in oncology. She’ll share what we’re learning from the latest research and what’s currently being studied—and just as importantly\, she’ll point out where we still need answers. \nAbout the Speaker: Astrid Grouls\, MD is a palliative care physician and clinical researcher at the Baylor College of Medicine in Houston\, TX. She obtained her medical degree and completed her internal medicine training at McGovern Medical School in Houston before completing a palliative care fellowship at MD Anderson. She began at Baylor College of Medicine in 2020\, and works on the inpatient palliative care service and in the ALS Multidisciplinary Clinic. Her clinical research focuses on improving quality of life for people living with ALS and spans advance care planning\, fatigue and financial burden. \nThe Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to the Gilbert & Jacqueline Fern Foundation & Mitsubishi Tanabe Pharma America for sponsoring this webinar. \nRegister Here
URL:https://www.als-mnd.org/event/cost-of-als/
LOCATION:Online
ORGANIZER;CN="Les Turner ALS Foundation":MAILTO:info@lesturnerals.org
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