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X-WR-CALNAME:International Alliance of ALS/MND Associations
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X-WR-CALDESC:Events for International Alliance of ALS/MND Associations
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UID:19132-1769616000-1769619600@www.als-mnd.org
SUMMARY:Nothing About Us\, Without Us: Highlights from the 2025 Patient Fellows
DESCRIPTION:The 2025 Patient Fellows will share their key learnings and experiences from participating in the 36th International Symposium on ALS/MND. Guided by the theme “Nothing About Us\, Without Us\,” this webinar will explore how engaging in research discussions shaped their perspectives\, deepened their understanding of ALS/MND science\, and reinforced the importance of including the voices of those living with ALS/MND in research conversations worldwide. (Captions will be available in multiple languages.) \nREGISTER NOW
URL:https://www.als-mnd.org/event/nothing-about-us-without-us-highlights-from-the-2025-patient-fellows/
LOCATION:Online
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DTSTART;TZID=America/Chicago:20260131T120000
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DTSTAMP:20261017T234327
CREATED:20251212T213609Z
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UID:19098-1769860800-1769864400@www.als-mnd.org
SUMMARY:Les Turner ALS Foundation Webinar: Living Fully\, Living Well - How Palliative Care Can Help
DESCRIPTION:Dr. Kara Bischoff will provide an introduction to palliative care and how it can be helpful to people with ALS and their loved ones. Aspects of advance care planning that are important for people with ALS will be discussed. Hospice will also be described and distinguished from palliative care. Finally\, information about how to find palliative care services will be provided. Questions will be solicited and answered. \nAbout the Speaker: Dr. Kara Bischoff is the Associate Division Chief for Outpatient Palliative Care and the Medical Director of the Outpatient Palliative Care Service at University of California\, San Francisco (UCSF). Dr. Bischoff has developed a particular expertise in palliative care for people with amyotrophic lateral sclerosis (ALS). She has published substantially about outpatient palliative for people will illnesses other than cancer and was recognized as an Emerging Leader in Palliative Medicine by the American Association of Hospice and Palliative Medicine. Dr. Bischoff received her medical degree from Harvard Medical School\, followed by a residency and chief residency at UCSF in Internal Medicine\, and a fellowship in Hospice and Palliative Medicine\, also at UCSF. She is a mother\, an outdoor enthusiast\, and a San Francisco Bay Area native. \nRegister Here
URL:https://www.als-mnd.org/event/palliative-care-can-help/
LOCATION:Online
ORGANIZER;CN="Les Turner ALS Foundation":MAILTO:info@lesturnerals.org
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