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X-WR-CALNAME:International Alliance of ALS/MND Associations
X-ORIGINAL-URL:https://www.als-mnd.org
X-WR-CALDESC:Events for International Alliance of ALS/MND Associations
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DTSTART:20260308T080000
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DTSTART:20261101T070000
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DTSTART;TZID=America/Chicago:20260212T120000
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DTSTAMP:20261017T175236
CREATED:20260120T183922Z
LAST-MODIFIED:20260120T190825Z
UID:19154-1770897600-1770901200@www.als-mnd.org
SUMMARY:Les Turner ALS Foundation Webinar: Hospice Care and ALS
DESCRIPTION:Hospice Care and ALS: What It Is\, When to Consider It\, and How It Supports You \nJoin for our February ALS Learning series which will provide an overview of hospice care and how it supports individuals living with ALS and their caregivers. Participants will learn what hospice is\, when it may be appropriate\, and how it can improve comfort\, quality of life\, and emotional well-being. The session will also address common myths about hospice and offer guidance on starting these important conversations. Time will be reserved for questions and discussion.  \nThe Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to the Gilbert & Jacqueline Fern Foundation & Mitsubishi Tanabe Pharma America for sponsoring this webinar. \nAbout the Speaker: Katie Lord\, RN\, BSN is a seasoned hospice nurse and educator with a comprehensive background in end-of-life care. Over the course of her nursing career\, Katie has served in a wide range of hospice roles—including case management\, admissions\, on-call response\, inpatient care\, and leadership—gaining a deep\, practical understanding of the care journey from multiple perspectives. In her current role as Education Coordinator for the Illinois Hospice and Palliative Care Organization (ILHPCO)\, Katie develops and delivers educational programs aimed at strengthening the quality and accessibility of hospice care across the state. Known for her thoughtful approach and ability to connect clinical realities with compassionate best practices\, Katie helps healthcare professionals\, care providers\, and stakeholders navigate the complexities of end-of-life care with clarity and confidence. \nRegister Here
URL:https://www.als-mnd.org/event/hospice-care-and-als/
LOCATION:Online
ORGANIZER;CN="Les Turner ALS Foundation":MAILTO:info@lesturnerals.org
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DTSTART;TZID=America/Toronto:20260224T090000
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CREATED:20251219T183802Z
LAST-MODIFIED:20251219T184022Z
UID:19134-1771923600-1771927200@www.als-mnd.org
SUMMARY:Approved Treatments in ALS/MND
DESCRIPTION:This webinar will feature an open conversation and testimonials about access to approved treatments for ALS/MND around the world. We will explore which therapies are approved in different countries and regions\, and discuss if and how people living with ALS/MND can access these treatments in practice.\n \nREGISTER NOW
URL:https://www.als-mnd.org/event/approved-treatments/
LOCATION:Online
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