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X-WR-CALDESC:Events for International Alliance of ALS/MND Associations
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DTSTART;TZID=America/Toronto:20260310T090000
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CREATED:20260227T151159Z
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UID:19252-1773133200-1773136800@www.als-mnd.org
SUMMARY:Headline Results from the 2025 ALS/MND Fundamental Rights Survey
DESCRIPTION:Join us for a presentation of the headline findings from the third iteration of the ALS/MND Fundamental Rights Survey. This session will share key data and emerging trends on how fundamental rights are experienced by people living with ALS/MND around the world. We will explore areas of progress\, identify persistent gaps\, and consider what the findings mean for advocacy\, policy\, and system-level change. This webinar offers a snapshot of where we stand and where action is still needed. \nWe thank Biogen and Tanabe Pharma America for their generous support of this project. (Multilingual captions available.) \n\nREGISTER NOW
URL:https://www.als-mnd.org/event/headline-results-2025-survey/
LOCATION:Online
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DTSTART;TZID=America/New_York:20260316T140000
DTEND;TZID=America/New_York:20260316T153000
DTSTAMP:20261017T170306
CREATED:20260227T150328Z
LAST-MODIFIED:20260227T150909Z
UID:19247-1773669600-1773675000@www.als-mnd.org
SUMMARY:ALS Association Webinar: Exploring ALS Clinical Trials
DESCRIPTION:Exploring ALS Clinical Trials: What They Are\, How to Find Them\, and What Happens Next \nFor many in the ALS community\, clinical trials represent both hope and uncertainty. This educational webinar offers a clear\, supportive overview of what clinical trials are\, how ALS clinical trials work\, how to search for opportunities\, and what happens after you contact a trial site. Featuring a conversation with Dr. Kuldip Dave\, this session will walk through screening\, timelines\, and common questions about enrollment. Designed for people living with ALS and their care partners\, this program aims to increase education\, reduce confusion\, build confidence\, and connect attendees with reliable pathways to learn more. \nSpeaker: Dr. Kuldip Dave\, Senior Vice President of Research\, ALS Association \nRegister Here
URL:https://www.als-mnd.org/event/exploring-als-clinical-trials/
LOCATION:Online
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DTSTART;TZID=America/Toronto:20260326T130000
DTEND;TZID=America/Toronto:20260326T140000
DTSTAMP:20261017T170306
CREATED:20260303T235851Z
LAST-MODIFIED:20260304T000222Z
UID:19262-1774530000-1774533600@www.als-mnd.org
SUMMARY:Les Turner ALS Foundation Webinar: Tissue Donation and the Future of ALS Research
DESCRIPTION:The Gift of Discovery: Tissue Donation and the Future of ALS Research \nTissue donation is one of the most powerful contributions a person living with ALS can make to future generations. Join Dr. Lyle Ostrow from Temple University who will discuss the tissue donation process\, address common questions and concerns\, explain what researchers can learn from donated tissue\, and share how those interested can make arrangements. The Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to the Gilbert & Jacqueline Fern Foundation & Tanabe Pharma America for sponsoring this webinar. \nAbout the Speaker: Lyle W. Ostrow\, MD\, PhD Associate Professor\, Neurology\, The MDA/ALS Center of Hope at Temple University Lewis Katz School of Medicine \nRegister
URL:https://www.als-mnd.org/event/tissue-donation/
LOCATION:Online
ORGANIZER;CN="Les Turner ALS Foundation":MAILTO:info@lesturnerals.org
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