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DTSTART;VALUE=DATE:20260512
DTEND;VALUE=DATE:20260515
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SUMMARY:ALS Association Webinar Series: Connected Through the ALS Journey
DESCRIPTION:Connected Through the ALS Journey: Support\, Resources\, and Community \nMay 12 @ 2:00 pm – 3:30 pm EDT\nMay 13 @ 2:00 pm – 3:30 pm EDT\nMay 14 @ 2:00 pm – 3:30 pm EDT \nLiving with ALS can feel overwhelming and isolating. Throughout the ALS journey\, connection matters. \nThis special ALS Awareness Month webinar series emphasizes that no one has to navigate ALS alone. Across three sessions\, we’ll explore how connection can reduce isolation and improve quality of life. Learn how to connect with experienced Care Services professionals\, access programs that support independence\, and build meaningful connections with others living this journey. \nWhether you are newly diagnosed or further along in your ALS journey\, this series will help you discover resources and relationships that can support you every step of the way. \nRegister Here \nYour Connection to Support: The ALS Care Navigation Program \nTuesday\, May 12\, 2026 @ 2:00 pm – 3:30 pm EDT \nOne of the most important connections in the ALS journey is your ALS Care Navigation team. Care Services professionals are here to support individuals living with ALS and their families from diagnosis through every stage of the journey. In this session\, you will learn how ALS Care Navigators can help you find resources\, answer questions\, solve problems\, and provide emotional support. Whether you need help finding equipment\, understanding services\, or simply someone to talk to who understands ALS\, your Care Navigation team is here for you. This session will help you understand how to make the most of this important connection and how Care Navigators can support you throughout your ALS journey. \nSpeakers: Tara Dhakal and Norriell Richards \nSupporting Independence: Programs and Equipment That Help You Live Well with ALS \nWednesday\, May 13\, 2026 @ 2:00 pm – 3:30 pm EDT \nALS brings changes\, but the right tools and support can help you maintain independence\, safety\, and quality of life. This session will introduce key ALS Association programs that support daily living\, including durable medical equipment resources\, virtual home assessments\, ramp programs\, and communication support through alternative and augmentative communication (AAC). In this session\, you will learn what resources are available\, how to access them\, and how these programs can help you adapt to changes throughout the ALS journey. \nSpeakers: Steve Morse\, Haley Holland\, and Matt Gonzalez \nFinding Community: Connecting with Others in the ALS Journey \nThursday\, May 14\, 2026 @ 2:00 pm – 3:30 pm EDT \nLiving with ALS can feel isolating\, but connection with others who understand can make a powerful difference. This session will explore the many ways individuals and families can connect with the ALS community\, including support groups\, events such as the Walk to Defeat ALS\, advocacy opportunities\, and special events like Lou Gehrig Day at Major League Baseball parks. You will learn how connecting with others can reduce isolation\, build strength\, and create meaningful relationships throughout the ALS journey. \nSpeakers: Jennifer Myhre\, Daniel Cramer\, Allison Lardner\, and Cary Justmann
URL:https://www.als-mnd.org/event/als-association-webinar-connected-through-the-als-journey/
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DTSTART;TZID=America/New_York:20260520T070000
DTEND;TZID=America/New_York:20260520T080000
DTSTAMP:20261020T121610
CREATED:20260417T190308Z
LAST-MODIFIED:20260417T190308Z
UID:19436-1779260400-1779264000@www.als-mnd.org
SUMMARY:Member Forum: Advocacy and Campaigns\, Government Engagement and Funding
DESCRIPTION:A member forum focused on advocacy strategies\, campaign development\, government engagement\, and approaches to securing funding.\n \nRegistration note: Members only. To register or request more information\, email alliance@als-mnd.org.
URL:https://www.als-mnd.org/event/member-forum-advocacy-and-campaigns-government-engagement-and-funding/
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DTSTART;TZID=America/New_York:20260520T170000
DTEND;TZID=America/New_York:20260520T180000
DTSTAMP:20261020T121610
CREATED:20260417T190335Z
LAST-MODIFIED:20260417T190357Z
UID:19438-1779296400-1779300000@www.als-mnd.org
SUMMARY:Member Forum: Advocacy and Campaigns\, Government Engagement and Funding
DESCRIPTION:A member forum focused on advocacy strategies\, campaign development\, government engagement\, and approaches to securing funding.\n \nRegistration note: Members only. To register or request more information\, email alliance@als-mnd.org.
URL:https://www.als-mnd.org/event/member-forum-advocacy-and-campaigns-government-engagement-and-funding-2/
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DTSTART;TZID=America/Chicago:20260528T120000
DTEND;TZID=America/Chicago:20260528T130000
DTSTAMP:20261020T121610
CREATED:20260428T182607Z
LAST-MODIFIED:20260428T182842Z
UID:19512-1779969600-1779973200@www.als-mnd.org
SUMMARY:Les Turner ALS Foundation Webinar: Real Stories of Community After an ALS Diagnosis
DESCRIPTION:Finding Your People: Real Stories of Community After an ALS Diagnosis \nAn ALS diagnosis can change everything — but it doesn’t mean navigating the road ahead alone. In this panel discussion\, Rob Akins\, Tina Cascio\, Kelly McGinn\, and Juan Reyes\, people living with ALS\, will share their personal stories of finding community\, getting involved with organizations like Her ALS Story\, I AM ALS\, and the Les Turner ALS Foundation\, and discovering the strength that comes from connection. Hear firsthand how getting involved transformed their journey. A live Q&A will follow. \nSpeakers:  \n\nRob Akins\, person living with ALS\, Les Turner ALS Foundation\nTina Cascio\, person living with ALS\, Les Turner ALS Foundation\, & Her ALS Story\nKelly McGinn\, person living with ALS\, Her ALS Story\nJuan Reyes\, person living with ALS\, veteran\, & I AM ALS\n\nRegister: https://us02web.zoom.us/webinar/register/WN_vcnWzRU4RnqugE9TVIUfLw
URL:https://www.als-mnd.org/event/les-turner-als-foundation-webinar-real-stories/
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