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X-ORIGINAL-URL:https://www.als-mnd.org
X-WR-CALDESC:Events for International Alliance of ALS/MND Associations
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DTSTART:20260308T070000
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DTSTART:20261101T060000
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DTSTART;TZID=America/New_York:20260908T080000
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DTSTAMP:20261001T230226
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UID:19450-1788854400-1788858000@www.als-mnd.org
SUMMARY:Member Forum: Health Literacy & Understanding ALS/MND
DESCRIPTION:A member forum focused on health literacy and improving understanding\, navigation\, and access to information for people affected by ALS/MND.\n \nRegistration note: Members only. To register or request more information\, email alliance@als-mnd.org.
URL:https://www.als-mnd.org/event/member-forum-health-literacy/
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260908T140000
DTEND;TZID=America/New_York:20260908T150000
DTSTAMP:20261001T230226
CREATED:20260401T190719Z
LAST-MODIFIED:20260904T165352Z
UID:19375-1788876000-1788879600@www.als-mnd.org
SUMMARY:ALS Association Webinar: Your Roadmap to Eating\, Swallowing\, and Nutrition with ALS
DESCRIPTION:Changes with eating and swallowing are common in ALS\, and can feel overwhelming\, but having the right information can make planning ahead easier. Join us for a practical conversation about what to expect\, ways to adapt as your needs change\, and how to think through decisions about feeding tubes. You’ll gain helpful tips\, answers to common questions\, and information to help you make the choices that are right for you and your family. \nRegister now
URL:https://www.als-mnd.org/event/roadmap/
LOCATION:Online
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260908T180000
DTEND;TZID=America/New_York:20260908T190000
DTSTAMP:20261001T230226
CREATED:20260417T190937Z
LAST-MODIFIED:20260807T113442Z
UID:19452-1788890400-1788894000@www.als-mnd.org
SUMMARY:Member Forum: Health Literacy & Understanding ALS/MND
DESCRIPTION:A member forum focused on health literacy and improving understanding\, navigation\, and access to information for people affected by ALS/MND.\n \nRegistration note: Members only. To register or request more information\, email alliance@als-mnd.org.
URL:https://www.als-mnd.org/event/member-forum-health-literacy-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260922T140000
DTEND;TZID=America/New_York:20260922T150000
DTSTAMP:20261001T230226
CREATED:20260904T165428Z
LAST-MODIFIED:20260904T165525Z
UID:20045-1790085600-1790089200@www.als-mnd.org
SUMMARY:ALS Association Webinar: Affordable Tools for Everyday Independence
DESCRIPTION:Small tools can make a big difference in everyday life with ALS. Join us to learn about affordable products that can help with daily activities\, where to find them\, and which types of equipment are typically covered by insurance\, and which are not. From simple over-the-counter items to practical tips for getting what you need\, this webinar will help you discover cost-effective solutions to support greater comfort and independence at home. \nRegister now
URL:https://www.als-mnd.org/event/tools/
LOCATION:Online
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260923T130000
DTEND;TZID=America/New_York:20260923T140000
DTSTAMP:20261001T230226
CREATED:20260917T145435Z
LAST-MODIFIED:20260917T145658Z
UID:20101-1790168400-1790172000@www.als-mnd.org
SUMMARY:ALS Canada Webinar: Navigating Grief While Living with ALS
DESCRIPTION:Join us on Wednesday September 23\, at 1 pm ET for “Living and Loving with Loss: A Webinar on Navigating Grief While Living with ALS.” \n\n\nA diagnosis of ALS brings many layers of loss – both immediate and unfolding over time. \nJoin grief therapist Andrea Warnick and ALS Canada for this compassionate webinar exploring the unique experience of grief while living with ALS\, addressing common myths\, emotional challenges\, and practical ways to find connection and meaning along the way. \nRegister now
URL:https://www.als-mnd.org/event/hospice-copy/
LOCATION:Online
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Toronto:20260924T130000
DTEND;TZID=America/Toronto:20260924T140000
DTSTAMP:20261001T230226
CREATED:20260831T163843Z
LAST-MODIFIED:20260904T165829Z
UID:19981-1790254800-1790258400@www.als-mnd.org
SUMMARY:Les Turner ALS Foundation: Cognitive and Language Impairments in ALS & ALS-FTD
DESCRIPTION:In this webinar\, Marie Saxon\, MS\, CCC-SLP will review the most commonly observed cognitive and language symptoms in individuals with ALS and FTD\, as well as their functional implications. Symptoms include reduced executive functioning\, attention\, memory\, social cognition\, and communication that can impact decision making\, safety\, and interpersonal connection. Marie will review potential signs of cognitive and language impairments that would be reason to utilize supportive strategies or seek additional support. Lastly\, she will review practical strategies and tools that can be employed now to support increased independence and participation in meaningful activities. \nAbout the Speaker: Marie Saxon\, MS\, CCC-SLP is a Senior Speech-Language Pathologist at the Shirley Ryan AbilityLab in Chicago\, Illinois. She works with patients at both inpatient and outpatient levels of care\, specializing in cognitive-communication evaluation and treatment. Prior to becoming a speech-language pathologist\, Marie worked as a Research Coordinator at the Mesulam Center for Cognitive Neurology and Alzheimer’s Disease at Northwestern University’s Feinberg School of Medicine. She also holds a master’s degree in psychological and brain sciences from Villanova University. \nRegister now
URL:https://www.als-mnd.org/event/als-ftd-clinicopathological-overlap-copy/
ORGANIZER;CN="Les Turner ALS Foundation":MAILTO:info@lesturnerals.org
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