…nt of The ALS Association in December 2017. She joined the organization in June 2016 as the Executive Vice President of Strategy, leading all three mission areas, including global research,… Continue Reading about Governance Committee
Search Results for: june 21
Budget and Finance Committee
…ed as a Director of Japan ALS Association in April 2022, joined the Board of Directors of the International Alliance of ALS/MND Associations in November 2022, and a Branch Manager… Continue Reading about Budget and Finance Committee
Biogen – Tofersen
…in people living with ALS caused by mutations in the SOD1 gene. On June 3, 2022, additional 12-month open label extension (OLE) data was presented, demonstrating a more robust effect… Continue Reading about Biogen – Tofersen
Unproven (Off-Label) Treatments
…people living with the disease as soon as possible. International Alliance of ALS/MND Associations June 2020 The original language of communication is English and any translation cannot be… Continue Reading about Unproven (Off-Label) Treatments
Right to Try
…on where risk is minimized and safety data can be collected. International Alliance of ALS/MND Associations June 2020 The original language of communication is English and any translation… Continue Reading about Right to Try