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International Alliance of ALS/MND Associations

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Nursing and Symptom Management

Click on the icon below to visit our playlist of videos related to Nursing and Symptom Management.

The following are resources from Members of the International Alliance of ALS/MND Associations on the topic of Nursing and Symptom Management.

Information for Professionals

This page has information for health and social care professionals who provide care and support for people with motor neurone disease (MND) in the United Kingdom.

https://www.mndassociation.org/forprofessionals/

Language: English
Subject areas: For Clinicians

MND Care

Welcome to MNDcare – the MND Australia evidence based and best practice website for health, disability, aged and community care professionals – getting motor neurone disease care research into practice.

http://www.mndcare.net.au/Home.aspx

Language: English
Subject areas: Care and Support Guides and Manuals, For Clinicians, Navigating Healthcare Systems

Medical Information and Materials

These pages have been developed as communication and educational tools to help inform medical providers as well as provide pertinent insurance and family information. They may be used as a packet or as individual pages, based on individual preference and need. The electronic versions of these pages have been built as a form with fillable fields. Individuals can type their information within the pdf and save and/or print when complete.

http://www.alsa.org/als-care/resources/publications-videos/medical-information-packet/

Language: English
Subject areas: For Clinicians

Living with MND

This page explores how to manage daily living with MND. The challenges can feel overwhelming, but support and planning ahead can help you maintain the best possible quality of life. Categories include: Mobility and personal care; Speech and communication; Swallowing, eating and drinking; Relationships and family; Emotions, thinking and behavior; and Breathing and ventilation.

https://www.mndassociation.org/about-mnd/living-with-mnd/

Language: English
Subject areas: Care and Support Guides and Manuals, Equipment, Communications and Assistive Technology, For Families and Caregivers

Living with ALS Resource Guides

The ALS Association’s Living with ALS Resource Guides were created because of the rapidly expanding information and research in the clinical management of ALS. These cornerstone educational materials were designed to inform and educate people about ALS in a comprehensive and easily understood format. They address many of the common concerns and issues that face people living with ALS.

http://www.alsa.org/als-care/resources/publications-videos/resource-guides/

Language: English
Subject areas: Care and Support Guides and Manuals, For Families and Caregivers, Navigating Healthcare Systems

Leben mit ALS

Leben mit ALS:

Atmung
Ernährung
Kommunikation
Therapie
Häusliche Pflege
Stationäre Aufenthalte
Mobilität & Reisen
Hilfsmittel & WohnberatungElektronische Hilfsmittel
Wohnberatung
Technische Hilfsmittel
Unser Hilfsmitteldepot
MyCareHelper
Bekleidung
Finanzielle Unterstützung
Patientenverfügung
Testament

http://www.als-schweiz.ch/de/leben_mit_als/

Language: German
Subject areas: Care and Support Guides and Manuals, For Families and Caregivers

Primary Sidebar

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

  • Sanjay Kumar Srivastava, Asha Ek Hope Foundation for ALS/MND, Diagnosed 2018, India

    Sanjay Kumar Srivastava, Asha Ek Hope Foundation for ALS/MND, Diagnosed 2018, India

  • Eddy LeFrançois, Diagnosed 1992 - ALS Canada

    Eddy LeFrançois, Diagnosed 1992 – ALS Canada

  • Philip Brindle, MND Association, Diagnosed 2015, England

    Philip Brindle, MND Association, Diagnosed 2015, England

  • Fabio-Correia-2

    Fabio-Correia-2

  • Osiel Mendoza, Diagnosed 2016 - ALS Therapy Development Institute, USA

    Osiel Mendoza, Diagnosed 2016 – ALS Therapy Development Institute, USA

  • Ailsa Malcolm-Hutton, Diagnosed 2013 - MND Association of England, Wales and N Ireland

    Ailsa Malcolm-Hutton, Diagnosed 2013 – MND Association of England, Wales and N Ireland

  • 20200117_214643

    20200117_214643

  • IMG_3993

    IMG_3993

  • Brian Lovell, Diagnosed 2011 - MND Australia

    Brian Lovell, Diagnosed 2011 – MND Australia

  • Danny Reviers, Diagnosed 1979 - ALS Liga België, Belgium

    Danny Reviers, Diagnosed 1979 – ALS Liga België, Belgium

  • Carlos Gomez Matallanas, Diagnosed 2014 - FUNDELA, Spain

    Carlos Gomez Matallanas, Diagnosed 2014 – FUNDELA, Spain

  • Erwin Coppejans, Diagnosed 2007 - ALS Liga België, Belgium

    Erwin Coppejans, Diagnosed 2007 – ALS Liga België, Belgium

  • Jon Newsome, Les Turner ALS Foundation, USA

    Jon Newsome, Les Turner ALS Foundation, USA

  • Orlando Ruiz, Diagnosed 2001 - ACELA, Colombia

    Orlando Ruiz, Diagnosed 2001 – ACELA, Colombia

  • Glen Elison, ALS Hope Foundation, Diagnosed 2019, USA

    Glen Elison, ALS Hope Foundation, Diagnosed 2019, USA

  • Liong Ting Ngu, MND Malaysia, Diagnosed 2014, Malaysia

    Liong Ting Ngu, MND Malaysia, Diagnosed 2014, Malaysia

  • Denis Blais, Diagnosed 2015 - ALS Canada

    Denis Blais, Diagnosed 2015 – ALS Canada

  • Brigitte Wernli, Association ALS Switzerland, Diagnosed 2014, Switzerland

    Brigitte Wernli, Association ALS Switzerland, Diagnosed 2014, Switzerland

  • Richard Clark, MND New Zealand, Diagnosed 2011, New Zealand

    Richard Clark, MND New Zealand, Diagnosed 2011, New Zealand

  • Oliver Juenke, DGM, Germany

    Oliver Juenke, DGM, Germany

  • Mike Rannie, ALS Canada, Diagnosed 2017, Canada

    Mike Rannie, ALS Canada, Diagnosed 2017, Canada

  • Nicholas (Nic) Bowman, MND Association of South Africa, Diagnosed 2016, Australia

    Nicholas (Nic) Bowman, MND Association of South Africa, Diagnosed 2016, Australia

  • Maurice LeClerc, ALS Canada

    Maurice LeClerc, ALS Canada

  • Mary Thomas, Diagnosed 2013 - MND Australia

    Mary Thomas, Diagnosed 2013 – MND Australia

  • Inta Grubb, Diagnosed 2014 - MND Australia

    Inta Grubb, Diagnosed 2014 – MND Australia

  • pALS-Guido-De-Mets-ALS-Liga-Belgium

    pALS-Guido-De-Mets-ALS-Liga-Belgium

  • Luis-Antonio-Pimenta-Lima-ABrELA

    Luis-Antonio-Pimenta-Lima-ABrELA

  • Elkin-Ramiro-Gaviria-Muñoz-diagnosed-Dec-2018-v3

    Elkin-Ramiro-Gaviria-Muñoz-diagnosed-Dec-2018-v3

  • Joanne Pratt, Diagnosed 2011 - MND Australia

    Joanne Pratt, Diagnosed 2011 – MND Australia

  • 9B63A612-09B4-453E-8430-B76DB0AB5196

    9B63A612-09B4-453E-8430-B76DB0AB5196

  • Fabio-Carvalho3

    Fabio-Carvalho3

  • Shay Rishoni, Diagnosed 2011 - Prize4Life, Israel

    Shay Rishoni, Diagnosed 2011 – Prize4Life, Israel

  • Alejandro Aquino, Diagnosed 2011 - Asociación ELA Argentina

    Alejandro Aquino, Diagnosed 2011 – Asociación ELA Argentina

  • jspic

    jspic

  • Valdomiro-Xavier-Honorio-ABrELA

    Valdomiro-Xavier-Honorio-ABrELA

  • Lachlan Terry, MND Australia, Diagnosed 2015, Australia

    Lachlan Terry, MND Australia, Diagnosed 2015, Australia

  • Antonio Ventriglia, ALS Liga Belgium, Diagnosed 2013, Belgium

    Antonio Ventriglia, ALS Liga Belgium, Diagnosed 2013, Belgium

  • Soledad Rodriguez, FUNDELA, Diagnosed 2013, Spain

    Soledad Rodriguez, FUNDELA, Diagnosed 2013, Spain

  • Mark-Miller

    Mark-Miller

  • Elizabeth-y-Juvenal-v2

    Elizabeth-y-Juvenal-v2

  • ALS-0571

    ALS-0571

  • Charlie “Hark” Dourney, Diagnosed 2007 - Hark ALS, USA

    Charlie “Hark” Dourney, Diagnosed 2007 – Hark ALS, USA

  • Norm MacIsaac, ALS Society of Canada, ALS Society of Quebec, Diagnosed 2014, Canada

    Norm MacIsaac, ALS Society of Canada, ALS Society of Quebec, Diagnosed 2014, Canada

  • Josée Kolijn-de Man, Diagnosed 2015 - ALS Patients Connected, The Netherlands

    Josée Kolijn-de Man, Diagnosed 2015 – ALS Patients Connected, The Netherlands

  • Susan Anderson, Diagnosed 2014 - Hope Loves Company, USA

    Susan Anderson, Diagnosed 2014 – Hope Loves Company, USA

  • Ann-Nicol

    Ann-Nicol

  • Chris McCauley, Diagnosed 2015 - ALS Canada

    Chris McCauley, Diagnosed 2015 – ALS Canada

  • Zabun Nassar, MND Association, Diagnosed 2016, England

    Zabun Nassar, MND Association, Diagnosed 2016, England

  • Zelina-Brito-Diagnosed-2018-Brazil

    Zelina-Brito-Diagnosed-2018-Brazil

  • Jo-and-her-dog-2

    Jo-and-her-dog-2

Learn more about the March of Faces

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