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International Alliance of ALS/MND Associations

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Physiotherapy and Mobility

Everyday tasks such as getting up in the morning, walking, and climbing stairs are often taken for granted. As ALS/MND progresses, a person’s mobility may be affected. People living with ALS/MND can find support for mobility and movement via their physiotherapist.

The effects of ALS/MND on a person’s mobility can vary depending on the individual. Muscle weakness, muscle cramping, paralysis in certain muscles, loss of range in motion and flexibility, or muscle spasticity are common reasons mobility is affected.

A physiotherapist, individually or alongside the occupational therapist and orthotist, helps support mobility and movement for people living with ALS/MND. Their role can include providing exercises to maintain and support the regular movement. In addition, they can offer suggestions to posture and activities to encourage mobility and work with people with ALS/MND to navigate the many technical devices and equipment available to them.

Equipment and devices support mobility for people living with ALS/MND. People with ALS/MND have a range of options for equipment, such as canes and walking sticks, orthotic devices, and wheelchairs. The physiotherapist can help people narrow down the best options for their individual needs.

For more information on the physiotherapist’s role and support for mobility with ALS/MND, refer to the resources provided below.

Click on the icon below to visit our playlist of videos related to Physiotherapy and Mobility.

The following are resources from Members of the International Alliance of ALS/MND Associations on the topic of Physiotherapy and Mobility.

What Does the Physiotherapist Do?

The physiotherapist’s role for people living with ALS/MND is explained in this short resource provided by the ALS Centrum Nederlands. This resource discusses the areas in which a physiotherapist can give aid and support. The ALS Centrum Nederlands also offers additional links to learn more about equipment that a physiotherapist may recommend.

https://www.als-centrum.nl/kennisplatform/wat-doet-de-fysiotherapeut/

Language: Dutch, English
Subject Areas: Multidisciplinary Healthcare Team, Physiotherapy, Physiotherapist, Mobility, For People with ALS/MND, For Caregivers

Physiotherapy in ALS

The ALS Lige Belgium created a thorough guide for people living with ALS/MND and their caregivers. The guide outlines the overarching goals of physiotherapy for people living with ALS/MND. This booklet also contains diagrams and directions for common exercises or activities from physiotherapy for people with ALS/MND. Additionally, this guide provides information on tools and resources that people living with ALS/MND can use to support mobility and daily activities.

https://als.be/sites/default/files/uploads/Physiotherapy_pALS_-_Manual_physiotherapists.pdf

Language: English
Subject Areas: Physiotherapy, Mobility, For People with ALS/MND, For Caregivers

Physiotherapy and Exercise with MND

The MND Association (MNDA) provides this detailed resource on physiotherapy and its benefits for people living with ALS/MND. This resource answers frequently asked questions about the physiotherapist’s role and the general structure and format of appointments. Additionally, exercise types and treatments are also discussed.

https://www.mndassociation.org/app/uploads/2015/06/6A-Physiotherapy-1.pdf

Language: English
Subject Areas: Physiotherapy, Multidisciplinary Healthcare Team, Physiotherapist, Mobility, For People with ALS/MND

Muscle Weakness with MND

The MND Association (MNDA) focuses on muscle weakness in this guide for people living with ALS/MND. This resource explains the process of weakening muscles with ALS/MND, strategies to help with these changes, and the available equipment to people as the disease progresses.

https://www.mndassociation.org/professionals/management-of-mnd/management-by-symptoms/muscle-weakness/

Language: English
Subject Areas: Mobility, Physiotherapy, Multidisciplinary Healthcare Team, Occupational Therapist, Physiotherapist, For People with ALS/MND

Mobility and Movement

This resource page is provided by the MND Association (MNDA). It discusses some of the aspects of mobility for people living with ALS/MND. Topics covered in this resource include the multidisciplinary healthcare team that may assist with mobility and movement for people living with ALS/MND. This resource also discusses the equipment for mobility and movement, potential home improvements, and changes with driving.

https://www.mndassociation.org/support-and-information/living-with-mnd/mobility-and-movement/

Language: English
Subject Areas: Occupational Therapist, Daily Living, For People with ALS/MND, For Caregivers

Mobility and ALS

This factsheet describing how mobility may be affected by ALS/MND is provided for people living with ALS/MND by The ALS Association (ALSA). The expected changes in mobility alongside the multidisciplinary healthcare team that can aid with these changes are discussed.

https://www.als.org/navigating-als/resources/fyi-mobility-and-als

Language: English
Subject Areas: Mobility, Multidisciplinary Healthcare Team, Physiotherapy, For People with ALS/MND

Functioning When Mobility is Affected by ALS

This extensive guide is provided by The ALS Association (ALSA) and details many aspects of mobility and daily living for people living with ALS/MND. It introduces the multidisciplinary healthcare team and describes their role. This guide also provides tips, strategies, and exercises to support mobility for people living with ALS/MND. Information on available equipment and home adaptations is also offered.

https://www.als.org/sites/default/files/2020-04/lwals_07_2017.pdf

Language: English
Subject Areas: Multidisciplinary Healthcare Team, Physiotherapist, Occupational Therapist, Mobility, Daily Living, For People with ALS/MND, For Caregivers

Orthotic Devices with ALS/MND

This guide provided by The ALS Association (ALSA) discusses the multidisciplinary healthcare team that can support people living with ALS/MND in exploring and deciding on the right orthotic devices for them. Certain devices that people living with ALS/MND can use are also discussed.

https://www.als.org/navigating-als/resources/fyi-orthotic-devices

Language: English
Subject Areas: Mobility, Multidisciplinary Healthcare Team, For People with ALS/MND, For Caregivers

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Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

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    Sanjay Kumar Srivastava, Asha Ek Hope Foundation for ALS/MND, Diagnosed 2018, India

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    9B63A612-09B4-453E-8430-B76DB0AB5196

  • Osiel Mendoza, Diagnosed 2016 - ALS Therapy Development Institute, USA

    Osiel Mendoza, Diagnosed 2016 – ALS Therapy Development Institute, USA

  • Ian Roberts

    Ian Roberts

  • Monica Soriano, Diagnosed 2011 - Asociación ELA Argentina

    Monica Soriano, Diagnosed 2011 – Asociación ELA Argentina

  • Fabio-Carvalho3

    Fabio-Carvalho3

  • Glen Elison, ALS Hope Foundation, Diagnosed 2019, USA

    Glen Elison, ALS Hope Foundation, Diagnosed 2019, USA

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    roy

  • Mike Rannie, ALS Canada, Diagnosed 2017, Canada

    Mike Rannie, ALS Canada, Diagnosed 2017, Canada

  • Roxana Canova, Diagnosed 2012 - Asociación ELA Argentina

    Roxana Canova, Diagnosed 2012 – Asociación ELA Argentina

  • ALS-0571

    ALS-0571

  • Joy Blakeley, Diagnosed 2017 - MND Australia

    Joy Blakeley, Diagnosed 2017 – MND Australia

  • Liong Ting Ngu, MND Malaysia, Diagnosed 2014, Malaysia

    Liong Ting Ngu, MND Malaysia, Diagnosed 2014, Malaysia

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    55405686-609D-4060-BB1E-8697F36FA62F

  • Sally Pauls, Diagnosed 2006 - Les Turner ALS Foundation

    Sally Pauls, Diagnosed 2006 – Les Turner ALS Foundation

  • Oliver Juenke, DGM, Germany

    Oliver Juenke, DGM, Germany

  • Duncan Bayly - MND Australia

    Duncan Bayly – MND Australia

  • Wilfried Leusing, Diagnosed 2010 - DGM, Germany

    Wilfried Leusing, Diagnosed 2010 – DGM, Germany

  • Mary Thomas, Diagnosed 2013 - MND Australia

    Mary Thomas, Diagnosed 2013 – MND Australia

  • Kirsten Harley, Diagnosed 2013 - Australia

    Kirsten Harley, Diagnosed 2013 – Australia

  • Irene McCaughey, Diagnosed 2011 - MND Australia

    Irene McCaughey, Diagnosed 2011 – MND Australia

  • Zelina-Brito-Diagnosed-2018-Brazil

    Zelina-Brito-Diagnosed-2018-Brazil

  • Zabun Nassar, MND Association, Diagnosed 2016, England

    Zabun Nassar, MND Association, Diagnosed 2016, England

  • Maurice LeClerc, ALS Canada

    Maurice LeClerc, ALS Canada

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    jspic

  • Margreth Burger-Saile, Diagnosed 2011 - ALS Schweiz, Switzerland

    Margreth Burger-Saile, Diagnosed 2011 – ALS Schweiz, Switzerland

  • Brian Lovell, Diagnosed 2011 - MND Australia

    Brian Lovell, Diagnosed 2011 – MND Australia

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    IMG_3993

  • MND-Robbie-Caliste

    MND-Robbie-Caliste

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    MoF-Christian-Bär

  • Rolf Mauch, Association ALS Switzerland, Diagnosed 2015, Switzerland

    Rolf Mauch, Association ALS Switzerland, Diagnosed 2015, Switzerland

  • Richard Clark, MND New Zealand, Diagnosed 2011, New Zealand

    Richard Clark, MND New Zealand, Diagnosed 2011, New Zealand

  • Alejandro Aquino, Diagnosed 2011 - Asociación ELA Argentina

    Alejandro Aquino, Diagnosed 2011 – Asociación ELA Argentina

  • Jon Newsome, Les Turner ALS Foundation, USA

    Jon Newsome, Les Turner ALS Foundation, USA

  • Len Johnrose, MND Association, Diagnosed 2017, England

    Len Johnrose, MND Association, Diagnosed 2017, England

  • Frank "Papa" Taylor

    Frank “Papa” Taylor

  • Denis Blais, Diagnosed 2015 - ALS Canada

    Denis Blais, Diagnosed 2015 – ALS Canada

  • David Watson, MND Scotland, Diagnosed 2018, Scotland

    David Watson, MND Scotland, Diagnosed 2018, Scotland

  • Ann-Nicol

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  • Luis-Antonio-Pimenta-Lima-ABrELA

    Luis-Antonio-Pimenta-Lima-ABrELA

  • Joyce Rusinak, Forbes Norris ALS Center, USA

    Joyce Rusinak, Forbes Norris ALS Center, USA

  • Norm MacIsaac, ALS Society of Canada, ALS Society of Quebec, Diagnosed 2014, Canada

    Norm MacIsaac, ALS Society of Canada, ALS Society of Quebec, Diagnosed 2014, Canada

  • final3878

    final3878

  • Chris McCauley, Diagnosed 2015 - ALS Canada

    Chris McCauley, Diagnosed 2015 – ALS Canada

  • Susan Anderson, Diagnosed 2014 - Hope Loves Company, USA

    Susan Anderson, Diagnosed 2014 – Hope Loves Company, USA

  • Eddy LeFrançois, Diagnosed 1992 - ALS Canada

    Eddy LeFrançois, Diagnosed 1992 – ALS Canada

  • Phil-Rossall-MND-Association

    Phil-Rossall-MND-Association

  • Mark-Miller

    Mark-Miller

  • Lachlan Terry, MND Australia, Diagnosed 2015, Australia

    Lachlan Terry, MND Australia, Diagnosed 2015, Australia

  • Charlie “Hark” Dourney, Diagnosed 2007 - Hark ALS, USA

    Charlie “Hark” Dourney, Diagnosed 2007 – Hark ALS, USA

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