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International Alliance of ALS/MND Associations

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Budget and Finance Committee

The role of the International Alliance of ALS/MND Associations’ Budget and Finance Committee is responsible for reviewing the integrity of the organisation’s financial reporting and overseeing the independence of the external auditors.

Chair of the Budget & Finance Committee

David Ali

David Ali

David is passionate about helping to make a difference for people living with ALS/MND, having volunteered for the past 20-years on ALS/MND-related boards and in other ways at the local State, national and global levels. As the CEO of MND Australia since March 2021, David is more focussed on contributing at an operational level to improve the impact for people across Australia affected by MND today and in the future.

David has a background in social policy and corporate services through a range of executive roles across the public sector, Parliament (the legislature), as a management consultant, and in the not-for-profit sector.  He also brings much experience as an executive and non-executive director on government and not-for-profit boards.  David says it is a real privilege to be part of the talented Board of the International Alliance since December 2017.

MND Australia

Committee Members

Gorrit-Jan Blonk

I have been the CEO of ALS Netherlands for more than 4.5 years and a member of the Board of Directors of the International Alliance of ALS/MND Associations since December 2015. As an Alliance delegate and a Board member, I joined the worldwide fight against ALS/MND because I strongly believe in international collaboration in all the things we do. By working together, we will defeat ALS/MND faster than only working nationally. Sharing ideas and working together in the Alliance is key. That is why I am proud to serve as a Board member.

ALS Netherlands

Evy Reviers

Evy Reviers

Evy Reviers is the daughter of a pALS which is her motivation to be an ALS patient representative at the National and International level. Since 2007, she is CEO of ALS Liga Belgium, focusing on stimulating and financing scientific research on ALS, contact with ALS researchers, collaborations with university hospitals and defending the rights of pALS at governmental institutions and agencies.

She is particularly involved in regulatory aspects of ALS clinical trials and its guidelines, advocating the same rights for access to trials and future medicines for all pALS worldwide. She graduated at the EURORDIS ExPRESS Summer School 2016 and is a patient representative in scientific advice procedures (CHMP committee) at the European Medicines Agency (EMA). Also, she is member of the European Patient Advocacy Group (ePAGs) for the Rare Neuromuscular ERN Groupings of EURORDIS, being active in the Patient Advisory Board of these ePAGs.

Furthermore, she is Chairwoman of the European Organization for Professionals and Patients with ALS (EUpALS), a member of the Board of Project MinE and member of the ALS Dream Team.

Evy previously served as a member of the Board of Directors of the International Alliance during 2 consecutive terms between 2010-2016. She was re-elected to begin a new term in December 2017.

ALS Liga België

Sheila Erickson

Shiela Erickson

Sheila has operated SME Interim, providing interim management services in the not-for-profit sector since 2014. Sheila started SME Interim after 15 years of working in a variety of not-for-profit organizations, including a national professional association, community based social service agency, animal welfare shelter and a national charity. She is a Chartered Professional Accountant with a degree in Economics from McMaster University.

Sheila is passionate about the importance of helping out wherever needed, and has volunteered on both the governance and programming level over the years. As a new member to the Budget and Finance Committee, she’s inspired by the collaborative nature at the International Alliance of ALS/MND Association and looking forward to contributing her financial expertise.

In her spare time Sheila loves spending time outdoors, either at her cottage or travelling abroad on a walking holiday. “It’s truly the best way to experience a new destination”.

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About

  • Who we are
  • Board of Directors
  • Committees/Advisory Councils
    • Scientific Advisory Council
    • PALS and CALS Advisory Council
    • Innovation and Technology Council
    • Governance Committee
    • Budget and Finance Committee
  • Staff
  • History
  • Archives
    • Newsletters
    • Meetings
  • Awards

  • Juvenal Bayona Romero

    Juvenal Bayona Romero

  • Mark Miller

    Mark Miller

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Marcel R. Wernard, Diagnosed 2016 - ALS Patients Connected, The Netherlands

    Marcel R. Wernard, Diagnosed 2016 – ALS Patients Connected, The Netherlands

  • Alejandro Aquino, Diagnosed 2011 - Asociación ELA Argentina

    Alejandro Aquino, Diagnosed 2011 – Asociación ELA Argentina

  • Brigitte Wernli, Association ALS Switzerland, Diagnosed 2014, Switzerland

    Brigitte Wernli, Association ALS Switzerland, Diagnosed 2014, Switzerland

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Inta Grubb, Diagnosed 2014 - MND Australia

    Inta Grubb, Diagnosed 2014 – MND Australia

  • Fabio Carvalho

    Fabio Carvalho

  • Angie Bordaen, Diagnosed 2014 - ALS Liga België, Belgium

    Angie Bordaen, Diagnosed 2014 – ALS Liga België, Belgium

  • Irene McCaughey, Diagnosed 2011 - MND Australia

    Irene McCaughey, Diagnosed 2011 – MND Australia

  • Danny Reviers, Diagnosed 1979 - ALS Liga België, Belgium

    Danny Reviers, Diagnosed 1979 – ALS Liga België, Belgium

  • Len Johnrose, MND Association, Diagnosed 2017, England

    Len Johnrose, MND Association, Diagnosed 2017, England

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • UK-Mahmood-Anwar

    UK-Mahmood-Anwar

  • Frank "Papa" Taylor

    Frank “Papa” Taylor

  • Philip Brindle, MND Association, Diagnosed 2015, England

    Philip Brindle, MND Association, Diagnosed 2015, England

  • Chen Chun-Chin

    Chen Chun-Chin

  • Phil Rossall, MND-Association, UK

    Phil Rossall, MND-Association, UK

  • Denis Blais, Diagnosed 2015 - ALS Canada

    Denis Blais, Diagnosed 2015 – ALS Canada

  • Susan Anderson, Diagnosed 2014 - Hope Loves Company, USA

    Susan Anderson, Diagnosed 2014 – Hope Loves Company, USA

  • Francisco Perez Palop, Diagnosed 2013 - FUNDELA, Spain

    Francisco Perez Palop, Diagnosed 2013 – FUNDELA, Spain

  • Richard Clark, MND New Zealand, Diagnosed 2011, New Zealand

    Richard Clark, MND New Zealand, Diagnosed 2011, New Zealand

  • Steven Spencer, Diagnosed 2014 - MND New Zealand

    Steven Spencer, Diagnosed 2014 – MND New Zealand

  • Sally Pauls, Diagnosed 2006 - Les Turner ALS Foundation

    Sally Pauls, Diagnosed 2006 – Les Turner ALS Foundation

  • Maurice LeClerc, ALS Canada

    Maurice LeClerc, ALS Canada

  • Sanjay Kumar Srivastava, Asha Ek Hope Foundation for ALS/MND, Diagnosed 2018, India

    Sanjay Kumar Srivastava, Asha Ek Hope Foundation for ALS/MND, Diagnosed 2018, India

  • Jo Knowlton and her dog, Scotland

    Jo Knowlton and her dog, Scotland

  • John and Loretta Russo, USA

    John and Loretta Russo, USA
    final3878

  • Conny van der Meijden, Diagnosed 2001 - ALS Netherlands

    Conny van der Meijden, Diagnosed 2001 – ALS Netherlands

  • Daniel Hare

    Daniel Hare

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Roy

    Roy
    roy

  • Christian Bär, Germany

    Christian Bär, Germany

  • Ian Roberts

    Ian Roberts

  • Erwin Coppejans, Diagnosed 2007 - ALS Liga België, Belgium

    Erwin Coppejans, Diagnosed 2007 – ALS Liga België, Belgium

  • Eddy LeFrançois, Diagnosed 1992 - ALS Canada

    Eddy LeFrançois, Diagnosed 1992 – ALS Canada

  • Mary Thomas, Diagnosed 2013 - MND Australia

    Mary Thomas, Diagnosed 2013 – MND Australia

  • Lachlan Terry, MND Australia, Diagnosed 2015, Australia

    Lachlan Terry, MND Australia, Diagnosed 2015, Australia

  • Norm MacIsaac, ALS Society of Canada, ALS Society of Quebec, Diagnosed 2014, Canada

    Norm MacIsaac, ALS Society of Canada, ALS Society of Quebec, Diagnosed 2014, Canada

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • David Bishop

    David Bishop

  • Glen Elison, ALS Hope Foundation, Diagnosed 2019, USA

    Glen Elison, ALS Hope Foundation, Diagnosed 2019, USA

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Dorette Lüdi, Diagnosed 2014 - ALS Schweiz, Switzerland

    Dorette Lüdi, Diagnosed 2014 – ALS Schweiz, Switzerland

  • Brian Lovell, Diagnosed 2011 - MND Australia

    Brian Lovell, Diagnosed 2011 – MND Australia

  • Wilfried Leusing, Diagnosed 2010 - DGM, Germany

    Wilfried Leusing, Diagnosed 2010 – DGM, Germany

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

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