The role of the International Alliance of ALS/MND Associations’ Budget and Finance Committee is responsible for reviewing the integrity of the organization’s financial reporting and overseeing the independence of the external auditors.
Chair of the Budget & Finance Committee
Tammy Moore first came to know ALS/MND when her family member was diagnosed in 2008 and over the next five years, she was witness to the challenges her family faced. In 2014,Tammy became the CEO of the ALS Society of Canada, a national organization with a mission to improve the lives of Canadians affected by ALS through advancing research, care, advocacy and information.
Tammy has served on Boards and Advisory Councils internationally, nationally and regionally – International Alliance of ALS/MND Associations Board Member; Advocacy & Public Policy Committee; Innovation & Technology Advisory Council; Strategic Planning Working Group. Health Charities Coalition of Canada Chair, Board of Directors; Compliance, Accountability, Transparency & Ethics Working Group. Ashiana Holdings, Palliative Care Matters, BC Cancer Agency – Southern Interior, Women’s Enterprise Centre of BC, and local arts, sports and service organizations.
David has a background in social policy and corporate services through a range of executive roles across the public sector, Parliament (the legislature), as a management consultant, and in the not-for-profit sector. He also brings much experience as an executive and non-executive director on government and not-for-profit boards. David says it is a real privilege to be part of the talented Board of the International Alliance since December 2017.
Nina Barakzai is immediate Past Chair of the UK’s Commerce & Industry Group, representing UK in-house counsel. She is Group Head of Data Protection & Privacy for the Sky group of companies, handling all aspects of privacy and data governance. She is Vice President of In-House Counsel Worldwide; sits on the Advisory Board of the Future of Privacy Forum; served as Board Member on the International Federation of Accountants’ International Ethics Standards Board and sits on the Chartered Institute of Management Accountants’ Research Advisory Group, chairing the call for research papers on Big Data. Her professional experience is in compliance, business ethics, privacy, corporate transactions, cloud services, cybersecurity and social media. She is an accountant and solicitor and serves as Trustee for two community charities.
Tanya is the CEO of MND Association. She is a highly experienced voluntary sector leader, with a background in healthcare. Tanya began her career as a registered nurse, and then became a specialist in palliative care.
She has more than 20 years of voluntary sector experience, and has held a variety of clinical leadership roles, with over 12 years as a CEO. After nearly a decade as the chief executive officer of an independent hospice, Tanya went on to utilize her extensive skills and knowledge in charity leadership roles on an interim basis. Over the last five years she has worked for a number of charities including Sue Ryder, Teenage Cancer Trust, The Ramblers and most recently at Impetus.
Tanya is a non-executive member of the NHS Suffolk and North East Essex Integrated Care Board, where she also chairs the People and Remuneration Committee. She has extensive trustee experience, giving her a vital understanding of the importance of charity governance and the roles all of our teams play in delivering fantastic care and services for the community.
Sheila has operated SME Interim, providing interim management services in the not-for-profit sector since 2014. Sheila started SME Interim after 15 years of working in a variety of not-for-profit organizations, including a national professional association, community based social service agency, animal welfare shelter and a national charity. She is a Chartered Professional Accountant with a degree in Economics from McMaster University.
Sheila is passionate about the importance of helping out wherever needed, and has volunteered on both the governance and programming level over the years. As a new member to the Budget and Finance Committee, she’s inspired by the collaborative nature at the International Alliance of ALS/MND Association and looking forward to contributing her financial expertise.
In her spare time Sheila loves spending time outdoors, either at her cottage or travelling abroad on a walking holiday. “It’s truly the best way to experience a new destination”.
Yohei Yamada was born in Hokkaido, Japan, but as his parents were teachers, he moved around Hokkaido with his family. In 1993, Yohei attended high school in Idaho, USA. In 1998, Yohei attended Idaho State University, where he received his bachelor’s degree in psychology. Yohei returned to Japan in 2003 and worked for a company that imported bovine genetics, primarily from North America. Yohei was a translator, negotiator, analyst, and business consultant who travelled around the globe for the dairy industry.
Symptoms of ALS/MND appeared, around the summer of 2013. Yohei was diagnosed with ALS/MND in October 2014, a week after his youngest daughter was born. He announced the diagnosis of ALS/MND to his friends on Facebook New Year’s Eve of 2014. A Japanese dairy farmer started the Ice Bucket Challenge to raise awareness of ALS/MND for Yohei on the New Year of 2015. This movement spread throughout the dairy industry worldwide.
Yohei retired from the dairy industry in February 2016 and had a tracheotomy in July 2016. In August 2018, an American company and the worldwide leader in Bovine Genetics called American Breeders Service (ABS) Global named a bull after Yohei and has donated every unit sold to ALS/MND researchers. The holstein bull, YOHEI, ranked as the #1 bull in Canada in April 2023.
In May 2019, Yohei established a company to send specially trained caregivers to ALS/MND fighters. Yohei was appointed as a Director of Japan ALS Association in April 2022, joined the Board of Directors of the International Alliance of ALS/MND Associations in November 2022, and a Branch Manager of Japan ALS Association Hokkaido Branch in June 2023.
Yohei lives with his wife and three children (two girls and one boy).