• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • AB Science – Masitinib
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • ILB – Tikomed
      • Kadimastem – AstroRx
      • Mitsubishi Tanabe Pharma America – Oral Edaravone
      • Neuronata-R/Lenzumestrocel
      • NeuroSense – PrimeC
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • SOD1 Therapies & Trials
      • SPG302
      • T Regulatory Cell Therapies
      • Ulefnersen – Ionis Pharmaceuticals
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs No Longer in Development
      • Amylyx – AMX0035
      • Collaborative Medicinal Development – CuATSM
      • Cytokinetics – Reldesemtiv
      • Orphazyme – Arimoclomol
      • TUDCA Trial
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Humanitarian Award

Established in 2000, the Humanitarian Award honours individuals or groups whose non-scientific work has made a meaningful international impact on the lives of people affected by ALS/MND.

To be considered for the award, candidates must:

  • Have demonstrated a sustained commitment to the ALS/MND community
  • Have made a non-scientific contribution of international significance
  • Are not required to be affiliated with a scientific or medical institution
  • May work in areas such as advocacy, caregiving, community engagement, education, or public awareness

The award is presented annually during the Alliance Meeting. If no suitable candidate is nominated in a given year, the award will not be granted. Please note that current Board of Directors are not eligible for nomination.

The 2026 nomination period is open. The deadline to submit your nominations is Tuesday, September 15. 

Humanitarian Award Nomination Form

  • (No self-nominations please)
  • Accepted file types: doc, docx, pdf, Max. file size: 128 MB.
    Please use .doc, .docx, or .pdf
  • This field is for validation purposes and should be left unchanged.

Primary Sidebar

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Norm MacIsaac, Canada

    Norm MacIsaac, Canada

  • Jack Buzby, USA

    Jack Buzby, USA

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • David Bishop, UK

    David Bishop, UK

  • Ailsa Malcolm-Hutton, UK

    Ailsa Malcolm-Hutton, UK

  • Eddy Lefrancois, Canada

    Eddy Lefrancois, Canada

  • Liam Dwyer, England

    Liam Dwyer, England

  • Timmy, Belgium

    Timmy, Belgium

  • Osiel Mendoza, USA

    Osiel Mendoza, USA

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Motoko Ogasawara, Japan

    Motoko Ogasawara, Japan

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Jeff Sutherland, Canada

    Jeff Sutherland, Canada
    jspic

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Jean Waters, UK

    Jean Waters, UK

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Jon Newsome, USA

    Jon Newsome, USA

  • Ana María Zavala, Mexico

    Ana María Zavala, Mexico

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Frank Taylor, USA

    Frank Taylor, USA

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Charlie Dourney, USA

    Charlie Dourney, USA

  • Dawn Morton, Scotland

    Dawn Morton, Scotland

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Daniel Hare, USA

    Daniel Hare, USA

  • Josée Kolijn-de Man, Netherlands

    Josée Kolijn-de Man, Netherlands

  • Alex, Argentina

    Alex, Argentina

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Anna Barrow, UK

    Anna Barrow, UK

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Jon Newsome, USA

    Jon Newsome, USA

  • Imelda Arenas, Colombia

    Imelda Arenas, Colombia

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Lombana, Spain

    Lombana, Spain

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Gisli Jonasson, Iceland

    Gisli Jonasson, Iceland

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Ywan Dierick, Belgium

    Ywan Dierick, Belgium

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login