The role of the International Alliance of ALS/MND Associations’ Finance Committee is responsible for reviewing the integrity of the organization’s financial reporting and overseeing the independence of the external auditors.
Chair of the Finance Committee
Nina Barakzai
Nina Barakzai is Specialist Counsel, Global Privacy and Information Governance at HPE. She works with cross functional teams to build sustainable governance and protection in the use of personal data. She sits on the HPE AI Ethics working group, is lead privacy point of contact for M&A transactions and manages HPE’s interactions with regulators in respect of HPE’s global registrations and its Binding Corporate Rules (BCRs). She is lead Privacy Counsel for HPE’s bank in Ireland. Previous roles include Meta, Unilever and Sky, covering responsibility for privacy and data governance, advising on policies and standards, and working directly with relevant Data Protection Authorities in the EU. As both an accountant and solicitor, she has held roles in multinational organizations, sat on several advisory committees and industry groups, including the Board of Management of the Royal Dublin Society and the Chartered Institute of Management Accountants Ireland, Eastern branch.
Committee Members
David Ali
David is passionate about helping to make a difference for people living with ALS/MND, having volunteered for the past 20-years on ALS/MND-related boards and in other ways at the local State, national and global levels. As the CEO of MND Australia since March 2021, David is more focused on contributing at an operational level to improve the impact for people across Australia affected by MND today and in the future.David has a background in social policy and corporate services through a range of executive roles across the public sector, Parliament (the legislature), as a management consultant, and in the not-for-profit sector. He also brings much experience as an executive and non-executive director on government and not-for-profit boards. David says it is a real privilege to be part of the talented Board of the International Alliance since December 2017.
Pablo Aquino
Pablo Aquino is a Certified English/Spanish Translator, Journalist, and the Secretary of the ALS Association of Argentina (Asociacion ELA Argentina), first and only charity exclusively focused on ALS in the country. He was one of the Association’s co-founders in November 2011, and has been assisting in the management of projects along with President Dario Ryba and the rest of the board, and developing the international relations of this institution since then. He was the coordinator and personal interpreter of international visits in Argentina, such as Drs. Lucie Bruijn, Jonathan Glass, Ammar Al-Chalabi, Hiide Yoshino and Angela Genge. Pablo has been the speaker for Asociacion ELA Argentina in every Annual Meeting of the International Alliance of ALS/MND Associations since 2013, and also participated in the constitution of UNELA, the Latin American Union of ALS/MND Associations.Catherine Cummings, CAE, MBA
Cathy Cummings has an eclectic mix of work experiences in the Canadian not-for-profit sector including the National Payroll Institute, the Canadian Bar Association, the Canadian Corporate Counsel Association, and now as the Executive Director of the International Alliance of ALS/MND Associations. Cathy has also volunteered extensively with United Way, the Canadian Society of Association Executives and many charities, including ALS Ontario, ALS Canada and Ceridian Cares. She holds an MBA from Athabasca University and is a Certified Association Executive (CAE) designation.
On a personal note, Cathy is married to her wonderful husband Marty, has three awesome children and has a mission nicknamed the “Bouquet Project,” where she is trying to reverse the statistic that people are 10 times more likely to complain than praise.
Susan Betts
Susan Betts worked at the Canada Revenue Agency (CRA) as a senior executive who managed the national compliance program for small and medium businesses. Subsequent to the CRA, Ms. Betts joined the International Monetary Fund (IMF) where she was responsible for developing and implementing capacity development programs for selected countries in Europe and Asia. Her role was to assist countries to improve the management and operation of their tax administration, in order to generate more revenue and deliver on the country’s social and economic goals.
Ms. Betts now works part-time for the IMF, and cherishes the opportunity to serve with the International Alliance of ALS/MND Associations. Ms. Betts is a retired Chartered Professional Accountant (CPA) / Certified Management Accountant (CMA).
Tammy Moore
Tammy Moore first came to know ALS/MND when a family member was diagnosed in 2008. Over the subsequent five years, she was witness to the challenges her family faced. In 2014,Tammy became the CEO of the ALS Society of Canada, a national organization with a mission to improve the lives of Canadians affected by ALS/MND through advancing research, care, advocacy and information.
Tammy has served on Boards and Advisory Councils internationally, nationally and regionally. With the Alliance specifically, she has served on the Board, Advocacy & Public Policy Forum, Innovation & Technology Advisory Council and Strategic Planning Working Group. She has also been involved with Health Charities Coalition of Canada Board, and Compliance, Accountability, Transparency & Ethics Working Group; Ashiana Holdings; Palliative Care Matters; British Columbia Cancer Agency – Southern Interior; Women’s Enterprise Centre of British Columbia; and local arts, sports and service organizations.
Evy Reviers
Evy Reviers is the daughter of a person who passed away from ALS/MND. As Chief Executive Officer since 2007 and Chairwoman since 2021 of ALS Liga Belgium, Evy performs the general management of the organization and stand up for the voice of people living with ALS/MND in Belgium, Europe and on the international scale.
In Belgium, she has obtained several priority procedures to increase the quality of life of people with ALS/MND. At the European level, she is the Chairwoman of the European Organisation for Professionals and People with ALS (EUpALS), and defends the rights of people living with ALS/MND in scientific advice procedures at the European Medicines Agency (EMA). She is also a member of TRICALS, Project MinE, the Rare Diseases Organisation Belgium, patient representative at EMA, and EURORDIS. She has also served for several terms as a member of the Board of the Alliance.