The Finance Committee supports financial oversight for the Alliance.
Committee members review the integrity of the Alliance’s financial reporting, provide guidance on financial policies and controls, and oversee the independence of the external auditors.
Chair of the Finance Committee
Nina Barakzai
Nina Barakzai is Specialist Counsel, Global Privacy and Information Governance at HPE. She works with cross-functional teams to build sustainable governance and protection in the use of personal data. She sits on the HPE AI Ethics working group, is lead privacy point of contact for M&A transactions, and manages HPE’s interactions with regulators in respect of HPE’s global registrations and its Binding Corporate Rules. She is lead Privacy Counsel for HPE’s bank in Ireland.
Previous roles include Meta, Unilever, and Sky, covering responsibility for privacy and data governance, advising on policies and standards, and working directly with relevant Data Protection Authorities in the EU. As both an accountant and solicitor, Nina has held roles in multinational organizations and has sat on several advisory committees and industry groups, including the Board of Management of the Royal Dublin Society and the Chartered Institute of Management Accountants Ireland, Eastern branch.
Committee Members
David Ali
David Ali has spent more than 20 years volunteering and working with ALS/MND organizations at the local, national, and international levels. Since becoming Chief Executive Officer of MND Australia in 2021, he has focused on improving outcomes for people affected by MND today while helping shape a better future.
David has a background in social policy, corporate services, public administration, parliamentary affairs, management consulting, and the not-for-profit sector. He also brings extensive experience as both an executive and non-executive director on government and charitable boards. He has served on the Board of the International Alliance of ALS/MND Associations since 2017.
Pablo Aquino
Pablo Aquino is a certified English/Spanish translator, journalist, and the Secretary of Asociación ELA Argentina, the first and only charity exclusively focused on ALS/MND in the country. He was one of the Association’s co-founders in November 2011 and has helped manage projects with President Dario Ryba and the rest of the board while developing the organization’s international relations.
He was the coordinator and personal interpreter for international visits in Argentina, including visits by Drs. Lucie Bruijn, Jonathan Glass, Ammar Al-Chalabi, Hiide Yoshino, and Angela Genge. Pablo has represented Asociación ELA Argentina at every Annual Meeting of the International Alliance of ALS/MND Associations since 2013 and also participated in the constitution of UNELA, the Latin American Union of ALS/MND Associations.
His older and only brother, Alejandro, died of ALS/MND in April 2017.
Susan Betts
Susan Betts worked at the Canada Revenue Agency as a senior executive managing the national compliance program for small and medium-sized businesses. She later joined the International Monetary Fund, where she developed and implemented capacity development programs for selected countries in Europe and Asia. Her role was to help countries improve the management and operation of their tax administrations so they could generate more revenue and deliver on social and economic goals.
Susan now works part-time for the International Monetary Fund and values the opportunity to serve with the International Alliance of ALS/MND Associations. She is a retired Chartered Professional Accountant / Certified Management Accountant.
Catherine Cummings, CAE, MBA
Cathy Cummings has an eclectic mix of experience in the Canadian not-for-profit sector, including the National Payroll Institute, the Canadian Bar Association, the Canadian Corporate Counsel Association, and the International Alliance of ALS/MND Associations. Cathy has also volunteered extensively with United Way, the Canadian Society of Association Executives, and many charities, including ALS Ontario, ALS Canada, and Ceridian Cares. She holds an MBA from Athabasca University and the Certified Association Executive designation.
On a personal note, Cathy is married to her husband, Marty, has three children, and has a mission nicknamed the “Bouquet Project,” where she is trying to reverse the statistic that people are 10 times more likely to complain than praise.
Tammy Moore
Tammy Moore first came to know ALS/MND when a family member was diagnosed in 2008. Over the subsequent five years, she witnessed the challenges her family faced. In 2014, Tammy became the CEO of the ALS Society of Canada, a national organization with a mission to improve the lives of Canadians affected by ALS/MND through advancing research, care, advocacy, and information.
Tammy has served on Boards and Advisory Councils internationally, nationally, and regionally. With the Alliance specifically, she has served on the Board, Advocacy & Public Policy Forum, Innovation & Technology Advisory Council, and Strategic Planning Working Group. She has also been involved with Health Charities Coalition of Canada Board, Compliance, Accountability, Transparency & Ethics Working Group, Ashiana Holdings, Palliative Care Matters, British Columbia Cancer Agency – Southern Interior, Women’s Enterprise Centre of British Columbia, and local arts, sports, and service organizations.
Evy Reviers
Evy Reviers is the daughter of a person who passed away from ALS/MND. As Chief Executive Officer since 2007 and Chairwoman since 2021 of ALS Liga Belgium, she oversees the general management of the organization and stands up for the voice of people living with ALS/MND in Belgium, Europe, and internationally.
In Belgium, Evy has obtained several priority procedures to increase the quality of life of people with ALS/MND. At the European level, she is Chairwoman of the European Organisation for Professionals and People with ALS (EUpALS) and defends the rights of people living with ALS/MND in scientific advice procedures at the European Medicines Agency. She is also a member of TRICALS, Project MinE, the Rare Diseases Organisation Belgium, a patient representative at the European Medicines Agency, and EURORDIS. She has also served several terms as a member of the Board of the Alliance.