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ILB

Background

ILB is a pleiotropic molecule which means it is believed to have multiple effects in the body. Its active component, a patented form of dextran sulphate (a complex form of polysaccharide or sugar), is thought to target multiple pathways that are involved in the loss of function and death of neurons, which is characteristic of ALS/MND and other neurological diseases.

There are a limited number of animal studies in neurological disease models that have been published to date with ILB which have established its pre-clinical safety profile. These studies have also shown the drug can restore brain energy metabolism after severe traumatic brain injury in rats. Subcutaneously injected (injected under the skin) ILB induces a rapid release of Hepatocyte Growth Factor (HGF) into the circulation in animals and healthy human volunteers, which may provide a neurotrophic stimulus and a myogenic stimulus, i.e., boosts the health and/or survival mechanisms for neurons and muscle cells, to degenerating muscle. Preclinical studies from the ILB programme also demonstrated positive effects on endogenous (within the body) repair mechanisms and rebalancing of inflammatory responses.

Other clinical trials are currently in progress that are assessing the benefits of HGF administered via injection into the arm and leg muscles of people with ALS/MND.

Trial Design & Results

On 25 May 2022, researchers from TikoMed AB, Sweden, published a paper in PLOS ONE that showed ILB was safe and tolerable in people with ALS/MND, and suggested evidence of some clinical efficacy. The clinical trial was a Phase 2a, single-centre, open label, single-arm proof of concept study of a very small number of patients, where the primary endpoint was safety and tolerability of subcutaneously administered ILB.

As a single-arm open-label study, there is no placebo group to compare outcomes with. In such studies patients often report improvements which can also be due to improved care and access to clinical services which trials provide. It can therefore be difficult to definitively conclude that such trial effects are solely due to the drug being tested.

ILB was administered once a week, by injection, for 5 weeks in 13 people with MND (in Sweden).

A number of clinical benefits were reported in the trial participants including slowing of disease progression, increased mobility and biomarker changes.

The reported benefits decreased 3-4 weeks after the last dosage with disease measurements returning to pre-trial levels by week 7.

A Phase 2 trial has recently commenced in Norway which will be recruiting 116 participants for a 12-month trial. The study is currently recruiting with results expected end of 2028.

Summary

The SAC believes this pilot clinical study appears to demonstrate safety and tolerability of ILB in people with ALS/MND. The exploratory biomarker and functional measures must be cautiously interpreted due to small study numbers and the open-label nature of the trial. We look forward to the outcomes from the larger, randomised, placebo-controlled trial that has recently commenced to confirm any suggested clinical benefit seen in this small pilot trial.

International Alliance of ALS/MND Associations
April 2026


Disclaimer: Consult with a healthcare professional to determine if you could potentially participate in a ILB clinical trial. Always disclose your medical history, including any drugs, natural supplements, or herbal medicines currently being used.

The original language of communication is English and any translation cannot be guaranteed for accuracy of messaging.

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Drugs in Development

  • AB Science – Masitinib
  • NurOwn
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  • ILB
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  • Neuronata-R / Lenzumestrocel
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  • SOD1 Therapies & Trials
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  • Purningam Jacob, India

    Purningam Jacob, India

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Brian Lovell, Australia

    Brian Lovell, Australia

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    Olga, Argentina

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    Dick Dayton, USA

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

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    Kirsty Gerlach, New Zealand

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    Chirag Walia, India
    ChiragWalia

  • Andres Estevez Guersznik, Ireland

    Andres Estevez Guersznik, Ireland

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    Horacio Fritzer, Argentina

  • Tso-Ta Huang, Taiwan

    Tso-Ta Huang, Taiwan

  • Michael Lee, Australia

    Michael Lee, Australia

  • Roxana Canova, Argentina

    Roxana Canova, Argentina

  • Mike Rannie, Canada

    Mike Rannie, Canada

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Susan Keldani, USA

    Susan Keldani, USA

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Animesh Kumar, India

    Animesh Kumar, India

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Lee Millard, England

    Lee Millard, England

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Rosie Riley, USA

    Rosie Riley, USA

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • H. Todd Kelly, USA

    H. Todd Kelly, USA

  • Anna Barrow, UK

    Anna Barrow, UK

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Jo Knowlton, Scotland

    Jo Knowlton, Scotland

  • Hans Dieter Olszewski, Germany

    Hans Dieter Olszewski, Germany

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Denis Blais, Canada

    Denis Blais, Canada

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Carlos Gomez Matallanas, Spain

    Carlos Gomez Matallanas, Spain

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Sharon Corosanite, USA

    Sharon Corosanite, USA

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • JP

    JP

  • Jason Goodman, USA

    Jason Goodman, USA

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

Learn more about the March of Faces

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