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International Alliance of ALS/MND Associations

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Councils, Forums & Committees

Our Advisory Councils, Forums, and Committees bring together people with lived experience, researchers, clinicians, and leaders from member organizations around the world.

These volunteer groups provide expertise, strategic advice, and oversight that help shape the Alliance’s programs, priorities, and governance. Together, they strengthen global collaboration and support better outcomes for people affected by ALS/MND.

PALS and CALS Advisory Council

Scientific Advisory Council

Advocacy and Public Policy Forum

Research Directors Forum

Governance Committee

Finance Committee

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About

  • Who We Are
  • Board of Trustees
  • Councils, Forums & Committees
    • PALS and CALS Advisory Council
    • Scientific Advisory Council
    • Advocacy and Public Policy Forum
    • Research Directors Forum
    • Governance Committee
    • Finance Committee
  • Staff
  • History
  • Newsletter Archive
    • Newsletters
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  • Alex, Argentina

    Alex, Argentina

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Chen Chun-Chin, Malaysia

    Chen Chun-Chin, Malaysia

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Duncan Bayly, Australia

    Duncan Bayly, Australia

  • Fabio Carvalho, Brazil

    Fabio Carvalho, Brazil

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Shay Rishoni, Netherlands

    Shay Rishoni, Netherlands

  • Mark Miller, UK

    Mark Miller, UK

  • Liz Ogg, Scotland

    Liz Ogg, Scotland

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Greg Heydet, USA

    Greg Heydet, USA

  • Graham Johnson, Australia

    Graham Johnson, Australia

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Michael Lee, Australia

    Michael Lee, Australia

  • Claudia Cominetti, Italy

    Claudia Cominetti, Italy

  • Orly Dichoso, Canada

    Orly Dichoso, Canada

  • Oliver Juenke, Germany

    Oliver Juenke, Germany

  • Philip Brindle, England

    Philip Brindle, England

  • Mike Cels, Canada

    Mike Cels, Canada

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Glen Victor Peters, Australia

    Glen Victor Peters, Australia

  • Armando González Gómez, Colombia

    Armando González Gómez, Colombia

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • David Hall, USA

    David Hall, USA

  • Jean Waters, UK

    Jean Waters, UK

  • David Solomon, UK

    David Solomon, UK

  • Fayette Underwood, USA

    Fayette Underwood, USA

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Timmy, Belgium

    Timmy, Belgium

  • Glen Elison, USA

    Glen Elison, USA

  • Margreth Burger-Saile, Switzerland

    Margreth Burger-Saile, Switzerland

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Christian Bär, Germany

    Christian Bär, Germany

  • Dr. Shelly Hoover, USA

    Dr. Shelly Hoover, USA

  • Jack Buzby, USA

    Jack Buzby, USA

  • Maria Santos Garcia Tellez, Mexico

    Maria Santos Garcia Tellez, Mexico

  • Joy Blakeley, Australia

    Joy Blakeley, Australia

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Conny van der Meijden, Netherlands

    Conny van der Meijden, Netherlands

Learn more about the March of Faces

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