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International Alliance of ALS/MND Associations

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  • Support for PALS & CALS
    • Fundamental Rights of People with ALS/MND and Caregivers
    • Research
      • Open Science
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
      • Open Label Extension
    • Advocacy
      • Advocacy Toolkit
    • Clinical Care
      • Genetic Counselling & Testing
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      • Nursing and Symptom Management
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      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
    • Drugs in Development
      • AB Science – Masitinib
      • Amylyx – AMX0035
      • Biogen – Tofersen
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • Collaborative Medicinal Development – CuATSM
      • Cytokinetics – Reldesemtiv
      • Kadimastem – AstroRx
      • Mitsubishi Tanabe Pharma America – Oral Edaravone
      • Orphazyme – Arimoclomol
      • T Regulatory Cell Therapies
    • Approved Drugs
      • Radicava/Edaravone
      • Neudexta
      • Riluzole/Tiglutik
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Support for PALS & CALS

Select one of the pages below for more information on Support for PALS and CALS.

Advocacy


Information and resources on how you can engage in advocacy in the ALS/MND community.

Fundamental Rights of People with ALS/MND and Caregivers


The Alliance’s document on Rights of People Living with ALS/MND.

Research


Information and resources on research.

Clinical Care


Learn about the various multidisciplinary professional teams that can help people living with ALS/MND and their caregivers.

Approved Drugs


Find out more about the drugs approved to treat ALS/MND.

Drugs in Development


Find out more about what drugs are currently in clinical trial around the world.

Subscribe to our Bi-Monthly Newsletter

Fill out the form below to subscribe to the Alliance’s bi-monthly newsletter, packed with updates from members associations from around the world!

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