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International Alliance of ALS/MND Associations

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Nursing and Symptom Management

Click on the icon below to visit our playlist of videos related to Nursing and Symptom Management.

The following are resources from Members of the International Alliance of ALS/MND Associations on the topic of Nursing and Symptom Management.

Information for Professionals

This page has information for health and social care professionals who provide care and support for people with motor neurone disease (MND) in the United Kingdom.

https://www.mndassociation.org/forprofessionals/

Language: English
Subject areas: For Clinicians

MND Care

Welcome to MNDcare – the MND Australia evidence based and best practice website for health, disability, aged and community care professionals – getting motor neurone disease care research into practice.

http://www.mndcare.net.au/Home.aspx

Language: English
Subject areas: Care and Support Guides and Manuals, For Clinicians, Navigating Healthcare Systems

Medical Information and Materials

These pages have been developed as communication and educational tools to help inform medical providers as well as provide pertinent insurance and family information. They may be used as a packet or as individual pages, based on individual preference and need. The electronic versions of these pages have been built as a form with fillable fields. Individuals can type their information within the pdf and save and/or print when complete.

http://www.alsa.org/als-care/resources/publications-videos/medical-information-packet/

Language: English
Subject areas: For Clinicians

Living with MND

This page explores how to manage daily living with MND. The challenges can feel overwhelming, but support and planning ahead can help you maintain the best possible quality of life. Categories include: Mobility and personal care; Speech and communication; Swallowing, eating and drinking; Relationships and family; Emotions, thinking and behavior; and Breathing and ventilation.

https://www.mndassociation.org/about-mnd/living-with-mnd/

Language: English
Subject areas: Care and Support Guides and Manuals, Equipment, Communications and Assistive Technology, For Families and Caregivers

Living with ALS Resource Guides

The ALS Association’s Living with ALS Resource Guides were created because of the rapidly expanding information and research in the clinical management of ALS. These cornerstone educational materials were designed to inform and educate people about ALS in a comprehensive and easily understood format. They address many of the common concerns and issues that face people living with ALS.

http://www.alsa.org/als-care/resources/publications-videos/resource-guides/

Language: English
Subject areas: Care and Support Guides and Manuals, For Families and Caregivers, Navigating Healthcare Systems

Leben mit ALS

Leben mit ALS:

Atmung
Ernährung
Kommunikation
Therapie
Häusliche Pflege
Stationäre Aufenthalte
Mobilität & Reisen
Hilfsmittel & WohnberatungElektronische Hilfsmittel
Wohnberatung
Technische Hilfsmittel
Unser Hilfsmitteldepot
MyCareHelper
Bekleidung
Finanzielle Unterstützung
Patientenverfügung
Testament

http://www.als-schweiz.ch/de/leben_mit_als/

Language: German
Subject areas: Care and Support Guides and Manuals, For Families and Caregivers

Primary Sidebar

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

  • Angie Bordaen, Diagnosed 2014 - ALS Liga België, Belgium

    Angie Bordaen, Diagnosed 2014 – ALS Liga België, Belgium

  • Christian Bär, Germany

    Christian Bär, Germany

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Brian Lovell, Diagnosed 2011 - MND Australia

    Brian Lovell, Diagnosed 2011 – MND Australia

  • Philip Brindle, MND Association, Diagnosed 2015, England

    Philip Brindle, MND Association, Diagnosed 2015, England

  • Denis Blais, Diagnosed 2015 - ALS Canada

    Denis Blais, Diagnosed 2015 – ALS Canada

  • Peng Yi-Wen

    Peng Yi-Wen

  • Steven Spencer, Diagnosed 2014 - MND New Zealand

    Steven Spencer, Diagnosed 2014 – MND New Zealand

  • Mary Thomas, Diagnosed 2013 - MND Australia

    Mary Thomas, Diagnosed 2013 – MND Australia

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Chen Chun-Chin

    Chen Chun-Chin

  • Dorette Lüdi, Diagnosed 2014 - ALS Schweiz, Switzerland

    Dorette Lüdi, Diagnosed 2014 – ALS Schweiz, Switzerland

  • Art Eggert, USA

    Art Eggert, USA

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Duncan Bayly - MND Australia

    Duncan Bayly – MND Australia

  • Daniel Hare

    Daniel Hare

  • Rolf Mauch, Association ALS Switzerland, Diagnosed 2015, Switzerland

    Rolf Mauch, Association ALS Switzerland, Diagnosed 2015, Switzerland

  • Fabio Carvalho

    Fabio Carvalho

  • Margreth Burger-Saile, Diagnosed 2011 - ALS Schweiz, Switzerland

    Margreth Burger-Saile, Diagnosed 2011 – ALS Schweiz, Switzerland

  • Ali Var, Turkey

    Ali Var, Turkey

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Ann Nicol

    Ann Nicol

  • Orlando Ruiz, Diagnosed 2001 - ACELA, Colombia

    Orlando Ruiz, Diagnosed 2001 – ACELA, Colombia

  • Francisco Perez Palop, Diagnosed 2013 - FUNDELA, Spain

    Francisco Perez Palop, Diagnosed 2013 – FUNDELA, Spain

  • Shay Rishoni, Diagnosed 2011 - Prize4Life, Israel

    Shay Rishoni, Diagnosed 2011 – Prize4Life, Israel

  • Joanne Pratt, Diagnosed 2011 - MND Australia

    Joanne Pratt, Diagnosed 2011 – MND Australia

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • David Watson, MND Scotland, Diagnosed 2018, Scotland

    David Watson, MND Scotland, Diagnosed 2018, Scotland

  • Cath Muir

    Cath Muir
    Cath

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • England-Lee-Millard, UK

    England-Lee-Millard, UK

  • Josée Kolijn-de Man, Diagnosed 2015 - ALS Patients Connected, The Netherlands

    Josée Kolijn-de Man, Diagnosed 2015 – ALS Patients Connected, The Netherlands

  • Danny Reviers, Diagnosed 1979 - ALS Liga België, Belgium

    Danny Reviers, Diagnosed 1979 – ALS Liga België, Belgium

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Mike Rannie, ALS Canada, Diagnosed 2017, Canada

    Mike Rannie, ALS Canada, Diagnosed 2017, Canada

  • Ian Roberts

    Ian Roberts

  • Phil Rossall, MND-Association, UK

    Phil Rossall, MND-Association, UK

  • Roy

    Roy
    roy

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Inta Grubb, Diagnosed 2014 - MND Australia

    Inta Grubb, Diagnosed 2014 – MND Australia

  • Maurice LeClerc, ALS Canada

    Maurice LeClerc, ALS Canada

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Susan Anderson, Diagnosed 2014 - Hope Loves Company, USA

    Susan Anderson, Diagnosed 2014 – Hope Loves Company, USA

  • Roxana Canova, Diagnosed 2012 - Asociación ELA Argentina

    Roxana Canova, Diagnosed 2012 – Asociación ELA Argentina

  • Ailsa Malcolm-Hutton, Diagnosed 2013 - MND Association of England, Wales and N Ireland

    Ailsa Malcolm-Hutton, Diagnosed 2013 – MND Association of England, Wales and N Ireland

  • Kirsten Harley, Diagnosed 2013 - Australia

    Kirsten Harley, Diagnosed 2013 – Australia

Learn more about the March of Faces

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