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International Alliance of ALS/MND Associations

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    • Fundamental Rights for People with ALS/MND and Caregivers
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      • Amylyx – AMX0035
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Nursing and Symptom Management

Click on the icon below to visit our playlist of videos related to Nursing and Symptom Management.

The following are resources from Members of the International Alliance of ALS/MND Associations on the topic of Nursing and Symptom Management.

Information for Professionals

This page has information for health and social care professionals who provide care and support for people with motor neurone disease (MND) in the United Kingdom.

https://www.mndassociation.org/forprofessionals/

Language: English
Subject areas: For Clinicians

MND Care

Welcome to MNDcare – the MND Australia evidence based and best practice website for health, disability, aged and community care professionals – getting motor neurone disease care research into practice.

http://www.mndcare.net.au/Home.aspx

Language: English
Subject areas: Care and Support Guides and Manuals, For Clinicians, Navigating Healthcare Systems

Medical Information and Materials

These pages have been developed as communication and educational tools to help inform medical providers as well as provide pertinent insurance and family information. They may be used as a packet or as individual pages, based on individual preference and need. The electronic versions of these pages have been built as a form with fillable fields. Individuals can type their information within the pdf and save and/or print when complete.

http://www.alsa.org/als-care/resources/publications-videos/medical-information-packet/

Language: English
Subject areas: For Clinicians

Living with MND

This page explores how to manage daily living with MND. The challenges can feel overwhelming, but support and planning ahead can help you maintain the best possible quality of life. Categories include: Mobility and personal care; Speech and communication; Swallowing, eating and drinking; Relationships and family; Emotions, thinking and behavior; and Breathing and ventilation.

https://www.mndassociation.org/about-mnd/living-with-mnd/

Language: English
Subject areas: Care and Support Guides and Manuals, Equipment, Communications and Assistive Technology, For Families and Caregivers

Living with ALS Resource Guides

The ALS Association’s Living with ALS Resource Guides were created because of the rapidly expanding information and research in the clinical management of ALS. These cornerstone educational materials were designed to inform and educate people about ALS in a comprehensive and easily understood format. They address many of the common concerns and issues that face people living with ALS.

http://www.alsa.org/als-care/resources/publications-videos/resource-guides/

Language: English
Subject areas: Care and Support Guides and Manuals, For Families and Caregivers, Navigating Healthcare Systems

Leben mit ALS

Leben mit ALS:

Atmung
Ernährung
Kommunikation
Therapie
Häusliche Pflege
Stationäre Aufenthalte
Mobilität & Reisen
Hilfsmittel & WohnberatungElektronische Hilfsmittel
Wohnberatung
Technische Hilfsmittel
Unser Hilfsmitteldepot
MyCareHelper
Bekleidung
Finanzielle Unterstützung
Patientenverfügung
Testament

http://www.als-schweiz.ch/de/leben_mit_als/

Language: German
Subject areas: Care and Support Guides and Manuals, For Families and Caregivers

Primary Sidebar

Care services

  • Genetic Counselling & Testing
  • Mental Health Support
  • Nursing and Symptom Management
  • Nutrition and Swallowing
  • Occupational Therapy and Activities of Daily Living
  • Physiotherapy and Mobility
  • Respiratory Care
  • Speech Therapy and Communication
  • Support for Family & Caregivers
  • Technology

  • Denis Blais, Diagnosed 2015 , ALS Canada

    Denis Blais, Diagnosed 2015 , ALS Canada

  • Emilienne Verhaegen, ALS Liga Belgium, Diagnosed 2014

    Emilienne Verhaegen, ALS Liga Belgium, Diagnosed 2014

  • Olga Cosentino, Diagnosed 2013,  Asociación ELA Argentina

    Olga Cosentino, Diagnosed 2013, Asociación ELA Argentina

  • Cath Muir

    Cath Muir
    Cath

  • Tammy Moore and Eddy Lefrancois

    Tammy Moore and Eddy Lefrancois

  • Oliver Juenke, DGM, Germany

    Oliver Juenke, DGM, Germany

  • Shay Rishoni

    Shay Rishoni

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Angela Jansen, Deutsche Gesellschaft für Muskelkranke e.V.-DGM, Diagnosed 1995, Germany

    Angela Jansen, Deutsche Gesellschaft für Muskelkranke e.V.-DGM, Diagnosed 1995, Germany

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Mary Thomas, Diagnosed 2013 , MND Australia

    Mary Thomas, Diagnosed 2013 , MND Australia

  • IMG_2658

    IMG_2658

  • Jon Newsome, USA

    Jon Newsome, USA

  • Steve Gallagher, ALS Society of Canada

    Steve Gallagher, ALS Society of Canada
    Picture1

  • Ian and Teresa Roberts

    Ian and Teresa Roberts

  • Zelina Brito, Diagnosed 2018, Brazil

    Zelina Brito, Diagnosed 2018, Brazil

  • March of Faces Photo Submission_ALEX_ELA ARGENTINA

    March of Faces Photo Submission_ALEX_ELA ARGENTINA

  • Nicholas (Nic) Bowman, MND Association of South Africa,  Diagnosed 2016,  Australia

    Nicholas (Nic) Bowman, MND Association of South Africa, Diagnosed 2016, Australia

  • Verónica Isabel Castro Molina, Diagnosed 2014, Argentina

    Verónica Isabel Castro Molina, Diagnosed 2014, Argentina

  • Feng Gin Sun, Diagnosed 2014 , Shaanxi ALS Association, China

    Feng Gin Sun, Diagnosed 2014 , Shaanxi ALS Association, China

  • David Solomon, Diagnosed 2015, MND Association of England, Wales and N Ireland

    David Solomon, Diagnosed 2015, MND Association of England, Wales and N Ireland

  • Antonio Ventriglia,  ALS Liga Belgium,  Diagnosed 2013

    Antonio Ventriglia, ALS Liga Belgium, Diagnosed 2013

  • Margarita Pizarro, Asociacion ELA Argentina, Diagnosed 2017, Argentina

    Margarita Pizarro, Asociacion ELA Argentina, Diagnosed 2017, Argentina

  • Tison, USA

    Tison, USA

  • Ali Var, Turkey

    Ali Var, Turkey

  • MNDaSG Group PALS & CALS, Motor Neurone Disease Association, Singapore (MNDaSG)

    MNDaSG Group PALS & CALS, Motor Neurone Disease Association, Singapore (MNDaSG)

  • Kirsty Gerlach, MND New Zealand, Diagnosed 2017

    Kirsty Gerlach, MND New Zealand, Diagnosed 2017

  • Wendy Hendrickson, ALS Hope Foundation, USA

    Wendy Hendrickson, ALS Hope Foundation, USA

  • Kris Van Reusel, Belgium

    Kris Van Reusel, Belgium

  • Guido De Mets, Belgium

    Guido De Mets, Belgium

  • Angie Bordaen, Diagnosed 2014,  ALS Liga België, Belgium

    Angie Bordaen, Diagnosed 2014, ALS Liga België, Belgium

  • Orlando Ruiz, Diagnosed 2001,  ACELA, Colombia

    Orlando Ruiz, Diagnosed 2001, ACELA, Colombia

  • Hollister

    Hollister
    hollister

  • Richard Clark, MND New Zealand,  Diagnosed 2011

    Richard Clark, MND New Zealand, Diagnosed 2011

  • Marcel R. Wernard, Diagnosed 2016,  ALS Patients Connected,  The Netherlands

    Marcel R. Wernard, Diagnosed 2016, ALS Patients Connected, The Netherlands

  • unnamed

    unnamed

  • Mauril Bélanger, Diagnosed 2015 , ALS Canada

    Mauril Bélanger, Diagnosed 2015 , ALS Canada

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Dick Dayton, USA

    Dick Dayton, USA

  • Jason Goodman, Les Turner ALS Foundation, USA

    Jason Goodman, Les Turner ALS Foundation, USA

  • Soledad Rodriguez, FUNDELA, Diagnosed 2013, Spain

    Soledad Rodriguez, FUNDELA, Diagnosed 2013, Spain

  • Lucy Lintott, Diagnosed 2013 , MND Scotland, UK

    Lucy Lintott, Diagnosed 2013 , MND Scotland, UK

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Frank "Papa" Taylor

    Frank “Papa” Taylor

  • Calum Ferguson, Diagnosed 2010 , MND Scotland, UK

    Calum Ferguson, Diagnosed 2010 , MND Scotland, UK

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Graham Johnson, MND Australia

    Graham Johnson, MND Australia

  • Sally Pauls, Diagnosed 2006 , Les Turner ALS Foundation

    Sally Pauls, Diagnosed 2006 , Les Turner ALS Foundation

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