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International Alliance of ALS/MND Associations

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Emergency Preparedness Toolkit

Best Member Engagement Initiative for 2025: Emergency Preparedness Toolkit

Why Did We Create This Toolkit?

We live in a world that requires us to be prepared for emergencies. Whether it’s an earthquake, living in a conflict zone, natural disasters, power outages, or other unforeseen circumstances, these are difficult situations for people living with ALS/MND and their families.

Everyone’s situation is different, and it is important to plan and be prepared, taking into account your own needs. That’s why we have prepared this toolkit, which includes forms and videos. It will help people living with ALS/MND and their caregivers be ready in the event of an emergency.

Emergency Preparedness Forms

The unique needs of a person living with ALS/MND are important to consider on any given day, and even more so in the event of an emergency. These forms will help people living with ALS/MND and their caregivers outline what is required.

We recommend completing the forms below, having printed versions available, and sharing them with your support network. Also remember to review and update your forms once or twice per year.

Fillable PDF

  • Checklist
  • Medical Emergency Card
  • Emergency Telephone List
  • Medical Summary
  • Medicine Chart
  • Personal Support Network
  • Emergency Supplies Checklist
  • Personal Assessment
  • Disability-related Supplies and Special Equipment

Static PDF

  • Checklist
  • Medical Emergency Card
  • Emergency Telephone List
  • Medical Summary
  • Medicine Chart
  • Personal Support Network
  • Emergency Supplies Checklist
  • Personal Assessment
  • Disability-related Supplies and Special Equipment

Emergency Preparedness Videos

These four videos also provide important information to help make a plan and be prepared.

Understanding Hazards & Disasters

International Human Disasters 

Association & PALS Perspective: First 24 hours / First week 

Emergency Expert: Potential Hazard and Risks, Supply Chain and Infrastructure, Business Continuity, Trauma of Being Involved in Emergency Events 

 

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    Olga Cosentino, Argentina

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    Ian Gale, Australia

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    Magdalena Ayala Rodríguez, Mexico

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Sébastien Batiot, France

    Sébastien Batiot, France

  • Rob Tison, USA

    Rob Tison, USA

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    Ywan Dierick, Belgium

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Mauricio Dorin, Argentina

    Mauricio Dorin, Argentina

  • Rolf Mauch, Switzerland

    Rolf Mauch, Switzerland

  • Dr. Janmejay Pradhan, India

    Dr. Janmejay Pradhan, India

  • Mauril Bélanger, Canada

    Mauril Bélanger, Canada

  • John Dinon, Australia

    John Dinon, Australia

  • Danny Reviers, Belgium

    Danny Reviers, Belgium
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  • Liong Ting Ngu, Malaysia

    Liong Ting Ngu, Malaysia

  • Danny Reviers, Belgium

    Danny Reviers, Belgium

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • João Marcos Andrietta, Brazil

    João Marcos Andrietta, Brazil

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Brian Parsons, Canada

    Brian Parsons, Canada

  • Christian Bär, Germany

    Christian Bär, Germany

  • Mark Miller, UK

    Mark Miller, UK

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Maurice Leclerc, Canada

    Maurice Leclerc, Canada

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Jean

    Jean
    jean

  • Steve Lufkin, USA

    Steve Lufkin, USA
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  • Anderson Custodio Pinto, Brazil

    Anderson Custodio Pinto, Brazil

  • John Russo, USA

    John Russo, USA
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  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Sam Hayden-Harler, UK

    Sam Hayden-Harler, UK

  • Malu Araujo Ribeiro, Brazil

    Malu Araujo Ribeiro, Brazil

  • Daniela Maria Daverio, Argentina

    Daniela Maria Daverio, Argentina

  • Lachlan Terry, Australia

    Lachlan Terry, Australia

  • Jack Buzby, USA

    Jack Buzby, USA

  • Elkin Gaviria, Colombia

    Elkin Gaviria, Colombia

  • Jorge Melo, Brazil

    Jorge Melo, Brazil

  • Lombana, Spain

    Lombana, Spain

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Rosie Riley, USA

    Rosie Riley, USA

  • Torben Mikkelsen, Denmark

    Torben Mikkelsen, Denmark

  • Jose Rivero Muñoz, Mexico

    Jose Rivero Muñoz, Mexico

  • Fernando Ocampo Cardona, Colombia

    Fernando Ocampo Cardona, Colombia

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Steve

    Steve

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Semra Gokalp, Turkey

    Semra Gokalp, Turkey

  • Jose Espinosa, Argentina

    Jose Espinosa, Argentina

Learn more about the March of Faces

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