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International Alliance of ALS/MND Associations

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Emergency Preparedness Toolkit

Best Member Engagement Initiative for 2025: Emergency Preparedness Toolkit

Why Did We Create This Toolkit?

We live in a world that requires us to be prepared for emergencies. Whether it’s an earthquake, living in a conflict zone, natural disasters, power outages, or other unforeseen circumstances, these are difficult situations for people living with ALS/MND and their families.

Everyone’s situation is different, and it is important to plan and be prepared, taking into account your own needs. That’s why we have prepared this toolkit, which includes forms and videos. It will help people living with ALS/MND and their caregivers be ready in the event of an emergency.

Emergency Preparedness Forms

The unique needs of a person living with ALS/MND are important to consider on any given day, and even more so in the event of an emergency. These forms will help people living with ALS/MND and their caregivers outline what is required.

We recommend completing the forms below, having printed versions available, and sharing them with your support network. Also remember to review and update your forms once or twice per year.

Fillable PDF

  • Checklist
  • Medical Emergency Card
  • Emergency Telephone List
  • Medical Summary
  • Medicine Chart
  • Personal Support Network
  • Emergency Supplies Checklist
  • Personal Assessment
  • Disability-related Supplies and Special Equipment

Static PDF

  • Checklist
  • Medical Emergency Card
  • Emergency Telephone List
  • Medical Summary
  • Medicine Chart
  • Personal Support Network
  • Emergency Supplies Checklist
  • Personal Assessment
  • Disability-related Supplies and Special Equipment

Emergency Preparedness Videos

These four videos also provide important information to help make a plan and be prepared.

Understanding Hazards & Disasters

International Human Disasters 

Association & PALS Perspective: First 24 hours / First week 

Emergency Expert: Potential Hazard and Risks, Supply Chain and Infrastructure, Business Continuity, Trauma of Being Involved in Emergency Events 

 

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  • Nicholas (Nic) Bowman, South Africa

    Nicholas (Nic) Bowman, South Africa

  • Federica Mastrosimone, Italy

    Federica Mastrosimone, Italy

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Mirca Bersani, Italy

    Mirca Bersani, Italy
    MircaBersani

  • Magdalena Ayala Rodríguez, Mexico

    Magdalena Ayala Rodríguez, Mexico

  • Manuel Arn, Switzerland

    Manuel Arn, Switzerland

  • Xian-Zhang Niu, China

    Xian-Zhang Niu, China

  • Kirsty Gerlach, New Zealand

    Kirsty Gerlach, New Zealand

  • Ali Var, Turkey

    Ali Var, Turkey

  • Rudiger Hanemann, Germany

    Rudiger Hanemann, Germany

  • Barry de Reuver, Netherlands

    Barry de Reuver, Netherlands

  • Carlos Alberto Báez Murillo, Colombia

    Carlos Alberto Báez Murillo, Colombia

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Bruno Leanza Mantegna, Italy

    Bruno Leanza Mantegna, Italy

  • Bjarne Hytjanstorp, Norway

    Bjarne Hytjanstorp, Norway

  • Camilla Heiberg Freiberg, Denmark

    Camilla Heiberg Freiberg, Denmark

  • Yessenia Hernandez Mendoza, Mexico

    Yessenia Hernandez Mendoza, Mexico

  • Enzo Maccarrone, Italy

    Enzo Maccarrone, Italy

  • Ian Gale, Australia

    Ian Gale, Australia

  • Alfredo Santos, Colombia

    Alfredo Santos, Colombia

  • Ali Var, Turkey

    Ali Var, Turkey

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Dick Dayton, USA

    Dick Dayton, USA

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Calum Ferguson, Scotland

    Calum Ferguson, Scotland

  • Andrea Zicchieri, Italy

    Andrea Zicchieri, Italy
    AndreaZicchieri_conSLAncioItaly

  • Jorge Luis Fernández Romero, Mexico

    Jorge Luis Fernández Romero, Mexico

  • Jason Goodman, USA

    Jason Goodman, USA

  • Andrew Langat, Kenya

    Andrew Langat, Kenya

  • Horacio Fritzer, Argentina

    Horacio Fritzer, Argentina

  • Laurie Petit-Jean, France

    Laurie Petit-Jean, France

  • Vincent Bourque, Canada

    Vincent Bourque, Canada
    vincent_bourque

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Lee Millard, England

    Lee Millard, England

  • Soledad Rodriguez, Spain

    Soledad Rodriguez, Spain

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Peng Yi-Wen, Taiwan

    Peng Yi-Wen, Taiwan

  • Irene McCaughey, Australia

    Irene McCaughey, Australia

  • Steven Spencer, New Zealand

    Steven Spencer, New Zealand

  • Amparo Muriel Engativa, Colombia

    Amparo Muriel Engativa, Colombia

  • Lucy Lintott, Scotland

    Lucy Lintott, Scotland

  • Animesh Kumar, India

    Animesh Kumar, India

  • Ana Lilia Rodriguez, Mexico

    Ana Lilia Rodriguez, Mexico

  • Maurice LeClerc, Canada

    Maurice LeClerc, Canada

  • Emilienne Verhaegen, Belgium

    Emilienne Verhaegen, Belgium

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Ismail Gokcek, Turkey

    Ismail Gokcek, Turkey
    ismail_gokcek_alsmnd_tr

  • Steve Gallagher, Canada

    Steve Gallagher, Canada
    Picture1

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

Learn more about the March of Faces

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