Be Prepared for an Emergency
Emergencies can be especially difficult for people living with ALS/MND and their families. Natural disasters such as earthquakes and floods, power outages, conflict, and other unexpected events can disrupt access to equipment, medication, communication, transportation, and support.
Every situation is different. This toolkit helps people living with ALS/MND and their caregivers think through their individual needs, record important information, and make a plan before an emergency happens.
Emergency Preparedness Forms
Daily care needs can become much harder to meet during an emergency. These forms help you record what you need, so the people supporting you can act quickly.
Start with the Emergency Preparedness Checklist, then complete the forms that apply to you. Keep printed copies somewhere easy to reach, share them with people in your support network, and review them once or twice a year to keep the information current.
Each form is available as a fillable PDF you can complete on your computer, or as a print version you can fill in by hand. To use a fillable form, download it and open it in a free PDF reader, such as Adobe Acrobat Reader, so your information saves correctly.
Plan and Prepare
Emergency Preparedness Checklist
Fillable PDF Print version
Personal Assessment
Fillable PDF Print version
Emergency Supplies Checklist
Fillable PDF Print version
Disability-Related Supplies and Special Equipment
Fillable PDF Print version
Medical Information
Medical Emergency Card
Fillable PDF Print version
Medical Summary
Fillable PDF Print version
Medicine Chart
Fillable PDF Print version
Additional medical information resource
Medical Information Packet
The ALS Association · English
A set of fillable forms to help people living with ALS record and share important medical information with health care providers, insurers, and emergency personnel. The forms can be completed, saved, and printed, and used together or individually.
Contacts and Support
Emergency Telephone List
Fillable PDF Print version
Personal Support Network
Fillable PDF Print version
Prefer everything in one document?
Download the complete toolkit, including all emergency preparedness forms.
Emergency Preparedness Videos
These videos provide more guidance on understanding potential emergencies, preparing for the first hours and days, and planning for the particular needs of people living with ALS/MND. Some are intended for ALS/MND associations planning how to support their communities. Others focus on individuals and families.
Understanding Hazards and Disasters
Learn how different types of hazards and disasters can affect people living with ALS/MND, and what to consider when making your plan.
Emergencies Caused by Conflict and Other Human Events
Learn what to consider when conflict or other human-caused events disrupt daily life and care.
Perspectives from Associations and People Living with ALS/MND: The First 24 Hours and First Week
Associations and people living with ALS/MND share what to consider during the first hours and days of an emergency.
Preparing for Hazards, Disruptions, and Emergencies
An emergency preparedness expert discusses potential hazards and risks, disruptions to supply chains and infrastructure, business continuity, and the emotional impact of living through an emergency.
Get Support
Your local ALS/MND association can help you plan for emergencies in your area. Find an association near you.
