October 2026 | Virtual
The Alliance Academy is an online learning program for people affected by ALS/MND who want to better understand research and take part in advocacy. It’s designed to empower participants to read, discuss, and share scientific information, ultimately helping shape the future of ALS/MND research.
Applications
Whether you’re living with ALS/MND, a caregiver, or have a family connection to the disease, we invite you to apply.
The application period for 2026 is not yet open. Check back for more information.
About the Program
The Alliance Academy is a virtual program for people impacted by ALS/MND worldwide who want to expand their understanding of ALS/MND research and engage more deeply in advocacy and research initiatives. It is modelled on the successful NEALS Clinical Research Learning Institute, which also served as an inspiration for national initiatives in Canada and Australia.
The program includes:
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Sessions led by an international faculty of clinicians and researchers on ALS/MND research and clinical trials
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Group discussions and peer learning
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Training on how to read and talk about scientific papers
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Conversations about research ethics, informed consent, and how to advocate for better research
Program Details
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When: October 2026
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Where: Online via Zoom
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Time: Sessions are mostly held in the morning (Eastern Time), with some evening sessions. You’ll also get recordings if you can’t attend live.
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Language: English (Translation captions may be offered, depending on demand.)
Who Should Apply?
When people affected by ALS/MND are included in research conversations, it leads to better understanding, stronger advocacy, and more meaningful research. You are invited to apply if you have a personal connection to ALS/MND.
To participate, you need a device with internet and a webcam, have time to attend most sessions live or watch recordings, and a willingness to learn and contribute to discussions.
Each applicant must submit a separate application. (Note: Caregivers do not need to submit a separate form if the person living with ALS/MND who they support is applying.)
If you’re selected to join the Alliance Academy, we ask that you review program materials and come prepared to each session, share what you learn with your community, and embrace your role as a Global ALS/MND Research Ambassador once the program is complete.