The Alliance Fellows program (formerly named Global Research Ambassadors) is a virtual learning and engagement program for people impacted by ALS/MND worldwide who want to deepen their understanding of ALS/MND research, treatment development, and advocacy. Using a blended learning model that combines self-directed online content with interactive live sessions, the program helps participants build the knowledge and confidence needed to engage more meaningfully in research and advocacy conversations within the global ALS/MND community.
The program is designed to improve health literacy, strengthen global connections, and ensure that lived experience remains part of the future of ALS/MND research.
2026 Program Details
- Delivery: Fully virtual, using Zoom and an online learning platform.
- Duration: Four-week program delivered between September 21 and October 23 (dates tentative)
- Structure: A blended learning approach combining self-paced learning and live interactive sessions
- Pre-session learning: Approximately 1.5 hours of individual online learning and preparation before each live session
- Live sessions: Nine 90-minute engaging and interactive live sessions, delivered across the four-week program. Session times will vary across time zones to support global participation and inclusivity. Sessions may be scheduled at different times throughout the day to accommodate participants from multiple regions. Recordings will also be available for those unable to attend live.
- Learning experience: Participants will engage with expert faculty and peers through discussions, practical exercises, case studies, and collaborative activities designed to build knowledge, skills, and confidence.
Who Can Apply
You are encouraged to apply if you are:
- Living with ALS/MND
- A current or former caregiver
- An ALS/MND gene carrier without a diagnosis
- A family member
- Another member of the ALS/MND community with a strong interest in research and advocacy
Each applicant must submit a separate application.
Applications for the 2026 Alliance Fellows Program are now closed. Thank you to everyone who applied.
Why the Program Matters
The program supports people affected by ALS/MND in building a stronger understanding of ALS/MND research and treatment development, clinical trials, scientific communication, research ethics, informed consent, and the important role lived experience plays in shaping research and advocacy.
Participants leave the program with:
- A stronger understanding of ALS/MND research and treatment development
- Greater confidence discussing scientific developments
- Practical tools for advocacy and community engagement
- Connections with researchers, clinicians, and peers from around the world
- Recognition as an Alliance Fellow
Participants who complete the program receive a certificate of completion, an Alliance Fellow social media badge, recognition through Alliance communications, and opportunities to continue engaging through the Global ALS/MND Experience Network (GAMEN).
One of the program’s greatest strengths is the global community it creates — connecting people affected by ALS/MND across countries, experiences, and perspectives.
Who Should Apply?
When people affected by ALS/MND are included in research conversations, it leads to stronger advocacy, better understanding of community priorities, and more meaningful research outcomes.
You may be a strong fit for the program if you:
- Have a personal connection to ALS/MND
- Want to better understand ALS/MND research and treatment development
- Are interested in advocacy or research engagement
- Are willing to actively participate in discussions and learning activities
- Want to connect with others in the global ALS/MND community
To participate, you will need a device with internet access and a webcam, time to attend most live sessions or watch recordings, and a willingness to learn and contribute to discussions.
If selected, participants are expected to review materials in advance, participate actively in sessions, and share what they learn with their communities following the program.