The Global Research Ambassadors program is a virtual learning and engagement program for people impacted by ALS/MND worldwide who want to deepen their understanding of ALS/MND research, treatment development, and advocacy.
Using a blended learning model that combines self-directed online content with interactive live sessions, the program helps participants build the knowledge and confidence needed to engage more meaningfully in research and advocacy conversations within the global ALS/MND community.
The program is designed to improve health literacy, strengthen global connections, and ensure that lived experience remains part of the future of ALS/MND research.
2026 Program Details
Dates: September 28–30 & October 1–9, 2026
Format: Virtual (Zoom and online learning platform)
Session Timing: Session times will vary across time zones to support global participation and inclusivity. Sessions may be scheduled at different times throughout the day to accommodate participants from multiple regions. Recordings will also be available for those unable to attend live.
Language: English (translation captions may be offered depending on demand)
How to Apply
Applications are open June 3 to July 3.
You are encouraged to apply if you are:
- Living with ALS/MND
- A current or former caregiver
- An ALS/MND gene carrier without a diagnosis
- A family member
- Another member of the ALS/MND community with a strong interest in research and advocacy
Each applicant must submit a separate application.
Why the Program Matters
The Global Research Ambassadors program supports people affected by ALS/MND in building a stronger understanding of:
- ALS/MND research and treatment development
- Clinical trials and the research landscape
- Scientific communication and health literacy
- Research ethics and informed consent
- Advocacy and lived experience engagement in research
The program uses a blended learning approach, combining online content, and interactive live sessions focused on discussion and practical application.
What Participants Gain
Participants leave the program with:
- A stronger understanding of ALS/MND and the global research landscape
- Improved confidence discussing research and scientific developments
- Practical tools for advocacy and community engagement
- Connections with researchers, clinicians, and fellow participants worldwide
- Recognition as a Global Research Ambassador
Participants who complete the program also receive:
- A certificate of completion
- Recognition through Alliance communications, including the website, newsletters, and social media
- A Global Research Ambassador social media badge
- Opportunities to join the Global ALS/MND Experience Network (GAMEN) for continued engagement and collaboration
One of the program’s greatest strengths is the global community it creates — connecting people affected by ALS/MND across countries, experiences, and perspectives.
Who Should Apply?
When people affected by ALS/MND are included in research conversations, it leads to stronger advocacy, better understanding of community priorities, and more meaningful research outcomes.
You may be a strong fit for the program if you:
- Have a personal connection to ALS/MND
- Want to better understand ALS/MND research and treatment development
- Are interested in advocacy or research engagement
- Are willing to actively participate in discussions and learning activities
- Want to connect with others in the global ALS/MND community
To participate, you will need:
- A device with internet access and a webcam
- Time to attend most live sessions or watch recordings
- A willingness to learn, engage, and contribute to discussion
If selected, participants are expected to review materials in advance, participate actively in sessions, and share what they learn with their communities following the program.