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International Alliance of ALS/MND Associations

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Staff

Executive Director

Catherine Cummings, CAE, MBA

Catherine Cummings

Cathy has an eclectic mix of work experiences in the Canadian not-for-profit sector including the Canadian Payroll Association, the Canadian Bar Association, the Canadian Corporate Counsel Association, and most recently as the Executive Director of the International Alliance of ALS/MND Associations. Cathy has also volunteered extensively with United Way, the Canadian Society of Association Executives and many charities including ALS Ontario, ALS Canada, and Ceridian Cares. She holds an MBA from Athabasca University and is a Certified Association Executive, CAE. On a personal note, Cathy is married to her wonderful husband Marty, has three awesome children and has a mission nicknamed the “bouquet project” that is trying to reverse the statistic that people are ten times more likely to complain than praise.

To contact Catherine, please email to cathy.cummings@als-mnd.org.

Program Coordinator

Jessica Mabe

Jessica was born in London and had a bilingual upbringing in Bogota-Colombia. She relocated to the UK after finishing school, where she completed her university degree in French & German with Business Studies (University of Wales, Aberystwyth), followed by a Masters in Mass Communications from Leicester University (UK), Masters in Digital Marketing and Advertising from the University of Nebrija (Spain) and a Masters in Digital Marketing from the EAN University (Colombia). Jessica developed as a sales and digital marketing professional leading teams in the UK and Ireland within the technology sector. 

In 2014, Jessica´s mother got diagnosed with ALS/MND Bulbar onset, and she decided to return to Colombia early in 2015 to help care for her mother alongside her father. Her mother passed away on 21st February 2018 and shortly after she joined ACELA, the Colombian ALS/MND Association as an active volunteer supporting family caregivers in their ALS/MND journey, and in July 2021 she joined the Alliance as Programs Coordinator.   

To contact Jessica, please email jessica.mabe@als-mnd.org.

Communications Coordinator

Jesse White

Jesse has been involved with advocacy roles in non-profit organizations for the last seven years. He was born and raised in Regina, Saskatchewan, Canada and began crafting his communications skills at Saskatchewan Polytechnic in 2016. He has received a diploma in Media Production, an Applied Certificate in Web Development and most recently a bachelor’s degree in Applied Management.

Jesse’s first interaction with the ALS/MND community was part of his final project during his Media Production education. He produced television commercials with PALS & CALS for ALS Saskatchewan in 2017. The experience profoundly impacted the way he looked at life. Jesse was incredibly excited to become involved with the ALS/MND community again when he joined the Alliance as Communications Coordinator in 2023.

To contact Jesse, please email jesse.white@als-mnd.org

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About

  • Who we are
  • Board of Directors
  • Committees/Advisory Councils
    • Scientific Advisory Council
    • PALS and CALS Advisory Council
    • Innovation and Technology Council
    • Governance Committee
    • Budget and Finance Committee
  • Staff
  • History
  • Archives
    • Newsletters
    • Meetings
  • Awards

  • David Watson, MND Scotland, Diagnosed 2018, Scotland

    David Watson, MND Scotland, Diagnosed 2018, Scotland

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Claire Garry, USA

    Claire Garry, USA
    20200117_214643

  • Juvenal Bayona Romero

    Juvenal Bayona Romero

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Margreth Burger-Saile, Diagnosed 2011 - ALS Schweiz, Switzerland

    Margreth Burger-Saile, Diagnosed 2011 – ALS Schweiz, Switzerland

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Irene McCaughey, Diagnosed 2011 - MND Australia

    Irene McCaughey, Diagnosed 2011 – MND Australia

  • Inta Grubb, Diagnosed 2014 - MND Australia

    Inta Grubb, Diagnosed 2014 – MND Australia

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Wilfried Leusing, Diagnosed 2010 - DGM, Germany

    Wilfried Leusing, Diagnosed 2010 – DGM, Germany

  • Angie Bordaen, Diagnosed 2014 - ALS Liga België, Belgium

    Angie Bordaen, Diagnosed 2014 – ALS Liga België, Belgium

  • Richard Clark, MND New Zealand, Diagnosed 2011, New Zealand

    Richard Clark, MND New Zealand, Diagnosed 2011, New Zealand

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Mark Miller

    Mark Miller

  • Phil Rossall, MND-Association, UK

    Phil Rossall, MND-Association, UK

  • Glen Elison, ALS Hope Foundation, Diagnosed 2019, USA

    Glen Elison, ALS Hope Foundation, Diagnosed 2019, USA

  • Joyce Rusinak, Forbes Norris ALS Center, USA

    Joyce Rusinak, Forbes Norris ALS Center, USA

  • Zelina-Brito-Diagnosed-2018-Brazil

    Zelina-Brito-Diagnosed-2018-Brazil

  • Sanjay Kumar Srivastava, Asha Ek Hope Foundation for ALS/MND, Diagnosed 2018, India

    Sanjay Kumar Srivastava, Asha Ek Hope Foundation for ALS/MND, Diagnosed 2018, India

  • Orlando Ruiz, Diagnosed 2001 - ACELA, Colombia

    Orlando Ruiz, Diagnosed 2001 – ACELA, Colombia

  • Charlie “Hark” Dourney, Diagnosed 2007 - Hark ALS, USA

    Charlie “Hark” Dourney, Diagnosed 2007 – Hark ALS, USA

  • Jon Newsome, Les Turner ALS Foundation, USA

    Jon Newsome, Les Turner ALS Foundation, USA

  • Mary Thomas, Diagnosed 2013 - MND Australia

    Mary Thomas, Diagnosed 2013 – MND Australia

  • Josée Kolijn-de Man, Diagnosed 2015 - ALS Patients Connected, The Netherlands

    Josée Kolijn-de Man, Diagnosed 2015 – ALS Patients Connected, The Netherlands

  • Roy

    Roy
    roy

  • Cath Muir

    Cath Muir
    Cath

  • Stephanie Christiansen Hall, Canada

    Stephanie Christiansen Hall, Canada

  • Chris McCauley, Diagnosed 2015 - ALS Canada

    Chris McCauley, Diagnosed 2015 – ALS Canada

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Ailsa Malcolm-Hutton, Diagnosed 2013 - MND Association of England, Wales and N Ireland

    Ailsa Malcolm-Hutton, Diagnosed 2013 – MND Association of England, Wales and N Ireland

  • Conny van der Meijden, Diagnosed 2001 - ALS Netherlands

    Conny van der Meijden, Diagnosed 2001 – ALS Netherlands

  • Francisco Perez Palop, Diagnosed 2013 - FUNDELA, Spain

    Francisco Perez Palop, Diagnosed 2013 – FUNDELA, Spain

  • John and Loretta Russo, USA

    John and Loretta Russo, USA
    final3878

  • Chen Chun-Chin

    Chen Chun-Chin

  • Karl Hughes, Diagnosed 2010 - IMNDA, Ireland

    Karl Hughes, Diagnosed 2010 – IMNDA, Ireland

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • Kirsten Harley, Diagnosed 2013 - Australia

    Kirsten Harley, Diagnosed 2013 – Australia

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Steven Gallagher, Canada

    Steven Gallagher, Canada

  • Dorette Lüdi, Diagnosed 2014 - ALS Schweiz, Switzerland

    Dorette Lüdi, Diagnosed 2014 – ALS Schweiz, Switzerland

  • Joanne Pratt, Diagnosed 2011 - MND Australia

    Joanne Pratt, Diagnosed 2011 – MND Australia

  • Ian Roberts

    Ian Roberts

  • Rolf Mauch, Association ALS Switzerland, Diagnosed 2015, Switzerland

    Rolf Mauch, Association ALS Switzerland, Diagnosed 2015, Switzerland

  • Sally Pauls, Diagnosed 2006 - Les Turner ALS Foundation

    Sally Pauls, Diagnosed 2006 – Les Turner ALS Foundation

  • Monica Soriano, Diagnosed 2011 - Asociación ELA Argentina

    Monica Soriano, Diagnosed 2011 – Asociación ELA Argentina

  • Steven Spencer, Diagnosed 2014 - MND New Zealand

    Steven Spencer, Diagnosed 2014 – MND New Zealand

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • Art Eggert, USA

    Art Eggert, USA

  • Norm MacIsaac, ALS Society of Canada, ALS Society of Quebec, Diagnosed 2014, Canada

    Norm MacIsaac, ALS Society of Canada, ALS Society of Quebec, Diagnosed 2014, Canada

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