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International Alliance of ALS/MND Associations

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      • Voice Preservation
      • Understanding ALS/MND Research
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      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
      • Open Label Extension
      • Expanded Access
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      • Global Clinic Locator
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      • Genetic Roundtable Resources
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      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
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      • Support for Family & Caregivers
      • Technology
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs in Development
      • AB Science – Masitinib
      • Neuronata-R/Lenzumestrocel
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • Ulefnersen – Ionis Pharmaceuticals
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • Collaborative Medicinal Development – CuATSM
      • Kadimastem – AstroRx
      • ILB – Tikomed
      • Methylcobalamin
      • Oral Edaravone
      • NeuroSense – PrimeC
      • SOD1 Therapies & Trials
      • T Regulatory Cell Therapies
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Recent Posts:

    Primary Sidebar

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      Debbie Craghill, USA

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      Eddy LeFrançois, Diagnosed 1992, ALS Canada

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      Luis Antonio Pimenta Lima, Brazil

    • Tison, USA

      Tison, USA

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      Valdomiro Xavier Honório, Brazil

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      Soledad Rodriguez, FUNDELA, Diagnosed 2013, Spain

    • Rosie Riley, Les Turner ALS Foundation, USA

      Rosie Riley, Les Turner ALS Foundation, USA

    • Ada Garrido Benavidez, Diagnosed 2016,  FYADENMAC, Mexico

      Ada Garrido Benavidez, Diagnosed 2016, FYADENMAC, Mexico

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      Roxana Canova, Diagnosed 2012 , Asociación ELA Argentina

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      Wendy Hendrickson, ALS Hope Foundation, USA

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      Chris McCauley, Diagnosed 2015 , ALS Canada

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      Claudette Sturk, ALS Society of Canada
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      Chih Ching Darren Wong, MND Malaysia

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      Jason Goodman, Les Turner ALS Foundation, USA

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      Lin Yong Yi, Taiwan MND Association, Diagnosed 2004

    • Richard Clark, MND New Zealand,  Diagnosed 2011

      Richard Clark, MND New Zealand, Diagnosed 2011

    • Alejandro Aquino, Diagnosed 2011 , Asociación ELA Argentina

      Alejandro Aquino, Diagnosed 2011 , Asociación ELA Argentina

    • Lachlan Terry,  MND Australia,  Diagnosed 2015

      Lachlan Terry, MND Australia, Diagnosed 2015

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      Armando González Gómez, ACELA, Colombia

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      Francisco Perez Palop, Diagnosed 2013 , FUNDELA, Spain

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      Jose Espinosa, Argentina

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      Susan Keldani, Les Turner ALS Foundation, USA

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      Fabio Carvalho, Associação Pró-Cura da ELA, Brazil

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      Duncan Bayly , MND Australia

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      Bjarne Hytjanstorp, ALS Norge, Norway

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      Shay Rishoni, Diagnosed 2011 , Prize4Life, Israel

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      Maria Santos Garcia Tellez, Diagnosed 2017 , FYADENMAC, Mexico

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      Andrea Zicchieri, Associazione conSLAncio Onlus, Italy
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    • Mauril Bélanger, Diagnosed 2015 , ALS Canada

      Mauril Bélanger, Diagnosed 2015 , ALS Canada

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      Angela Jansen, Deutsche Gesellschaft für Muskelkranke e.V.-DGM, Diagnosed 1995, Germany

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      David Watson, MND Scotland, Diagnosed 2018

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      Jean
      jean

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      Phil Rossall, MND-Association, UK

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      Lombana, Spain

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      Jon Newsome, Les Turner ALS Foundation, USA

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      Chen Yin Xue, Taiwan MND Association, Diagnosed 1995, Taiwan

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      Michael Lee, Australia

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      Jette Odgaard Villemoes, Muskelsvindfonden, Denmark

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      Steve Lufkin, USA
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      Erwin Coppejans, Diagnosed 2007 , ALS Liga België, Belgium

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      Joanne Pratt, Diagnosed 2011 , MND Australia

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      Ian Roberts

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      Mark Miller

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      Gudjon Sigurdsson, Diagnosed 2004 , MND Association of Iceland

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      Emilienne Verhaegen, ALS Liga Belgium, Diagnosed 2014

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      Steven Gallagher, Canada

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      Sébastien Batiot, Diagnosed 2012 , ARSLA, France

    Learn more about the March of Faces

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