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International Alliance of ALS/MND Associations

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      • Understanding ALS/MND Research
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      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
      • Open Label Extension
      • Expanded Access
    • Clinical Care
      • Global Clinic Locator
      • Genetic Counselling & Testing
      • Genetic Roundtable Resources
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs in Development
      • AB Science – Masitinib
      • Neuronata-R/Lenzumestrocel
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • Ulefnersen – Ionis Pharmaceuticals
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • Kadimastem – AstroRx
      • ILB – Tikomed
      • Methylcobalamin
      • Oral Edaravone
      • NeuroSense – PrimeC
      • SOD1 Therapies & Trials
      • T Regulatory Cell Therapies
    • Drugs No Longer in Development
      • Amylyx – AMX0035
      • Collaborative Medicinal Development – CuATSM
      • Cytokinetics – Reldesemtiv
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Recent Posts:

    Primary Sidebar

    • Bjarne Hytjanstorp, ALS Norge, Norway

      Bjarne Hytjanstorp, ALS Norge, Norway

    • Jason Goodman, Les Turner ALS Foundation, USA

      Jason Goodman, Les Turner ALS Foundation, USA

    • Elkin Ramiro Gaviria Muñoz, Diagnosed December 2018

      Elkin Ramiro Gaviria Muñoz, Diagnosed December 2018

    • Margarita Pizarro, Asociacion ELA Argentina, Diagnosed 2017, Argentina

      Margarita Pizarro, Asociacion ELA Argentina, Diagnosed 2017, Argentina

    • Timmy, ALS Liga

      Timmy, ALS Liga

    • Carlos Gomez Matallanas, Diagnosed 2014 , FUNDELA, Spain

      Carlos Gomez Matallanas, Diagnosed 2014 , FUNDELA, Spain

    • Wiebke Braach, Deutsche Gesellschaft für Muskelkranke, Germany

      Wiebke Braach, Deutsche Gesellschaft für Muskelkranke, Germany

    • Jon Newsome, USA

      Jon Newsome, USA

    • Kris Van Reusel, Belgium

      Kris Van Reusel, Belgium

    • Anthony (Tony) Lynch, MND New South Wales, Diagnosed 2016, Australia

      Anthony (Tony) Lynch, MND New South Wales, Diagnosed 2016, Australia

    • Hans Dieter Olszewski, Diagnosed 2010 , DGM, Germany

      Hans Dieter Olszewski, Diagnosed 2010 , DGM, Germany

    • Jose Rivero Muñoz, Diagnosed 2015, FYADENMAC, Mexico

      Jose Rivero Muñoz, Diagnosed 2015, FYADENMAC, Mexico

    • David Bishop

      David Bishop

    • Fernando Ocampo Cardona, Colombia

      Fernando Ocampo Cardona, Colombia

    • Oliver Juenke, DGM, Germany

      Oliver Juenke, DGM, Germany

    • Michael Lee, Australia

      Michael Lee, Australia

    • Sam Hayden-Harler, Motor Neurone Disease (MND) Association, UK

      Sam Hayden-Harler, Motor Neurone Disease (MND) Association, UK

    • Enzo Maccarrone, AISLA ONLUS, Italy

      Enzo Maccarrone, AISLA ONLUS, Italy

    • Soledad Rodriguez, FUNDELA, Diagnosed 2013, Spain

      Soledad Rodriguez, FUNDELA, Diagnosed 2013, Spain

    • Kirsten Harley,  Diagnosed 2013,  Australia

      Kirsten Harley, Diagnosed 2013, Australia

    • Ian and Teresa Roberts

      Ian and Teresa Roberts

    • Olga Cosentino, Diagnosed 2013,  Asociación ELA Argentina

      Olga Cosentino, Diagnosed 2013, Asociación ELA Argentina

    • Phil Rossall, MND-Association, UK

      Phil Rossall, MND-Association, UK

    • Stephanie Christiansen Hall, Canada

      Stephanie Christiansen Hall, Canada

    • Timothy Holman, Switzerland

      Timothy Holman, Switzerland

    • IMG_1211

      IMG_1211

    • Zelina Brito, Diagnosed 2018, Brazil

      Zelina Brito, Diagnosed 2018, Brazil

    • Marcel R. Wernard, Diagnosed 2016,  ALS Patients Connected,  The Netherlands

      Marcel R. Wernard, Diagnosed 2016, ALS Patients Connected, The Netherlands

    • H. Todd Kelly, Diagnosed 2013 , ALS Hope Foundation, USA

      H. Todd Kelly, Diagnosed 2013 , ALS Hope Foundation, USA

    • Hollister

      Hollister
      hollister

    • Catherine Pearce, Australia

      Catherine Pearce, Australia

    • Aida Trzmiel de Guterman, Asociacion ELA Argentina, Diagnosed 2007, Argentina

      Aida Trzmiel de Guterman, Asociacion ELA Argentina, Diagnosed 2007, Argentina

    • Shera Mukherjee, Diagnosed 2013,  Asha Ek Hope Foundation, India

      Shera Mukherjee, Diagnosed 2013, Asha Ek Hope Foundation, India

    • Mike Small, Motor Neurone Disease (MND) Association, UK

      Mike Small, Motor Neurone Disease (MND) Association, UK

    • Marcelo Farinelli, Diagnosed 2006, ABrELA, Brazil

      Marcelo Farinelli, Diagnosed 2006, ABrELA, Brazil

    • JP

      JP

    • Fabrice Kamp, Germany

      Fabrice Kamp, Germany

    • Antonio Ventriglia,  ALS Liga Belgium,  Diagnosed 2013

      Antonio Ventriglia, ALS Liga Belgium, Diagnosed 2013

    • Eddy LeFrançois, Diagnosed 1992,  ALS Canada

      Eddy LeFrançois, Diagnosed 1992, ALS Canada

    • Josée Kolijn-de Man, Diagnosed 2015 , ALS Patients Connected, The Netherlands

      Josée Kolijn-de Man, Diagnosed 2015 , ALS Patients Connected, The Netherlands

    • Lin Yong Yi, Taiwan MND Association, Diagnosed 2004

      Lin Yong Yi, Taiwan MND Association, Diagnosed 2004

    • Shay Rishoni, Diagnosed 2011 - Prize4Life, Israel

      Shay Rishoni, Diagnosed 2011 – Prize4Life, Israel

    • unnamed

      unnamed

    • Chen Chun-Chin

      Chen Chun-Chin

    • Laurie Petit-Jean, Diagnosed 2012 , ARSLA, France

      Laurie Petit-Jean, Diagnosed 2012 , ARSLA, France

    • Animesh Kumar, Diagnosed 2013 , Asha Ek Hope Foundation, India

      Animesh Kumar, Diagnosed 2013 , Asha Ek Hope Foundation, India

    • Feng Gin Sun, Diagnosed 2014 , Shaanxi ALS Association, China

      Feng Gin Sun, Diagnosed 2014 , Shaanxi ALS Association, China

    • Shay Rishoni, Diagnosed 2011 , Prize4Life, Israel

      Shay Rishoni, Diagnosed 2011 , Prize4Life, Israel

    • Sébastien Batiot, Diagnosed 2012 , ARSLA, France

      Sébastien Batiot, Diagnosed 2012 , ARSLA, France

    • Alfredo Santos, Diagnosed 2013 , ACELA, Colombia

      Alfredo Santos, Diagnosed 2013 , ACELA, Colombia

    Learn more about the March of Faces

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