• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • Events/Programs
    • Calendar of Events/Programs
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • International Symposium
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Members
    • Member Registration
    • Forgot Password

Sitemap

Pages:

  • Donate
  • Register
    • Edit Your Profile
    • Update Billing Card
    • Welcome
    • Your Membership
  • Support for Health Professionals
    • Breaking the News in ALS/MND
  • R.A.C.E. to Diagnose ALS/MND
  • Understanding ALS/MND
    • What is ALS/MND?
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Support for PALS & CALS
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Voice Preservation
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Open Science
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
      • Open Label Extension
      • Expanded Access
    • Clinical Care
      • Global Clinic Locator
      • Genetic Counselling & Testing
      • Genetic Roundtable Resources
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen/Qalsody
    • Drugs in Development
      • SPG302
      • Masitinib
      • Neuronata-R / Lenzumestrocel
      • NP001
      • Pridopidine
      • Ulefnersen
      • NurOwn
      • CNM-Au8
      • AstroRx
      • ILB
      • PrimeC
      • C9orf72 Therapies and Trials
      • Regulatory T Cell Enhancing Therapies
      • SOD1-Targeted Therapies & Trials
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • About the Alliance
    • ALS/MND Health Literacy Map
    • Who We Are
    • Board of Trustees
    • Councils, Forums & Committees
      • PALS and CALS Advisory Council
      • Scientific Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • Contact Us
  • Disclaimer
  • Find ALS/MND associations around the world
  • International Alliance of ALS/MND Associations
  • Join the Alliance
    • Member Registration
  • Make a donation
  • Newsletter subscription
  • Privacy notice & Cookies
  • Programs & Events
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • Alliance Meeting
    • Allied Professionals Forum
    • ALS/MND Connect
    • Global Day Calendar
    • March of Faces
    • Alliance Fellows
      • 2026 Alliance Fellows
      • Global CRLI Program
    • Patient Fellows Program
    • SEED Grant Program
    • International Symposium
  • Sitemap
  • Member Roundtables
  • 2027 Calendar Project
  • March of Faces
  • Member Webinars
  • Annual Meetings Travel Grant
  • Submit an Event
  • Submit a Resource

Recent Posts:

    Primary Sidebar

    • Willi Klein, UK

      Willi Klein, UK

    • Andrea Zicchieri, Italy

      Andrea Zicchieri, Italy
      AndreaZicchieri_conSLAncioItaly

    • Yessenia Hernandez Mendoza, Mexico

      Yessenia Hernandez Mendoza, Mexico

    • Mona H. Bahus and Camilla Knoff Glomstad, Norway

      Mona H. Bahus and Camilla Knoff Glomstad, Norway

    • Glen Elison, USA

      Glen Elison, USA

    • Maria Santos Garcia Tellez, Mexico

      Maria Santos Garcia Tellez, Mexico

    • Debbie Craghill, USA

      Debbie Craghill, USA

    • Camilla Heiberg Freiberg, Denmark

      Camilla Heiberg Freiberg, Denmark

    • Jose Rivero Muñoz, Mexico

      Jose Rivero Muñoz, Mexico

    • Valdomiro Xavier Honório, Brazil

      Valdomiro Xavier Honório, Brazil

    • Claudia Gotti, Brazil

      Claudia Gotti, Brazil

    • Stephanie Christiansen Hall, Canada

      Stephanie Christiansen Hall, Canada

    • Peng Yi-Wen, Taiwan

      Peng Yi-Wen, Taiwan

    • Frank Taylor, USA

      Frank Taylor, USA

    • Oliver Juenke, Germany

      Oliver Juenke, Germany

    • Liz Ogg, Scotland

      Liz Ogg, Scotland

    • Jay Epstein, USA

      Jay Epstein, USA

    • Natalya Rybakova, Russia

      Natalya Rybakova, Russia

    • Soledad Rodriguez, Spain

      Soledad Rodriguez, Spain

    • Maurice Leclerc, Canada

      Maurice Leclerc, Canada

    • Susan Anderson, USA

      Susan Anderson, USA

    • Richard Clark, New Zealand

      Richard Clark, New Zealand

    • Paul Launer, USA

      Paul Launer, USA

    • Mauril Bélanger, Canada

      Mauril Bélanger, Canada

    • Anderson Custodio Pinto, Brazil

      Anderson Custodio Pinto, Brazil

    • Len Johnrose, England

      Len Johnrose, England

    • Glen Victor Peters, Australia

      Glen Victor Peters, Australia

    • Verónica Isabel Castro Molina, Argentina

      Verónica Isabel Castro Molina, Argentina

    • Oscar Mauricio Linares, Colombia

      Oscar Mauricio Linares, Colombia

    • Rolf Mauch, Switzerland

      Rolf Mauch, Switzerland

    • Ching-Liang Chu, Taiwan

      Ching-Liang Chu, Taiwan

    • Liam Dwyer, England

      Liam Dwyer, England

    • Charlie Dourney, USA

      Charlie Dourney, USA

    • Kirsty Gerlach, New Zealand

      Kirsty Gerlach, New Zealand

    • Nicholas (Nic) Bowman, South Africa

      Nicholas (Nic) Bowman, South Africa

    • Michel Perrozzo, France

      Michel Perrozzo, France

    • Erwin Coppejans, Belgium

      Erwin Coppejans, Belgium

    • Chris McCauley, Canada

      Chris McCauley, Canada

    • Sally Pauls, USA

      Sally Pauls, USA

    • Steve Gallagher, Canada

      Steve Gallagher, Canada
      Picture1

    • Malcolm Buck, Australia

      Malcolm Buck, Australia

    • Jean

      Jean
      jean

    • Fabio Carvalho, Brazil

      Fabio Carvalho, Brazil

    • Marco Antonio Alvarez Mercado, Mexico

      Marco Antonio Alvarez Mercado, Mexico

    • Feng Gin Sun, China

      Feng Gin Sun, China

    • Liong Ting Ngu, Malaysia

      Liong Ting Ngu, Malaysia

    • Cliff Marshman, USA

      Cliff Marshman, USA
      CliffMarshman

    • Hans Dieter Olszewski, Germany

      Hans Dieter Olszewski, Germany

    • Maurice LeClerc, Canada

      Maurice LeClerc, Canada

    • Ana María Zavala, Mexico

      Ana María Zavala, Mexico

    Learn more about the March of Faces

    Footer

    Stay connected to the global ALS/MND community.

    Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

     
    This field is for validation purposes and should be left unchanged.
    • Email
    • Facebook
    • LinkedIn
    • Twitter
    • YouTube
    Return to top of page

    Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

    Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


    Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login