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International Alliance of ALS/MND Associations

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      • Voice Preservation
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Open Science
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      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
      • Open Label Extension
      • Expanded Access
    • Clinical Care
      • Global Clinic Locator
      • Genetic Counselling & Testing
      • Genetic Roundtable Resources
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs in Development
      • AB Science – Masitinib
      • Neuronata-R/Lenzumestrocel
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • Ulefnersen – Ionis Pharmaceuticals
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • Collaborative Medicinal Development – CuATSM
      • Kadimastem – AstroRx
      • ILB – Tikomed
      • Methylcobalamin
      • Oral Edaravone
      • NeuroSense – PrimeC
      • SOD1 Therapies & Trials
      • T Regulatory Cell Therapies
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      • Amylyx – AMX0035
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Recent Posts:

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      Gudjon Sigurdsson, Diagnosed 2004 , MND Association of Iceland

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      Mary Thomas, Diagnosed 2013 , MND Australia

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      Kris Van Reusel, Belgium

    • Jose Rivero Muñoz, Diagnosed 2015, FYADENMAC, Mexico

      Jose Rivero Muñoz, Diagnosed 2015, FYADENMAC, Mexico

    • Liz Ogg, Diagnosed 2013 , MND Scotland, UK

      Liz Ogg, Diagnosed 2013 , MND Scotland, UK

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      Colm Francis Davis, Ireland

    • Margarita Pizarro, Asociacion ELA Argentina, Diagnosed 2017, Argentina

      Margarita Pizarro, Asociacion ELA Argentina, Diagnosed 2017, Argentina

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      March of Faces Photo Submission_OLGA_ELA ARGENTINA

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      Armando González Gómez, ACELA, Colombia

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      Lin Yong Yi, Taiwan MND Association, Diagnosed 2004

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      Guido De Mets, Belgium

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      Xian-Zhang Niu, Diagnosed 2006 , Shaanxi ALS Association, China

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      Jette Odgaard Villemoes, Muskelsvindfonden, Denmark

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      Debbie Craghill, USA

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      Jose Espinosa, Argentina

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      Carlos Gomez Matallanas, Diagnosed 2014 , FUNDELA, Spain

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      Shay Rishoni, Diagnosed 2011 , Prize4Life, Israel

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      Angela Jansen, Deutsche Gesellschaft für Muskelkranke e.V.-DGM, Diagnosed 1995, Germany

    • Kirsten Harley,  Diagnosed 2013,  Australia

      Kirsten Harley, Diagnosed 2013, Australia

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      Leon Ryba, Asociación ELA Argentina

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      Maria Santos Garcia Tellez, Diagnosed 2017 , FYADENMAC, Mexico

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      Danny Reviers, Diagnosed 1979 , ALS Liga België, Belgium

    • Emilienne Verhaegen, ALS Liga Belgium, Diagnosed 2014

      Emilienne Verhaegen, ALS Liga Belgium, Diagnosed 2014

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      Zabun Nassar, MND Association, Diagnosed 2016, England

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      Horacio Fritzer, Argentina

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      Carlos Alberto Báez Murillo, ACELA, Colombia

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      Greg Heydet, ALS Hope Foundation, USA

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      Claudette Sturk, ALS Society of Canada
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      Eddy LeFrançois, Diagnosed 1992, ALS Canada

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