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International Alliance of ALS/MND Associations

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      • Understanding ALS/MND Research
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      • Unproven (Off-Label) Treatments
      • Open Label Extension
      • Expanded Access
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      • Global Clinic Locator
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      • Genetic Roundtable Resources
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      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
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      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs in Development
      • AB Science – Masitinib
      • Neuronata-R/Lenzumestrocel
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • Ulefnersen – Ionis Pharmaceuticals
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • Collaborative Medicinal Development – CuATSM
      • Kadimastem – AstroRx
      • ILB – Tikomed
      • Methylcobalamin
      • Oral Edaravone
      • NeuroSense – PrimeC
      • SOD1 Therapies & Trials
      • T Regulatory Cell Therapies
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      • Amylyx – AMX0035
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Recent Posts:

    Primary Sidebar

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      Joy Blakeley, Diagnosed 2017 , MND Australia

    • Maria Lucia Wood Saldanha, Associação Pró-Cura da ELA, Brazil

      Maria Lucia Wood Saldanha, Associação Pró-Cura da ELA, Brazil

    • Alfredo Santos, Diagnosed 2013 , ACELA, Colombia

      Alfredo Santos, Diagnosed 2013 , ACELA, Colombia

    • Michael Lee, Australia

      Michael Lee, Australia

    • Hanne Stenmose, Muskelsvindfonden, Denmark

      Hanne Stenmose, Muskelsvindfonden, Denmark

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      Stephanie Christiansen Hall, Canada

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      unnamed

    • Amparo Muriel Engativa, Colombia

      Amparo Muriel Engativa, Colombia

    • Margreth Burger-Saile, Diagnosed 2011,  ALS Schweiz,  Switzerland

      Margreth Burger-Saile, Diagnosed 2011, ALS Schweiz, Switzerland

    • Sam Hayden-Harler, Motor Neurone Disease (MND) Association, UK

      Sam Hayden-Harler, Motor Neurone Disease (MND) Association, UK

    • Wilfried Leusing, Diagnosed 2010 , DGM, Germany

      Wilfried Leusing, Diagnosed 2010 , DGM, Germany

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      Timothy Holman, Switzerland

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      Joanne Pratt, Diagnosed 2011 , MND Australia

    • Ana María Zavala, FYADENMAC, Diagnosed 2019, Mexico

      Ana María Zavala, FYADENMAC, Diagnosed 2019, Mexico

    • Tammy Moore and Eddy Lefrancois

      Tammy Moore and Eddy Lefrancois

    • Mike Small, Motor Neurone Disease (MND) Association, UK

      Mike Small, Motor Neurone Disease (MND) Association, UK

    • Wilfried Leusing

      Wilfried Leusing

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      Claudia Cominetti, Associazione conSLAncio Onlus, Italy

    • Natalya Rybakova, Russia

      Natalya Rybakova, Russia

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      Josée Kolijn-de Man, Diagnosed 2015 , ALS Patients Connected, The Netherlands

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      83

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      Karl Hughes, Diagnosed 2010 , IMNDA, Ireland

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      Dorette Lüdi, Diagnosed 2014 , ALS Schweiz, Switzerland

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      Carlos Gomez Matallanas, Diagnosed 2014 , FUNDELA, Spain

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      Mary Thomas, Diagnosed 2013 , MND Australia

    • Duncan Bayly , MND Australia

      Duncan Bayly , MND Australia

    • Lin Yong Yi, Taiwan MND Association, Diagnosed 2004

      Lin Yong Yi, Taiwan MND Association, Diagnosed 2004

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      Jo Knowlton and her dog, Scotland

    • Shay Rishoni

      Shay Rishoni

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      Osiel Mendoza, Diagnosed 2016 , ALS Therapy Development Institute, USA

    • Liz Ogg, Diagnosed 2013 , MND Scotland, UK

      Liz Ogg, Diagnosed 2013 , MND Scotland, UK

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      Steve

    • Fabio Carvalho

      Fabio Carvalho

    • Danny Reviers, Diagnosed 1979 , ALS Liga België, Belgium

      Danny Reviers, Diagnosed 1979 , ALS Liga België, Belgium

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      Valdomiro Xavier Honório, Brazil

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      Chun Ju Xiao, China

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      Charlie “Hark” Dourney, Diagnosed 2007 , Hark ALS, USA

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      Liong Ting Ngu, MND Malaysia, Diagnosed 2014

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      Teddy Hanono Annie, Apoyo Integral Gila A.C., Diagnosed 2018, Mexico

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      IMG_2658

    • Greg Heydet, ALS Hope Foundation, USA

      Greg Heydet, ALS Hope Foundation, USA

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      Lombana, Spain

    • Denis Blais, Diagnosed 2015 , ALS Canada

      Denis Blais, Diagnosed 2015 , ALS Canada

    • Mike Rannie,  ALS Canada,  Diagnosed 2017

      Mike Rannie, ALS Canada, Diagnosed 2017

    • Aida Trzmiel de Guterman, Asociacion ELA Argentina, Diagnosed 2007, Argentina

      Aida Trzmiel de Guterman, Asociacion ELA Argentina, Diagnosed 2007, Argentina

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      Cassio Fernando da Silva, Diagnosed 2013 , ABrELA, Brazil

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      John Dinon, MND Australia

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      H. Todd Kelly, Diagnosed 2013 , ALS Hope Foundation, USA

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      Margarita Pizarro, Asociacion ELA Argentina, Diagnosed 2017, Argentina

    Learn more about the March of Faces

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