• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • Twitter
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Clinical Trial Registry Accuracy and Maintenance in ALS/MND Research
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition, Swallowing and Saliva
      • Activities of Daily Living and Occupational Therapy
      • Muscles, Mobility and Exercise
      • Respiratory Care
      • Speech and Communication
      • Voice Preservation
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
    • R.A.C.E. to Diagnose ALS/MND
  • Programs & Events
    • Calendar of Events
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
  • Members
    • Member Registration
    • Forgot Password

Sitemap

Pages:

  • Donate
  • Register
    • Edit Your Profile
    • Update Billing Card
    • Welcome
    • Your Membership
  • Support for Health Professionals
    • Breaking the News in ALS/MND
    • R.A.C.E. to Diagnose ALS/MND
  • Understanding ALS/MND
    • What is ALS/MND?
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Support for PALS & CALS
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Clinical Trial Registry Accuracy and Maintenance in ALS/MND Research
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Open Science
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven Treatments
      • Open Label Extension
      • Expanded Access
    • Clinical Care
      • Global Clinic Locator
      • Voice Preservation
      • Genetic Counselling & Testing
      • Genetic Roundtable Resources
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition, Swallowing and Saliva
      • Activities of Daily Living and Occupational Therapy
      • Muscles, Mobility and Exercise
      • Respiratory Care
      • Speech and Communication
      • Support for Family & Caregivers
      • Technology
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen/Qalsody
    • Drugs in Development
      • SPG302
      • Masitinib
      • Neuronata-R / Lenzumestrocel
      • NP001
      • Pridopidine
      • Ulefnersen
      • NurOwn
      • CNM-Au8
      • AstroRx
      • ILB
      • PrimeC
      • C9orf72 Therapies and Trials
      • Regulatory T Cell Enhancing Therapies
      • SOD1-Targeted Therapies & Trials
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • About the Alliance
    • ALS/MND Health Literacy Map
    • Who We Are
    • Board of Trustees
    • Councils, Forums & Committees
      • PALS and CALS Advisory Council
      • Scientific Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
  • Contact Us
  • Disclaimer
  • Find ALS/MND associations around the world
  • International Alliance of ALS/MND Associations
  • Join the Alliance
    • Member Registration
  • Make a donation
  • Newsletter subscription
  • Privacy notice & Cookies
  • Programs & Events
    • “Day in the Life Of” Suite
    • Alliance Webinars
      • Webinar Registration: Annual Clinical Trials Update
      • Webinar Registration: The Use of AI in ALS/MND
    • Alliance Meeting
    • Allied Professionals Forum
    • ALS/MND Connect
    • Global Day Calendar
    • March of Faces
    • Alliance Fellows
      • 2026 Alliance Fellows
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
    • Patient Fellows Program
    • SEED Grant Program
  • Sitemap
  • 2026 AGM Information
  • Member Roundtables
  • 2027 Calendar Project
  • Call for Agenda Items
  • Call for Resolutions
  • March of Faces
  • Member Webinars
  • Submit an Event
  • Submit a Resource

Recent Posts:

    Primary Sidebar

    • Gisli Jonasson, Iceland

      Gisli Jonasson, Iceland

    • Wiebke Braach, Germany

      Wiebke Braach, Germany

    • Rob Tison, USA

      Rob Tison, USA

    • Sanjay Kumar Srivastava, India

      Sanjay Kumar Srivastava, India

    • Ali Var, Turkey

      Ali Var, Turkey

    • H. Todd Kelly, USA

      H. Todd Kelly, USA

    • Magdalena Ayala Rodríguez, Mexico

      Magdalena Ayala Rodríguez, Mexico

    • Orlando Ruiz, Colombia

      Orlando Ruiz, Colombia

    • Cath Muir, UK

      Cath Muir, UK
      Cath

    • Rosie Riley, USA

      Rosie Riley, USA

    • Ian Roberts, Australia

      Ian Roberts, Australia

    • Jon Newsome, USA

      Jon Newsome, USA

    • Roxana Canova, Argentina

      Roxana Canova, Argentina

    • Vincent Bourque, Canada

      Vincent Bourque, Canada
      vincent_bourque

    • Danny Reviers, Belgium

      Danny Reviers, Belgium

    • Denis Blais, Canada

      Denis Blais, Canada

    • Torben Mikkelsen, Denmark

      Torben Mikkelsen, Denmark

    • Paul Launer, USA

      Paul Launer, USA

    • Gudjon Sigurdsson, Iceland

      Gudjon Sigurdsson, Iceland

    • Purningam Jacob, India

      Purningam Jacob, India

    • Fernando Ocampo Cardona, Colombia

      Fernando Ocampo Cardona, Colombia

    • Claire Garry, USA

      Claire Garry, USA
      20200117_214643

    • Fayette Underwood, USA

      Fayette Underwood, USA

    • John Russo, USA

      John Russo, USA
      final3878

    • Leon Ryba, Argentina

      Leon Ryba, Argentina

    • Richard Clark, New Zealand

      Richard Clark, New Zealand

    • Mahmood Anwar, UK

      Mahmood Anwar, UK

    • Willi Klein, UK

      Willi Klein, UK

    • Catherine Pearce, Australia

      Catherine Pearce, Australia

    • Brian Parsons, Canada

      Brian Parsons, Canada

    • Cliff Marshman, USA

      Cliff Marshman, USA
      CliffMarshman

    • Oscar Mauricio Linares, Colombia

      Oscar Mauricio Linares, Colombia

    • PALS and CALS, Singapore

      PALS and CALS, Singapore

    • Jette Odgaard Villemoes, Denmark

      Jette Odgaard Villemoes, Denmark

    • Ali Var, Turkey

      Ali Var, Turkey

    • Maria Santos Garcia Tellez, Mexico

      Maria Santos Garcia Tellez, Mexico

    • Dorette Lüdi, Switzerland

      Dorette Lüdi, Switzerland

    • Manuel Arn, Switzerland

      Manuel Arn, Switzerland

    • Hans Dieter Olszewski, Germany

      Hans Dieter Olszewski, Germany

    • Mike Rannie, Canada

      Mike Rannie, Canada

    • Carlos Alberto Arango, Colombia

      Carlos Alberto Arango, Colombia

    • Shay Rishoni, Israel

      Shay Rishoni, Israel

    • João Marcos Andrietta, Brazil

      João Marcos Andrietta, Brazil

    • Duncan Bayly, Australia

      Duncan Bayly, Australia

    • Seckin McGuirk, England

      Seckin McGuirk, England

    • Ailsa Malcolm-Hutton, UK

      Ailsa Malcolm-Hutton, UK

    • Steve Lufkin, USA

      Steve Lufkin, USA
      IMG_3993

    • Zelina Brito, Brazil

      Zelina Brito, Brazil

    • Mirca Bersani, Italy

      Mirca Bersani, Italy
      MircaBersani

    • Norm MacIsaac, Canada

      Norm MacIsaac, Canada

    Learn more about the March of Faces

    Footer

    Stay connected to the global ALS/MND community.

    Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

     
    This field is for validation purposes and should be left unchanged.
    • Email
    • Facebook
    • LinkedIn
    • Twitter
    • YouTube
    Return to top of page

    Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

    Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


    Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login