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International Alliance of ALS/MND Associations

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      • Voice Preservation
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Open Science
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      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
      • Open Label Extension
      • Expanded Access
    • Clinical Care
      • Global Clinic Locator
      • Genetic Counselling & Testing
      • Genetic Roundtable Resources
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs in Development
      • AB Science – Masitinib
      • Neuronata-R/Lenzumestrocel
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • Ulefnersen – Ionis Pharmaceuticals
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • Collaborative Medicinal Development – CuATSM
      • Kadimastem – AstroRx
      • ILB – Tikomed
      • Methylcobalamin
      • Oral Edaravone
      • NeuroSense – PrimeC
      • SOD1 Therapies & Trials
      • T Regulatory Cell Therapies
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Recent Posts:

    Primary Sidebar

    • Anita Forte, Les Turner ALS Foundation, USA

      Anita Forte, Les Turner ALS Foundation, USA

    • Chun Ju Xiao, China

      Chun Ju Xiao, China

    • Shay Rishoni, Diagnosed 2011 , Prize4Life, Israel

      Shay Rishoni, Diagnosed 2011 , Prize4Life, Israel

    • Danny Reviers, Diagnosed 1979 , ALS Liga België, Belgium

      Danny Reviers, Diagnosed 1979 , ALS Liga België, Belgium

    • Josée Kolijn-de Man, Diagnosed 2015 , ALS Patients Connected, The Netherlands

      Josée Kolijn-de Man, Diagnosed 2015 , ALS Patients Connected, The Netherlands

    • Maurice LeClerc, ALS Canada

      Maurice LeClerc, ALS Canada

    • Conny van der Meijden, Diagnosed 2001,  ALS Netherlands

      Conny van der Meijden, Diagnosed 2001, ALS Netherlands

    • Luis Antonio Pimenta Lima, Brazil

      Luis Antonio Pimenta Lima, Brazil

    • Robbie Caliste, UK

      Robbie Caliste, UK

    • Paul Launer, USA

      Paul Launer, USA

    • Guoqiang Xu, Diagnosed 2016 , Shaanxi ALS Association, China

      Guoqiang Xu, Diagnosed 2016 , Shaanxi ALS Association, China

    • Lin Yong Yi, Taiwan MND Association, Diagnosed 2004

      Lin Yong Yi, Taiwan MND Association, Diagnosed 2004

    • Feng Gin Sun, Diagnosed 2014 , Shaanxi ALS Association, China

      Feng Gin Sun, Diagnosed 2014 , Shaanxi ALS Association, China

    • Dawn Morton, Diagnosed 2014 , MND Scotland, UK

      Dawn Morton, Diagnosed 2014 , MND Scotland, UK

    • Steve Lufkin, USA

      Steve Lufkin, USA
      IMG_3993

    • Susan Keldani, Les Turner ALS Foundation, USA

      Susan Keldani, Les Turner ALS Foundation, USA

    • Mark Miller

      Mark Miller

    • Juvenal Bayona Romero

      Juvenal Bayona Romero

    • Claire Garry, USA

      Claire Garry, USA
      20200117_214643

    • Ian Roberts

      Ian Roberts

    • Jon Newsome, Les Turner ALS Foundation, USA

      Jon Newsome, Les Turner ALS Foundation, USA

    • Dr Shelly Hoover

      Dr Shelly Hoover

    • Cath Muir

      Cath Muir
      Cath

    • Chen Chun-Chin

      Chen Chun-Chin

    • Bruno Leanza Mantegna, Diagnosed 1999 , AISLA Onlus, Italy

      Bruno Leanza Mantegna, Diagnosed 1999 , AISLA Onlus, Italy

    • Jose Rivero Muñoz, Diagnosed 2015, FYADENMAC, Mexico

      Jose Rivero Muñoz, Diagnosed 2015, FYADENMAC, Mexico

    • Christian Bär, Germany

      Christian Bär, Germany

    • Mary Thomas, Diagnosed 2013 , MND Australia

      Mary Thomas, Diagnosed 2013 , MND Australia

    • Anthony (Tony) Lynch, MND New South Wales, Diagnosed 2016, Australia

      Anthony (Tony) Lynch, MND New South Wales, Diagnosed 2016, Australia

    • Ian and Teresa Roberts

      Ian and Teresa Roberts

    • Gudjon Sigurdsson, Diagnosed 2004 , MND Association of Iceland

      Gudjon Sigurdsson, Diagnosed 2004 , MND Association of Iceland

    • Imelda Arenas, ACELA, Colombia

      Imelda Arenas, ACELA, Colombia

    • Angie Bordaen, Diagnosed 2014,  ALS Liga België, Belgium

      Angie Bordaen, Diagnosed 2014, ALS Liga België, Belgium

    • Eric Von Schaumburg, USA

      Eric Von Schaumburg, USA

    • Xian-Zhang Niu, Diagnosed 2006 , Shaanxi ALS Association, China

      Xian-Zhang Niu, Diagnosed 2006 , Shaanxi ALS Association, China

    • Horacio Fritzer, Argentina

      Horacio Fritzer, Argentina

    • Osiel Mendoza, Diagnosed 2016 ,  ALS Therapy Development Institute, USA

      Osiel Mendoza, Diagnosed 2016 , ALS Therapy Development Institute, USA

    • David Bishop

      David Bishop

    • Amparo Muriel Engativa, Colombia

      Amparo Muriel Engativa, Colombia

    • Ismail Gokcek, Turkey

      Ismail Gokcek, Turkey
      ismail_gokcek_alsmnd_tr

    • Michael Lee, Australia

      Michael Lee, Australia

    • Lucy Lintott, Diagnosed 2013 , MND Scotland, UK

      Lucy Lintott, Diagnosed 2013 , MND Scotland, UK

    • Tison, USA

      Tison, USA

    • Chris McCauley, Diagnosed 2015 , ALS Canada

      Chris McCauley, Diagnosed 2015 , ALS Canada

    • Maurice Leclerc, Canada

      Maurice Leclerc, Canada

    • Philip Brindle,  MND Association,  Diagnosed 2015,  England

      Philip Brindle, MND Association, Diagnosed 2015, England

    • Yolanda Armendariz, Diagnosed 2017 , FYADENMAC, Mexico

      Yolanda Armendariz, Diagnosed 2017 , FYADENMAC, Mexico

    • Zelina Brito, Diagnosed 2018, Brazil

      Zelina Brito, Diagnosed 2018, Brazil

    • Marco Antonio Alvarez Mercado, Mexico

      Marco Antonio Alvarez Mercado, Mexico

    • Oliver Juenke, Germany

      Oliver Juenke, Germany

    Learn more about the March of Faces

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