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International Alliance of ALS/MND Associations

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      • Voice Preservation
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Open Science
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven (Off-Label) Treatments
      • Open Label Extension
      • Expanded Access
    • Clinical Care
      • Global Clinic Locator
      • Genetic Counselling & Testing
      • Genetic Roundtable Resources
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition and Swallowing
      • Occupational Therapy and Activities of Daily Living
      • Physiotherapy and Mobility
      • Respiratory Care
      • Speech Therapy and Communication
      • Support for Family & Caregivers
      • Technology
    • Approved Drugs
      • Nuedexta
      • Radicava/Edaravone
      • Riluzole/Tiglutik
      • Rozebalamin/Methylcobalamin
      • Tofersen/Qalsody
    • Drugs in Development
      • AB Science – Masitinib
      • Neuronata-R/Lenzumestrocel
      • Neuvivo – NP001
      • Prilenia Therapeutics – Pridopidine
      • Ulefnersen – Ionis Pharmaceuticals
      • BrainStorm Cell Therapeutics – NurOwn
      • Clene Nanomedicine – CNM-Au8
      • Kadimastem – AstroRx
      • ILB – Tikomed
      • Methylcobalamin
      • Oral Edaravone
      • NeuroSense – PrimeC
      • SOD1 Therapies & Trials
      • T Regulatory Cell Therapies
    • Drugs No Longer in Development
      • Amylyx – AMX0035
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      • Cytokinetics – Reldesemtiv
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Recent Posts:

    Primary Sidebar

    • Lombana, Spain

      Lombana, Spain

    • Jean Waters, Diagnosed 2004, MND Association of England, Wales and N Ireland

      Jean Waters, Diagnosed 2004, MND Association of England, Wales and N Ireland

    • March of Faces Photo Submission_ALEX_ELA ARGENTINA

      March of Faces Photo Submission_ALEX_ELA ARGENTINA

    • Guido De Mets, Belgium

      Guido De Mets, Belgium

    • Debbie Craghill, USA

      Debbie Craghill, USA

    • Christian Bär, Germany

      Christian Bär, Germany

    • Stephanie Christiansen Hall, Canada

      Stephanie Christiansen Hall, Canada

    • Purningam Jacob, Diagnosed 2012 , Asha Ek Hope Foundation, India

      Purningam Jacob, Diagnosed 2012 , Asha Ek Hope Foundation, India

    • Lucy Lintott, Diagnosed 2013 , MND Scotland, UK

      Lucy Lintott, Diagnosed 2013 , MND Scotland, UK

    • Timothy Holman, Switzerland

      Timothy Holman, Switzerland

    • Animesh Kumar, Diagnosed 2013 , Asha Ek Hope Foundation, India

      Animesh Kumar, Diagnosed 2013 , Asha Ek Hope Foundation, India

    • Maria Lucia Wood Saldanha, Associação Pró-Cura da ELA, Brazil

      Maria Lucia Wood Saldanha, Associação Pró-Cura da ELA, Brazil

    • Diana Fernandez, Diagnosed 2009 , Asociación ELA Argentina

      Diana Fernandez, Diagnosed 2009 , Asociación ELA Argentina

    • Mike Rannie,  ALS Canada,  Diagnosed 2017

      Mike Rannie, ALS Canada, Diagnosed 2017

    • Ian Gale, MND Australia

      Ian Gale, MND Australia

    • Brian Parsons

      Brian Parsons

    • Amparo Muriel Engativa, Colombia

      Amparo Muriel Engativa, Colombia

    • Irene McCaughey, Diagnosed 2011,  MND Australia

      Irene McCaughey, Diagnosed 2011, MND Australia

    • Ana María Zavala, FYADENMAC, Diagnosed 2019, Mexico

      Ana María Zavala, FYADENMAC, Diagnosed 2019, Mexico

    • Mike Small, Motor Neurone Disease (MND) Association, UK

      Mike Small, Motor Neurone Disease (MND) Association, UK

    • Karl Hughes, Diagnosed 2010 , IMNDA,  Ireland

      Karl Hughes, Diagnosed 2010 , IMNDA, Ireland

    • Joyce Rusinak, Forbes Norris ALS Center, USA

      Joyce Rusinak, Forbes Norris ALS Center, USA

    • Fabrice Kamp, Germany

      Fabrice Kamp, Germany

    • Glen Elison,  ALS Hope Foundation,  Diagnosed 2019,  USA

      Glen Elison, ALS Hope Foundation, Diagnosed 2019, USA

    • Fabio Carvalho

      Fabio Carvalho

    • Gudjon Sigurdsson, Diagnosed 2004 , MND Association of Iceland

      Gudjon Sigurdsson, Diagnosed 2004 , MND Association of Iceland

    • Ian and Teresa Roberts

      Ian and Teresa Roberts

    • Ian Roberts

      Ian Roberts

    • Francisco Perez Palop, Diagnosed 2013 , FUNDELA, Spain

      Francisco Perez Palop, Diagnosed 2013 , FUNDELA, Spain

    • Susan Keldani, Les Turner ALS Foundation, USA

      Susan Keldani, Les Turner ALS Foundation, USA

    • Timmy, ALS Liga

      Timmy, ALS Liga

    • Jean

      Jean
      jean

    • Anthony (Tony) Lynch, MND New South Wales, Diagnosed 2016, Australia

      Anthony (Tony) Lynch, MND New South Wales, Diagnosed 2016, Australia

    • Robbie Caliste, UK

      Robbie Caliste, UK

    • Jason Goodman, Les Turner ALS Foundation, USA

      Jason Goodman, Les Turner ALS Foundation, USA

    • Tammy Moore and Eddy Lefrancois

      Tammy Moore and Eddy Lefrancois

    • Alan Liz Ogg 29042016 000799 lo res

      Alan Liz Ogg 29042016 000799 lo res

    • Verónica Isabel Castro Molina, Diagnosed 2014, Argentina

      Verónica Isabel Castro Molina, Diagnosed 2014, Argentina

    • Elisabeth Zahnd, Switzerland

      Elisabeth Zahnd, Switzerland

    • Jette Odgaard Villemoes, Muskelsvindfonden, Denmark

      Jette Odgaard Villemoes, Muskelsvindfonden, Denmark

    • Liam Dwyer, England

      Liam Dwyer, England

    • Liong Ting Ngu, MND Malaysia, Diagnosed 2014

      Liong Ting Ngu, MND Malaysia, Diagnosed 2014

    • Wilfried Leusing

      Wilfried Leusing

    • Angela Jansen, Deutsche Gesellschaft für Muskelkranke e.V.-DGM, Diagnosed 1995, Germany

      Angela Jansen, Deutsche Gesellschaft für Muskelkranke e.V.-DGM, Diagnosed 1995, Germany

    • March of Faces Photo Submission_OLGA_ELA ARGENTINA

      March of Faces Photo Submission_OLGA_ELA ARGENTINA

    • Wilfried Leusing, Diagnosed 2010 , DGM, Germany

      Wilfried Leusing, Diagnosed 2010 , DGM, Germany

    • Graham Johnson, MND Australia

      Graham Johnson, MND Australia

    • Liz Ogg, Diagnosed 2013 , MND Scotland, UK

      Liz Ogg, Diagnosed 2013 , MND Scotland, UK

    • Steve Gallagher, ALS Society of Canada

      Steve Gallagher, ALS Society of Canada
      Picture1

    • MNDaSG Group PALS & CALS, Motor Neurone Disease Association, Singapore (MNDaSG)

      MNDaSG Group PALS & CALS, Motor Neurone Disease Association, Singapore (MNDaSG)

    Learn more about the March of Faces

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