• Skip to primary navigation
  • Skip to main content
  • Skip to primary sidebar
  • Skip to footer
  • Email
  • Facebook
  • LinkedIn
  • YouTube

International Alliance of ALS/MND Associations

  • Members' Login
  • Contact
  • Join the Alliance
  • Donate
  • Understanding ALS/MND
    • What is ALS/MND
    • Genetics
    • Diagnosis
    • Glossary
    • Navigating the Community
  • Find a Member Association
  • Support for PALS & CALS
    • Fundamental Rights for People with ALS/MND and Caregivers
    • Research
      • Clinical Trial Registry Accuracy and Maintenance in ALS/MND Research
      • Open Science
        • Open Label Extension
      • Expanded Access
      • Understanding ALS/MND Research
      • Improving Regulatory Pathways
      • Right to Try
      • US FDA Orphan Drug Designation
      • Unproven Treatments
    • Advocacy
      • Advocacy Toolkit
      • Emergency Preparedness Toolkit
      • Equitable Access to Therapies
      • Recommendations for Trial Sponsors
    • Clinical Care
      • Genetic Counselling & Testing
      • Mental Health Support
      • Nursing and Symptom Management
      • Nutrition, Swallowing and Saliva
      • Activities of Daily Living and Occupational Therapy
      • Muscles, Mobility and Exercise
      • Respiratory Care
      • Speech and Communication
      • Voice Preservation
      • Support for Family & Caregivers
      • Technology
      • Global Clinic Locator
    • Drugs in Development
      • Masitinib
      • NurOwn
      • CNM-Au8
      • ILB
      • AstroRx
      • Neuronata-R / Lenzumestrocel
      • PrimeC
      • NP001
      • Pridopidine
      • SOD1 Therapies and Trials
      • C9orf72 Therapies and Trials
      • SPG302
      • Regulatory T Cell Enhancing Therapies
      • Ulefnersen
    • Approved Drugs
      • Nuedexta
      • Radicava / Edaravone
      • Riluzole / Tiglutik
      • Rozebalamin / Methylcobalamin
      • Tofersen / Qalsody
    • Drugs No Longer in Development
      • AMX0035
      • Reldesemtiv
      • Arimoclomol
      • TUDCA
      • CuATSM
  • Support for Health Professionals
    • Breaking the News in ALS/MND
    • R.A.C.E. to Diagnose ALS/MND
  • Programs & Events
    • Calendar of Events
    • Global Day Calendar
    • Alliance Meeting
    • Allied Professionals Forum
    • “Day in the Life Of” Suite
    • Alliance Webinars
    • ALS/MND Connect
    • March of Faces
    • Patient Fellows Program
    • Alliance Fellows
    • SEED Grant Program
    • Awards
      • Forbes Norris Award
      • Humanitarian Award
      • Allied Health Professional Award
      • Student Innovation Award
  • About
    • Who We Are
    • ALS/MND Health Literacy Map
    • Board of Trustees
    • Councils, Forums & Committees
      • Scientific Advisory Council
      • PALS and CALS Advisory Council
      • Advocacy and Public Policy Forum
      • Research Directors Forum
      • Governance Committee
      • Finance Committee
    • Staff
    • History
    • Newsletter Archive
  • Members
    • Member Registration
    • Forgot Password

2026 AGM Information

Notice of Annual General Meeting

The International Alliance of ALS/MND Associations’ Annual General Meeting (AGM) will take place virtually via Zoom.

Date: Tuesday, November 24, 2026
Time: 9:00–10:00 am EST
Zoom link: Join the AGM on Zoom

The call for agenda items and resolutions closed on October 8, 2026.

Thank you to our members who submitted a nomination for the Board of Trustees. Nominations are now closed. The 2026-27 Board will be introduced at the AGM.

The AGM agenda, Annual Report and Financial Statements will be distributed before the meeting.

Voting

Voting at the meeting will be conducted by a show of hands from virtual participants.

The items under vote will be shared before the meeting.

Questions

The Alliance welcomes your questions in advance of the AGM. Please send them to cathy.cummings@als-mnd.org. You will also have the opportunity to ask questions during the AGM.

Proxy Vote Instructions & Form

  1. As a member of the Charity, you are entitled to appoint a proxy to exercise all or any of your rights to attend, speak, and vote at the meeting.
  2. You can only appoint a proxy using the procedures set out in these notes.
  3. A proxy must be an authorized representative of the member (no other individuals are permitted to be proxies) and must attend the meeting to represent you.
  4. If no voting indication is given, your proxy will vote or abstain from voting on the resolutions put to the meeting at their discretion.
  5. Unless the proxy appointment indicates otherwise, it will be treated as:
    • allowing your proxy to vote (or abstain from voting) as they see fit in relation to the limited range of additional resolutions which may be put before the meeting; and
    • appointing your proxy in relation to any adjournment of the meeting.
  6. Proxy appointments must be made using the form below or in writing and emailed to the Secretary of the Charity, Catherine Cummings, at cathy.cummings@als-mnd.org.
  7. The proxy appointments must be notified to the Secretary of the Charity before the commencement of the meeting.
  8. If you are completing the proxy appointment under the authority of a power of attorney or any other authority, you must send the relevant document or a certified copy to the Secretary of the Charity when you return the proxy appointment.
  9. If you wish to change your proxy instructions, you may submit another appointment in the way indicated above. The appointment received last before the latest time for the receipt of proxies will take precedence.
  10. If you wish to revoke your proxy instructions, you may send a notice to the Secretary of the Charity in any of the ways described at note 6 above clearly stating that the instructions are revoked. The revocation must be received by the Secretary of the Charity no later than the commencement of the meeting.
  11. Appointment of a proxy does not preclude you from attending the meeting and voting yourself. If you have appointed a proxy and you attend the meeting and cast a vote yourself, your proxy is no longer entitled to vote on your behalf.
  12. You may only communicate with the Charity about the meeting and appointing a proxy for the meeting using the addresses at note 6. No other methods of communication will be accepted.

2026 Proxy Form

As a member of the Charity, you are entitled to appoint a proxy through this form to exercise all or any of your rights to attend, speak and vote at the meeting.

This field is hidden when viewing the form

2026 Proxy Form

It is the responsibility of the member to determine whether the person to whom they assign the proxy is able and agrees to act in the manner described. Please ensure submission of the completed proxy to the International Alliance of ALS/MND Associations no later than November 17, 2026, at 5:00 pm ET.
Your Name(Required)
I, a voting member in good standing of the International Alliance of ALS/MND Associations, hereby appoint the following person as my proxy to attend, act, and vote on my behalf at the Annual General Meeting of members to be held virtually on November 24, 2026, at 9:00 am ET (including adjournments thereof).(Required)
Failing the person named above, I hereby give my proxy to the following person.(Required)
OR (complete only if you wish to name someone other than the above as your proxy) I hereby appoint the following person, a voting member in good standing, as my proxy to attend, act, and vote on my behalf at the Annual General Meeting of members to be held virtually on November 24, 2026, at 9:00 am ET (including adjournments thereof).
By completing the following boxes, the signing party listed below digitally confirms the proxy appointment.

Primary Sidebar

  • Hiroshi Matsuyama, Japan

    Hiroshi Matsuyama, Japan

  • Oscar Mauricio Linares, Colombia

    Oscar Mauricio Linares, Colombia

  • Shera Mukherjee, India

    Shera Mukherjee, India

  • Colm Francis Davis, Ireland

    Colm Francis Davis, Ireland

  • Andrietta, Italy

    Andrietta, Italy
    Andrietta

  • Mary Thomas, Australia

    Mary Thomas, Australia

  • Chun Ju Xiao, China

    Chun Ju Xiao, China

  • David Solomon, UK

    David Solomon, UK

  • Shay Rishoni, Israel

    Shay Rishoni, Israel

  • Lee Millard, England

    Lee Millard, England

  • Alejandro Aquino, Argentina

    Alejandro Aquino, Argentina

  • Karl Hughes, Ireland

    Karl Hughes, Ireland

  • Murat Morali, Turkey

    Murat Morali, Turkey

  • Mike Small, UK

    Mike Small, UK

  • Roy Taylor, Ireland

    Roy Taylor, Ireland
    roy

  • Natalya Rybakova, Russia

    Natalya Rybakova, Russia

  • Francisco Perez Palop, Spain

    Francisco Perez Palop, Spain

  • Jette Odgaard Villemoes, Denmark

    Jette Odgaard Villemoes, Denmark

  • Liam Dwyer, England

    Liam Dwyer, England

  • Animesh Kumar, India

    Animesh Kumar, India

  • Diana Fernandez, Argentina

    Diana Fernandez, Argentina

  • Claudette Sturk, Canada

    Claudette Sturk, Canada
    Picture2

  • Fabio Correia, Brazil

    Fabio Correia, Brazil

  • Angie Bordaen, Belgium

    Angie Bordaen, Belgium

  • Monica Soriano, Argentina

    Monica Soriano, Argentina

  • Cliff Marshman, USA

    Cliff Marshman, USA
    CliffMarshman

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Angelique van der Lit-van Veldhuizen, Netherlands

    Angelique van der Lit-van Veldhuizen, Netherlands

  • Ada Garrido Benavidez, Mexico

    Ada Garrido Benavidez, Mexico

  • Hanne Stenmose, Denmark

    Hanne Stenmose, Denmark

  • Erwin Coppejans, Belgium

    Erwin Coppejans, Belgium

  • Shaleen Latchman, Canada

    Shaleen Latchman, Canada

  • Mauril Belanger, Canada

    Mauril Belanger, Canada

  • Sanjay Kumar Srivastava, India

    Sanjay Kumar Srivastava, India

  • Len Johnrose, England

    Len Johnrose, England

  • Debbie Craghill, USA

    Debbie Craghill, USA

  • Chih Ching Darren Wong, Malaysia

    Chih Ching Darren Wong, Malaysia

  • Mona H. Bahus and Camilla Knoff Glomstad, Norway

    Mona H. Bahus and Camilla Knoff Glomstad, Norway

  • Maria Lucia Wood Saldanha, Brazil

    Maria Lucia Wood Saldanha, Brazil

  • Luis Antonio Pimenta Lima, Brazil

    Luis Antonio Pimenta Lima, Brazil

  • Leon Ryba, Argentina

    Leon Ryba, Argentina

  • Feng Gin Sun, China

    Feng Gin Sun, China

  • Wilfried Leusing, Germany

    Wilfried Leusing, Germany

  • Mikey Stone, ALS

    Mikey Stone, ALS

  • Mark Miller, UK

    Mark Miller, UK

  • Valdomiro Xavier Honório, Brazil

    Valdomiro Xavier Honório, Brazil

  • Den Haag, Netherlands

    Den Haag, Netherlands

  • Alberto Baez Murillo, Colombia

    Alberto Baez Murillo, Colombia

  • Eddy LeFrançois, Canada

    Eddy LeFrançois, Canada

  • Steve

    Steve

Learn more about the March of Faces

Footer

Stay connected to the global ALS/MND community.

Subscribe to receive our newsletter and updates on how to get involved across the Alliance network.

 
This field is for validation purposes and should be left unchanged.
  • Email
  • Facebook
  • LinkedIn
  • YouTube
Return to top of page

Contact | Disclaimer | Privacy Notice & Cookies | Sitemap

Copyright © 2026 The International Alliance of ALS/MND Associations. All rights reserved.


Registered in England: Charity Number 1079504 · Site built by graphics.coop · Powered by WordPress · Members' login