International Alliance of ALS/MND Associations

2026 AGM Information

Notice of Annual General Meeting

This is a notice regarding the International Alliance of ALS/MND Associations’ Annual General Meeting (AGM), taking place virtually via Zoom.

Date: Tuesday, November 24, 2026
Time: 9:00–10:00 am EST 
Zoom link: To be confirmed

We value our members’ input. If you’d like to submit an agenda item, please use the links below to fill out a form.

The deadline to submit agenda items and resolutions is October 8, 2026.

Thank you to our members who submitted a nomination for the Board of Directors. Nominations are now closed. Electronic voting will be sent to Alliance delegates who are eligible for voting shortly.

The AGM agenda along with the Annual Report and Financial Statements will be distributed before the meeting. 

Voting

Voting will be conducted by a show of hands from virtual participants at the meeting. 

The items under vote will be shared before the meeting.

Questions

The Alliance welcomes your questions in advance of the AGM. Please send them to cathy.cummings@als-mnd.org. You will also have the opportunity to ask questions during the AGM. 

Proxy Vote Instructions & Form

  1. As a member of the Charity, you are entitled to appoint a proxy to exercise all or any of your rights to attend, speak, and vote at the meeting.
  2. You can only appoint a proxy using the procedures set out in these notes.
  3. A proxy must be an authorized representative of the member (no other individuals are permitted to be proxies) and must attend the meeting to represent you.
  4. If no voting indication is given, your proxy will vote or abstain from voting on the resolutions put to the meeting at their discretion.
  5. Unless the proxy appointment indicates otherwise, it will be treated as:
    • allowing your proxy to vote (or abstain from voting) as they see fit in relation to the limited range of additional resolutions which may be put before the meeting; and
    • appointing your proxy in relation to any adjournment of the meeting.
  6. Proxy appointments must be made using the form below or in writing and emailed to the Secretary of the Charity, Catherine Cummings, at cathy.cummings@als-mnd.org.
  7. The proxy appointments must be notified to the Secretary of the Charity before the commencement of the meeting.
  8. If you are completing the proxy appointment under the authority of a power of attorney or any other authority, you must send the relevant document or a certified copy to the Secretary of the Charity when you return the proxy appointment.
  9. If you wish to change your proxy instructions, you may submit another appointment in the way indicated above. The appointment received last before the latest time for the receipt of proxies will take precedence.
  10. If you wish to revoke your proxy instructions, you may send a notice to the Secretary of the Charity in any of the ways described at note 6 above clearly stating that the instructions are revoked. The revocation must be received by the Secretary of the Charity no later than the commencement of the meeting.
  11. Appointment of a proxy does not preclude you from attending the meeting and voting yourself. If you have appointed a proxy and you attend the meeting and cast a vote yourself, your proxy is no longer entitled to vote on your behalf.
  12. You may only communicate with the Charity about the meeting and appointing a proxy for the meeting using the addresses at note 6. No other methods of communication will be accepted.

2026 Proxy Form

As a member of the Charity, you are entitled to appoint a proxy through this form to exercise all or any of your rights to attend, speak and vote at the meeting.

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2026 Proxy Form

It is the responsibility of the member to determine whether the person to whom they assign the proxy is able and agrees to act in the manner described. Please ensure submission of the completed proxy to the International Alliance of ALS/MND Associations no later than November 17, 2026, at 5:00 pm ET.
Your Name(Required)
I, a voting member in good standing of the International Alliance of ALS/MND Associations, hereby appoint the following person as my proxy to attend, act, and vote on my behalf at the Annual General Meeting of members to be held virtually on November 24, 2026, at 9:00 am ET (including adjournments thereof).(Required)
Failing the person named above, I hereby give my proxy to the following person.(Required)
OR (complete only if you wish to name someone other than the above as your proxy) I hereby appoint the following person, a voting member in good standing, as my proxy to attend, act, and vote on my behalf at the Annual General Meeting of members to be held virtually on November 24, 2026, at 9:00 am ET (including adjournments thereof).
By completing the following boxes, the signing party listed below digitally confirms the proxy appointment.