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International Alliance of ALS/MND Associations

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Join the Alliance

The International Alliance of ALS/MND Associations encourages all organisations involved in support of people living with ALS/MND, and other organisations with an interest in ALS/MND, to apply for membership of the Alliance.

We have three levels of membership: Full, Affiliate, and Honorary. See below for criteria, application requirements, and fees for each membership level.

Membership Criteria, Application Requirements & Fees

Full Membership

The criteria for Full Membership in the Alliance will be Organisations which:

  • Serve people with ALS/MND or related disorders with a focus on patient advocacy;
  • Are chartered in own country as a non-profit national or independent organisation for at least 2 years;
  • Have a legal constitution or by-laws;
  • Are governed by a volunteer Board of Directors (however described), elected by and/or from the membership which includes people living with ALS/MND, carers, past carers, or people closely associated with the disease;
  • Prepare an annual financial statement; and,
  • Sign and fulfill the Alliance Code of Conduct

Prospective members must submit a cover letter stating their reasons for wanting to become a member of the International Alliance, which must be accompanied by the specified information below.

Applicants for Full Membership must submit the following documents in English:

  • Cover letter
  • Proof of non-profit status in their country
  • Copy of their constitution and/or by-laws
  • List of names of the Board of Directors (however described) and Officers
  • Mission or purpose statement (most likely in constitution)
  • Written financial statement of previous year’s income
  • Copies of brochures and other materials (if not in English, then with some English translation)

The fee for Full Membership is either an amount equal to 0.2% of total annual income of the applicant organisation or £UK100, which ever is greater. At the discretion of the Board of Directors, fees can be waived or reduced for members that demonstrate need and make a request in writing.

Affiliate Membership

The criteria for Affiliate Membership in the Alliance will be Organisations which:

  • Serve people with ALS/MND or related disorders with a focus on patient advocacy;
  • Are chartered in own country as a non-profit national or independent organisation (or status pending) by July 1st of the current membership year;
  • Have a legal constitution or by-laws;
  • Are governed by a volunteer Board of Directors (however described), elected by and/or from the membership which includes people living with ALS/MND, carers, past carers, or people closely associated with the disease;
  • Prepare an annual financial statement; and,
  • Sign and fulfill the Alliance Code of Conduct

Prospective members must submit a cover letter stating their reasons for wanting to become a member of the International Alliance, which must be accompanied by the specified information below.

Applicants for Affiliate Membership must submit the following documents in English:

  • Cover letter
  • Proof of non-profit status in their country
  • Copy of their constitution and/or by-laws
  • List of names of the Board of Directors (however described) and Officers
  • Mission or purpose statement (most likely in constitution)
  • Written financial statement of previous year’s income
  • Copies of brochures and other materials (if not in English, then with some English translation)

Subscriptions are £100 (pounds sterling).

Honorary Membership

Honourary membership may be conferred on key contributors to the Alliance at the discretion of the Board of Directors for service rendered in achieving the vison of the Alliance: A World Free of ALS/MND! These key contributors can be former Board Members, Patrons, Staff or Award winners.

 

For any questions or for further information, please contact the Executive Director at alliance@als-mnd.org.

The Board of Directors of the Alliance will review applications and supporting documentation received. Decisions are made at the Board of Directors Meetings, which are held quarterly. An email will be forwarded advising applicants of the Board’s decision.

Participation at the Alliance Meeting is encouraged for prospective new members. Observer status will be granted.

Primary Sidebar

  • Mark Miller

    Mark Miller

  • Fabrice Kamp, Germany

    Fabrice Kamp, Germany

  • Brigitte Wernli, Association ALS Switzerland, Diagnosed 2014, Switzerland

    Brigitte Wernli, Association ALS Switzerland, Diagnosed 2014, Switzerland

  • David Watson, MND Scotland, Diagnosed 2018, Scotland

    David Watson, MND Scotland, Diagnosed 2018, Scotland

  • Shay Rishoni, Diagnosed 2011 - Prize4Life, Israel

    Shay Rishoni, Diagnosed 2011 – Prize4Life, Israel

  • Jo Knowlton and her dog, Scotland

    Jo Knowlton and her dog, Scotland

  • Lachlan Terry, MND Australia, Diagnosed 2015, Australia

    Lachlan Terry, MND Australia, Diagnosed 2015, Australia

  • Erwin Coppejans, Diagnosed 2007 - ALS Liga België, Belgium

    Erwin Coppejans, Diagnosed 2007 – ALS Liga België, Belgium

  • Juvenal Bayona Romero

    Juvenal Bayona Romero

  • Cath Muir

    Cath Muir
    Cath

  • Fabio Carvalho

    Fabio Carvalho

  • Dorette Lüdi, Diagnosed 2014 - ALS Schweiz, Switzerland

    Dorette Lüdi, Diagnosed 2014 – ALS Schweiz, Switzerland

  • Peng Yi-Wen

    Peng Yi-Wen

  • Timothy Holman, Switzerland

    Timothy Holman, Switzerland

  • Rolf Mauch, Association ALS Switzerland, Diagnosed 2015, Switzerland

    Rolf Mauch, Association ALS Switzerland, Diagnosed 2015, Switzerland

  • Catherine Pearce, Australia

    Catherine Pearce, Australia

  • Karl Hughes, Diagnosed 2010 - IMNDA, Ireland

    Karl Hughes, Diagnosed 2010 – IMNDA, Ireland

  • Inta Grubb, Diagnosed 2014 - MND Australia

    Inta Grubb, Diagnosed 2014 – MND Australia

  • Steven Spencer, Diagnosed 2014 - MND New Zealand

    Steven Spencer, Diagnosed 2014 – MND New Zealand

  • Chen Chun-Chin

    Chen Chun-Chin

  • Antonio Ventriglia, ALS Liga Belgium, Diagnosed 2013, Belgium

    Antonio Ventriglia, ALS Liga Belgium, Diagnosed 2013, Belgium

  • Mike Rannie, ALS Canada, Diagnosed 2017, Canada

    Mike Rannie, ALS Canada, Diagnosed 2017, Canada

  • Ann Nicol

    Ann Nicol

  • Ian Roberts

    Ian Roberts

  • Robbie Caliste, UK

    Robbie Caliste, UK

  • Oliver Juenke, DGM, Germany

    Oliver Juenke, DGM, Germany

  • Roy

    Roy
    roy

  • Wilfried Leusing, Diagnosed 2010 - DGM, Germany

    Wilfried Leusing, Diagnosed 2010 – DGM, Germany

  • Ailsa Malcolm-Hutton, Diagnosed 2013 - MND Association of England, Wales and N Ireland

    Ailsa Malcolm-Hutton, Diagnosed 2013 – MND Association of England, Wales and N Ireland

  • Mary Thomas, Diagnosed 2013 - MND Australia

    Mary Thomas, Diagnosed 2013 – MND Australia

  • Zabun Nassar, MND Association, Diagnosed 2016, England

    Zabun Nassar, MND Association, Diagnosed 2016, England

  • Irene McCaughey, Diagnosed 2011 - MND Australia

    Irene McCaughey, Diagnosed 2011 – MND Australia

  • Len Johnrose, MND Association, Diagnosed 2017, England

    Len Johnrose, MND Association, Diagnosed 2017, England

  • Steve Lufkin, USA

    Steve Lufkin, USA
    IMG_3993

  • John and Loretta Russo, USA

    John and Loretta Russo, USA
    final3878

  • Joy Blakeley, Diagnosed 2017 - MND Australia

    Joy Blakeley, Diagnosed 2017 – MND Australia

  • Kirsten Harley, Diagnosed 2013 - Australia

    Kirsten Harley, Diagnosed 2013 – Australia

  • Elisabeth Zahnd, Switzerland

    Elisabeth Zahnd, Switzerland

  • Carlos Alberto Arango, Colombia

    Carlos Alberto Arango, Colombia

  • Sanjay Kumar Srivastava, Asha Ek Hope Foundation for ALS/MND, Diagnosed 2018, India

    Sanjay Kumar Srivastava, Asha Ek Hope Foundation for ALS/MND, Diagnosed 2018, India

  • Jon Newsome, Les Turner ALS Foundation, USA

    Jon Newsome, Les Turner ALS Foundation, USA

  • Art Eggert, USA

    Art Eggert, USA

  • Angie Bordaen, Diagnosed 2014 - ALS Liga België, Belgium

    Angie Bordaen, Diagnosed 2014 – ALS Liga België, Belgium

  • Joyce Rusinak, Forbes Norris ALS Center, USA

    Joyce Rusinak, Forbes Norris ALS Center, USA

  • Orlando Ruiz, Diagnosed 2001 - ACELA, Colombia

    Orlando Ruiz, Diagnosed 2001 – ACELA, Colombia

  • Duncan Bayly - MND Australia

    Duncan Bayly – MND Australia

  • Richard Clark, MND New Zealand, Diagnosed 2011, New Zealand

    Richard Clark, MND New Zealand, Diagnosed 2011, New Zealand

  • Christian Bär, Germany

    Christian Bär, Germany

  • Maurice LeClerc, ALS Canada

    Maurice LeClerc, ALS Canada

  • Jeff Sutherland

    Jeff Sutherland
    jspic

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