The International Alliance of ALS/MND Associations encourages all organizations involved in support of people living with ALS/MND or have an interest in ALS/MND to apply for membership.
The Alliance offers three types of membership: Full, Affiliate, and Honorary. Each has its own criteria, application requirements, and fees.
Membership Criteria, Application Requirements & Fees
Full Membership
To qualify for Full Membership, an organization must:
- Serve people with ALS/MND or related disorders with a focus on patient care, advocacy and/or research;
- Be chartered in their own country as a non-profit national or independent organization for at least 2 years;
- Have a legal constitution or by-laws;
- Be governed by a volunteer Board of Directors (however described), elected by and/or from the membership which includes people living with ALS/MND, carers, past carers, or people closely associated with the disease; and
- Prepare an annual financial statement.
Applicants for Full Membership must submit the following documents in English:
- Cover letter stating their reasons for wanting to become a member of the Alliance
- Proof of non-profit status in their country
- Copy of their constitution and/or by-laws
- List of names of the Board of Directors (however described) and Officers
- Mission or purpose statement of the organization
- Written financial statement of previous year’s income
- Copies of or weblinks to brochures and other materials (if not in English, then with some English translation)
The fee for Full Membership is either an amount equal to 0.2% of total annual income of the applicant organization or £100 (Pounds Sterling), whichever is greater. At the discretion of the Board of Trustees, fees can be waived or reduced for members that demonstrate need and make a request in writing.
Affiliate Membership
Affiliate Membership in the Alliance falls within four categories:
- Emerging Associations Affiliate: New ALS/MND Associations being established or recently chartered in own country as a non-profit organization (or status pending) by July 1st of the current membership year.
- Network Affiliate:
- Regional non-profit networks of researchers and clinicians collaborating on ALS/MND
- Regional non-profit patient networks providing resources and support to people living with ALS/MND
- Non-profit neurological alliances advocating for and supporting people with neurological conditions
- Education and Research Affiliate: Education or research institutes and centres dedicated to ALS/MND that operate within a non-profit entity such as a university.
- Fiscal Sponsorship/Hosting Arrangement Affiliate: Organizations focused on ALS/MND that are not independently chartered and operate under the legal or administrative framework of a sponsoring or host organization.
To qualify for Affiliate Membership, an organization must:
- Serve people with ALS/MND or related disorders with a focus on patient care, advocacy and/or research;
- Be formally established in their own country as a non-profit organization, operate within a non-profit entity, or function under the legal or administrative structure of a sponsoring/host organization;
- Be governed directly or indirectly by a legal constitution or by-laws;
- Be governed by a volunteer Board of Directors (however described), elected by and/or from the membership that includes people living with ALS/MND, carers, past carers, or people closely associated with the disease; and
- Prepare an annual financial statement (where administratively relevant).
Applicants for Affiliate Membership must submit the following documents in English:
- Cover letter stating their reasons for wanting to become a member of the Alliance
- Proof of non-profit status in their country
- Copy of their constitution and/or by-laws
- List of names of the Board of Directors (however described) and Officers
- Mission or purpose statement of the organization
- Written financial statement of previous year’s income (only for Emerging Associations, if available, and Network Affiliates)
- Copies of or weblinks to brochures and other materials (if not in English, then with some English translation)
The fee for Affiliate Membership is £100 (Pounds Sterling). At the discretion of the Board of Trustees, fees can be waived or reduced for members that demonstrate need and make a request in writing.
Honorary Membership
Honorary Membership is awarded at the discretion of the Alliance’s Board of Trustees to individuals who have made significant contributions to the Alliance’s mission of a world free of ALS/MND. This may include former Board Members, Patrons, Staff, or Award recipients.
For any questions or for further information, please contact the CEO at alliance@als-mnd.org.
The Board reviews applications quarterly. You will be notified of the decision by email.
We encourage prospective members to attend the Alliance Meeting. Observer status will be granted.